Port-A-Cath Work Out: Blood Work, CathFlo & IVIG! 💉 (2/20/18)

Рет қаралды 29,141

6 жыл бұрын

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Пікірлер: 137

@hmmcminn7221 6 жыл бұрын

Your nurse is fantastic! She's so friendly and confident. I would feel very safe with her giving treatment.

@sunglassesgirl 6 жыл бұрын

Your home health nurse, Danielle, is so awesome and helpful for being comfortable with being in your vlogs. Kudos to the home health company, as well, since it doesn't seem to have a policy in place that completely prohibits her from being filmed. =) Between her pink hair and normal street clothes, her chill and laid-back personality, and the way she takes the time to carefully and calmly explain every step of not-so-routine medical procedures that could potentially become dangerous, life-threatening situations at any moment (although the risk is low), I can only guess that she's probably already helped make the idea of home health a lot less scary to more people than she can even imagine. [insert really big thumbs up, right here, for Danielle]

@Grace1978ish 6 жыл бұрын

I recently found out my dad has to get a feeding tube and your videos has taught me how to support him in that. Thanks for educating!

@iamboxboy569 6 жыл бұрын

Yay! I just took a break from my homeschool and I saw your video. You really make my life easer Jaquie! Without you I would not have a port, I would not have a feeding tube that has saved my life. My life would be a lot harder without you jaquie. Thank you for all your love and support you have given us!!! As a chronic illness warrior myself I know that you are always in pain and you have helped me go through that pain and I will try my best to help you through your pain! Stay cool Jaquie! And thank you again for all your love! (And I have been with you sense the first days of your channel and have always loved it) You are one of my favorite you tubers Jaquie!!!

@talonsage954 6 жыл бұрын

I love your nurse!!! I dubbed the nurses I grew up with (my mom’s a retired nurse; for most of my childhood and into adulthood she was a burn nurse in our local hospital’s burn unit) and MY best nurses from doctors offices and the Infusion Center, “Nurse Thugs.” It’s both affectionate and the highest of compliments and admiration. Danielle is DEFINITELY a high standing Nurse Thug. I couldn’t do Remicaid in my home; for me I much prefer the Infusion Center. I started getting Remicaid when my (18th Birthday Girlie TODAY!!! 🌯🍨🎂!!!) daughter, Ripley was three. So it was a four hour mini-break in a comfy chair, cable TV, and adult conversation, none of which I had at home. Also, most of the nurses I originally had knew or had worked with my mom. Her boss once started my IV. (Hospital staffing is constantly changing; she wasn’t always her boss, but at that time, she was.) Plus, my Infusion Center is only two miles from my house. When the weather is nice and my symptoms controlled, sometimes I walk it. So, it wouldn’t work for me; and also for other reasons than the ones I listed, but it’s TERRIFIC for you, and I am SO glad you have it!!! #JaquieRulesHomeHealth #NurseThugsAllTheWay

@beckallen3231 6 жыл бұрын

Talon Sage Gotta say...LOVE your name... my special needs angel son's name was Talon ;)...

@madyguyett1283 6 жыл бұрын

Thank you for putting up videos up everyday it helps me not feel so uncomfortable when I have to have a lot of medical procedures done since a lot of them I’ve seen you do!

@meganlovesdisneyandcrafts4780 6 жыл бұрын

Watching someone else makes it a little easier and not alone. :)

@alyssawssinging4039 6 жыл бұрын

Mady Guyett I take a lot of medicines with my Gastroparesis and I have to eat the right things too it sucks but at least it helps me and jaquie helps me too becasue I know I’m it alone when she uploads ❤️ I love her

@alyssawssinging4039 6 жыл бұрын

Disney Gamer yup that’s how I feel

@meganlovesdisneyandcrafts4780 6 жыл бұрын

@madyguyett1283 6 жыл бұрын

Disney Gamer yes exactly

@samiamisme 6 жыл бұрын

Your nurse is a good teacher....just like you! She is awesome. My mom was rarely lucky with hers. It's exciting to know IVIG is helping overall.

@oliviacase6417 6 жыл бұрын

Omg that needleless connector is amazing!

@ChronicallyJaquie 6 жыл бұрын

THE BEST! So cool!

@LiveASMRTime 6 жыл бұрын

It's great that you get a nurse to come and help you Harlow is such a cutie xx

@ChronicallyJaquie 6 жыл бұрын

I love my infusion company/nursing! Also blood draw labs are not equipped to use central lines so this is much better for me (:

@pammym190 6 жыл бұрын

Oh Jaquie I am such a medical nerd geek! I found all this fascinating! Even tho I’m an old bag!! I could def b friends with u!! As long as u don’t mind me having CP?? Hugs to u, Judd & of course that sweet Harlow!

