More serious is the number of people who really do have MS but DON'T get diagnosed because their white spots get disregarded.

Chronic issues are so overwhelming that one wants to solve them but simultaneously feels they should stop doggedly pursuing the issues because it can become one’s life. I pray for everyone with these possibilities, that the right help, doctors or healing come their way. 🙏🏻

Would you consider a video on the "Top 10 Questions to Ask Your Neurologist," during an MRI follow-up Appointment? Thank-you.

Thank you so much for this video, knowledge is power. I really appreciate you taking the time to help clarify other possibilities out there.

Thank you for your time.

Very informative. Thank you for taking your time to educate us.

Thankyou Dr Reeves for sharing your knowledge , it alleviates worry.

I've been telling my Drs for years that something is going on. I have symptoms that cover multiple diseases. I suffer from migraines since I was teen and have white matter. Recently I've started having a tingly/numb sensation all over my head and face along with the joint and all over body pain that I've had for years and tingling in my hands and feet. Tests always come back fine. I suggested MS but because the MRI didn't show anything but white matter consistent with migraines they said no on that. The only thing that can get from anyone was fibromyalgia. The strange thing is when the tingling starts in my face sometimes my teeth even feel numb like I've been to the dentist.

I’m just gonna say, I love your videos. You are comical and real. Thanks. I need your knowledge.

You are so nice giving facts honestly, disseminating information doctors don't have the time to educate individuals with. I have double vision and major problems with ADL's. Thank you for being so concise. Reading medical articles becomes very difficult when I have double vision. You teach like a university professor. I was educated to be an RN and watched videos similar to this to get my degree. Thank you very much, I will include you in my prayers. 😊💐

Dr Reeves, you're such a gifted teacher. Thank you.

Thank you for this video! It's really helpful!

Good info. I have severe cramping fasciculations and they are spreading. Calves, ankle, feet, shin, shoulders, arms, hands, tongue, neck. This all started after a botched C5/C6 fusion in '08. During the worst episodes, the muscles that are affected will stiffen and cause a great deal of pain. When my hands are affected, the pinky knuckle is drawn down and inward causing a great deal of pain. Or, the muscle on the outer palm severely cramps. Usually, with my feet, my big toe is lifted and a great deal of pain follows. The most dreaded symptom is when my tongue cramps. I fall a lot. I still don't have a diagnosis.

Thank you so much for this information doctor you have given me lots to discover and peace of mind.

Very interesting !!! Thank you

I'm seeing a neurologist next week .Already had a videonystagmography and MRI. I'm 66 and noticed a change in my stride about 3 years ago. A sensation like I was being pulled along and dismissed it as the new orthotics from my podiatrist. But 2 months ago the symptoms amplified to feeling like I was walking on a trampoline or stepping into foam rubber. Also noticed an increase of weak muscle spasms in legs. Otherwise not experiencing any weakness, numbness, or pain.

Hi Doctor, I have had about five bad episodes of vertigo, in the past few years. The first episode lasted several days and I was in the hospital. In July 2021, I woke up very numb from the waist down. The next day, the numbness traveled to my chest. The next day it traveled to my neck. I drove to the ER that night, barefoot, so I could feel the pedals. I had a lumbar puncture to test for Guillian Barre, but it was negative. Also MRI done and no plaques. They treated me with IV drugs for Guillian and also high dose prednisone. Ever since then, I have extreme exhaustion! I fall a lot. I have major brain fog & concentration issues. Bladder control issues. My arms and legs have been constantly extremely numb! I am extremely exhausted! I do also have bulging and herniated discs from a car accident in 2013. I also ended up with a pulmonary embolism this past January. I’m frustrated and unable to work or live a normal life. Any suggestions?

This was very helpful. I was diagnosed with sarcoidosis(lymph node biopsy) three years ago. I have been having neurological symptoms for the past year. I am going through the fun process of medical testing to see if it is neuro sarc or something else. The more I learn, the more empowered I feel. Thank you for such an informative video.

This is a great video. Thank you for the information and how you present it in a way that is not condescending. I am going to reach out to your office for a second opinion.

Does he ever do MRI image consulting? I would be curious what he would have to say about my mri...

Thank you. Just thank you. Great information.

I recently had MRI, CT scans and have been seen by a neurologist, rheumatologist and a endocrinologist. Needless to say the tests have been abundant and I'm currently waiting results to see what certain doctors mentioned that might be M.S or Lupus being the culprit. Some of my symptoms are back and joint stiffness, numbness and nerve pain in my legs and arms with recent periods of tingling in my face, I also have large amounts of fatigue accompanied with lack of memory and focus. That being said, it took me over 15-20 minutes to write this paragraph.

