Pete Eveleigh's Story: The Fight Against MND

Рет қаралды 35,915

Жыл бұрын

In November 2022, Pete’s life changed forever. Diagnosed with Motor Neurone Disease, Pete Eveleigh and his family have had to adjust to his new life, but in the midst of this devastating news, his family and friends gathered around him to form his new team, #TeamEvo.
Here is his story…
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“Motor Neurone Disease (MND) is a neurological condition which affects the nerves in the brain and spinal cord. In some countries it’s known as ALS. MND affects a person’s arms and legs resulting in the need of a wheelchair whilst losing the ability to do basic things like wash, feed and dress yourself. It affects your ability to swallow food and drink which leads to the need of a percutaneous endoscopic gastrostom (PEG) feeding tube, to maintain nutritional intake as swallowing becomes impossible. Your voice is compromised and people are unable to talk meaning communicating is difficult. Breathing muscles are also affected, which leaves you relying on a ventilator to breathe. All these symptoms occur whilst your mind is unaffected.” - (darbyrimmermnd.co.uk)
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INFORMATION:
MND Association: www.mndassociation.org/
Darby Rimmer Foundation: darbyrimmermnd.co.uk/
TeamEvo: / teamevo_mnd
Team Stewart: www.justgiving.com/team/teams...
TeamEvo GoFundMe: www.gofundme.com/f/team-evo-t...
#MND #MotorNeuroneDisease #DarbyRimmer

Пікірлер: 58

@CarolsDaughter85 17 күн бұрын

Heartbreaking to see such a fit, active young man with his life ahead of him be physically destroyed like this. This has to be the worst disease ever.

@gwyn6907 10 ай бұрын

Life is so cruel what a handsome man and his lovely family a awful disease

@allencarter287 Ай бұрын

His wife is amazing God bless her

@TheTechnofu 9 ай бұрын

the more attention that can be given to the condition to increase awareness and research funding, the better. Keep fighting! I'm glad you have a great family to keep you motivated!

@idrewski6402 Жыл бұрын

I remember Pete from school. He’s so inspiring, but this is heartbreaking. I really hope the trial gives some improvement for him.

@tyianabree1028 Жыл бұрын

#Drchala1 on KZfaq channel has the cure for ALD why don’t you try it yourself and stop wasting your money on lad medical treatment

@waynehardiman5443 Күн бұрын

Seems such a nice family and guy and fit and this happens trials are good but so bad as a lot give you false hope there no cure and I don’t think there will be sad to know your dieing but with the money they’ve managed to have that eased so they can just be a family

@ibrahimsahib2831 16 күн бұрын

May god bless him for long long life and get relieved of the disease

@andrewuithaler5928 Жыл бұрын

Keep fighting Pete, we’re willing you along your journey! All the best to you and your family my friend. AJ

@tyianabree1028 Жыл бұрын

#Drchala1 on KZfaq channel has the cure for ALD why don’t you try it yourself and stop wasting your money on lad medical treatment

@FredaFlynn2008 9 ай бұрын

Bless your hearts, I hope they find an appropriate trial for you Pete and you can improve. I’ll keep following your progress and want to see you healthy again in the very near future. Good luck hun. 🍀

@roseyk7677 Жыл бұрын

This family are truly inspirational. What a cruel unforgiving disease. That little boy is a credit to you both, a little darling, eloquent and so well spoken. I pray for your recovery, and hope the interventions are positive. The mind is very powerful, stay strong and together.... God Bless you all on this journey 🙏❤️🙏

@tyianabree1028 Жыл бұрын

#Drchala1 on KZfaq channel has the cure for ALD why don’t you try it yourself and stop wasting your money on lad medical treatment

@debbiebrannon8874 10 ай бұрын

Praying for a healing for him amen

@skygazer6898 2 ай бұрын

My friend's fit and health conscious son started to experience the signs of MND when he was cycling and found that one of his feet could not push the pedal. Who could believe that within the year he was laying in bed, paralyzed from the neck down with a tube helping him to breathe and a tube feeding him. This was a young man, who would go rock climbing, work out at the gym, swim and cycle everywhere and all before that one symptom of MND when his foot could not push the pedal. To say his death was a blessing is an understatement. i hope and pray that more money is pumped into research to help find a cure for this very cruel, brutal disease. Good Luck to Pete Eveleigh, A lovely family and a loving, strong woman by his side. Hoping things are going well for him.

@allionseatfirst9721 Жыл бұрын

What a guy and a strong women next to you , I pray 🙏 for a cure x

@tyianabree1028 Жыл бұрын

#Drchala1 on KZfaq channel has the cure for ALD why don’t you try it yourself and stop wasting your money on lad medical treatment

@natsmith7220 Жыл бұрын

Such a beautiful family. I'd never heard of MND before, thanks for raising awareness and sharing your story.

@justbreakingballs Жыл бұрын

You'd never heard of motor neuron disease?

@tyianabree1028 Жыл бұрын

#Drchala1 on KZfaq channel has the cure for ALD why don’t you try it yourself and stop wasting your money on lad medical treatment

@jayg-lg2ot 10 ай бұрын

We don't call it MND that's prob why he's saying that . We call it ALS or Lou Gehrig disease. I myself have als ( my doc highly thinks it's is but neurologist apt is not till Nov) but when you know you know belive me . Symptoms are just super specific. I have them classically to a T! I'm getting my affairs in order as we speak . And yes I know I know what people are gonna say " you don't know for a fact yet !" But I do . unfortunately als symptoms even tho it's liked to believe are just not with any other disease

@justbreakingballs 10 ай бұрын

@@jayg-lg2ot let's hope it isn't man.

