this is you boy is suffering from abnormal posturing of both hands on running and changing position. this is cured by simple treatment.
Пікірлер: 51
@varundsouza19615 жыл бұрын
*I can understand this. This is not easy to live with this problem in public. And this is not funny.*
@glaycierplayz64435 ай бұрын
Bro any treatment for this ???
@SudhanshuYadav-ze1zq2 ай бұрын
@@glaycierplayz6443 Medication, Nothing else ... Currently I take Tegrital Cr 200 twice in a day ...
@sunitakoneru84536 жыл бұрын
I am 47 years old and was diagnosed at 13. Originally the diagnosis was choreathiotis but was changed to pkd in 2003. I've taken dialantin since my original diagnosis and has been effective, but it has side effects, which I ignore because I need to take it regardless. It is not fun. I grew up with anxiety and the fear that I could completely spaz out in public in front of everyone
@cAlLmEBRuCEE3 жыл бұрын
I'm 21 now and i experiencing the same.. Which tablet are you taking now? What are the side effects
@sunitakoneru84533 жыл бұрын
@@cAlLmEBRuCEE I'm still taking dialintin aka Phenytoin. I was prescribed 400mgs a day, but only take 200 mgs(2 pills). I find that to be an effective dossage. Honestly, I don't know what side effects I experience because I've been taking it so long, I really don't know the difference. They say it causes learning and concentration dissabilities, which I definitely experience, but can't necesarily attribute to the medication. I do get migraines, which is a side effect. It's such a rare disease and so little is known about it. A lot of neurologists have never even heard of it. I just try to live my life and don't let it prevent me from doing anything. By the way, my name is Chris Noel, Sunita Koneru is my wife and posted on her account. If you have any more questions or information about it, you can message me on Facebook. I know very little about it myself.
@stephen98517 ай бұрын
Same
@silentkiller47226 ай бұрын
@@cAlLmEBRuCEE Take Pynetoin tablets.
@SudhanshuYadav-ze1zq2 ай бұрын
@@cAlLmEBRuCEEbro did you visit to a neurologist?
@hengpisey6584 жыл бұрын
I have this too and I don’t know how to live with it.
@trishandas71215 ай бұрын
Bro i have it too i take zeptol 200 pills and its working good
@wonpeel34223 жыл бұрын
This one is so similar to mine, I was diagnosed when I was 12-13 I’m 18 now, under treatment still taking medicine, never happens again unless I stop eating the medicine
@bikelover07862 жыл бұрын
Which machine use
@wonpeel34222 жыл бұрын
@@bikelover0786 which medicine u mean?
@bikelover07862 жыл бұрын
What is ur medicine name....and how many tablet taking and how many mg
@bikelover07862 жыл бұрын
@@wonpeel3422 yes
@wonpeel34222 жыл бұрын
@@bikelover0786 Tegretrol CR 200 Carbamazepin
@Tiare619 Жыл бұрын
I need medications soon. Had this my whole life and can’t hide it. It suddenly got worse after a pitbull scared me one recent night. Used to be only when changing pace. I hope medications will help. I’m 38 and felt symptoms in elementary school!!
@stephen98517 ай бұрын
Go to nueroligist get meds carbamenzapine or phenytoin
@jigar27096 жыл бұрын
I also have PKD. It happens me whenever I stand up quickly or start running instantly like this. I am taking Phenytoin Eptoin everyday and I don't get attacks now. But If I stop taking it the attacks again.
@chinmoyroy86624 жыл бұрын
Sir ye problem aap ko kb se hai or app avi kiya krte ho?
@chinmoyroy86624 жыл бұрын
When u read it plz reply
@cAlLmEBRuCEE3 жыл бұрын
Bro any side effects for this tablet phenytoin eptoin I'm also taking it for about 6 years and now i experience some memory problems 😐😐
@jigar27093 жыл бұрын
@@chinmoyroy8662 Eptoin 100 mg leta hu roj. Pehle 2 times a day leta tha. Abhi 1 hi leta hu...
@jigar27093 жыл бұрын
@@cAlLmEBRuCEE well I don't know about that. I have got many grey hairs during this 10 years don't know wether it is due to eptoin or not.
@martyndebbarma75825 жыл бұрын
Is there any permanent solution to this?
@SahebSorkar5 жыл бұрын
I am using This TAB: OXETOL 300mg, its realy awesome
@isumitd95864 жыл бұрын
If there's no permanent solution to this then atleast reduce PKD as it affects BRAIN in a most different way. It brings emotions like angry, crying, thinking etc in any situation
@isumitd95864 жыл бұрын
Whether scientists r working for PKD for a better solution? because this is not just a disorder but it directly affects the functions of brain which induces abnormality in emotions
@wonpeel34223 жыл бұрын
I’m under treatment I have my medicine and it stops it completely but if I don’t eat it , episodes come back in 2 days
@isumitd95863 жыл бұрын
@@wonpeel3422 I know it's due to genes but regular leg exercises can beat this disorder if I make my mindset. It becomes sick to depend on its medicne all the time.
@cAlLmEBRuCEE3 жыл бұрын
@@isumitd9586 I'm 21 experiencing little bit memory lose some time and some times i can't control my emotions
@Jayaprakash-xo1el3 жыл бұрын
What treatment sir
@akk33442 жыл бұрын
Zen 100 brand tablets 100 mg daily carbamazepine
@srinivas-bepatriotic81236 жыл бұрын
If you have any medicine plz suggest me
@SahebSorkar5 жыл бұрын
I am using This TAB: OXETOL 300mg, its realy awesome
@user-cu2sn4cg1r10 ай бұрын
Oxcarbazepine 300mg works.
@glaycierplayz64435 ай бұрын
@@user-cu2sn4cg1ri use the same but for how many years we will stay depend on this medicine at the end our kidney will have more problems i want to become free from this disease