Prime of Life: A Family's Story (FTD)

Рет қаралды 64,553

CurePSP

8 жыл бұрын

David Wetzl and his family's journey with frontotemporal dementia (FTD).

Пікірлер: 73

@l.alexandra5871 2 жыл бұрын

Wow. This woman is a piece of work. My husband just died from FTD - why be so impatient with him and why belittle him? She’s so annoyed. I feel so sorry for this man. I’d give anything to have my very flawed, diminished husband back for five minutes. Who cares if he can’t see the layers and layers of his “work.” He still is a sweet man. To lose his CREATIVE mind is a tragedy??? Losing any part of your person or your mind is horrible. My husband was a Harvard Law School graduate. And we weren’t bemoaning this loss of this aspect of who he was. It was his loss of basic dignity which was so devastating.

@yesterdayitrained Жыл бұрын

I agree. And I’m so sorry. I wish I could give you those 5 minutes. 💔

@daydreonmckinney Жыл бұрын

I'm not seeing what you are saying at all. What women? It was his family talking, not just one women.

@loftus4453 Жыл бұрын

I think she’s caught up in the anger she feels at the disease. Being a caregiver is probably the hardest thing any of us have to go through. Especially with a disease as brutal as FTD.

@delaneycarpenter2641 Жыл бұрын

His legacy will live on forever and ever just like his soul when we die our earthly bodies die they are not perfect but when we go up to heaven, our soul will get a perfectly beautiful body inner soul will live on forever. Can I get an amen

@yesterdayitrained Жыл бұрын

This video is disgraceful. The lack of empathy and compassion for this man is appalling. Yes, raising awareness = raising desperately needed funds. But this is not the way to do it. This man is not a “clown”. He is is man losing himself, and he knows it. Show him some respect, and give him the dignity he deserves. JFC.

@molliemcmanus7261 3 жыл бұрын

I can relate. My bro got FTD year ago along with ALS. I can’t express how painful it is to understand and process all that is rapidly happening. My heart is with everyone living with this.

@kevinjohndrow9194 8 жыл бұрын

My heart goes out to you all. I am a caregiver for my wife. I hope for a cure as you do.

@greysalvador2120 2 жыл бұрын

I dont mean to be off topic but does any of you know of a tool to log back into an Instagram account..? I was dumb forgot my login password. I would love any assistance you can give me.

@marymillar8757 2 жыл бұрын

Surely it's obvious that his ability has changed but they need to let him feel proud of the ability he still has.

@judithwerner5301 Жыл бұрын

I agree. He still needs to know he has worth.

@lindaewartful Жыл бұрын

My husband has FTD and I appreciated this sharing because it was unemotional but educational. Watching someone you love change right before your eyes is to say the least heart breaking. When she shared the child like sweetness of a kiss on top of her head…

@coolnatty12 5 жыл бұрын

Thank you for helping raise awareness to FTD! My mom was diagnosed with FTD 5 years ago and is now in the later stages. FTD is so hard and heartbreaking! My thoughts and prayers go out to everyone who is dealing with FTD in their life!

@steviem5279 3 жыл бұрын

My dad was diagnosed with it back in October 2020, it's such a horrible disease especially when he gets agitated and aggressive, not fun to deal with, especially on the bad days when he is yelling at you and cursing you and blaming you for everything. I know your post is a year old but I am wondering if you tried anything to calm the aggression and agitation? We tried antipsychotics and anti-depressants and it seemed it made things worse and not better. After he was off of them, he seemed to stabilize with more "good" days than bad days but over the last month or so it seems as the number of bad days seems to be increasing. I was wondering have you tried CBD or medical marijuana and if so how were the results?

@karenthomas1158 4 жыл бұрын

At least he has left a legacy, some people go their whole life without achieving anything.

@jennifermehojah250 4 жыл бұрын

My mom passed from this at the age of almost 39.

