Exactly. Even with a healthy baby, a lot of women / couples can't afford the medical bills of the pregnancy and birth. I have heard of couples who wanted and planned a child, got to have that child, but it was born early by c-section and had a few weeks in neo natal intensive care. Some of these people are still paying off the medical bill for that kid's birth 10 years later.

You obviously haven’t had kids. If your baby is healthy it’s not that hard to pay off the bills and if you’re low income you qualify for Medicaid for pregnant women and your child can have insurance until they’re 18. If your baby is sick and has a disability they qualify for Medicaid and disability and your income doesn’t matter.

@@sarahquinn2224 I had kids. Luckily I don't live in the USA so I wasn't billed anything at all. The people I am talking about had a healthy child, but it had to be born early by c-section. The bill for the complicated delivery and NICU took years to pay off. I bellieve it was before the time of Obamacare or whatever financing that is available now. They might have been earning just slightly too much or have been uninsured. I don't know. Do they still have the rule in the USA that you are allowed only 5 years of social security benefits in your lifetime, or did they get rid of it again. Because that sure would be a problem for a single mother with a special needs infant. She would be lucky ever to be able to work again in some cases.

@@emmajones8590Yeah I actually desperately want to have kids. I’m 27, married. But we’re both women (so no ‘oops’ babies), and we can’t afford to have kids. We’re barely making ends meet, living paycheck to paycheck. I’m afraid I’ll never get to be a mom because I had the misfortune of being born in poverty.

@@emmajones8590I think what you are referring to is Welfare not Social Security. They are 2 very different programs.

I'm so sorry you went through that. How kind of you to be happy for this mother

And yet these news scripts try and make a case for abortion of these precious babies. @IceFireHeart

Sorry for your loss. It would have been your choice though if you had carried to term, and the odds of a good outcome after birth were low. The average age of survival of such children is 5 days to 2 weeks. Of course you wanted your daughter, but she would probably have suffered Having said that, I wonder how many couples who knowingly carry a badly damaged child to term are really thinking of the best interests of the child, as opposed to themselves. Whatever, I believe the couple should have the choice to do what they consider to be best.

@@emmajones8590 you're right. That's the hardest part thinking back on it. Would it have been fair to her? We would've given her the best care while she was here, but again would it have been best for her or us.

@@IceFireHeart No idea. A lot of people want to terminate pregnancies with a Down child as well. But the chance is very much greater that a Down person can live a healthy, happy and productive life. Some are even pretty high functioning and in excellent health. I have no idea what I would have done myself, if a pregnancy check up had shown bad abnormalities in the foetus. There were no scans done those days and you only were offered an amniocentesis, if you were very high risk of having a child with problems. Are were around 40. Some people think they would know what they would want to do in that kind of situation, but they don't really. And if you had been trying for a baby for about 10 years, you might be more hesitant to go for a termination, than someone who gets pregnant easily and maybe had a few children already.

that call did sound so unprofessional and inconsiderate!! 😢 poor mom was already stronger than I could have been with zero support

Thank you and god bless you

Wonderful you got to spend a week with her which many parents with these children sadly don't get. I can't imagine how it must have been too.

This little girl had a mosaic form of the condition, which meant that the trouble causing extra gene isn't present in all of her cells. The prognosis in these cases is a bit more favourable.

​@@emmajones8590thank you. I was looking for someone to say mosaic. my oldest son has a mosaic condition. it's not always the same, every individual with the same condition will have a different experience.

Careful what you say, would that mom really say that she wouldn’t “put her child through” life?

I'm surprised a child like this wouldn't be automatically qualified for disability benefits.

@@catherine1886 She apparantly did, didn't she? Doesn't mean by the way that she doesn't love the child.

@@catherine1886 sometimes love means letting go. My brother was on life support. If we would have continued with his care he would have been a person living in a state nursing home, on a ventilator, with absolutely no quality of life. He would not have wanted to live like that ever. We had to make the decision for him since he did not have a living will. Ppl make decisions like this everyday. I loved my brother with every cell in my body but I made the best decision I could for him. I know I would not want to live like that. Just because science can make you “live” longer does not always mean they should. We let him go out love. We do this for our animals but when it comes to humans we want to be selfish and keep them with us as long as possible under any circumstances.