Super informative and interesting

What do you mean by sudden hearing loss in one ear? Do you mean significant impairment or total deafness that can resolve itself?

I have Autoimmune Encephalitis, Undifferentiated Connective Tissue Disorder, & AntiPhospolipid Syndrome. My docs thought I might have had MS when I came in for diagnosis at age 14... This makes sense now. I have never heard of a 14 year old with MS. A lot of my neurologic symptoms are so similar to MS. Thank God I do not have it. And I thank my doctors at Duke hospital in Durham NC for being amazing medical professionals.

I had one of the 2 cases of bacterial Meningitis when I was 15, the other case was on the military base. Thankfully I fully recovered but now I'm having similar symptoms but no one can give me a straight answer.

Thank you so much for the really thorough explanations of symptoms and possible related diagnoses. I have Fibromyalgia Syndrome and it is a monster. I choose to manage it with diet changes, supplements, exercise as tolerated, breathing and meditation, cannabis products for pain. I still have Fibromyalgia but Fibromyalgia doesn't own me. Again, thank you for sharing your wonderful and interesting knowledge of these complex chronic illnesses. 💕

Thank you for the detailed information. I’ll keep it in mind as I go through MS testing at Barnes Hospital in St. Louis

Thank goodness for KZfaq, Thank goodness for this girl's funky dabbing dad. This video is pure knowledge. I was about to go down the rabbit hole and see MS in everything but now I know that it's a lot more complex than that. Now I can chill and just find out more about what I didn't know.

Where in Minnesota do you practice, or what clinic are you associated with?

This is really interesting, thanks! I'm curious how you decide what tests you would run to make sure you're not just jumping to MS and missing another dx. Related to that, what process do you follow in order to not automatically blame every single symptom a patient may have on the MS? I find in my experience, doctors just want to call anything that looks remotely like MS just MS, and not test for anything else. And then everything that comes up must be caused by the MS. I mean, maybe they're right. But maybe not.

First relapse left me permanently blind in my left eye due to ON. Was severe sudden onset (within a day) - this was 2 weeks after a C19 infection. Now almost 1 year officially diagnosed with MS. MRI found dawson's fingers and one or two spots on the spine. Could C19 cause/trigger MS or even lead to inflammatory damage in the CNS?

Wonderful video Dr. Reeves!! I live in Minnesota too (born and raised here!). Are you still practicing here and if so, are you accepting new patients? I would love to have you for a neurologist. I just subbed to you channel! 😊

I have had MS symptoms for 4 years. Tested positive for sjogren's instead. I saw a quick little pop up about that on your video. Could you possibly make a video about sjogren's? There isn't a lot of information about this disease. Thank you!

Hello Doc, is there a way to do a consultation with you? Greetings from Italy

I had a brain scan 5 years ago and it showed a bunch of small lesions in my brain, and then I just had one a couple months ago I'm now 54, the first one I was 49. the problem I actually have is a disease called CMT type 1A which kind of can mimic MS the demyelinating of all the nerves , spinal cord and so on. lately I've had really bad incontinence. and I was wondering if Ms and CMT type 1A could be so similar that they would be confused because my doctor when I had the lesions she sent me to a neurologist he was an idiot and he didn't even hardly spend any time with me he just made me draw some pictures and a clock and some other things and he never even addressed my CMT. but he didn't even rule out Ms either so I do have another appointment with a neurologist do you think you could make some suggestions on some questions that I should ask so that they could be ruled out because like I said my GP keeps trying to lean more towards the MS instead of my own disease which I have been genetically tested and it definitely is CMT type 1A but I do have other issues I have hypothyroidism I had mono and Epstein-Barr virus fibromyalgia bradycardia sleep apnea just a litany of crazy things that are going on with my body my autoimmune diseases are attacking me I just had my gallbladder taken out cuz it wasn't functioning at all. and I'm going to go on the autoimmune protocol diet and I was just wondering like I said if you could suggest some questions that I could ask the neurologist.

I was misdiagnosed for years with MS, and languished in an MS clinic, until my skull began to deform. I went to another hospital’s neurosurgical clinic, where I was found to have an end stage brain tumour. Had a craniotomy, with a titanium mesh plate used to replace the damaged cranial bone. 25 years later, I developed two new brain tumours; both locations under the huge cranial plate, so craniotomy was ruled out. I was given cyber knife treatments, which caused severe brain swelling. I now have progressive neurological deterioration. Underlying all this, I have suffered since early childhood from the after effects of a viral infection, which had caused severe headaches and backache, and left me with a weak, spastic leg and epilepsy. It sucks!