@stevepeppers560 Жыл бұрын

Been with my mamma for two years. I'm not sure what form of demintia she has but it's gaining momentum, so it seems. She reads constantly and plays word search games. We walk daily and consume a good diet. It's such a back and forth target, always moving. Similar to fog moving in, then lifting only to return later. I'm 60, she's 78. This stuff can kill two at the time. I hadn't a clue this would be my test of a lifetime. No one to share, no one to care. My God provide us the strength and compassion to be loving care providers.

@barbaraweytens130 2 жыл бұрын

Im sorry you are going through this. My husband was also diagnosed june 1st and im terrified

@dianataylordeguerrero3888 5 жыл бұрын

Heartbreaking.

@hannahrosa5485 5 жыл бұрын

I'm so sorry you have to experience this. My husband suffered for ten tears with it then mercifully cancer took him.

@laurah.160 10 ай бұрын

my mom has this disease and I haven't seen her in 7 years. She literally went on a campaign of terror against me and my family. I was so baffled by her behavior, i didnt even know who she was anymore. No one in my family has helped me or reached out to me. She recently lost her older brother and his wife and she's been acting aloof and psychotic. I am glad that I don't have to deal with her and her disease anymore. My family back home in Texas just thinks I am crazy. I have severe ptsd because of what she put me through.

@reynasaenz8720 8 жыл бұрын

David was a great teacher for me. I feel really sad that this is happening to him. I am wondering wether this was genetic or caused by cadmium and all the toxic elements we have used in our artistic careers.

@delaneycarpenter2641 5 жыл бұрын

His loved ones are so negative it drives me nuts.I could just picture that if they met me, they would focus on the shit I can't do insteat of the shit I can

@rich6867 2 жыл бұрын

They are being filmed and treat him like that! Wonder how bad she makes her husband feel off camera. Did the producers of this video even realize this? I feel so bad for David now.

@saileebniss1782 2 жыл бұрын

Social economics

@katy2163 Жыл бұрын

The constant strain of living with someone going through this disease is incredibly hard on carers and family, who are grieving while trying to function too. Extend some grace...

@claudiaorgill4785 5 жыл бұрын

It's a sad case, but let us accept the things that we cannot change and the understanding to know the difference, give him all the love and the respect that he so deserve,we never know the day when it's our turn.

@khappy1286 6 жыл бұрын

I love him

@elmobolan4274 5 жыл бұрын

Why are his loved ones so are focused on what he can't do and constantly reminding him of what he has lost, why not work with who he is that day and enjoy the time he has left....

@joelmcnultymusic 5 жыл бұрын

It's tough to say the least. Unless you're going through it, it's impossible to understand.

@kristiesquivel6829 3 жыл бұрын

My thoughts too! His work is still beautiful! stop asking questions he can't answer. Just join him in his world

@rich6867 2 жыл бұрын

I agree i felt loved ones too negative with him. Make an effort of focusing on all the good you have left. I just lost 2 family members in last 2 years..We cherished every minute and didn't dwell on the end. Give the guy a break. I speak from experience.

@tennillefeltham9696 Жыл бұрын

I’m sure it was for the sake of this video , I’m sure in his day to day living they will focus on all he can do rather than not . But it was important to highlight the changes in his life because of dementia and the knock on effect it has . Untill it’s Recognised for exactly what it is knothing will change .

@janetbransdon3742 Жыл бұрын

She is so abrupt with him... not very loving towards him and dwelling on the negative. Please give this lovely man a break. Boy they say opposites attract ... try to understand him instead of putting him down. She appears to be more concerned about her experience instead of his.

@MrBobberino01 6 жыл бұрын

My mother in law was diagnosed with this yesterday, My wife and I feel overwhelmed as to where to start to help her. She lives alone and far from us.

@CurePSP 6 жыл бұрын

Hi there, we are very sorry to hear this. Please visit our website, www.psp.org, there are support groups and information available. You can also call us at 347-294-2873. We are here to help.