@Heavyisthecrown 7 ай бұрын

@@jayg-lg2otI hope all is well for you ❤

@Gameadda360 5 ай бұрын

Brother you great you have a great family ❤

@marykeenaghan8787 9 ай бұрын

God bless u and ur family, Pete hope u get a cure in the very near future,,,,,,,,,,,,,,,,

@fernemcallister6774 10 ай бұрын

So wish a cure can be found quickly.

@jenwhitehead4092 8 ай бұрын

Terrible cruel disease. X

@chantalhounsom744 2 ай бұрын

I'm so utterly sorry for you and your family. This is probably one of the worst diseases to negotiate (my sister was diagnosed with it 😢😢). May God be with you all.

@Northern-Nevada 6 ай бұрын

I was given a diagnosis of MND in June 2022 by my neurologist. Here in the States, the diagnosis must be confirmed by a “higher level of care”. After months of waiting, I finally got a zoom appointment with a neurologist at a prestigious ALS Clinic at a university medical center in California. Early in the zoom appointment , the neurologist, (without an in-person exam or repeat testing), declared that I didn’t have MND. As my husband broke down in sobbing relief, I asked her how she could know that? She said it was because she’s an “expert”. When I further pressed her, she said that it was because I was able to stand from the sofa without using my hands. Everyone is thrilled except me, because my symptoms continue to worsen. I feel like I’m “twisting in the wind”, without the benefit of a diagnosis (of any kind) or hope for support or treatment. No other doctor will question the opinion of the expert.

@denvik 5 ай бұрын

so what is the current status? is there mnd ?

@Northern-Nevada 5 ай бұрын

@@denvik Don’t know. My new neurologist (the original one moved away before I was “undiagnosed”), sent me to an orthopedic surgeon thinking it was radiculopathy or myelopathy. The orthopedic surgeon didn’t think so, so he sent me for a second opinion at a medical center. That ortho said this is not an orthopedic issue, it’s a neurological condition and to go back to my neurologist. I’ve given up even though things are getting worse. It’s too expensive, exhausting and depressing to continue for now.

@janheard3826 5 ай бұрын

@@Northern-NevadaSo sorry to hear your story but I have to say it makes me relieved to live in the U.K. I have gone private and had NHS treatment and honestly those NHS doctors really care about providing good health care, not the money aspect that the private doctors only want at the end of the day.

@nickywilks7928 7 ай бұрын

gorgeous brave guy.

@kellyofthehead 11 ай бұрын

I'm exactly the same. Started with muscle fasciculations around 3 months ago, now i have weakness in my left arm and right leg. Keep almost falling over and dropping everything. I'm terrified. I had two spinal surgeries last year, I'm sure it's triggered it. I'm at the consultant 15th of August. I'm 44 xxx

@garethwilliams4682 10 ай бұрын

Me too. My appointment is in September. Wishing you all the best

@kellyofthehead 10 ай бұрын

@@garethwilliams4682it's scary, I'm hoping mine is benign muscle twitching but I also suspect an undiagnosed B12 deficiency. Hopefully one of those. Good luck to you also 😊

@denvik 5 ай бұрын

how are you now? what doctor said?

@kellyofthehead 5 ай бұрын

@@denvik they couldn't give me any answers, the fasciculations are just as bad, sill unsteady. No wastage, so I guess it is benign muscle fasciculations, really frustrating not having answers xx

@LisaDancer 8 ай бұрын

So inspiring thank you for your video my husband has MND can you please tell me where you got breathing and hand equipment from… my husband is Turkish and not entitled to any benefits because of his visa but the MND association have helped us

@misscaulkhead 28 күн бұрын

"MND is NOT going to decide my fate" I refuse to put myself and put my family through watching me slowly die so when the time is right for me I will do VSED. VOLUNTARILY STOP EATING AND DRINKING. I will choose how and when i check out NOT MND 💪😊

@Gameadda360 5 ай бұрын

I have incurable motor neurone disease. My entire body is slowly becoming paralysed. I am 23 years old and my father has abandoned me. I really need helps. please someone help me. God bless you always

@michaelsinnott2226 4 ай бұрын

That is terrible when your father abandoned you when you are ill with the decease. That is wicked of him

@janheard3826 5 ай бұрын

What a handsome man…my heart goes out to you and your wife.

@markdavis865 6 ай бұрын

I’m sorry if this is inappropriate. I was just curious of something. My father also has Parkinson’s. I am also going through a DX process of something Neurological/muscular. I was just wondering if possible how to ask you some advice? Again I’m very sorry for bothering you. Thank you for being so inspiring.

@garyh5541 5 ай бұрын

🙏🙏🙏

@user-lv4rv5jj9u 3 ай бұрын

How are you doing now Pete? Hope the trial is working

@user-jv8nx8th3f 8 ай бұрын

Is it right me saying your twitches was first symptom with no weakness ? I have cfs cramp being faciculation syndrome diagnosed September but get scared my heart goes out to you and your family

@CarolsDaughter85 17 күн бұрын

The information I’ve read is that the weakness comes first… twitching without weakness doesn’t indicate MND. The twitching with MND happens because the nerves are deteriorating, therefore the affected limb would be weak before the twitching.