When did you first learn about POTS? Was it during October (Dysautonomia Awareness Month)? 💙

thank you so much for this video! I'm 18 and, while i'm not officially diagnosed, i've been experiencing all of the symptoms for so long. recently, i did a poor man's tilt table test. my HR laying down was 78 and within a minute of me standing up, my HR jumped to 126. this was the confirmation for me after years of being downplayed since i was 12. I was previously diagnosed with orthostatic hypotension, but it didnt explain my super cold fingers and toes all the time, and anemia had been ruled out with a blood test. after researching the syndrome from potsies themselves, i learned all the quirks i thought everyone else went through (exercise intolerance, risking passing out in a hot shower, blood pooling, colby jack hands)- i felt understood! I'm scared, but comforted by the community. now i just have to find the same comfort in attempting professional diagnosis.

I've been chronically ill for 8 years now (CFS/ME, fibro, POTS) and it's always nice to see others ❤️ thanks for the video!

Thanks for sharing this video. I am still going through final testing but my dr is 95% sure it’s POTS and suggested I learn more about it. Your videos have helped me comprehend what I’m facing and comforting that I’m not alone.

Thank you! I am recently diagnosed. I plan to show your video to my family to help explain what is going on.

Thanks you so much for this video you've really helped me understand POTS. I was diagnosed with it about a year ago and your video has helped me recognise what my diagnosis means.

Thank you, my daughter was just recently diagnosed and I’m just watching and reading and learning. I’m going to see if she will watch your video with me together, thank you 🙏

Me too , THANK YOU

Awesome video!

I have been feeling very ill lately, and i have had heart palpitations for a while. When i stand up, my heart can go up to 140-160. Some days are better than others. I do not know if i have POTS or something else. I am hopefully going to the doctor this week to hopefully find some answers.

I have POTS but have never fainted/passed out. I've been diagnosed since I was 13. I'm now almost 30

Hi! I am 13 yrs old and got diagnosed about a year ago but never knew what it rly mean! Thank you very Mitch for this brilliant video discussing it as this explains alot😀

out of all these years i finally decided to talk about about what happens when my blood pressure drops, shes my psychiatrist but she has always been in the medical field she asks me if i ever heard about pots and i said i have heard of it a little. i thought it was just low blood pressure. ill be seeing the medical provider when i go back there so they can see further. im learning more about this starting today. so im here to learn more about it. it explains why i almost faint all the time and the heart racing. looking and reaching upward makes me feel the worst. but ill go see what my issues are all about. hoping its just low blood pressure this seems scary although im already experiencing it for so many years. fingers crossed.

Well explained. I deal with pots myself.

Hi. I have been diagnosed with Neurocardiogenic syncope. I have all the symptoms of pots and just recently discovered that the condition existed. I truly believe I have pots and hopefully my cardiologist rediagnoses me. I take midodrine already but it doesn't seem to help much. I have had symptoms of pots on and off for over 15 yrs. Only last yr my symptoms were at it's peak and looked into it. Thanks for this video. Take care. Xo

I was just diagnosed with Pots last week!

Thank you so much for the video! I've been struggling with POTS like symptoms, I went to the hospital and the Dr told me that I have depression and anxiety, I don't know what to do anymore, I hate standing up I want to be laying down all the time just to not feel my heartbeat go so fast

Im new so i appreciate the help 🙏

I am going to a cardiologist next Thursday but I wanted to ask, have you ever experienced a thumping in your ears or being aware of your pulse and hearing it?

ive had POTS-like issues off and on for a couple years, and my doctor kept telling me it was my anxiety. i went to a cardiologist a couple days ago and he told me its very likely i have POTS and scheduled a couple tests this week. i had covid about 2 months ago and it seems like since then my symptoms have seriously escalated and its almost constant. ): do you personally believe there is any correlation between covid and POTS?

Hi, please try Over the Counter 100mcg Vitamin B1, it made a huge difference for me.

My doctor dismissed my symptoms. My Holter heart monitor shows my heart goes from 65 to 150, everytime I stand. This makes my life hard to live. I shouldn't be dismissed

This is a great video, I was diagnosed with POTS last year. But no one exploited a sub type b or told me. I suspect adrenergic. But shouldn't those tests be standard? Which type do you have as I have the same symptoms? I get fast hert rate, fatigue, exercise intolerance and headache in the occipital mostly, but no fainting.

I don't have pots but I do have problems with almost fainting. It's heat related, I get palpitations and start feeling dizzy and sleepy and then I start to feel weak. When it first started happening I got a heart monitor to check if I did have it but I think they never found a reason as to why it happens.

I started getting symptoms while in my third trimester of pregnancy and I use to be so bad my heart would go into the 160s while standing and 140s while sitting. It took me so long to eat because I couldn't sit up long enough without feeling like I was going to faint. I was in beta blockers till I had my baby. Shes now 4 months old and my symptoms are coming back and im trying to find answers. Ive had ekgs, CT scans, echocardiogram, and Holter monitors and was just diagnosed with tachycardia but after reading more on this I really think this is whats wrong. Any advise on bringing it up to my doctor and getting the right testing?

I believe I have this !!!!!!!

So when did you know to actually go and get tested for it or checked out by a doctor? It doesn't happen to me too often, maybe a few times a week at most but typically in mornings right after I stand out of bed(even if I stand slowly) I'll start to try and walk but my legs tremor and I start getting extremely dizzy to where I cant stand so I try and grab onto a wall. Sometimes everything goes dark and I cant tell what's going on around me. I'm not sure, I'm not trying to self diagnose or anything I'm just not excited to have to go back to the doctors just for them to say "you probably are stressed and growing too fast". As far as I know it probably isn't even POTS and is something completely different, I just want to see if any of this is common for anyone.

