Polymyositis: Understanding the Rare Autoimmune Disease

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Polymyositis: Understanding the Rare Autoimmune Disease

Рет қаралды 18,802

Күн бұрын

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Chapters
0:00 Introduction
0:32 What are the causes of Polymyositis
1:23 What are the signs and symptoms of Polymyositis
2:36 What are the treatment for Polymyositis
Living with a rare autoimmune disease like polymyositis can be an incredibly challenging experience. This chronic illness causes muscle weakness and fatigue, making even the simplest tasks difficult to accomplish. But for those who are diagnosed with polymyositis, there is hope. With the right treatment plan and a positive mindset, it is possible to conquer this disease and live a fulfilling life.
My own journey with polymyositis began several years ago when I started to notice that my muscles were weaker than usual. At first, I brushed it off as just a sign of aging. But as the weakness continued to worsen, I knew something was wrong. After multiple doctor's appointments and tests, I was finally diagnosed with polymyositis.
At first, I was scared and overwhelmed. I had never heard of this disease before, and I had no idea what to expect. But as I began to learn more about polymyositis, I realized that I wasn't alone. There were others who had been through the same experience, and many of them had found ways to manage their symptoms and live a full life.
The key to conquering polymyositis, I soon learned, was to be proactive about my treatment. This meant working closely with my doctors to find the right combination of medications, physical therapy, and lifestyle changes that would help manage my symptoms. It also meant staying positive and hopeful, even on the tough days when it felt like my body was fighting against me.
Over time, I began to see improvements in my muscle strength and overall health. I was able to do more of the things I loved, like hiking and spending time with friends and family. I also started to share my story with others who were struggling with polymyositis, offering support and encouragement whenever I could.
Today, I am proud to say that I have conquered polymyositis. While I still have occasional flare-ups, I am in remission and living a full life. If you or someone you know is living with polymyositis, know that there is hope. With the right treatment plan, a positive mindset, and the support of others, it is possible to overcome this rare autoimmune disease and live a fulfilling life.

Пікірлер: 26

@christopherfothergil 3 ай бұрын

I had this illness here in the UK and my wife was warned i may not survive the disease. It was a Greek doctor in my hospital who found out the cause which was a allergic reaction to Citalopram anti depressive drug. I went from hill walking and driving to only being able to crawl on all fours and finally in a wheelchair almost death within two weeks. My wife was told to prepare for the worst. I was treated by high doses of prednisone steroid drugs and the change of anti depressant drugs. I was told 60% of my muscle mass was destroyed. yes as soon as i changed the Citalopram and placed on steroids with three days I left the hospital very weak but feeling a lot better.

@MedicalCentric 3 ай бұрын

I'm deeply relieved to hear about your recovery and commend the astute medical attention you received. Wishing you continued strength and health.

@apacur Күн бұрын

How are you now?

@christopherfothergil Күн бұрын

@@apacur it took four years to get back the muscle mass i lost. But i am now fully fit, thanks you

@apacur Күн бұрын

@@christopherfothergil What worked- as far as regaining the muscle mass?

@christopherfothergil Күн бұрын

@@apacur i was put onto a very high dose of Prednisalone. I had a very high dose. My specialist said it was going to be a long process to get back to full fitness.

@neetashukla5092 10 ай бұрын

Muje darmeto mayosytis h upay bataye please

@elfrancoterador1961 Жыл бұрын

Present 👋

@waelfadlallah8939 Жыл бұрын

U always are

@elfrancoterador1961 Жыл бұрын

@@waelfadlallah8939 شكرا وائل فضل الله shukraan and i always will be😊👋

@waelfadlallah8939 Жыл бұрын

@@elfrancoterador1961 good spelling 👍and you're welcome :)

@elfrancoterador1961 Жыл бұрын

@@waelfadlallah8939 thanks alot.. actually im arab... from arab country what about you?

@waelfadlallah8939 Жыл бұрын

@@elfrancoterador1961 same, from lebanon.

@TheMerdy1 9 ай бұрын

My mother has polymyositis for about year and a half. Shes 59, it all started almost 2 years after she lost her brother, could it be the starter? she also started smoking from that time... She had prednisone prescribed, and after a year she finally feels better. Is it possible to get rid of Polymyositis? To be fully cured?

@MedicalCentric 9 ай бұрын

Here are some general insights. Polymyositis is a complex autoimmune condition, and its exact cause is not well understood. It's unlikely that the loss of her brother directly triggered the condition, but stress and lifestyle changes could contribute to its development or exacerbation. Smoking is generally not recommended for individuals with autoimmune conditions, as it can worsen symptoms. Prednisone and other medications are typically used to manage symptoms and control inflammation, but achieving a full cure for polymyositis is challenging. Consult with a healthcare provider for the most accurate assessment of her condition and prognosis.

@TheMerdy1 9 ай бұрын

Thank you very much for the answer. So I understand it like this - your own T lymphocytes start to attack your own cells especially muscle tissues. Thats basically polymyositis? And the question is that now, after 2 years, although she feels better, if that T lymphocytes still do the same, or her immunity is basically back to normal, and the disease just vanished like covid or flu and it might comeback at anytime (age, smoking, stress etc.)@@MedicalCentric

@ninjaff4499 Ай бұрын

Does it effect life expectancy?

@MedicalCentric Ай бұрын

Polymyositis can affect life expectancy, particularly if complications like respiratory or cardiac issues arise, but with early diagnosis and proper treatment, many patients manage well ❤️.

@christopherfothergil Күн бұрын

your life is fine

@ApostolosKatsioulas 9 ай бұрын

I must be infected with polymyositis, both my legs ache badly; it's hard to walk, it's hard to perform lunges, it's hard to lay down. It's been at least one month that this has been happening. I am scared to death and I have no idea how long the treatment is going to last.

@MedicalCentric 9 ай бұрын

Polymyositis is a rare inflammatory disease that affects the muscles, causing muscle weakness, pain, and fatigue. If you're experiencing persistent muscle pain and difficulty walking, it's essential to consult a healthcare professional as soon as possible. They can perform a thorough evaluation to determine the cause of your symptoms and develop an appropriate treatment plan. While I can't offer a specific timeline for treatment, early diagnosis and treatment can lead to better outcomes. Remember, it's natural to be concerned, but medical intervention is crucial for addressing your symptoms and providing you with the best possible care. Please reach out to a healthcare provider to discuss your condition and receive the appropriate guidance and treatment.

@bluewave7120 8 ай бұрын

Don't panic although possible your symptoms are more likely a less severe diagnosis The human body has very few ways to react to a wide variety of illnesses