I am sorry to hear about your vision. I really appreciated your comments and it really does help to know that we are not alone and often struggle silently. I really want to change that and bring more awareness to us with MS, and also to everyone fighting an illness and that it’s nothing to be ashamed of, we can support each other and get more research and help to us. The ups and downs are so tough. I really want to lean more about meditation and or YOGA to help get through them, but I am so impatient or feel like I am just trying to get through the day. I also can’t seem to not have ADD lol. I really appreciate your support and I am so sorry to hear about your vision.

Yes! Thank you!

Thank you so much!

Thank you so much!!

Thank you so much and the book recommendation I will check it out!!

Thank you for commenting, it does seem that we have similarities. I wish you well with the Ocrevus. If you find your symptoms are not improving or getting worse, there are a lot of options out there. Keep fighting!

Thank you so much ❤️I really appreciate it. Thanks for the reassurance on saying the name right 😊 Yes it’s been tough. Are you on medication now that’s working? I am sorry to hear the others didn’t. It’s hard not to grieve. I was just absolutely shocked I had MS even after all the crazy symptoms I just didn’t think it could be that. I really appreciate you taking time out to comment!

@SaraslivingwithMS so I was put on tysabri. I am in remission finally but I feel like that's the wrong word. Remission. I had an incredible amount of damage done that I pretty much feel sick every day. Which sounds so negative, I know... but it's just the truth, negative or not. I had shock too!! I had always exercised, watched my weight and ate pretty healthy (not perfect though) because heart disease/diabetes type 2 runs in family. I thought at 25 let's avoid that horrible stuff with prevention... then at 42. Wham! Lol The first year I was bedridden so I was literally just trying to survive. And now reality has sunk in along with grief. I have hope there will be better treatments, possibly remylination drugs that will be developed in time to help my kids/grandkids in case my worst nightmare comes true and they get this. I'm focused on trying to exercise and meditation to help manage stress. If you haven't heard of these 2 ms drs on KZfaq, I HIGHLY encourage you to check them out. Dr Aaron Boster and Dr Brandon Bieber. There videos are soo helpful, super encouraging and so compassionate. Giving you a hug, I hope you can get on your steroids soon, start perking up and please please try to sleep and rest as much as you can right now. If you can find a ms support group, those are very helpful in your journey to staying positive and to support through the negative. I will keep you in my prayers Sara. You are one tough cookie!!

@@donnabolt5847 thank you so much!! Has the Tysabri working for you? Have you been getting your JCV levels checked regularly? I really appreciate your support. I was always a non medication, eat and exercise person as well and then NOPE not anymore. However I am staying positive and have great family support. I really want to start meditation but I am horrible at it. Total ADD. Have your symptoms improved where you are walking around and feeling better? I hope so no really appreciate your support ❤️❤️

@@SaraslivingwithMS yeah... i just realized I never responded 😐 I am still jc negative so I am lucky for that but will continue to get bloodwork every 6 months to make sure I don't have it and if I do what levels. So, you can do meditation training called heartmath and it will actually monitor how well you do with meditating . I can never seem to go longer than 3 minutes but that's ok. The trick with meditating is that when your mind wanders (and it will) you just re-center yourself again. And repeat. Lol. But there are also free meditating youtube videos to help you breathe properly if you dont want to pay for heartmath. Did you stop the med amprya ? I know that people who have seizures are contraindicated. Enjoy your new puppy. I hope he brings you a lot of comfort snuggling and maybe even motivate you to take on a walk.

❤️❤️

Yes I work full time. I am lucky to work from home and have an understanding boss and I also have intermittent FMLA just in case I have a bad week. With the seizures i had it was really tough to go back and I missed many days. If I keep having them I am not sure what I will do. I hope the medication works! It’s tough. I hope you are feeling well right now!

@@SaraslivingwithMS I’m 3 years in when it came “the symptoms “ they never left! I’m still working in automotive industry full time. Unfortunately I’m not sure how much longer I can fight! To say the least it wasn’t easy for me to accept and really still is. I’m medication free and militant in my approach to fighting this disease with a sort of homeopathic protocol. If I didn’t have some success I wouldn’t go it alone so to speak. I’ve been diagnosed by 3 different leading neurologists so I can’t deny. I’m a former veteran and father to triplet girls that are 8. I have a lot of reasons to not give but trying to find good honest and accurate information on treatments has been difficult. The DMT drugs side effects have kept me searching for another way but time is running short as we both know the progression. If I didn’t have some success then I wouldn’t be med free. The doctors have always left me with more questions than answers. Truth is I don’t feel like they made an honest effort to treat me as an individual patient. My experience has been my doctors wanting me to be a Ginny pig trying the vast array of overstated dugs with lil benefit and a lot of side effects. Idk I’m rambling n bit frustrated I guess. This is really first time I’ve tried to talk about this online or with another MS patient. I hope n PRAY 🙏 you find a healthy answer to the invisible enemy we both face that hits hard! Keep your head ⬆️