@ChronicallyJaquie 6 жыл бұрын

I would not mind at all!

@pammym190 6 жыл бұрын

Chronically Jaquie awww! Thanx! U just made me smile😃

@AdrienneLeigh77 6 жыл бұрын

Hi Jacquie! I just found your videos and they are great!! I have many of the same conditions as you ( POTS, EDS, MCAS, and I have CVID and a rare IgG3 subclass deficiency as well as B cell dyscrasia and abnormal T cell population (CD4+|CD8+) sooo I’ve been on IVIG and SCIG for years. I totally empathize with what you’re going through with it. I just wanted to chime in to let you know from experience that you’re instincts are correct : it does get better with each infusion. Your body does learn to tolerate it. Like you, I had the “incredibly rare” experience of aseptic meningitis from one infusion, another time my blood pressure dropped to 75/50 during the infusion (and not from POTS for once! Lol!). I’ve also had infected PICC lines, horrible experiences with one jTube and I had to go back into surgery 3 times that week and have drains put into my abdomen to suck out stuff that leaked. (I know, gross, and tmi, sorry!). Anyway, I just want to say hang in there, you’re such an inspiration. I’m sure you’re helping sooo many people with these videos. And, if you ever want to chat about anything, I can tell you’re very well informed and you do your research as I have for years, (what choice do we have, right??) but I’d always be happy to discuss anything (IVIG brands, infusion frequencies, etc.,) or just life stuff that comes with all of this. Gentle Hugs! Adrienne P.S. Harlow is lovely!! My dog and fiancée are largely responsible for my ability to maintain my positive outlook on life (and my fiancée would say it is more the puppy 🐾🐾).

@meaganwhite7201 6 жыл бұрын

THE PUPPY HAND HOLD AHHH CUTENESS OVERLOAD!!!! Btw that nurse was super pretty like I'm super jealous. Do you and the nurses just chill together and watch movies while you get ivig? Or do yall kinda just chat?

@ChronicallyJaquie 6 жыл бұрын

I ask for her every time and we have gotten super close lol! We chill, chat, watch TV. Basically hang out!

@andylm7187 6 жыл бұрын

Chronically Jaquie I was wondering if she stayed the whole time. Guess you answered my question.

@user-en3kf6ei1o 6 жыл бұрын

Hi!! You’re such inspiration for me❤️I’m from Russia and we can only dreaming for such good home care. Sending you all my love and blessings 🇷🇺

@edtollesonjr3426 6 жыл бұрын

I have been watching you for a very long time. I am an older gentleman 48 I watch because you help me keep a better attitude about my health. I have diabetes, congestive heart failure with internal defibrillator, PTSD and anxiety. You help me keep my attitude right. Plus I love Judd and relate to him and his career and military service. I was in the military and worked for Careflite Dallas. Anyway I find comfort in your videos and am learning from you. I also have a single AFO for my one bad ankle. Love what you do and how many people you help.

@meganlovesdisneyandcrafts4780 6 жыл бұрын

SO CLOSE TO 100 THOUSAND! You look really good for having a busy medical day. I can't do Grey's anatomy blood but tubes are fine :) I can't stand labels, It's what you can safely have instead of "a slow rate". Not directed at you .

@ChronicallyKats 6 жыл бұрын

I just saw your so close to 100K subscribers. I'm glad your body is tolerating the IVIG better. I hope your port issues are all fixed now. And I hope your doing good. Praying for you!

@alyssawssinging4039 6 жыл бұрын

Hey jaquie ❤️❤️❤️❤️❤️ I’m glad ur uploading a lot I love seeing you and having u to look up as a Gastroparesis person who is going threw it too like me love you jaquie❤️ making veidos so I don’t feel like I’m alone in this

@FunsizedStyle 6 жыл бұрын

So glad you've had a successful IVIG!! :) Yay!

@sueodonnell8387 6 жыл бұрын

Jaquie, I am glad you are having some improvement with the fibrin sheath at the end of your Port. (I had that problem once with a PICC Line I only had in for a month, and it is scary). I am praying for you.

@soof9727 6 жыл бұрын

Thank you for the warning at the beginning of the vlog, it helped me out💗

@Rainpeltemily 6 жыл бұрын

completely fascinated by all the port stuff in this vlog, glad everything is going well! :)

@Kikiviewsvids 6 жыл бұрын

Harlow giving u her paw was the cutest thing ever

@emilyontis104 6 жыл бұрын

Your blood return happy dance is infectious!! :)

@allie4680 6 жыл бұрын

Ooh I love Daniel!! I remember here for another vlog, she’s so sweet to u.

