Patient Perspective: Living with Behcet's Disease

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vasculitisfoundation

4 жыл бұрын

Пікірлер: 21

@jonisaad7202 3 жыл бұрын

I've watched this several times... and it gives me so much hope each time. It is so good to know I'm not alone.

@an.nama.ria.2023 2 жыл бұрын

Same for me. Good to see there are other people in the world.

@pradeepchakravarthy.j6310 3 жыл бұрын

This is very useful for medical students to understand a patients perspective with Behcet's disease...

@mindybowen7313 Жыл бұрын

I am in tears. I’m 34 , and have every symptom of this disease. I’ve got the big mouth sore right now , I’ve got swollen eyes and huge migraine, that I’ve had since I was 16. I’ve had no insurance so I’ve just dealt with it this happing to me , I’m just today even finding out today what this even is . I’m in shock , I know in my soul that it’s what I have . I’m in Mississippi, in small town so I don’t even know where to start bc I know doctors won’t know anything about it . I’m so relieved, that now I know what is wrong , but, now I have to get diagnosed.

@mohammadbaghdad2640 Жыл бұрын

I have mouth sores and red spots in my genitals, the doctor told me today that I have it but the test on my hand was negative and all the other tests are negative. I don't know if I should do a swab or see another doctor or wait ...

@thepalettewhispererasmr1227 Жыл бұрын

Update?

@thismine1 2 жыл бұрын

Glad to see and hear what Bechets patient goes through daily. I feel your pain. Stress is always the biggest trigger. They're are Facebook Bechets group. Anu new medications for Bechets? I do gamunex weekly and rituxen every 3 months. I push myself too like these fellow Bechets sufferers.

@dalaniekolakowski181 Жыл бұрын

Dr. Gundry book “Plant Paradox” helped me……eating an anti inflammatory diet. Life changing for me.

@abdullahsarang 4 жыл бұрын

I am 25 years old boy from India n I need help on Behcets disease

@asifasir5255 2 жыл бұрын

I am from Bangladesh i have this disease

@abdullahsarang 2 жыл бұрын

@@asifasir5255 did u got any solution ?

@asifasir5255 2 жыл бұрын

@@abdullahsarang No but taking treatment from Dhaka pg hospital and doctors said need long time

@AbhishekSingh-nm9dj 2 жыл бұрын

Where r you from in india.i have to

@abdullahsarang 2 жыл бұрын

@@AbhishekSingh-nm9dj mumbai

@lirieuka3281 2 жыл бұрын

Hello i have behçets and i am from Kosovo 48 old

@smetzbee6347 10 ай бұрын

can this foundation make its way to South Africa not to deal with behcet's but mental challenges faced by people with chronic illness?

@vasculitisfoundation 10 ай бұрын

We have a variety of virtual online classes, support groups, and other programs designed to help people who are living with the challenges of chronic illness. You can join our online chat community here www.inspire.com/groups/vasculitis-voices/ find out more about our weekly and monthly virtual support groups here www.vasculitisfoundation.org/virtual-support-meetings/ There are even more resources available on our website www.vasculitisfoundation.org including resources on self-advocacy and mental health www.vasculitisfoundation.org/vov-self-advocacy/ www.vasculitisfoundation.org/vov-mental-health-and-mindfulness/