Patient orientation is at the heart of ERN RARE-LIVER. We are very pleased to be able to bring to you, a first-hand account of the patient experience before, during and after diagnosis. Their stories are accompanied by very clear and thorough explanations by Prof. Dr. Christoph Schramm. Many thanks to the patients and their families for taking part, and to our ERN patient representatives for providing critical input.
More information for patients:
rare-liver.eu/...
More information for healthcare professionals:
rare-liver.eu/...
Patient organisations play an active role in our network and are located throughout Europe:
rare-liver.eu/...