What do you recommend for someone who has been tested (MRI) for MS 4 separate times, years apart, at the recommendation of 2 different doctors, because the symptoms are there? "Inconclusive" results each time. Very frustrating, because in the end, all I walked away with is thousands of dollars in medical bills and a prescription for Xanax. I just want to cry when I think about it. Numbness and tingling in back, legs and arms. Muscle strength in hands and upper body disappearing. Vision and balance problems. Foot drop. Vibrations in chest, and band of tightness around upper torso.

Dear Dr. Reeves, what a wonderful video, thank you! I was diagnosed with MS a few years ago. I was gradually declining, all my symptoms were bilateral, felt like my body was shutting down. A year ago, completely by chance, i started injecting b12. My symptoms started tp drop off like flies, starting the very same day i had the first b12 injection. What would you recommend to have the MS diagnosis looked at again? Any useful tests? Thank you!

Doctor, can you please share the type of cane you have? My mother has diagnosed Ankylosing Spondylitis by her Rheumatologist but her Neurologist suspects MS as well. Her walking has become terrible over time (couple of months) and she says she feels her walking stick is too short, so I’m thinking of a taller straight cane for her because she’s walking better with a broomstick 🧹 lol. Her MS testing is on hold due to the pandemic. Thank you for an interesting video! ♥️

Liked the video JUST for that Dab you did at the beginning lmao

Dear Dear Dr. Reeves, I have for the last 7 years been trying to receive a diagnosis , I have had maybe 7 MRI, 2 spinal tapes, 3 EEG (sleep and video) and the list goes on and on. In the beginning they thought limbic encephalitis , CNS , demyelinating disease of CNS, for the past and for the 4 years m/p MS. I am not really receiving any specific treatment. Last MRI white matter did not really change that much, but there is a new lesion. I will be having another MRI, just to rule out that it was not an artifact? In the meantime I am slow going down hill! Do you see patients? I am currently abroad, but would very much like to come home for help.....From my heart to yours......is there a way to speak or fly to US to see you? I hope that you see this, as I see that you posted this 3 years ago. I would however like to thank you for your post and smile!!! Blessings to you and your family!!!

What about spots on the neck cervical spine? What other causes can mimic that if it’s not MS? I have Hashimotos but Drs are not pointing to that.

Hello. I noticed you said something about meth. I know someone who was recently diagnosed with MS but two days before their first “flare up” they ingested some cocaine. Pretty sure the drug had something to do with the flare up whether its MS or not. If they had positive bands in their spinal tap does that for sure mean MS?

Is it possible to have secondary progressive ms and antiphospholipid syndrome together? Am I greedy or just unlucky?

I have white spots but ms was ruled out. I have been diagnosed with fibromyalgia and cfs/ me but my neurologist says that I have a brain function problem but with no explanation why. I have many of the same symptoms of ms

I suffered from MS symptoms for almost a year before finally realizing on my own that it was connected to gluten. I went gluten free, and it cleared up within a week. If I cheat on my GF diet, the symptoms come back. I went through countless tests and doctor's appointments and not one of them recommended an elimination diet to see what was triggering symptoms. I was desperate, so gave it a try and am so glad I did! I went from walking with a cane and not being able to sign my name because of tremors to being completely "cured" all through diet.

My only symptom is weird numb spots (tingling but feeling is not gone) on my skin usually about five inches in size on a leg, on an arm, on face, on my back all at different times

UCTD is that often confused . Scared to get this MS rules out and too many autoimmune disorders like Hashimotto UCTD and a post it I’ve smooth muscle antibody test .. all booked up here . Is it important to get me ruled out . ? Plated a little full. Thank you for the great information Doctor

I have been suspected of MS for years, but it isn't! I have all the symptoms but, my diagnosis now is, C.A.N,V.A.S. syndrome. It was only discovered a few years ago. Thanks for the video.

The sle lupus flares I been having has been making me have all of these MS like symptoms I hope I don't have it, I been having burning sensation and numbness and tingling in my legs for months with weird eye pain and some blurred vision, I went paralyzed for an few seconds and hit the floor hard when I got out of bed one time I'm still freaked out about it. I see an neurologist next week.

