Jenny was asked to speak at the Reverse Rett LA Gala, the world's biggest fundraiser for the Rett Syndrome Research Trust. These are her words.
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My daughter has Rett Syndrome, a neurological disorder that affects most everything she tries to do. She can't talk and it's hard for her to use her hands. But she can hear you. She understands you. She is smart.
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Visit reverserett.org for information on the research
About Rett Syndrome:
A debilitating neurological/movement disorder that primarily affects females.
Leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands.
As prevalent as ALS, Cystic Fibrosis and Huntington's Disease.
Another baby girl born afflicted every 90 minutes.
Potentially REVERSIBLE! Research shows once normalized, symptoms subside.