I've had a lot of the same issues but not always chronic. zenpep helped my gastroparesis. so glad you pegged the DNA. my chemical intolerances are due to damaged DNA. God bless you! Happy birthday and many more!

You are an amazing young woman, and I admire your strength and tenacity in the face of such adversity. I only suffer from one of the same rare diseases as you, gastroparesis, and that alone is enough to make me want to scream from the rooftops. While I know gastroparesis isn't at the top of your list of things causing the most problems, should you get to the point where they suggest the gastric pacer to you, I can go ahead and give you a heads up on that...it literally saved my life and the life of a friend of mine. I'm not sure how bad your gastroparesis is, as I just recently learned about you. Best wishes always, and if you ever have any questions about gastroparesis, I was diagnosed in '98, and while I don't know everything about it, I have learned quite a bit over the years, and could possibly give you a few helpful hits.

Some great insights into you! Sorry about the leaf blower and the medical test. You can do it! God has your back!

Happy Birthday 🌈❤

Yayy new video😁

I really loved this video. Especially at the end when your describing each rare disease you have. Makes me want to look into EDS more. I've had issues all my life with my lower back, neck, sternum area and clavicle with it popping, grinding or other excruciating pain. I'm not saying I have it but it would be nice to look into and possibly have some reason why I struggled with this pain.

Happy belated birthday, Jaquie!! Thanks for sharing all your rare diseases in a concise way! You're a great speaker. :-) Praying you get answers soon, and treatment. Much love! -Sarah

I'm a nursing student and we just got the same alcohol swabs that you have and I like them so much better. They tear way easier than our old ones and trying to tear swabs open with gloves on isn't always easy 😂

don't you just love when your Dog steps up in his job performance. my did wonderful yesterday due a procedure with new sounds, multiple new people in a sterile environment!

The information at the end was very interesting but i got so distracted by the music playing.

I loved when you were talking in the car and Harlow was cuddling you because she knew you were struggling! So cute! Proud of you for getting so much done x

Happy rare disease day, and early birthday! And what a great way to break in flats! I too am a target shoe connoisseur, and breaking them in is always a pain (literally).

Missing you!

Congrats to your man happy 21 first birthday I hope you enjoy your day I love your Harlow so adorable as always 😍😍😍😍😍😍😍

Happy Rare Disease Day Jaquie! You are so strong and I am so proud of you for being so positive! Love you girly and if you ever need to talk just message me❤

May I ask if your hyper mobile neck effects your migraines? I have POTS, chronic migraines, gastroparesis, and possible EDS. I find my neck is very sore and flexible. It's triggering a lot of headaches and migraines. Have you found anything to cope with it? Praying for you!

Happy birthday 🎊🎁🎈🎉🎂 I really hope you enjoyed your day . I love ❤️ your videos so much!!!

Happy birthday!!! 🎂 May God continue to protect and bless you.. 😊

I've done dry needling for my migraines and it helps so much !

Really nice lunch, made me hungry. Glad your nuero appointment went well, and keep doing what you are doing, you are doing good, especially all you have to do. So glad Judd is wrapping up his time at the academy.Ted Talks has a lot of doctors and nutritionists that talk about the gut brain connection that you speak of, I would check it out because they give a lot of tips that was quite surprising. Do they give you extra vitamin C and organic bone broth for collagen or any other foods that help with that? Do you know if you were breastfed as a baby with all of these problems or formula? Thank you for all the information, I agree with you, many are underdiagnosed and/or misdiagnosed. There is also problems with doctors try to figure what is a symptom of something else or does it matter because we treat it the same>? Certainly a lot to consider. You have a great night too, bless you!

Happy Birthday, Jaq!!

This is why so many things are messed up these days..and why nothing gets done..so the insurance company had a system error..they know they did..but you're the one that has to go through the appeal process and fight to get it going again and to pay the bills that it should have been paying if not for their issue ,but it is upon you to stay on top of it and fight it..so stupid .

I get dizzy and headache gets worse when I stand but no diagnosis. my rheumatology Dr agreed I have hypermobity syndrome but not sure if eds. ??? I hate going to drs!!!

I laughed out loud listening to Judd's experiences at the academy. I loved all of the information here, but I couldn't focus on anything you were saying with the music playing.

Sounds like the market place is looking for a reason to term your coverage chances are your care is expensive.

Awesome, awesome, awesome!! And don't even get me started on leaf blowers! I would have turned around and promised my (future) SD that I would make it up to him.

2:27 There's only some blood visible in the tube. 15:00 Your what tubes?

Hey I have a quick question! How was the recovery period when you got your port surgery? Some people I've talked to say that it wasn't that bad but other people I've talked to say that it was really really painful.. I'm kinda nervous about the surgery so I just want to know what to expect 😅