I initially thought I had MS, because my mother has been diagnosed and my symptoms mimicked hers. But unlike her, it has not shown up through any MRIs and the lumbar puncture. I really wish I knew what it was though since this is debilitating.

I will be seeing a neurologist in a few months for ms like symptoms, but I can't have an mri due to having metal in my body. I'm just curious if legions can show up on a ct scan? If not, what other tests can they do to find out what is wrong with me? I've been dealing with this for years, and it's so frustrating. Thanks.

Hi there, thanks for a really interesting and entertaining video. I was diagnosed with lupus 16 years ago. (it's a family curse ) had the usual mono first then developed discoid lupus which a biopsy confirmed as S.L.E. fortunately symptom free after that until 13 years later. Got joint pain, numbness stinging burning sensations. bladder issues. exhaustion. brain fog etc. . . saw a rheumatologist who said that because bloods were ok it wasn't lupus. she pressed bits of my body and because I hurt all over said I'd got fibromyalgia. So I obviously don't feel like I have been properly diagnosed. Therefore I feel I am not receiving the right treatment. I have a hunch it's lupus related but if the blood work is clear (bar auto immune issues with my thyroid ) I am left thinking I want to see a neurologist. I am being told no because of the fibromyalgia label. Have you any suggestions as to how I get around the doctor to get me a referral? Many thanks 😊

Could this be a MS? “A few tiny non-specific T2/ FLAIR hyperintense foci seen in the periventricular white matter of the left frontal lobe.” It’s my MRI report 6 months ago and my Dr said it’s nothing. I went to him because of pins and needles pain left side of my body including my head. Along with other things i feel i cant tell if it’s related to or not. Im also having weird pulsing in back of my head. I’m 33 years old

I have Hydrosephalus. I'm 30 years old. lots of similar symptoms. Except for the slighty larger head

What of you have neurological problems white spots in the brain and in the spine? Have had numb hands for a year and symptoms for years here and there?

Can white matter issues also result from migraines? My only symptom is a persistent dizziness that usually happens after a headache. I had two small lesions that showed up on my MRI. I'm terrified to have a follow up one.

So I had exactly that scan with T2 flair, I’m 31 years old and I have other symptoms after a +LOC trauma. My doctor told me all my symptoms and pain is all mental and I need therapy.

I know I may be asking this a little late considering this video is a few years old. But would Raynaud’s have an effect on the results of an MRI? I was diagnosed with Raynaud’s when I was a kid. I’m now 44 and been having multiple symptoms for at least a decade now that really resemble MS symptoms. I’ve been trying to figure out what’s going on for years now but it’s a daunting task especially when you feel terrible. I just had more blood work done but haven’t gotten any results yet. I know my ANA readings were up & down for a few years. (I quit going to the doctors for a while because it was just too much especially when I couldn’t get any answers. However it’s gotten worse & I need answers! I don’t live anymore I just exist.) I have an MRI scheduled in a couple weeks & i’m just starting to realize how nervous I am about it. I’m nervous that it will come back showing signs of MS & I’m nervous that it won’t show anything! I’ve spent too many years just existing. If it’s not MS Great! But then I’m back at square one trying to figure out what’s really going on with me. Navigating the medical system by yourself when you have no energy, can’t think, & are constantly in pain is sooooo overwhelming!

A lot of people in my HNPP support group were misdiagnosed with MS before getting genetic testing. I’d love to hear you give a talk on HNPP if you are versed in it. It can be a very severe disease, and most doctors just brush us patients off and minimize our neuropathy pain.

Any idea what could cause gradual vision changes, hearing, swallowing, and memory issues with micro hemorrhages on the mri?

Can stress bring on MS like symptoms? Every time my stress level gets to an unpleasent level, I get odd symptoms. I woke up one morning and my leg was paralized. This went away after about a week. Now, I'm getting jerky and I'm vibrating and forgetting stuff alot.

Hello Doctor, I had covid in July 2022, and recovered just fine. Then in Sept I started having severe fatigue, insomnia for 6-7 weeks along with 1 episode of low blood sugar. They did all the work up for low sugar, and everything came back normal. In the meantime I had developed tingling in my face,both hands and feet. Along with these vibrating sensations in my back both arms, both feet, tremors,and occasional twitching. I also get this ant crawling sensations in both arms mainly. I feel really weak somedays. When I lay down at night I fee like my whole body is vibrating. So far my pcp said its probably post covid symptoms. What do you think? Or could it be something else?Should I go see a neurologist? These symptoms still ongoing as of today. My vitamin D& B12 levels are fine. Are you seeing pts like these since covid happened? Hope to hear from you.

