RAW and REAL: Anj Granieri's Recovery from Severe ME/CFS
Рет қаралды 7,093
Күн бұрынIn this video interview, Anj Granieri, a poet and musician, shares how she bounced back from severe ME/CFS, with neurological and paralysis-like symptoms where she lived for months in a dark room, unable to tolerate even minor stimuli.
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CONNECT WITH ANJ GRANIERI:
🏠 Anj's Website - www.anjgranieri.com/
📸 Anj's Instagram - / anjgranieri
👉 Anj's Facebook - / anj.granieri
🎬 Anj's KZfaq - / @theedisoneffect
MENTIONED IN THIS VIDEO:
👦🏻 Gupta Program (ME/CFS Recovery) - guptaprogram.com/aff/825/
👨👩👧👦 Dan Neuffer's Recovery Progam ANS Rewire - ansrewire.com/
📖 Limbic kindling - www.natrolive.com/blog/2019/8...
🌟 Anj's Recovery Program "The Edison Effect" available at: www.anjgranieri.com/
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/ @raelanagle
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LEARN MORE:
✅ Check out my book! 📖 Finding Freedom: Escaping From the Prison of Chronic Fatigue Syndrome. View on Amazon - amzn.to/2LtzBcl
✅ Join my free course! 👩🏻 Lifestyle Pacing: Tools for Optimizing Your Energy and Achieving Your Goals (join for FREE with this affiliate link) - skl.sh/3BMsuqk
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LET’S BE FRIENDS:
🌐 Visit My Website - raelanagle.com
💻 Join my Facebook group - / healingmecfs
📸 Instagram - / raelan.agle
⏰ TIMESTAMPS:
00:00 🎙 Meet Anj Granieri
01:54 😔 Early Health Struggles
05:58 ✨ The Turning Point
09:20 💡 What ME/CFS Begs Us to Do
10:28 🚫 The Onset of ME/CFS
15:24 👉 The Four Pillars of Recovery
20:36 1️⃣ Limbic Kindling Explained
24:08 2️⃣ How to Expand Your "Soft Fence"
26:35 3️⃣ Reducing Your Allostatic Load
27:36 🔥 Stirrups on Recovery Horse
28:39 4️⃣ Leaving an Other-Focused Life
30:34 😅 Are You Disconnected from Yourself?
32:16 👨👩👧👦 Why Recovery is for Life
32:44 🛑 Where People Tend to Get Stuck
34:59 🏗 How to Build a Recovery House
37:20 🛠 A Severe Mercy of ME/CFS
40:01 🤝 You're Prepping Yourself to Soar
43:04 ❤️ The Greatest I Love You from Your Body
44:33 🔹 Anj's Recovery Resources
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NOTE: This description may contain affiliate links to products I enjoy using myself. As an Amazon Associate, I earn from qualifying purchases. Should you choose to use these links, this channel may earn affiliate commissions at no additional cost to you. I appreciate your support!
REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#mecfsrecovery #mecfs #chronicfatiguesyndrome
@RaelanAgle 22 күн бұрын
STRUGGLING THROUGH LONG VIDEOS? ✅ Subscribe now for a bullet-point summary from our latest interview! 💌- mailchi.mp/3bd95045319b/raelan-agle
@chandyclove3335 14 күн бұрын
We all love Anj! It's cool seeing someone from the FB group that was going through it with us, that's now on the other side. I need to remember to re-watch this because every minute is gold!
@TheEdisonEffect 13 күн бұрын
The love is mutual
@SushiWasabiMiso19 14 күн бұрын
"you're at the gas station filling up your tank...and then when the gates are open and you're back in the game, you fly ahead of everyone because you've done the work that nobody does." - this filled me with a lot of hope. Ive said a lot during this that I feel like my life got so small and life is passing me by. This really sucks, but it's also causing me to really look at things and change how I think about...everything.
@TheEdisonEffect 13 күн бұрын
I know... it really does suck! And i am always careful to be sure what im saying doesnt sound patronizing, but in this case, it couldnt be more true from at least my personal experience. MECFS makes us into superheroes and when we recover, life just doesnt hit the same way it used to; because we know how to manage stress so well!
