Speakers: Meghan Buzby, MBA; Susan L-J Dickinson, MSGC; Carrie Milliard, MS, CGC, CCRC
Families living with FTD have multiple opportunities to come together and demonstrate the necessity of advancing a future free of this disease. The FTD Disorders Registry, established in 2017, acts as an online community of people willing to raise their hand and take part in vital FTD research; meanwhile, AFTD’s growing advocacy efforts are empowering families to bring FTD awareness directly to legislators. This session highlights recent changes to both the Registry and AFTD’s advocacy team, presented by new Registry Director Carrie Milliard and AFTD’s new Director of Advocacy and Volunteer Engagement Meghan Buzby.