I'm having MS symptoms like muscle spasms and cramps, spasticity, tremors, and urinary problems at one point. I know there could be other causes for these symptoms so that's why I'm here while I wait for my neurology appointment.

Is shingles ever associated with outbreaks?

Bucket? Yes indeed.lesions on spine? Idk....spinal shock and a few others. Possibly tether cord.. So here's the thing..i have something not getting better. It's not seen as a real diagnosis except one. Tethered spine. However it hasn't yet relieved the tingling and the burning or cold feet. I go back for more doctors but am weary from 16 months of this. I had spine correction yet still don't know. Suggestions?

Dr Reeves I really wish you were in Australia- I have a weird neuro thing going on and I just keep being told to wait and see what else presents. Two neuros and a mds. I’m over it. Nearly two years now.

I am wondering what borderline Multiple sclerosis is?? I don't know but, I feel very strange like right now I'm having this you with walking my left leg feels like it's nami so it's hard to bend at the knee.. It's things like stress affects me more than most .. And I'm just wondering if my body could be stress to the point of it failing and if my adrenal glands could be effected.. I go see a neurologist next month to find out what the problem Could be... Help!!! 🙋‍♀️

Doctor I am so glad to come across your video. I’m anxiety ridden over my 24 year old son who just recently was in the hospital with what appeared to be a TIA. He is considered quite an athlete and takes good care of himself. He eats clean and exercises on a regular basis. He doesn’t smoke drink or do any kind of drug. He takes no medicines or supplements. He had a momentary moment of body weakness followed immediately by whole face numbness(including tongue) which quickly turned to just right side of face numbness with impaired speech. Whole episode lasted perhaps 10-15 minutes. MRI shows 2 spots (3mm and 5 mm )of low attenuation. All other tests normal. Doctors are perplexed. Any advice?

I'm 26 and had an MRI last year when I experienced sudden sensorineural hearing loss. My hearing came back after a steroid injection, but there were small non specific white matter lesions found on my brain. The ENT said given my age it could be MS. Could white matter lesions occur for no reason at all?

I contracted Lyme and Babesia but am told I have PPMS. Last MD says former produced latter. I am unsure. Ocrevus didn't do that much. My balance is virtually non-existant still, only my ability to stand up slightly better.

As a gulf war veteran 1990 I was diagnosed with MS ten years ago.. could this be gulf war syndrome mimicking MS ...

Dear Mr Reeves, I am a 71 year old female and for the past 9 weeks have burning on both feet to the extent it bothers me at night. I do have some of the MS systems but not diagnosed with it. I have a brain with dye happening soon and also have B12 deficiency. The burning affect on both feet flared after a fall 9 weeks ago. I do get double vision when focusing on youtube. I have had vaculitis and itching of skin very annoying indeed. Bladder and bowel issues. Due have problems with spine as well including neck. Is there any information you can give me or questions to ask my doctor. Thank you.

what about alot of the symptoms but mri shows black spots begining with 5 and 7 yrs later have many more black or dark spots. could we be looking at m.s. thanks lynn

Sir I was diagnosed with b12 deficiency which was below 50. I had slight slurred speech that's when a MRI was suggested and two white lesions in my brain was found Doc said it was MS. Is it possible it may be due to extreme b12 deficiency

Dr, do you talk about CFS/ME in your videos? 🙏

I have ms and I know people who do and yes symptoms can come on quickly. Especially with influencing factors such as heat or stress or infection. I have had symptoms since I was 30 and spots on my brain since. I was ex with ms in 2015 . I am now 51. 4 doctors agree I have ms . 3 doctors do not. My symptoms went on for over 6 months 2 and half years ago. They have since cleared up but have left short term memory issues and other symptoms. Strokes were ruled out. A neuro psych doctor dx me with relapse remitting ms 2 and half years ago and said I would benefit from ms drugs. I would be curious to see what you think doctor. Whatever is happening has more than once effected my quality of life.

Wouldn't my lumbar puncture have checked all those things? My Dr said that the lumbar puncture was to check for MS and it's mimickes. The results were negative for everything except "banding" which my Dr. Said is equivical. I am stuck with no diagnosis. Neurologist wants me to have another MRI but this time with contrast. I don't understand why. The Regular MRI showed lesions. I have read about people getting very sick after contrast so it doesn't seem worth the risk to me.

how do i find out if this is what i have

I have a question; Can M.S. affect the parasympathetic or its counter part system(s)

I have had everything else ruled out yet I’m having trouble getting approval for thoracic and brain mri. I have numbness and tingling all over my body.