@jog5289 13 күн бұрын
I really enjoyed hearing these words too! I love achieving things, and this whole 6 year CFS journey has left me unable to achieve so much but now I can tell myself I'm progressing in my own personal growth. Thank you Anj and Raelan. 😊❤
@PetraHunns-rs1po 13 күн бұрын
“Give a man a fish & you feed him for a day. Teach him how to fish & you feed him for a lifetime!” In a nutshell this is exactly what Anj & her course has done for me. Given me tools for life! After a 16 year battle I’m finally on the right path to recovery & I couldn’t be more grateful to Anj for showing me the way. It’s the only place I’ve felt supported & understood. I’m in awe of this amazing, inspiring woman… how she is so passionate & truly cares that she has now devoted her life to helping others get their lives back. A true inspiration 🥰
@TheEdisonEffect 13 күн бұрын
Petra - getting to know you, and seeing the mirror of my own journey reflected back in you has been deeply powerful. I am so proud of all the changes you've implemented, the light-bulb moments and awareness you've cultivated. Cant wait to celebrate with you when you are fully well. Thank you so much for having so much faith in me and my process; I am deeply humbled by it
@truthprevails7085 14 күн бұрын
Great phrase-Kidnapped from my life, thank God! I’d actually asked God to get me off this world of terrible stress in work life, and looking at 20 more years of the same was impossible. I was overwhelmed and slowing declining for 2 years before the mono hit at 46. BOOM. Careful what you ask for! That was 2003..Mild to moderate now and very grateful for all the blessings in my life.🙏❤️💯
@TheEdisonEffect 13 күн бұрын
So sorry to hear that you had to go through a similiar journey, but so glad to hear that you have this attitude about it!
@truthprevails7085 13 күн бұрын
@@TheEdisonEffect Thank you!❤️🤗
@jessieandrews5586 13 күн бұрын
Prior to doing Anj's program I had spent thousands on Brain Retraining and Nervous System Reset Programs along with working with functional neurologist and specialists. I hesitated joining Anj's program because of my lack of progress with the previous experiences but something kept pulling me towards her. I'm so glad I listened to my gut. Anj has constructed not only an incredibly easy program to follow but one that makes it easy to understand what's happening with your body and mind and delivers a powerful and doable approach to recovery. It was the first time I was seeing real change and improvement.
@TheEdisonEffect 13 күн бұрын
I got chills! I remember our first discovery call and my heart just breaking watching you in such a state; wanting so badly to play with your kids, not sure how to hope. My dear, watching you come so far has been incredible. Thank you thank you thank you for entrusting me with part of your journey. It’s been an honor and a privilege.
@MayaLove1976 5 күн бұрын
Yes! I love this interview. I’ve been healing my trauma for years and the only thing I can’t do yet is live my authenticity. I’m still trying to find myself as I was not allowed to have passions or expression or my own needs when I was young. It’s a journey. But this is the missing piece I’ve been looking for. ❤🙏🏼
@healingjourney722 13 күн бұрын
Such a brilliant interview. Please have Anj back! Great to hear she is writing a book I will look out for that. About the hyper sensitivity, I wonder if some of us have neurodivergence or ADHD or autism because I really related to the strength of feelings, and the freight train of thoughts I couldn’t stop, people with neurodivergence have more thoughts on average I think which can be overwhelming and distressing.
@TheEdisonEffect 13 күн бұрын
I would love to be invited back! ❤❤❤
@lisabennett1253 14 күн бұрын
There is an old episode of Golden Girls from 1989 where they tried to tackle chronic fatigue. Twenty five years ago and they we're STILL being gaslighted! Just sayin'.
@charlesfuchs 14 күн бұрын
just buy all their stuff haha
@TheEdisonEffect 13 күн бұрын
Yes, I've seen that episode! I am a Golden Girls nut haha I think I've seen the whole series twice. The wonderful thing is that while doctors may still gaslight us, we do have MECFS specialists now, like the one I went to see at the Nuero Immune Institute for MECFS research in Florida. So at least there is MORE understanding and some real help out there. And also, unlike in 1989 when it was called "yuppie flu" there is the internet and access to SO many recovery stories - which without them, I dont think I would've gotten better because all I kept hearing was that this illness is a plague to suffer with forever. So I am VERY glad to live in this age, not in 1989, and VERY glad for Raelan and her channel, which started me on my path. Now, I help others, and have watched people get well over and over. It feels like the highest calling of my life, to do this incredibly difficult and often times exhausting, but beautiful, enriching work - and to watch people get their lives back and be able to go back out and give their talents to the world. Wishing you SO MUCH love in your recovery journey.
@medusaslair 8 күн бұрын
"ME commands us to live in integrity with ourselves, or we can't get well." This is so true and hit so hard as a confirmation as to the conclusion I have come to as well. I am not fully recovered yet, but I did start to heal when I came to that conclusion and started acting on it. I'm on my way. Thank you both for this life affirming interview!