@lynnrose7562 6 жыл бұрын

My goodness you go through a lot. God bless you!

@AppleGal29 6 жыл бұрын

This is incredible! thank you so much for showing the process of all of this. I'm studying medications as a student nurse and this is so helpful!!

@purpleangelwings6579 6 жыл бұрын

I like your possitive outlook ....you said in other videos that you lean into your faith ...may i ask exactly what is your belief ....you are an inspiration keep moving forward never give up !!!! You go girl ...your awesomeness !!!

@sueg2658 6 жыл бұрын

Jaquie, if the Warriors had a Queen you would take that title hands down! I will call you Queen Jaquie! God Bless you! Thank you for sharing :-)

@beckallen3231 6 жыл бұрын

Jaq u look seepy today, compared to your "normal" days :( (before your ivig) I hope your IVIG helps ya feel better!! As much as it a weird thing to say, I am jealous of your port for blood draws lmao I am SUCH a chicken when it comes to getting blood drawn, lay down, cold wash cloths, the whole big ordeal lol

@gothic1774 6 жыл бұрын

Yay, finally you got blood return that you have been waiting for, congratulations Jaquie!

@Mother_daughter_adventures 6 жыл бұрын

You should try magnesium oil for when you’re having those leg cramps. You can just rub it on your legs and it might help.

@mikegrl1 6 жыл бұрын

Nurse Danielle was sooo wonderful! And you look great Jaquie! If you felt better, would you have taken Harlow to dog park to burn energy? And that was cool how they drew your blood. Very interesting about cath stopper. It kind of was like liquid draino for your port.

@briatecheira9269 6 жыл бұрын

I’m use to getting blood and seeing the needles I’m not worried anymore it doesn’t bother me they use a small one I got my blood work done today it’s so easy and simple you are a strong beautiful woman 😍😍😍😍😍

@kyralubensky3794 6 жыл бұрын

Watching this video reminded me of Judd: Babe stop it’s less resistance.

@layneathebutterfly4959 6 жыл бұрын

🎼BABE STOP! LESS RESISTANCE!🎼

@Am-sz7dp 6 жыл бұрын

Laynea TheButterfly whats the title of the video where she says that ??

@layneathebutterfly4959 6 жыл бұрын

Pets With Passion In a vlog a few days ago she changed her port to a bigger and said that there was less resistance. Judd didn't notice any difference and thats when she said it in a verry catchy way! And since the port is giving her blod return now it's less resistance.

@melb6947 6 жыл бұрын

Thanks for sharing this because I have to get Cathflo done. I love that I get labs done at home

@claireelizabethblake8911 6 жыл бұрын

Prayers for good results from IVIG...

@seannamoyles3171 6 жыл бұрын

You’ve reached 99K! Almost at 100k.

@LupusPositiveLife 6 жыл бұрын

Harlow is such a sweet dog by your side you can tell Harlow loves you a lot miss your mom and dad in the vlogs take care Jaquie Judd and Harlow

@patriciaison8451 6 жыл бұрын

I don't know how you do all that medical stuff your self you are smart and strong love your vlogs and your family God bless

@emiliehart6518 6 жыл бұрын

♡ you so much this God's plan for you!!! Now you are one who can show people just because you have a few medical problems it doesn't mean you have to do nothing in life. You are such an inspiration to me and thousands of other people!! Do forget to keep moving forward!!

@pucamisc 6 жыл бұрын

I hope you feel better! Love your videos! Can you make a video about walker vs wheel chair?

@jumpityjump3 6 жыл бұрын

I have had a central line! So much better than getting poked all the time.

@helenea2231 6 жыл бұрын

Thank you for SHARING 👍👍❤🙏🙏 Your Awsome & judd Harlow Family & Friends I love you guys & your Channel much Love God Bless see you on the next one ❤💙🐾👍

@dr.caymana.jacobs3467 6 жыл бұрын

Hey Jaq Good Afternoon

@saphiaer 6 жыл бұрын

Didn’t you change to a different sized needle for your port recently ? Did your port acting up have something to do with that ?

@richyvincent8500 6 жыл бұрын

Jaquie, if I may, I want to give you some advice. You might not wanna show your blood before you give out the warning next time. just a friendly tip! Keep up the great education you provide me! :D

@hollywittenberg7031 6 жыл бұрын

Richy Vincent she put a warning at the beginning

@marti4203 6 жыл бұрын

Why not? This is part of her life. She’s given a warning. If you done feel comfortable to see blood, you have the option to click out.

@533134 6 жыл бұрын

She did have a warning!!