Are you talking about blood mutations like MTHFR and Celiac Disease which a neurological disease, not just disgestive?

Hi Dr Reeves, please please reply to my comment, I am in big dialema. Actually since last one and half year I feel burning sensation in my right thigh intermittently that last for 15-20 seconds and goes away with little movement, it does not occur every day, and happened only for particular standing and sleeping position. I did the contrast spinal and brain MRI which came normal, The result of evoked potential test also came negative. I am still having doubt of having MS, what's your thought on this?

Dr. Reeves, I have Arachnoiditis. I've had falls, numbness, feelings as if water is running through my legs, eye twitches, horrible leg cramps, and bladder issues. I've not had a full MRI, and the last one I had they couldn't figure out and said lumbar radiculopathy. I would like to have a full MRI, but the local neurologists don't even want to see me once they hear "arachnoiditis ". This is becoming increasingly painful too. Any words of advice as to a course of action? Thank you. 🙂

Well im more confused than ever! Why i have sudden attacks of bilateral leg paralysis that hits at any time with excruciating pain up to my waist ????? Im at a loss!

What if you have many symptoms of ms, neurologist told me that's most likely what it is, then did a bunch of tests and ruled out many things but I can't have an mri. So then he told me I don't have ms. So got diagnosed with nothing. Now what?

Idk what I have yet, but I’ve had paresis in my legs for 6 hours one day and for the next 3 days my legs were weak and painful to walk on, I constantly have fatigue, brain fog, and feeling my brain is on fire. What diseases could result in this?

Hi, I've been experiencing remitting/relapsing symptoms 0n and off for years. I have a question, I'm booked to see a neurologist next month is it better for me to wait and see the neurologist when my symptoms at it's worse? Just at the moment, I appear to be in remission. Thank you

Hi Doctor. I’ve been avoiding seeing a specialist for years, but I’ve been having symptoms that I can’t ignore anymore. My symptoms are I have many achy joints, constant achiness, elbows, hips, knees mainly. I get dizziness- two kinds. A vertigo like sensation that seems from my inner ear that comes and goes. Almost always, every time I stand from sitting, or bend over and stand back up, I become short of breath and see stars. I have fallen a few times. It’s really hard when I’m at work because of this since it is very physical. The symptom that I just can’t take is I get so weak lately, some days I feel like I can barely walk. Like I’m very heavy. Also to note, I’m very flexible. I was recommended to see a rheumatologist, but do you think I should see a neurologist?

When you say you left out chemicals like meth, to what are you referring? I am a recovered addict snd have been clean for 4 yrs. I have just been diagnosed with MS and I’ve always felt the effects of meth caused so much damage. Are you suggesting meth could cause damage that mimics MS?

I wish you had talked more about ADEM... Is it chronic? Is it actually considered multiple sclerosis by some neurologists?

What would you think if a patient presented the following symptoms: Myokymia of left upper eye lid for seven months, muscle twitches and spasms of the arms, legs, and back. Internal deep muscular itch in armpit and bicep as well as scalp and face, tingling in back near spine on both sides, deep and at times radiating pains in hands, arms, legs, and trigeminal region (not joints). Fatigue and cognitive disruption? Symptoms will be present for up to two weeks then normalize until they return 4-5 months later. (Excluding eye twitch, that is constant.) No vitamin or magnesium deficiency, negative lupus, no lyme, and negative epstein barr virus.

*Dr. Reeves, I truly hope you can answer this. I was diagnosed with lupus about 20 years ago. Type II diabetes about 5 years later. My blood tests are run almost every 6 months to see what my A1C is, as well as, Anti-ANA, & ANA, etc. Something VERY weird has been going on with my body. A month ago, I went to bed, still half awake....I thought it was a tremor due an earthquake. After 10 seconds, I sat up, & realized it was my body vibrating very quickly. It continued for almost 2 more minutes. I didn't know what to think. It has happened about every 5 days, only when I lay down to go to sleep. I'm also usually on my back when that happens. My body is not shaking, it is a very fast vibration from my head to my toes, completely engulfing the inner being of my body. And I realize you are not my doctor, however, I would just like to know what you think about this. I also would like to mention the fact that I have had very bad problems with my balance and just walking for the past year. I have degenerative disc disease, and I also have spinal stenosis. The vibration thing is really bothering me as far as making me constantly worried. I will not be seen a doctor for at least another 30 days. I'm in my 50s. Thank you very much for your time. Have a beautiful day.*