@TheEdisonEffect 8 күн бұрын
Im so glad it was affirming, as for some perhaps it may not be. But for me, it was and remains still so true. I am so excited to hear about your recovery journey. Your on a great path it sounds like
@medusaslair 4 күн бұрын
@@TheEdisonEffect Thank you for answering! There was a lot in your personal story and how you function with your sensitivity and all, that I could recognize in myself. Having to start with the body, instead of the mind, is really true for me as well. Your program sounds a lot more like a WHOLE program, in comparison to most programs that are solely focused on the brain training and it feels like there's a whole lot missing. Thank you so much for sharing your story and the wisdom you've gained from your healing journey!
@TheEdisonEffect 3 күн бұрын
@@medusaslair hey hey! Thanks for these beautiful words. Yes, I feel its a very comprehensive program that doesnt only focus on brain retraining but is MECFS specific and works with bottom up and top down processing, expanding, baseline, supporting secondary dysfunctions AND deeper work etc. I so appreciate your comments and am rooting for you
@diannepkegler8985 14 күн бұрын
Wow!!!! You got it. I see it, I see it all. It takes all four pillars. Some of us has more or less to do in each pillars. That’s why the recovery time is different for everyone. Example, if you’ve had less trauma in your life and you are already eating well then you are way ahead of the game. Recovery time depends upon how you got sick, and the shape you were in in reference to all four pillows before you got sick. that’s why you hear of some people getting well in two or three months after starting brain retraining because they were already in good shape in reference to the other pillars , it makes perfect sense.
@charlesfuchs 14 күн бұрын
Yeah, buy more stuff ok lol
@TheEdisonEffect 13 күн бұрын
Its so good to see you here from the MECFS FB group! Thanks for all your wonderful words and I'm SO glad that my sharing these last 4 years has impacted you... I agree with all you've said
@blueberrydreamslight 14 күн бұрын
This was beautiful and gave me a ton of hope. You are both amazing women! Thank you ♥
@amysin963 5 күн бұрын
Anj has such a brilliant way of explaining things. Listening to this interview helped me realize why brain retraining only got me so far. I really had to do more work on calming my nervous system before the cognitive learnings could “stick.” I love that she mentioned a healing mindset vs. a cure mindset. Her description of limbic kindling was just terrific. Thanks for this interview, Raelan! You did a masterful job of stopping her to clarify things.
@maevey3 14 күн бұрын
Uncanny how much I have in common with this guest. Very validating to watch, & a timely reminder of where my.focus needs to be. Off topic, but love what she is wearing, too, & wondering if it's a dress.
@TheEdisonEffect 13 күн бұрын
hi hi! The dress is actually a hand painted "batik" that i got off a road side in Koh Lanta, Thailand on my journey! I wore it SO much, that the pants have a hole in them now hahaha. Talk about LOVING the dress. I'm sorry to hear that you're story is like mine, but want to encourage you that you CAN find a way out :)
@deelicious1610 14 күн бұрын
Thank you thank you thank!!!! It’s not one thing, it takes a personality shift, and as much as I resisted, I have come to accept that it’s a lifelong commitment.
@TheEdisonEffect 13 күн бұрын
love your energy, and the acceptance and the curiosity of this comment!! You rock on, fellow MECFS warrior :)
@kirstenp3875 14 күн бұрын
This resonates a lot with me. I’ve tried brain retraining so much but it just doesn’t help. I always had to calm my mind with my body and could NOT calm my body with my mind. I will look into bottom up and limbic kindling, very interesting take
@charlesfuchs 14 күн бұрын
start buying more stuff
@kirstenp3875 14 күн бұрын
@@charlesfuchs she’s not selling anything tho? These points are also doable on your own.
@TheEdisonEffect 13 күн бұрын
Hey there dear - I hear you on brain retraining- one thing to consider is that we are all brain retraining all the time - its a process of nueroplasticity that cannot be avoided, only shifted. So you dont stress if the METHOD by which you are brain retraining isnt working for you - find a work around - visit another pillar and return to brain retraining when the body shifts and you have more energy to work with - you can do it - i believe in you
@JaneDoe-zw6cm 21 күн бұрын
What a great interview. I appreciate Anj and what she shares so much! I haven't participated in her program, only subscribed to the newsletter, but it's so helpful and often pure Gold. Her Wobble meditation helped me through many crashes and symptom flares. That sentence about people taking you with them when they leave hit very hard!! I only realized the extent of my attachment trauma when I got sick, and it was an absolutely shattering experience. So many things to address on the path to healing. :) As my therapist puts it, some just don't get the "this is how it should be- default setting", and while exploring and unlearing the coping strategies that might have saved you as a child but contribute to stress, illness and further trauma as an adult is challening, it's so worth it!