I'm with you. I wouldn't want to live like that.

She is trisomy 18 and she is partial

Daughter is partial. Brandon Bosma who has a Ted Talk is mosaic, Megan Hayes of Oklahoma, who is 40 now, is full. I believe Rick Santorum's daughter who is 15 now is full.

I am a medical professional. I know a bit about trisomies. This child, featured, is clearly mosaic. Santorum’s daughter is mosaic. She is very disabled. Georgia appears quite complex. Her mom didn’t mention cardiac involvement or corrective surgeries. I do not know Megan Hayes. Brandon Bosma is a mosaic. Having seen trisomy children, if I was diagnosed with a trisomy 13 it 18 fetus, 100% Id terminate. But, I am pro-choice, and respect women who make decision to carry to term.

One of my non viable IVF embryos had trisomy 18. :( The other had another issue, I forget which, but still would probably cause a miscarriage or have a very short, painful life. We also had two beautiful, perfect embryos and I'm less than 3 weeks away from our scheduled c-section for the second one, a little girl; I had her big brother two years ago. My heart still hurts for the two little girls who will never have a life, but I felt the kindest thing to them was let them stay embryos, no heartbeat, no pain, no suffering.

My daughter has full trisomy 18 she do more than this little girl. It’s possible.

I'm glad to hear your niece is doing well, but it sounds like she has only a very small extra piece of chromosome 18, as opposed to a whole extra copy of the chromosome, so it's a very different condition.

So awesome to hear!!!

​@@LC_Bostonplease don't belittle this condition! That's like say drinking & driving isn't that bad if it only happens twice a year instead of every weekend.

⁠​⁠@@kathryncarter6143No, it’s like saying you don’t know what it’s like to be born blind because you have to wear reading glasses. Yadayada’s niece is very very lucky.

@@kathryncarter6143 , I'm sorry if my comment came off as belittling your niece's condition. That certainly wasn't my intent. I was just trying to point out that, while the names are quite similar, full, non-mosaic trisomy 18 is a very different condition from trisomy 18p.

That chromosome defect sucks. It causes frighful damage to the child.

Amen

I thought there was more to this than just beating the odds with trisomy 18. But now a lot of people are going to think it could be like this when this is the outlier. I'm very happy this little one had a milder form & has been able to have somewhat of a good life. She should definitely be given whatever is needed to help her though. You never know what could be done if it's just tried.

I was a hospital pharmacist for many years, and the one time I saw a child with Trisomy 18, it was a baby with the extra chromosome in 12.5% of its cells, and this baby still lived less than a month.

Yeah I did a project on it in school once. It’s not just usually fatal, it’s also generally very painful with no quality of life.

@@rumpeltyltskyn I do remember that the parents did not know before birth that the baby had anything wrong with it. I can tell you about this because there were stories in the newspaper about the baby and family. ISTR that they knew the baby was a bit small for dates, but not that it had anything this serious.

@@sarah2.017 Oh yeah I’m not judging the parents in the scenario at all. I’m pro-choice, which includes the right to choose to carry as much as to choose to terminate. I’m very glad the parents in the video were lucky to have a relatively healthy baby.

I completely agree with you , what beautiful people !

Or not be compatible with life. Full trisomy 18 is deadly, mosaic life is possible depending on how one is affected.

You could do pre-implantation genetic testing.

​@@myoldvhstapes $$$$$$$$$

@@myoldvhstapesyes but then have to live with the choice if she has passed it on to her child.

@@myoldvhstapesno! That’s genetic engineering. Stop playing God.

NO! I would definitely not want to be born that way, and here at all. Life is hard enough for the most able bodied.

I agree. I think the parents are being selfish asking for all these interventions to keep her alive for longer

That is IF the woman wants to carry such a fetus to term that it deserves a chance. Life is hard enough for the able bodied! This couple wasn't told, but should have been. I would have sued.