@Destiny9776 6 жыл бұрын

I love your channel! Lately I am having more bad days than good and my doctor thinks I have Ehlers danlose. I knew the name and realized that I learned it from this channel. I never realized it would be the answer to all of my questions. Anyone know if she has stretchy skin? I have been watching this blog channel for about two months. Is there a video I missed?

@jackpeterson8549 6 жыл бұрын

Roll on keep it up

@abbyc4266 6 жыл бұрын

Only 848 subscribes until 100k😀!!! Also, Danielle is awesome. So glad IVIG is continuing to go pretty well!

@bazokire 6 жыл бұрын

Danielle is very pretty and efficient!

@ChronicallyJaquie 6 жыл бұрын

I love her!

@janefetter8230 6 жыл бұрын

Since IVIG is a blood product, does it have to be matched to your blood type?

@Redroses-nv2gb 6 жыл бұрын

IVIG cost a little over $10,000 in America. I gave it as a RN in the hospital. It was hand delivered to me by the pharmacist like he was handing over his newborn child.

@chaoticinflation5766 6 жыл бұрын

As a plasma and platelets donor is always so weird to watch you do IVIG omg

@snail7519 6 жыл бұрын

Hello hippo!!

@anactualbox6216 6 жыл бұрын

love you Jaquie!

@kristieelliott2945 6 жыл бұрын

Mickey D's soft serve is good. No waffle cone but price is good and it's delicious.

@luvgoldens12 6 жыл бұрын

Why did you need good blood return again? I completely forgot ahaha. Also wouldn't this much blood being drawn affect your blood pressure and pots?

@ChronicallyJaquie 6 жыл бұрын

It ensures the port is working well, not clots/fibrin sheaths are forming, it is placed properly, etc. Also for blood work. I have been running fluids for the past few days (lots of them!) so I was not effected too badly this time. Usually blood work does not effect me all too well.

@natsky073 6 жыл бұрын

Jaquie! I just watched an amazing video about grounding. I know that you have a hard time being outside and touching nature, but I highly recommend that you watch and research about the science of grounding! There's a video here on KZfaq called "The Science of Grounding" and please watch all the way through.

@dorate100 3 жыл бұрын

I miss your videos :(

@reisrosenbloom 6 жыл бұрын

This music is making you look like a bad ass while you were drawing the meds and pushing them lol.

@kimberlywells1807 6 жыл бұрын

Love your videos OMG almost at 100k

@jorhodes4949 6 жыл бұрын

What's the name of the funky music??

@sarinafrohn6751 6 жыл бұрын

Im a bit fasenatit How iT al works Thanks fore showing How

@rebekahbridges-tervydis5054 6 жыл бұрын

May I ask, what is the brand of your heating pad?

@taryn2540 6 жыл бұрын

Its the Sunbeam 4-Setting King-Size Microplush/SoftTouch Heating Pad www.amazon.com/Sunbeam-4-Setting-King-Size-Microplush-SoftTouch/dp/B00474Z0Q4/ref=sr_1_5_s_it?s=hpc&ie=UTF8&qid=1519281706&sr=1-5&keywords=sunbeam+heating+pad

@SHOGUNSKA 6 жыл бұрын

Great video Jaquie. With all the respect on Earth but Danielle the nurse is such a babe. She needs to make more appearances.

@princessharleybaker3691 4 жыл бұрын

Can you use ivig for like fibromyalgia?

@marjoleinvaningen7686 4 жыл бұрын

Ivig is used for immunodeficiency . I don't think it would do anything for fibromyalgia

@oliviacase6417 6 жыл бұрын

I'm wondering if you're noticing any changes from the CBD oil yet, Ms. Jaquie?

@ChronicallyJaquie 6 жыл бұрын

I am going to address this in an upcoming vlog (: I've just had so many things to talk about the past few days lol!

@mirandabakker1 6 жыл бұрын

I like these videos i keep learning things keep it up 😄😄

@emilysherry5963 6 жыл бұрын

Hi Jaquie! I was wondering if you could tell me why blood return is so important. I don't have a port nor do I suffer from any chronic illnesses, but you never cease to amaze and inspire me!

@taryn2540 6 жыл бұрын

Someone else asked the same thing and this was her reply. "It ensures the port is working well, not clots/fibrin sheaths are forming, it is placed properly, etc. Also for blood work. I have been running fluids for the past few days (lots of them!) so I was not effected too badly this time. Usually blood work does not effect me all too well."

@supportforaly 6 жыл бұрын

It ensures our port is working properly and there isn't a clot in the catheter etc. Also as you saw we use it to have our blood drawn often times by the time we have a port our veins are doing poorly (like her friend Janice) that we rely on our port to be the point where we get blood drawn for labs

@emilysherry5963 6 жыл бұрын

ChronicAly Blooming Thank you!