@TheEdisonEffect 13 күн бұрын
I am SO thrilled to hear that the wobble meditation has helped you - i know that when i created it, i thought of the meditation that i wished was available when I was sick. Regarding the newsletter, I just moved my entire website to a new platform and restructured the whole thing ( see under the video for link) and the newsletter platform is also shifting. So make sure that you are on the lookout for an email telling you how to shift with me so you dont lose access. Rooting for you
@ingridmwikachungwa2913 14 күн бұрын
Its crazy how suffering from CFS makes one have a different perspective of who you really are. Alot of personal questioning goes on as one struggles to recover.
@charlesfuchs 14 күн бұрын
yeah, its crazy they just sell a story and sell you stuff lol
@margaretwhittaker2291 14 күн бұрын
100% agree!
@TheEdisonEffect 13 күн бұрын
I think most chronic illness begs these questions, but because of the stress response in MECFS, it may be even MORE SO!
@charlesfuchs 13 күн бұрын
@@Justlikemagic96 and you are a sheep supporting a grifter
@johannesschmitz6370 13 күн бұрын
suffering can be a great learning tool
@elisabethakel66 14 күн бұрын
Anj truly has provided incredible information that has been instrumental throughout my recovery. Her and her course have played a huge role and I’m incredibly grateful. Thanks for sharing your insights and wisdom.
@TheEdisonEffect 14 күн бұрын
It’s been such a blessing to coach you and watching you recover has been pure sunshine for my heart and mind ❤
@legohouse4819 14 күн бұрын
Brilliant interview. So thorough and hopeful
@jbll90 14 күн бұрын
Thank you for the interview. Without a doubt a source of wisdom and authenticity
@marydugan4120 14 күн бұрын
Best interview in ages !!!!so much of what she said resonated with me God Bless you Anj X
@TheEdisonEffect 13 күн бұрын
THANK YOU SO MUCH !!!!!! The positive feedback has me soaring high as a cloud today
@Mevab-vk8ei 14 күн бұрын
Thank you, so helpful!! Pilar 4 just became evident to me! Living the Pilar 4 journey. Continuing pilar 1,2 and 3 work also. Recovering is me!
@TheEdisonEffect 13 күн бұрын
Kick ass! You got this my friend. I'm still working pillar 4 too, but honestly, I think my recovery involves living all the pillars forever :)
@gingerztube 14 күн бұрын
Wow, wow, wow! Great interview! Lots of a-ha moments for me! Thank you Raelen and Anj, this was a wealth of information!
@TheEdisonEffect 13 күн бұрын
I LOVE hearing that someone is having a-ha moments, in my program we call them LIGHTBULB moments (after thomas edison haha who created the lightbulb, by which I named my course, the edison effect) haha. Keep going because those light bulb moments were the key to my recovery! As I so often say, the foundation of recovery is awareness!
@leadvorsak 14 күн бұрын
Just like in the FB group, your story is just brilliant, Anj! Such insight and such well rounded approach and I am heavily inspired by it. Have been since I fell to severe 8 months ago and have recovered enormously already by listening to your knowledge. It is a journey and it will last for a long time yet, but I feel like I am slowly meeting myself and addressing the decades of things that I did to survive ... To finally live. Thank you for sharing and thanks for the interview!
@TheEdisonEffect 14 күн бұрын
Love this comment so much. Thank you for sharing these beautiful words- I am so glad that my content in the Fb group has inspired you, and im hoping you’re fully well very soon. Rooting for you always, and in all ways.
@justbecauseican1410 14 күн бұрын
I am so sorry you went through this 🌷. I complain when i crash but i try also to be grateful at the same time when i hear how severe other people are. I am so happy for you that you have recovered! And I wish you all the health and happyness
@TheEdisonEffect 13 күн бұрын
hey, its not a competition and your suffering is valid, even if i had a more severe experience; if you've never had it that bad, you have no frame of reference, so your crashes are the worst you have ever had them, and I know it feels like HELL when it happens, because it sure did for me when I was mild, when I had no idea it could get worse. Thank you for the congrats it means a lot, and best wishes in your recovery
@kristinae.7084 4 күн бұрын
I think this is the best, most comprehensive explanation of ME/CFS healing I've ever heard. Thank you so much
@TheEdisonEffect 3 күн бұрын
damn! thank you SO MUCH. This gives me such a boost to know that my words are helping people, and my program as well. We all sometimes have imposter syndrome, but seeing how much my interview has resonated helps me quell that voice.