I have all the symptoms of ms including white spots on the brain macular degeneration and sle. My legs look like twigs I am pale and my pancreas has a tumour on the lower portion and the rest has atrophied, doctors don’t really treat anything any more . I have a lot of specialist Nd if not for my go I’d be left without any treatment for rain or sle . Thank you btw it’s taken at least ten yrs for all my symptoms

I was tested for MS in 2009. I had all these tingling sensations in my feet and sometimes face. MRI was normal. Except I had a the start if Chiari Malformation. The tingling lasted for a year or 2. And happened every now and again but would always go away. Now it’s happening more and more again just like in 09. I was tested for Lupus and Lyme B12 Deficiency...all negative. I am feeling tingling almost all the time now. Am debating on getting another MRI again.

I’ve been twitching and getting bad headaches out of nowhere and my vitamin D is Lvl 13 so it’s very low. Idk but I’ve been freaking out that it could be MS

Can any of the diseases you mention cause protein levels in the spinal fluid to increase but have normal levels of protein in a blood test?

What about lyme disease attacking the nervous system? Edit: Oh, haha, shoulda kept listening before I commented. He just mentioned it.

Here goes, Posting this here because I know some of you do research and think I may have stumbled upon a very important insight concerning the etiologies of various neurodegenerative disorders and maybe degenerative disorders in general. I’ll cut to the chase and ask the question and then explain how I got to the hypothesis. It is: Is it possible that distinct neurodegenerative and musculoskeletal degenerative disorders are in fact be specific symptom complexes that correspond to dysfunction of specific substructures of the cervical ganglia which subsequently alter certain functionalities of the choroid plexus and have downstream effects on the basal ganglia and spine? A recent medical situation in my life prompted me to conduct some personal research to better understand my condition. As a result, I became familiarized with the dynamics of a specific system of structures in the body that, if better understood and regarded as a unified whole, could potentially shed a brighter light in the etiologies of degenerative disorders. Essentially, my research led to make connections between three structures in the neck and head: the cervical ganglia, the choroid plexus, and the basal ganglia. A few observations became key in developing this idea about cervical ganglia involvement in degenerative disease. The first had to do with the basal ganglia. Basal ganglia dysfunction can cause a dearth of dopamine in the brain and subsequent cluster headaches and Parkinsonism/movement disorder symptomatology. This structure controls voluntary movement in the body and so in the case of movement disorders, it is usually the culprit. The question then becomes what is the fundamental cause of this dysfunction? jamanetwork.com/journals/jamaneurology/fullarticle/784785 Thinking about a specific syndrome called Eagle’s Syndrome which often presents with symptomatology similar if not identical to that of neurodegenerative/movement disorder. Eagle’s Syndrome is an abnormal ossification and elongation of the styloid process at the base of the skull that interferes with the cervical ganglia and carotid arteries in the neck and creates symptoms. actascientific.com/ASDS/pdf/ASDS-02-0202.pdf I wondered if superior cervical ganglia dysfunction could have downstream effects on the basal ganglia and cause disorder. So I began to attempt to understand the dynamic relationship between the cervical and basal ganglia. I began to look more closely at the cervical ganglia, in particular the superior cervical ganglia. This structure innervates the eye, parts of the face, the throat and sinuses, stimulates mucous production, has a part in regulating heartbeat (an aside: the disruption of the cervical ganglia when an Eagle’s Syndrome sufferer turns their head can result in panic symptoms: palpitations, dry mouth, gagging, so this could be a tool when thinking about mental heath physiopathologies as well), and also found that it is the only peripheral structure that sympathetically innervates areas of the head and brain. In particular, it innervates a structure in the brain called the choroid plexus. This was the next bridge on my way to the basal ganglia. en.wikipedia.org/wiki/Superior_cervical_ganglion The choroid plexus and found that it has a few very important functions: 1. To release transferrin that promotes iron homeostasis in the brain 2. Send agents to bind with antibodies to be flushed out of the system when infections are resolved and 3. Stimulate production of cerebrospinal fluid. That all struck me as fairly promising. en.wikipedia.org/wiki/Choroid_plexus I started with antibodies and found articles about post-infection movement disorders (specifically PANDAS, about which there is now literature about non-pediatric cases) where it is shown that sufferers have anti basal ganglia antibodies. www.ncbi.nlm.nih.gov/books/NBK333433/ It struck me that if a substructure of the cervical ganglia that innervates parts of the choroid plexus that promote production of antibody binding agents is dysfunctional, an