@supportforaly 6 жыл бұрын

Emily Sherry np! And thank you for wanting to understand! Not many people who don't have chronic illnesses make an attempt to understand us and what we go through

@sereynahsamson6828 6 жыл бұрын

Heyyyy

@voidamy1874 6 жыл бұрын

Have u thought about using an IV bubble ?

@ChronicallyJaquie 6 жыл бұрын

4 hours it too long so a pump it ideal (: Plus it is programmed with my increase in rate

@stephanieshreve407 6 жыл бұрын

When I have to go to the ER and they push fluids to fast. I have the worst side affects, the last time I went I made them slow it down. Which made me feel a-whole lot better. I’m always so dehydrated, I sweat way to much. I don’t know why, just no matter how much I drink, I’m still very dehydrated.

@supportforaly 6 жыл бұрын

Stephanie Shreve you might want to check into dysautonomia there's different types which includes POTS but dysautonomia in general is problem as with your involuntary fuctions

@nicolebezanson8734 6 жыл бұрын

😊❤️💚💚💪🏻💪🏻

@chelsiesabine5458 6 жыл бұрын

Love watching you and so brave. My little girl she 2 and has a pink AFO . She get so existed that you had same as her . Way i get her shoe on is keeping AFO on and undoing the shoelace . And i move her foot left and right as im poshing it in . Hope this help

@GamerGoop 6 жыл бұрын

oh my god, she took so much blood for one tube!! XD Is that always how they do it for you? I get my blood drawn every 2 months and they only fill it half way usually.

@ChronicallyJaquie 6 жыл бұрын

Yeah she said Quest can be picky and have turned away tubes that are not full, so she just plays it safe when dealing with Quest (that is who my insurance uses).

@melissasullivan5899 6 жыл бұрын

Does a port stick hurt?

@supportforaly 6 жыл бұрын

Melissa Sullivan personally they don't for me! It just feels like pressure being put on my chest no pain!

@ingvildkvakestad 6 жыл бұрын

I want to watch but I have hemophobia I will try

@talonsage954 6 жыл бұрын

Babe, there’s no resistance!!!

@alyssawssinging4039 6 жыл бұрын

Btw jaquie how are you and jud doing is your realtionship okay?

@cellogirl11rw55 6 жыл бұрын

What is Solumedrol?

@taryn2540 6 жыл бұрын

www.google.com/search?q=solumedrol&oq=solumedrol&aqs=chrome..69i57j0l5.5199j1j7&sourceid=chrome&ie=UTF-8

@citlalilopez2273 5 жыл бұрын

Are you okay

@dorate100 Жыл бұрын

wonder how her home care nurse is handling 😢

@rebekahbridges-tervydis5054 6 жыл бұрын

Did the port flow give you any side effects? The most tubes of blood I ever had to give was 18. That was my personal record. What's yours? Lol

@samiamisme 6 жыл бұрын

Rebekah Bridges-Tervydis ...how the chronically I'll play games, lol gotta have fun wherever we can!😆

@RebeccaTheHalfBlood 6 жыл бұрын

My IVIG rate is 200 ml per hr

@seacreatureteacher2732 6 жыл бұрын

If only you would make longer videos. You're the best part of KZfaq!

@ChronicallyJaquie 6 жыл бұрын

@snail7519 6 жыл бұрын

im first!

@zoeyz5423 6 жыл бұрын

you should do draw my life!

@ChronicallyJaquie 6 жыл бұрын

It is on the very long list of videos I want to make lol

@3DGFan9000 6 жыл бұрын

Danielle is pretty.

@GotAnUmbrella 6 жыл бұрын

YAY you are wearing the finger brace for it!

@casspower 6 жыл бұрын

Ahhh I thought I could handle the blood portion of the vlog but no way. That was scary😱🙃

@robertacayea7452 6 жыл бұрын

So glad you had a good day. So great you can do more at home w nurse. Sleep well

@angelaguenther38 6 жыл бұрын

This question has nothing to do with todays vlog. Do service dogs need to be registered?

@hollywittenberg7031 6 жыл бұрын

Angela Guenther Not in the United States

@taryn2540 6 жыл бұрын

In the US no (if your somewhere else i'm not sure) There is no legal certificate or registration, there are ones online but they have as much legal standing as a paper that you wrote service dog on in sparkle pen. What makes a service dog a service dog is "a dog that has been individually trained to do work or perform tasks for an individual with a disability. The task(s) performed by the dog must be directly related to the person's disability."