@debbieattwell 7 күн бұрын
A lot of what she describes at the start, like not being able to stop and being sensitive, sounds like undiagnosed ADHD. Neurodivergent people are so much more prone to chronic illness, it's like a double whammy. Great interview.
@gemmamoran4257 13 күн бұрын
One of my favourite interviews thus far! Thank you so much to both of you, I resonated a lot with this. You're both making a huge impact on so many people.
@TheEdisonEffect 13 күн бұрын
Thank you so much! I am SO glad to hear it resonated with you...
@nicks3294 14 күн бұрын
Great interview! Thank you Raelan and Anj !
@TheEdisonEffect 13 күн бұрын
Thank you!!!
@baileystruss7319 14 күн бұрын
Hey Anj my friend. Was just thinking Raelan needed to interview you and voila.
@TheEdisonEffect 14 күн бұрын
Hey dear! Yes it was a 9 month wait but I am so glad to be here to share. I’m always rooting for you!
@TimMurphy41 12 күн бұрын
I am so profoundly grateful for your channel. I'm having a bad day today, but the "floor" is significantly higher than it would otherwise be because of the many stories on your channel of guests coming back from seemingly insurmountable adversity. I hope you sleep very well. You deserve to.
@TheEdisonEffect 12 күн бұрын
I so hope my interview gave you a needed boost :) Hang in there! The floor is going up!
@viviannesinclaire 15 күн бұрын
Thankyou Anj and Raelan! Great, balanced information. Very comprehensive. All makes sense. ❤
@TheEdisonEffect 13 күн бұрын
comprehensive was the key to me for my recovery; i built my recovery on it, because I know that we dont all get well the same way. Thank you for your kind words.
@susanrodriguez9438 14 күн бұрын
So glad youre spreading awareness and making videos adressing this illness
@TheEdisonEffect 13 күн бұрын
thank you! I'll be making videos on instagram very soon so that tons of folks can have recovery tips who cant afford a program, and to help spread awareness. Just yesterday I was on a domestic flight in thailand and met a guy who didnt know anything about MECFS, and by the end of the light, he did! One person a time, thats how its done
@katydonna6015 10 күн бұрын
This has probably resonated with me the most out of all the recovery videos I have seen across platforms. Thank you, ladies
@stevebarlow1959 7 күн бұрын
Wonderful & Inspiring! The energy you both create together, well, if I could bottle it, I would!! I really get the thing about building habits. After a period of hospitalisation with crazy symptoms (when, of course, they found nothing and told me I was fine), I committed to meditation on a daily basis, morning and night. And I'm a bit rubbish at meditation! But I refused to stop and so this is my own humble suggestion to anyone also here in the trenches, keep at it even if you think a. it's not working or b. like me, you think you're rubbish at it. It works at many different levels, over time, in its own time. Again, a million thanks and gratitudes from over here in the sceptered isle, the UK! x
@TheEdisonEffect 7 күн бұрын
I was exactly the same way! I just refused to stop doing it - and when I started I was slumped against a wall with pillows all around me, almost incapable of sitting up! The impacts came in waves and those waves got bigger and bigger! I'm so glad you're having success!
@loveyfife3622 13 күн бұрын
True gold, I am going to watch this again
@TheEdisonEffect 13 күн бұрын
Thanks so so much
@katydonna6015 10 күн бұрын
Ooh this about Limbic kindling is awesome! Definitely adding that to some search results!
@Udai-21 7 күн бұрын
simply great ! thank you !
@TheEdisonEffect 6 күн бұрын
you're so welcome!
@Skyrunner2 6 күн бұрын
This the most raw and real interview I've listened to that resonates so much for me. Seeing her enthusiasm and passion gives so much hope. I sense I'm at stage 4 of she shares. I'll be checking out her program. Thank you Anj and Raelan for this interview. ❤
@hemmamistry6563 10 күн бұрын
I agree Raelan everything Anj shared was pure gold, I resonate so much and feel validated in my process. Thanks so much Raelan for another amazing interview, spreading hope, inspiration and healing in the world🥰
@TheEdisonEffect 10 күн бұрын
Thank you so much!!!