What kind of a god lets this happen to begin with?

@emmajones8590 The one and only God that told the Jews that they were to follow him and he would provide, protect and bless them. And if they worshiped other pagen gods and didn't observe the laws he gave them He would let them have their choice...a life without Him. The same choice He gives us.

@@daniellejoens6920 I don't believe in gods. Have yet to come across the flimsiest shred of evidence that they exist.

@@emmajones8590 Ask Him to show you.

That precious baby should have had a chance. Instead of fighting for abortion, why not fight for better care and resources for the babies and their families? This culture doesn’t know how to respect life.

@@moriahmorgan5983 It's not one or the other. Forcing a woman to have a baby she doesn't want/can't care for is inhumane. What are YOU doing to help women who are forced against their will to become mothers?

@@moriahmorgan5983 Baby Cox didn't have a chance. The abortion was not because of the baby being sick, but because the MOTHER was sick.

@@sarah2.017 wrong, the Texas Supreme Court ruled that abortion was not necessary because there was no risk to the mothers life. The Texas woman just didn’t want to be inconvenience with a special needs child.

​@@prestoncarla81 You might want to recheck your facts. There was danger to the health of the mother, including the possibility of infertility in the future. The mother should not be forced to have a child with major birth defects.

She absolutely made the right choice 👍

You don't need lots and lots and lots of expensive therapy for downs syndrome. Those are case by case. Some are severe, some are not

This is not like Downs at all. Many people with Downs grow up to be functional and independent, and if not, they will likely survive but need higher care. Trisomy 18 causes death so early that very little is known about how it affects people past their first birthday, but for the survivors, it doesn't seem they live happy fulfilling lives.

@anonnymose The ones that they "tout" (as you put it) are generally are the people with Mosaic Downs. Which means that they are only partially Down Syndrome, because only some of their cells have the extra chromosome 21, not all. This allows for higher functioning. To your point there are some with Downs that don't function well, and have many cognitive and physical issues.

@@thedownchucks6317 I mean it in the sense that the media touts an unusual example like that is the standard. Same with Down's. Yes, some go to school and become working members of the community. but most do not. This has come up because of a woman who didn't want to take the risk and was denied an abortion because of a bunch of men who care nothing about women and children, they love to be in control.

I get what you’re saying.

It isn't in the least selfish to protect any siblings from a life with a newcomer in the family, with a huge number of special needs. These badly handicapped children tend to consume almost all the resources of time, attention and finances. Their presence can be very detrimental to the quality of life of the rest of the family.

@@emmajones8590 well said! Too many times I’ve seen / hear of exactly this happening. I’ve wondered if the parents even think about the rest of their family. Got a cousin whose a pediatric nurse, so sad to see what happens to the household when a tragedy like this occurs. Especially when both parents must work, no amount of Social Services provided can make up for all the families’ needs. Not to mention how forgotten the other kids feel.

​@@scarlettgallegos5812 There were 2 Down Syndrome kids in our street when I grew up. One never developed beyond about the age of 6 months or so. Never learned to walk, talk, communicate, was incontinent, couldn't feed herself. Needed constant care around the clock. Was also constantly ill, caught every cough or cold going. The mother couldn't work of course, could have no hobbies outside the home, couldn't nip out and visit a friend. They could have no holidays, family outings (there was an older kid), no weekends away. Poor thing died when she was about 10 or 11. The family loved her and really grieved for her death. But after that there was so much shall I say space, for them to do nice things. They bought a caravan, went away on holidays in it, the mother got herself a little job, was able to visit people, go into town on a whim etc. Their whole quality of life improved enormously. Or at least it seemed that way to outsiders. The other little child was more fortunate. She got developmentally 'stuck' at around the age of 3. She was cute, would play along with all the other little toddlers, even when she herself was older. The father had a job away from home, so the care fell entirely on the mother. And she didn't have it easy. The kid was destructive and got into all sorts of mischief. Couldn't be left to her own devices for a moment. Couldn't be blamed, knew no better. She would do things, I believe, like destroy her older sister's schoolwork and clothes. The sister married unusually young. No idea if the Down sibling had anything to do with it. I believe the mother kept her with her into middle age. No idea what happened after that, as they moved. But to cut some long stories short, taking care of a special needs child is often greatly underestimated. The divorce rate is also unusually high in couples with a handicapped child or in those where a child has died.

