New wheelchair bag

  Рет қаралды 4,786

ParentXP

ParentXP

2 жыл бұрын

I got Elin a new wheelchair bag, a Medipaq Deluxe which I ordered from Amazon: www.amazon.co.uk/gp/product/B... (not sponsored or affiliate).
Vlogged a Sunday afternoon in which I was pottering around at home tidying up and preparing for the new school week.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp

Пікірлер: 27
@brendalevesque7767
@brendalevesque7767 2 жыл бұрын
Nice to see Alice back to her usual bouncy self! That new bag looks a good size for all Elin’s school needs. She looks like she’s going away for the weekend.
@ParentXP
@ParentXP 2 жыл бұрын
Every day. That wheelchair is a packhorse 🤣
@lauralie9658
@lauralie9658 2 жыл бұрын
I watch several vloggers and I am always amazed at the love and support. I often wonder what makes people think they can be nasty to everyone with there rude comments. People we are all human who bleed,cry and get sad please people behave yourself. Tova is a good woman who is trying to be a good mum. Support with kind words always is good. Enough said.
@ParentXP
@ParentXP 2 жыл бұрын
Thank you 🤗
@laibahhussain1694
@laibahhussain1694 2 жыл бұрын
Evening to you all
@maddielangdell6496
@maddielangdell6496 2 жыл бұрын
The new bag will be so much better
@ParentXP
@ParentXP 2 жыл бұрын
I hope so
@bencaldecott6583
@bencaldecott6583 2 жыл бұрын
Hey. Thats great to replace the wheelchair bag. Cute doll.
@ParentXP
@ParentXP 2 жыл бұрын
Thanks Ben. Hope you're well.
@cerealfibre6938
@cerealfibre6938 2 жыл бұрын
Aww, Alice has grown a little.❤❤💕💕💞💞💓💓💋💋
@ParentXP
@ParentXP 2 жыл бұрын
A lot, she's grown a LOT!!! 🤣😍
@cerealfibre6938
@cerealfibre6938 2 жыл бұрын
@@ParentXP She certainly has.😊😍🤩
@mathieuleader8601
@mathieuleader8601 2 жыл бұрын
nice sophisticated looking bag very swish
@ParentXP
@ParentXP 2 жыл бұрын
Thanks Mathieu
@TheNordicharps
@TheNordicharps 2 жыл бұрын
Hugs to you all and to Dolly Sally from Auntie Sally in Sweden
@ParentXP
@ParentXP 2 жыл бұрын
Aaah, I was hoping Auntie Sally saw this video. I was gonna send you the link otherwise.
@TheNordicharps
@TheNordicharps 2 жыл бұрын
@@ParentXP ❤😘
@laibahhussain1694
@laibahhussain1694 2 жыл бұрын
She very very good girl is your older daughter
@ParentXP
@ParentXP 2 жыл бұрын
Most of the time she's pretty chilled 😃
@shanicelouisephillips5205
@shanicelouisephillips5205 2 жыл бұрын
Where did you get that wheelchair bag from
@ParentXP
@ParentXP 2 жыл бұрын
From Amazon www.amazon.co.uk/gp/product/B07CZLMRPF/ref=ppx_yo_dt_b_asin_title_o00_s00?ie=UTF8&psc=1
@tiffanispiker8886
@tiffanispiker8886 2 жыл бұрын
Sally is cool ; she looks like Elin with her own feeding tube for Alice to play with. Does Alice speak another language like you or just one?
@ParentXP
@ParentXP 2 жыл бұрын
Alice and I turned Sally into a tubie baby just before Elin's surgery. kzfaq.info/get/bejne/iJl7freC2N2mp5s.html Alice understands Swedish but only speaks a few words
@tiffanispiker8886
@tiffanispiker8886 2 жыл бұрын
@ParentXP that's awesome! My little brother Noah was a tubie when he was really little. He barely ate anything by mouth when we got him at 11 months old. If I didn't know he was 11 months I would have thought he was a newborn baby. He weighed 11lbs. But he also has a growth hormone disorder. Noah is now 15 and the size of an 8-year-old. Hopefully, we can get him on shots to help him grow.
@ParentXP
@ParentXP 2 жыл бұрын
Sounds like Noah is a fighter and that he found a good tribe to fight alongside him 🥰
@tiffanispiker8886
@tiffanispiker8886 2 жыл бұрын
@ParentXP our whole family is adopted. And we joke around with Noah and say he's our Walmart baby since our parents picked him up at Walmart.
@laibahhussain1694
@laibahhussain1694 2 жыл бұрын
Hi hello how are you
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