@jeancazilus8314 14 күн бұрын
Great interview!!!🎉🎉
@TheEdisonEffect 13 күн бұрын
thanks so much !
@user-dk2ls1em5r 13 күн бұрын
Great video! So many things I related to ❤
@TheEdisonEffect 13 күн бұрын
Thank you so much :)
@AnrupB 13 күн бұрын
Omg I relate to SO MUCH of your experience and contributors to illness. Sending love
@TheEdisonEffect 13 күн бұрын
So sorry to hear you can relate so but SO glad that the video helped you feel seen
@earthrooster1969 14 күн бұрын
Wow! Incredible interview! Like you said Raelen LOVING EVERY WORD! ❤I think I will revisit this again and again. Love❤ the way she is able to illustrate so many aspects which to me could not be explained like she does!
@TheEdisonEffect 13 күн бұрын
OH WOW - thank you so much for this beautiful comment. It means the world to me. If i can be of any help, please reach out - plenty of links for contact under the video. I love this feedback and to know that I am helping give people hope. Keep shining!
@eviemorgs 14 күн бұрын
Love this, I agree on all four pillars being so important and I can really relate to the issues with identity and codependency. I love Dr Joe Dispenza’s you are the placebo meditation because it has three parts that involve both somatic and cognitive rewiring 😊
@TheEdisonEffect 13 күн бұрын
Joe Dispenza of course is a brilliant guy! I could never get into his meditations for some reason, but i've listed to his you tube channel endlessly
@inthislifewellnesstravel 11 күн бұрын
Great information. Thank you. ❤
@TheEdisonEffect 11 күн бұрын
You’re so welcome
@ecat1111 14 күн бұрын
I thought this was wonderful!
@TheEdisonEffect 13 күн бұрын
Thank you so much - that means the world to me
@lovisalallerstedt-jacobsso7428 3 күн бұрын
Wow, thank you! You put the essentials into words in such an inspiring way. Also, you guys look amazing in your matching shirts 😍
@TheEdisonEffect 2 күн бұрын
Hahaha not intentional!
@nolamayer4101 13 күн бұрын
I have been waiting for this interview, so so happy to see you looking so good Anj 🥳 really enjoyed the interview and picked up some great “ nuggets”. For me it’s really looking at who I am, how did I get here and what can I do to unpack the pieces that don’t serve me Thank you🥰
@TheEdisonEffect 13 күн бұрын
Nola my dear!!!! So good to see you on here. I am glad you picked up some new "nuggets" for your recovery. I'm always rooting for you.
@nolamayer4101 13 күн бұрын
@@TheEdisonEffectthanks Anj 🥰
@B3l0v3d05 7 күн бұрын
I think Anj and I are actually the same person, all the way down to the ED and the nervous system education, the mental breakdown due to being with an addict and taking care of everything! And reactivated EBV that was the tipping point! I have a degree in behavioral neuroscience too. And the paralysis.
@TheEdisonEffect 6 күн бұрын
damn! thats a lot of similarities! I'm so sorry to hear :) But also, I think I have a pretty great roadmap out for you if we're the same person haha I hope we'll stay in touch on social media somehow
@B3l0v3d05 6 күн бұрын
Best way to contact you personally? I could use the help. Bedbound, pretty severe. Can only do short bursts of screens. But I don't have $ for many of the programs. Husband left after my diagnosis and no family help so I am on govt. caregiving now. So that's my situation in a nutshell. Let me know if you'd still be interested in connecting. I've learned it's best to be up front about my situation right away cause a lot of people with MEcfs or brain retraining programs have kinda fallen off when I tell them.
@TheBradlyjv 13 күн бұрын
Great interview, with so many insights 😊 I think people can take a lot away from this
@TheEdisonEffect 13 күн бұрын
thanks Bradly - I hope it helped you :)
@catcomo4780 7 күн бұрын
Great interview! Also, love your coordinated outfits! Very visually harmonious.
@TheEdisonEffect 6 күн бұрын
totally unintentional!
@alexandrecouture2462 14 күн бұрын
Interesting!
@TheEdisonEffect 13 күн бұрын
thank you!
@Notinitforthelonghaul 13 күн бұрын
I agree with the concept of multiple things needed. I feel like I’ve improved a lot on NS work & brain retraining. Now I’m looking into paxlovid/HBOT/ozone. Haven’t decided which one to try first but feels like the next step to get me further.
@TheEdisonEffect 12 күн бұрын
I hope it helps you! HBOT is a great tool; just you MUST understand how to pace and expand when you feel better, cause you will with enough HBOT - I got very sick from not understanding this and moving too fast when I felt better!