Sounds like you were born afterwards? thank you for sharing your story.

No. The difference is a child born experiences love.

My condolences and prayers for the loss of the child. Aren’t you thankful that you got to spend that precious time with the baby? That the baby had a chance? Was the baby’s life not worth it? I will continue to fight the all unborn babies. They all deserve a chance.

You sit for 7 months with a dying child and your perspective might change.

​@@ElleSawShe was living 7 months, don't confuse the two.

​@GlitterandSkullz Don't forget about the family's other children who will have to do without due to the mounting medical bills that will now be a part of every day life, as well as the loss of time with parents who will have to devote their time & energy, if not their lives to this one child. How many of these children and their families will end up dependent on charity and the state which is almost always what Republicans make as their chief complaint while handing out " boot straps".

Does she have T18?

MEDICADE

@@Duhhh123 its medicaid...video said medicare

Well how nice that is for offer up your life to care for this child

@@stephanielewis8481 I don't understand what you are trying to say here.

@@stephanielewis8481And that’s exactly what you are doing when you decide to have a kid you know is so damaged.

The child will never know what quality of life truly means. She is severely mentally and physically disabled, far worse than adhd and autistic.

That’s the least of her problems. Take a chill pill.

@@infinitejest441 I disagree. Poor fitting glasses are: 1) annoying, uncomfortable, and required constant readjustment, 2) highlight her disability rather than flatter her face, 3) can actually prevent her from seeing properly as the center of vision isn’t usually where it needs to be, 4) can make her less likely to want to wear them

They didn't know the kid had it before it was born. They might well have chosen to abort otherwise..

For what?

For what?

@@Flipper86 the amount of therapy that costs her so much money per month - I am a paralegal and know that it is possible to sue and these things were to be done BEFORE she was born

@@user-jb3dq9jw2j the amount of therapy that costs her so much money per month - I am a paralegal and know that it is possible to sue and these things were to be done BEFORE she was born.

@@Elliephantasm Mom could sue because of a missed diagnosis? Would think that would be hard to prove. No such thing as a false negative? I know there are false positives, where a baby was supposed to have Down Syndrome, but didn’t, or my niece who was supposed to have hydrocephalus, but was perfectly healthy. BTW, the same doctors said she wouldn’t survive to her 1st birthday.

As part of that medical community, please don't overgeneralize. This is expensive care and the healthcare business side in the U.S. is hugely messed up. Clinics and hospitals are pushed to do as much 'businesss' as possible, competing for NUMBERS of patients without allowing for quality of that care. Duplication of technology and services is the norm in many communities because of different health insurance networks. In my community of 27,000, for instance, we have THREE full service hospitals. My physician husband was told he would have to see patients in 15 minute appts at the clinic he was to work in instead of the 20 minute segments he provided in solo practice and for which system he won awards. Just so the clinic could bill for the 'extra' 8 to 10 patients a day. He refused and, because primary care doctors were so scarce, he was able to do it his way.

I absolutely detest these corporate hospitals. Good for your husband to find a work around❤. As a patient how can we protest???

@@k.p.9990 As patients, not a whole lot.

It had no life to be had you. That particular defective foetus had full trisomy 18 compared to this girl that has mosaic trisomy 18. That foetus would not have survived long if it even had made it to full term and survived the birth. It would have just been born to suffer. Why would you want that for anyone?

Um this is true but…NOT the reason many suffer! We suffer in this world, maybe Christians even more than non, bc Jesus promised it (John 16:33) and is sanctifying us through it.

"the beginning of the end" 12/30/2023. 08:31 AM. EDT. 🦅💞🕊️

What a disgusting way to twist scriptures... the Bible says it rains on the just and the unjust. People can be a believer and true follower of Christ and still experience hardship.