infection could very well trigger an indefinite autoimmune response, attacking the basal ganglia and other systems. Some neurodegenerative and degenerative disorders like MS are thought to be autoimmune, and disruption of the cervical ganglia and subsequent introduction of infection could precipitate an indefinite autoimmune response. Symptom progression might depend on the nature of the ganglia dysfunction (if it is ongoing, say, due to injury and resulting occlusion, or intermittent, say, due to Eagle’s Syndrome, in which turning the head causes ganglia disruption), theoretically accounting for the different subtypes of MS. www.nationalmssociety.org/What-is-MS/Definition-of-MS/Immune-mediated-disease I also had the thought that if iron deregulation in the brain could be caused by dysfunction of a specific substructure of the cervical ganglia and subsequently the choroid plexus, maybe iron irregularities in the basal ganglia would be observed in sufferers of movement disorders, and sure enough, it’s observed in most, if not all of them. At this point I felt like I was really onto something. www.ncbi.nlm.nih.gov/m/pubmed/22266337/ And then a thought occurred to me: what if the first domino to fall in the etiologic chain of ALL of these degenerative disorders begins in the cervical ganglia? This could be why there are peripheral nervous system symptoms that manifest early in diseases like MS (the cervical ganglia innervates the eye and throat and heart, so vision dysfunction, dysphasia, heart rhythm problems etc would be some of the first symptoms you’d expect to see in this etiologic formulation). I’d seen papers talk about a corticothalamic basal ganglia circuit, but not much of anything about the cervical ganglia or choroid plexus, and I thought, “maybe the cervical ganglia is part of that circuit, affecting it indirectly but very profoundly.” Not everyone who suffers from degenerative diseases would have Eagle’s Syndrome of course, but maybe there would be occlusion/tortuosity of the ECA or cervical ganglia, or maybe a trauma shifted their positions leaving the cervical ganglia susceptible to injury, or maybe genetic degenerative disorders’ gene expressions simply omit instructions for certain substructures of the cervical ganglia to form and subsequently instruct the choroid plexus. So the idea is, if there are three main tasks of the choroid plexus, then there are seven combinations of those tasks (1; 2; 3; 1+2; 2+3; 1+3; and 1+2+3), and there are two ways for each of those tasks to dysfunction (over-firing or under-firing, although I’m not exactly sure about this detail), then each combination of simultaneous or sole dysfunction of cervical ganglia substructures which correspond to areas of the choroid plexus that are involved with completion of one of these three tasks would represent a distinct symptomatology-i.e., a distinct degenerative disorder. Important to note is that for antibody binding dysfunction due to lack of transferrin to become part of a neurodegenerative symptom complex, it may require an initial infection of a certain type to kick-start an autoimmune response strong enough to manifest in this way. In my reading about PANDAS I came across mention of “molecular mimicry,” and I thought maybe it was possible in the case of infections that feature such molecules, and in patients that have cervical ganglia dysfunction, that since the infection that the immune system (now totally unchecked by transferrin-aided antibody binding) is targeting resembles healthy structures in the body that all of these factors compounded could lead to ongoing destruction of healthy body tissue. It may be the case that I’m off base, or there are ways to easily prove false all that I’ve said, but I don’t know that. That’s why I’m posting, because in the unlikely event that this is not totally crazy, and might actually be plausible, it will be in the hands of people who can do something with it. A theory is judged by its explanatory power, and to me, this one seems to explain a lot. Could it be the skeleton key that unlocks understanding of these diseases and leads to new treatments and potentially cures? Is it simply that the cervical ganglia needs to be attended to more intensively when these disorders manifest? According to the literature, somewhere between 80-95% of Eagle’s Syndrome patients who undergo styloidectomies have complete cessation of symptoms. If I am right about the cervical ganglia’s role in degenerative disorders, and some of these patients’ styloid process was in contact with their ECAs and cervical ganglia, the neurological symptomatologies that presented may well have progressed into full-blown neurodegenerative disorder if left unaddressed. It could very well be the case that these successful surgeries represent instances of the curing of previously thought to be incurable neurodegenerative conditions. But again, Eagle’s syndrome merely represents one mechanism of action that could cause cervical ganglia dysfunction. I’d appreciate any response, even if it’s to tell me why I’m off base. I hope you’ve read with an open mind, and were willing to ask yourself “what if?” So, the question is: is it possible that superior ganglia dysfunction is the primary etiological feature of a host of neurodegenerative disorders? That this could be a unifying theory?