@briechilli4496 12 күн бұрын
It sounds so complicated. Overwhelming
@lisawaldegrave5738 12 күн бұрын
This was a wonderful interview. Thank-you Raelan and Anj. - I've been struggling with post viral syndromes and vax injury since 1990, disabled for 34 yrs now. But other things contributing to all this dysregulation, are toxic mold colonization, Bartonella and Mycoplasma infections impacting me neurologically and more recently covid vax injury and long covid. I wonder did Anj have any of these additional issues contributing to her allostatic load? Nothing much seems to be budging since a big relapse in 2016 after experiencing trauma, break-up and treatment change. I have done EMDR and Psych K- trauma work and brain retraining DNRS and Primal Trust. Any suggestions would be greatly appreciated and did Anj use ANS rewire at all? Thx!
@TheEdisonEffect 12 күн бұрын
Hey there my dear!! It's so good to see you on here :) Yes I did have other things, thats why I speak about pillar 3 (supporting the body) and how it does matter. I had mold (lived in a house with mold and exposed to mold rebuilding a 1974 camper), I had reactivated viruses (EBV, coxsackie virus, etc), and bartonella. I also suffered a concussion in 2019 when I was mild that moved things along lol. What I hear most in your comment is "nothing much seems to be budging since a big relapse in 2016 after experiencing trauma, break-up and treatment change" - and that tells me a lot. Often times these emotional events (same for me) push us over the edge. But if you have done trauma work already which is awesome, pershaps you need help with expanding/contracting and supporitng the body in order to get well? Are you pacing? Do you know how to pace? Do you know how to expand and deal with symptoms when you do? If you want to reach out to me, shoot me an email.
@AntonyJS 11 күн бұрын
Love ya Anj ❤️
@TheEdisonEffect 11 күн бұрын
Anthony!!!!! Hugs how are you my friend??? Still kicking butt with recovery?
@AntonyJS 11 күн бұрын
@@TheEdisonEffect I am still moving forward with the upward trajectory. Building new blocks ontop of the foundation. Great interview, lots of key components to finding out own ways through this journey. 😁❤️
@TheEdisonEffect 11 күн бұрын
@@AntonyJS so glad to hear this - when you feel up to it, I'd love to interview you on my channel! Keep going, youre almost there!
@sybilsanchezkessler4155 Күн бұрын
Any chance that Anj might have a book coming out? I can not do more programs right now, but man, I'd love to read her book. Also, reminds me, @Raelan Agle, any chance you'll have a new book in the offing?
@JessicaR-hx8yl 11 күн бұрын
Very much enjoyed this interview, thank you. Anj, I just wanted to ask you to speak more calmly 🙏🏻 I can more or less tolerate, but got a little stressed because of the loud and agitated voice. I’m sure many people have the same. Other than that, this is one of the best interviews I’ve seen.
@TheEdisonEffect 11 күн бұрын
Hey dear! So sorry that for you my voice came across as loud and agitated; I’m from the east coast of the USA near New York and to some extent this is just how I tawk (talk haha). 😂 I was super passionate about the topic and energetic but I understand if I came across as jarring! Wishing you all the best ❤
@JessicaR-hx8yl 10 күн бұрын
Thanks Anj! I understand and you are as you are! But as you know so well yourself, people with ME/CFS can be so sensitive to loudness. Just that 😌🩷
@TheEdisonEffect 10 күн бұрын
@@JessicaR-hx8yl Yes I totally get it :) I will try to think of it next time I'm in an interview :)
@chincheckfool3591 Күн бұрын
Is this approach useful for long covid
@visionvixxen 13 күн бұрын
Sounds so similar to being on the spectrum at first…. I truly hope the thing about being with a bad person isn’t what makes you sick. I’m like this right now- just energy to wake up and sleep…. Even w my stimulants I don’t exercise anymore-
@TheEdisonEffect 13 күн бұрын
Hey dear - i come from a nuerodivergent family and while I have not been diagnosed, I do think I probably fall on the spectrum somewhere - but i dont think that necessarily is a precursor to MECFS - just one of my personal factors. Being with a "bad person" so called isnt "what makes someone sick." Its a collage of events, a pattern of revving up the nervous system and never downshifting back to regulation, causing more hyper arousal and more sensitivity in the stress response. If you are with someone who is hurting or abusing you, please seek help - it is out there, but sometimes its hard to leave these people because we are trauma bonded to them. Sending you so much love.
