Olivia Osabutey Ayor - GSD2 Pompe - Samuela's Diagnosis
Рет қаралды 66
2 жыл бұрынOlivia talks to us about finding out that her daughter, Samuela, had Pompe Disease
@khanny4min25 2 жыл бұрын
💜Keep going stay strong and stay positive , my daughter was diagnosed at 5 months she is now 14 years old and enjoying life 💜
@PompeUK 2 жыл бұрын
That you for sharing your story; we hope that the treatment keeps Samuela well. Can you tell me how old she was at diagnosis, and how old is she now? Keep strong!
超人夫妇
Рет қаралды 23 МЛН
Dr Charlotte Dawson & Antonio Ochoa Ferraro- GSD2 Pompe- New Treatments for Pompe Disease under EAMS
GSD Screen
Рет қаралды 169