@delaneycarpenter2641 3 жыл бұрын

Can’t help stop in like 30 minutes

@jessiesvids10 4 жыл бұрын

🙏🙏🙏🙏🙏

@khappy1286 6 жыл бұрын

My farmer boyfriend- something was wrong. 30 yrs of pesticides. Brain is shutting down. He is so hot and cold. So sad.

@marshaboody9069 5 жыл бұрын

So sorry it is a big responsability too big for one person.Dont do it alone.Carers lose alot of thier life.Take time for yourself.

@sandradee7682 4 жыл бұрын

Also heavy metals in the atmosphere from chemtrailing which is then rained down on to the soil and food crops. It is criminal.

@steviem5279 3 жыл бұрын

@@sandradee7682 my dad was a house painter and I honestly believe his FTD diagnosis has a lot to do with his profession. He's 79 years old so when he was working there were a lot of oil based paints, paints with lead in it, and then of course the solvents. These guys didn't know any better as they did what they could to earn a living and to provide food and shelter for their families, it's horrible that's for sure.

@auntymarushkafah 6 ай бұрын

Can Keto help prevent further deterioration? I know they're calling alzheimers Diabetes t3 now. Seems like keto would be worth giving a shot.

@bernardwinn1817 2 жыл бұрын

Well compared to my girlfriend with FTD He’s doing a whole lot better than my girlfriend. She can’t talk can’t walk. She just likes sweets. Coke and french fries that’s what I bring her assistant living. She used to be a Great dancer. And now she can’t walk. But I’m still there to see her, And hold her hand. Tell her I love her and then I leave

@yesterdayitrained Жыл бұрын

I’m so sorry. I can’t imagine how difficult it is. But she is grateful for you, and you will never regret anything. I wish you peace.

@delaneycarpenter2641 Жыл бұрын

Oh, did I not mention that I am blind? I am so sorry about that. I may be blind, but I can do pretty damn well in the world, so can everyone else with a disability and a disease he still a good person at least look at the bright side

@jennys8847 3 ай бұрын

I'm in the process of finding out which form of FTD I have. It's looking like non-fluent / Broca's. I'm in the early days and I'm trying to educate myself and my family asap while I can. This KZfaqs is unusable for me because there is SO much 'background music' that I can't follow what you are saying. I'm not just whiney; I want/need to understand what you're saying. Please turn back-ground music etc. in your vids? Thank you.

@bonnieyoung4037 4 жыл бұрын

Robin Williams made his choice

@jessiesvids10 4 жыл бұрын

Bonnie Young Did he have this??

@AdriaFranconi 3 жыл бұрын

@@jessiesvids10 No! He had lewly dementia.

@GunsNRoses1123 3 жыл бұрын

He has Lewy body dementia, which is horrific and heartbreaking too, I totally understand his choice, he must have known there was no hope and that he would just get worse. I wouldn't want to live like that either.

@yesterdayitrained Жыл бұрын

@@jessiesvids10 No, he didn’t.

@macclift9956 5 жыл бұрын

Is it possible that certain medications such as antidepressants or hypertension medication could be causing this?

@wandarhiner8250 4 жыл бұрын

Mac Clift I have been wondering the same thing.

@naemasufi 4 жыл бұрын

hope not, I am on both last 20 years.

@wandarhiner8250 4 жыл бұрын

naemasufi yeah, me too. Been on some of these various meds for a while & probably will be on them the rest of my life.

@naemasufi 4 жыл бұрын

@@wandarhiner8250 yeah, I'm 64 still working in care, every forgetful moment gets e thinking

@rhondawiggins5728 4 жыл бұрын

@manueladarazsdi9675 4 жыл бұрын

The wife is a really Debbie Downer! She is not adding to his quality of life.

@rich6867 2 жыл бұрын

Nope...She thinking about herself first. Just sad. This seems to be going over a lot of people's heads. Doesn't bode well when we lose compassion from our being.

@katy2163 Жыл бұрын

Unless you're in that situation yourself, better not to judge. She's very likely exhausted, grieving and struggling just to keep them functioning.