Pelvic Health Physiotherapy in EDS & HSD | Nelly Faghani, RPT

  Рет қаралды 1,114

The ILC Ehlers Danlos & Chronic Pain Foundation

The ILC Ehlers Danlos & Chronic Pain Foundation

Күн бұрын

Nelly Faghani presents: Physiotherapy in Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders
Presented at the 2023 ILC Conference: Women's Health - Care & Management of Weak Connective Tissue in EDS.
Our mission at The ILC Foundation is to help individuals overcome the challenges of living with Ehlers-Danlos Syndromes and other chronic pain diseases through knowledge, sharing resources, awareness, education, peer support, and research to find cures. Learn more at theilcfoundation.org

Пікірлер: 6
@elizabethdesmet89
@elizabethdesmet89 6 ай бұрын
Thank you for for your thorough webinar presentation. Do you ever make recommendations to other well trained pelvic health physiotherapists located near me: (USA near Canadian border) counties including Whatcom, Skagit, Snohomish, & King counties? Do you make a one time ZOOM medical appointment? I plan on reviewing the 2 websites you listed. Lastly, What is the name for the postgraduate pelvic health training you mentioned? Thank you!
@stephaniekays6517
@stephaniekays6517 Жыл бұрын
Hello & thank you for what you are doing to help us. I'm in London Uk & as well as the hEds from my mum i was poisoned by highly toxic chemicals that crossed the placenta when i was a fetus & was born with MECFS & lots of other neuro probs & Fibromyalgia...& exposed to those chemicals for at least 2 years after i was born. I have a very bad histamine dao problem & it affects my bladder quite badly for the past 17 years with the mast cells going crazy...i can hold on ok if i'm sitting when i'm releasing histamine but have trouble if i'm standing. Do you think i can build muscle strength as a very senior citizen. I do have mast cell stabilisers & an antihistamine but still have problems. You mention keeping the balance....i completely lost mine with a massive brain aneurysm haemorrhage...i have been trying to fix myself since i was 13 yrs...any more advice than whats on your video would be greatly appreciated...my main meds are individual theraputic taken amino acids....thanku for reading 😘
@ruparkyitin
@ruparkyitin 6 ай бұрын
What about the Cervical instability issues seen in EDS patients??
@divacassandra1
@divacassandra1 3 ай бұрын
Go to their KZfaq page and search cervical. This is about the pelvis.
@ruparkyitin
@ruparkyitin 6 ай бұрын
Could EDS person have nocturia or Frequency only at night??
@fdauti_ca
@fdauti_ca Ай бұрын
Yes, night time is the worse for me
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