I saw your post in a prostate support group on Facebook so I decided to subscribe to congratulations I appreciate you putting forth effort

I’ve been on this PC journey since 2014.. I have a KZfaq channel but I haven’t done any prostate Cancer videos. I keep thinking that I should.. Back in September 2014 I was stage T3B locally advanced Gleason 3 plus 4 = 7……. 10 out of 12 cores of the biopsy were cancerous.. PSA 7.8. I had ADT and 37 sessions of radiotherapy.. The cancer keeps trying to come back so I’m on Enzalutimide and Decapetlyl but I’m still here leading a fairly normal life over 9 years later.. I’ve never had a PET scan but I’ve had MRI and CT and Nuclear Bone Scans…. I’m so thankful for the NHS..

Hi there, slightly different story for me. Early 2018 PSA registered at 10.7. Long story short - had the stampede trial as the cancer was local aggressive and suspect lymph node and pelvic. Put on Zoladex for three years, Tamsulosin, 6 bouts of chemo followed by HDR Brachytherapy and 29 hits of Radio therapy PSA now non detectable. Had problems - non insurmountable. Biggest the presence of bladder stones which bite and have, due to water retention occur - up for an appointment with urology next month - now 76 and 6 years on still enjoying life so best of luck

Neil wishes you all the best for the future. Hopefully you have a full recovery and long life ahead. Because everything is treatable now, if it’s called earlier enough and dealt with which you seem to have done.

As I said I am from Sydney Australia. I was in Latvia and was sick but did not have time for a PSA. My PSMA scan was very bad so I saw a radiation oncologist had 39 EBRT and 3 years of ADT (hormone therapy). As I stated the fatigue, hot flashes and low libido from ADT has only just started to improve. Neil you produce great videos.

Good luck Neil another great video l had my prostatectomy 3 weeks ago it’s going well thanks to the team at NNUH .Thanks for the videos they are a great help

Thanks for your update Neil. Best wishes with your next steps and I hope for a positive outcome.

Hi Neil, glad you got the scan . Fingers crossed the results next week are good. x

Good luck on your journey. I had my prostate out 3 1/2 years ago and so far my psa tests have been good. I go in for another one in about 3 weeks, so hopefully it will be the same.

Best of luck!

Fantastic Norfolk and norwich so good keep that positive vibe Neil and our fingers crossed 🤞 and our team are doing good as well at the mo 👍

Good luck Neil I’m in the same position as you had prostate out 2 years ago and my PSA is snicking up just had another test yesterday waiting for the results. Funny how men never talk to each other about there problems they just say yer all good thanks if asked lol Good luck Neil hope all goes well

I have also had a PSMA Pet/Ct. Thanks for the update Neil.

Glad you had the scan at the lower level. I had mine at 0.24 and they found 3 lymph nodes cancerous. Now on ADT for 2 years with 33 doses of radiation to follow at 6 months. The ADT is awful and haven't felt well since starting with hot flushes, joint pain, fatigue etc. I said jokingly to the nurse doing the injection that the cancer caused me no problems but the injections are awful. She said at least the treatment is only 2 years so just stick it ot and they expect a cure in the end. So, even if it all seems too much, stick to it Neil, we must go on for our loved ones. Best wishes. Graham.

Good luck Neil got my appointment for 10th April bloods 1 week before score was 0.8 so see what it is next month

How long do you have to wear the diapers? How bad was your incontinence.

if they remove your prostate how can you get prostate cancer ?

What have they said about adt .

Hopefully your PET scan will be negative... which is what you want. This means you are at very early biochemical recurrence with the PSA of ,,0.2. you should push to get the salvage radiation of prostate bed and lymph nodes NOW ! as waiting till 0.4 you will have missed the boat of chances of a cure. I'M IN THE USA with very similar story... PSA rising to 0.11 one year after radical prostatectomy Gleason 9. My pet scan was negative and I'm scheduled for 33 sessions of radiation treatment this week. Because this is real early in the biochemical recurrence my radiation oncologist and I agree to no ADT for now. Please push to get the radiation now. You need to to have future pet scans that are neg and if so you have a chance of cure especially with Gleason of 7. There is a guy in KZfaq with same Gleason of and he had positive nodes all way up to his neck in pet scan.