Okay I’ve noticed that every single time I stand up, even if I’ve been sitting for two seconds I get up and I get very dizzy to the point where I’m falling over, my whole vision blacks out, my brain feels like it’s being pressured, and sometimes I’ll be out of breath and my heart goes faster. Even when im walking around school my heart beats very fast about 100-160 and im out of breath. But I could just be out of shape…

I'm not sure if this is POTS or not but I always feel like my heart is racing, my heart rate goes from 80 - 130 bpm after standing, i faint multiple times a day, i get lightheaded almost every time i stand/sit up, right before i faint my hands get all tingly and my vision goes dark, my hr got to 171 bpm just from doing a 60 second challenge in phys ed (literally just jumping over a cone for 1 minute), I struggle to do everyday tasks because a lot of the time my vision is darkening and my ears are pounding. Is this POTS? I've always thought it might be but I think asking someone who has it and has experienced it might know. I'm only 13 - if it is POTS, when do ppl normally develop it? Thanks so much ❤️

Hi! I had one question🥺 Is POTS and Tachycardia the same thing..? Ik it’s probably dumb to ask, but my doctor diagnosed me with this but the paper solely says Tachycardia. I wasn’t sure if POTS was another version of Tachycardia or something. Tysm in advance!

I'm a 52 year old man isn't POTS considered a Affliction that hits women? I keep hearing this but I've been diagnosed with this for years and I have one heck of a case of it. I have to consume a certain amount of salt or I'm in trouble I get to fainting passing out when I try to get up and start walking or even as I walk for a few stop just stand and start blacking out so yeah I appreciate your video

I am trying to find more information on this, so please excuse a late comment. The symptoms I have been telling doctors for years without much help: dizziness, forgetfulness, chest pains, trouble breathing, insane heart rate (180+ on a jog,) soreness at random (everwhere,) exhaustion, trouble standing up (partial white outs,) and others I can not remember. I (34m) have had 3 years of these symptoms and been telling doctors these symptoms constantly. I learned that POTS was a thing yesterday and it had an eye widening effect, it also sent me on waves of anger, depression, and happiness. My specific questions I have for you, if they apply. What is the chest pain like for you? I get it 3-7 days a week, right side (mostly), above the heart. It feels like a tightness and stabbing pain. Doctors have been brushing this off because they did not know how to explain it. Weird one here, do you get the white lines zooming through your vision when you exercise? It doesn’t happen often to me, but I am trying to understand if it may be related to this syndrome. Thank you for the video, hope your day goes well

I have a question. My doctor thinks i may have pots so i’m going to get a tilt test done. What’s it like? Also, my heart rate usually goes up to about 120-140, but sometimes while i’m still standing still it’ll start to drop back to about 100(my resting heart rate is about 80). Is that normal in pots?

I have diagnosed pots and I didn't get the turn table test, but I have Hypermobile Spectrum Disorder.

there’s something that I want to ask does your heart rate need to be over 100 when standing up to be considered to have pots? if my heart rate 60 while lying down and when I stand up it goes to 90 or 95 this also can be pots? Sorry if it’s a stupid question🙏🏻

I only pass out twice a year. I still don’t know what’s wrong with me.

I had some of these symptoms in the past, went to my Dr. All I really remember her telling me was too wear compression socks, and eat more salty foods. I have been getting really bad headaches, getting heart palpitations and dizzy. Today, I had all the symptoms at once again and fell because I was dizzy. I starting looking up my symptoms and found POTS and looked up on KZfaq to get more info. But in don't get this all the time. Could it be POTS or something else, I wonder.

Hi I started having fainting spells at 15 and no doctor could ever tell me what was wrong. Because I'm thin people always assume I'm just not eating properly and it extremely frustrating. I'm 28 and just now hearing about this thanks to my phone listening in on my conversations.🤣😂🤣😂 My question is what doctor do I go to to get a tilt test done. I will be so relieved to finally find out what is wrong with me!!

Pots twins !

I have 95% symptoms Im19y/male mostly laying on bad bcz of Lockdown .i feel stable only if im laying on bed And currently having little pain... (Eng tranl)

For me I may get slightly lightheaded and I’ll yawn as If I’m sleep because I then start to feel extremely tired . I always have headaches and brain fog . I have heart palpitations, I get headaches and I do feel nauseous at times . It doesn’t happen every day . I get light headed quite often but it when I catch it , after I lay down it goes away . But if not I go unconscious. First it’s like my hearing gets muted , everything gets quiet , then everything goes black . I also sweat a lot , my body will drip in sweat from head to toe and I’ll feel weak . This happened to me yesterday when I was out at a restaurant with my friend and as I was waiting for the check I got light headed and sweaty and from there I was almost unconscious, soaked in sweat . I thought I was going to die 🥺🥺🥺 I m going to get checked out for it . This has been going on since I was in 5th grade . At the time I was diagnosed with fainting spells . Now it feels worse and sometimes if I do go unconscious my body has spasms which looks like I’m seizing , idk what’s wrong with me but I hope it’s nothing life or death . I really thought I was dying

Good book about POTS POTS: What It Really Is & Why It Happens By:Patrick Ussher

Sounds like me 😦

Why am I still so ill a week after I fainted ?

I think this has happened to me due to exposure to toxic mold.