Race to a cure for ALS

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3 жыл бұрын

Brian Wallach has already beaten the odds. Four years ago, he was diagnosed with ALS - amyotrophic lateral sclerosis - and given just six months to live. He's used that time to lobby for more research funds for dozens of clinical trials of promising drugs to combat the disease. Correspondent Lee Cowan talks with Wallach and his wife, Sandra Abrevaya, about their organization, I Am ALS, and their unceasing efforts to expand treatments for ALS patients; and with Chris Snow, whose use of a promising experimental ALS treatment has already more than doubled his life expectancy.
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Пікірлер: 878

@esmeu247 2 жыл бұрын

My heart goes out to all this families fighting ALS. Going through it with my mom.

@brandonsdreams3197 2 жыл бұрын

My grandmother passed away in 2007 from ALS, there were no treatments and she lived less than a year. I am in school for Biomedical Science, i want to be a doctor and find a cure.. I promised her ❤️❤️❤️ Rest in peace mommom Cacci

@ritamarie2976 2 жыл бұрын

ALS is not a terrible disease. It is devastating and a death sentence. It is so hard to believe that nothing came out of all the research money from the ice bucket challenge. I am bed bound and an invalid due to MS. I was also highly educated and a productive member of society, wife and mother. I was robbed in the prime of my life by an invisible enemy. So much help is needed in so many areas.

@ADRgman 2 жыл бұрын

I lost one of my former teachers to ALS a few months ago. I’m glad that I knew her when she was alive. I will always remember her.

@stephaniemitchell9160 2 жыл бұрын

I was diagnosed with ALS in January and told I have two years to live. The lack of treatment is maddening. AMX0035, NurOwn, and Toferson are all absolutely better than the two approved ALS drugs yet the FDA won't approve them.

@soniahurtado38 2 жыл бұрын

I am leaving with ALS,

@serenesapphire4406 2 жыл бұрын

Sadly, a Race lost by so many. I lost my Brother to ALS, a strong man with 2 beautiful daughters. May God Bless those suffering from this insidious disease, and their care takers. RIP my beloved Brother Rod ♥️🕊

@carolrousseau3629 2 жыл бұрын

God please bless Brian and all the ALS families out there.

@pamelamays4186 2 жыл бұрын

Kudos to Sondra for staying by Brian's side.

@lisaferrin

You can see how much his wife loves him. So sweet with him.

@marilynkelly-clark3325 Жыл бұрын

I don't know of a worse disease than this one. Your mind is intact and active but trapped inside a body that doesn't work and it robs you of everything from communicating to being able to move, or swallow. It's horrible. I pray for a cure.

@treefiddy5424 2 жыл бұрын

This disease is the most heartbreaking…

@christinaduke7346 2 жыл бұрын

A absolutely horrible disease! I lost my mother to ALS. Was given 2-5 years and lost her in 8 months.

@MIMI232

I remember seeing the ice bucket challenge & being like yeah…funny having water dumped on you. Not knowing years later my brother would be diagnosed with this disease. He was a fit & healthy person, riding his bike, working as a plumber. Now he can’t drive, can’t do anything for himself or speak. This disease is devastating. He’s only in his early 50s I still haven’t come to terms with my own family member having this disease. Praying for those who it has affected.

@chrisfinch8637 2 жыл бұрын

This feels so close to me, since I had a neighbor with A.L.S. and I was feeling so distraught for her family, when I heard that she had passed away from it (since I thought I wanted to say my final words to her). The family was carrying her out on her wheelchair, for her afternoon walks, and I often wondered how she was doing, for herself, and the parting words I said to her, one day, on her last days on earth, was all she and her family needed to hear. Boy, she was one of the best, that our neighborhood ever had. She is still missed, to this day, by all of us. Bless your heart, Lisa. ❤️

@schawnettarobinson8584 2 жыл бұрын

This is heartbreaking. He was a trifecta. I’m praying for a cure.

@mikegibson5971 Жыл бұрын

My dad here in Texas passed away of ALS in 2002. My thoughts and prayers are with you guys!!! Love,Mike

@jeremys5725 2 жыл бұрын

My late aunt was diagnosed with ALS in 1992 and given only a few years to live. She made it 23 years before passing away in 2015. She experienced it much like the late Stephen Hawking, a slower progression though she was wheelchair bound within a few years and then on a ventilator not long after. They were able to wire sensors to the few muscles in her face that she could control so she could communicate though her laptop. The laptop gave her the ability to have a voice, send emails, and even have a Facebook account. She was a loving, sweet, and beautiful woman but also a fighter.