@jessicanilsson5941 12 күн бұрын
Realan and Anj you are sooo nice ❤️❤️❤️ Where can i got help ??? Wich therapy ? Im so bad , so alone , everybody lett me …
@TheEdisonEffect 12 күн бұрын
Hey dear! We had a 1:1 call scheduled weeks ago but you never showed up?
@minahana1112 13 күн бұрын
I cannot find anything about MHFTR gene mutation that Anj mentions. There is a MTHFR gene mutation. Does anyone know if she meant that?
@TheEdisonEffect 13 күн бұрын
Yes yes I meant MTHFR…sorry I did this interview at 1 am in Thailand haha and for how bubbly I appear I was so sleepy! Haha
@minahana1112 12 күн бұрын
@@TheEdisonEffect Thank you! It was really great to listen to you again!
@TheEdisonEffect 12 күн бұрын
@@minahana1112 so glad I could be of help :)
@McStorch0 2 күн бұрын
I’d love to know what medications you were on because your story sounds like the symptoms from AD/AP/benzo toxicity.
@TheEdisonEffect 2 күн бұрын
Just LDN!
@TheEdisonEffect 2 күн бұрын
Never touched benzos or meds like that
@Waves353 2 күн бұрын
I agree. It seems for many of us the drugs were our tipping point to nervous system crash. I can relate so much to all the contributing life and behaviour patterns that led me here, yet I still ultimately blame the meds
@37895 14 күн бұрын
Hi can someone let me know if the video gives any help or is it just another sell.. thanks
@chilledoutme 14 күн бұрын
more of the usual stuff.
@erikasinternetgerat8019 14 күн бұрын
Raelan Agle organizes many videos with recovery interviews from me/cfs and longcovid. No sales at all.
@TheEdisonEffect 14 күн бұрын
Hey, I’m actually a moderator in raleans group, and shared my entire recovery journey there staring in 2021, with other 200 posts leading up to today. I have two free webinars on boom or bust cycle and how to find your baseline you can access at my website; nothing to buy, they’re an hour each and have been told they’re enormously helpful, so feel free to check them out if you like. Otherwise, wishing you so much courage and strength on this very difficult journey.
@charlesfuchs 14 күн бұрын
@@erikasinternetgerat8019 sheeep
@earthrooster1969 14 күн бұрын
I found it fascinating. I think you need to be at a certain point on your journey to appreciate what she has to say....but yes, if you are looking for specifics, you may not find much... I found this wildly helpful
@jessicanilsson5941 12 күн бұрын
Did You have a lot of pain ?
@TheEdisonEffect 12 күн бұрын
So much pain that it’s still hard to talk About it
@jessicanilsson5941 12 күн бұрын
Have the same ..how did this go away ?
@jessicanilsson5941 12 күн бұрын
Have Cptsd , lonlienessfeelings, servere pain ..oversensitive system
@jessicanilsson5941 12 күн бұрын
You are smazing
@jessicanilsson5941 12 күн бұрын
Can u help me ?
@briechilli4496 12 күн бұрын
Can someone, a recovered guest possibly really open up and speak on chronic insomnia in this journey please. ?
@TheEdisonEffect 12 күн бұрын
Hi, there wasn't enough time to speak to every aspect of recovery, but chronic insomnia was a huge hurdle to overcome in my journey. It had to be addressed almost first, because we cant get well if we cant sleep. What are you doing now to manage insomnia?
@briechilli4496 11 күн бұрын
@@TheEdisonEffect after one year of sleeping 2-3 hours per night and having panic attacks the rest of the night. I have recently managed to sleep 5-6 per night and cleared the panic. I did the sleep coach school and learned no efforts. Just accept and befriend wakefullness. Signal safety to my brain. However i feel traumatised around sleep. Ive also gone from housebound to gentle walks 40 mins mornings. I have improved at least. Thankyou for asking. I am not on any meds now.
@TheEdisonEffect 11 күн бұрын
@@briechilli4496 sounds like youre on a great path - if you can get sunlight on your eyes just as the sun is coming up, it can help so much to reset your body too!
@tracystandish3420 12 күн бұрын
She didnt really say none of her symptoms???
@TheEdisonEffect 12 күн бұрын
hallucinations, trigeminal neuralgia, derealization, air hunger, crushing fatigue, muscle paralysis, stammering and stuttering, brain fog, heart palpitations, POTS, crushing noise light and touch sensitivity, sensation of bugs crawling on my skin, ocular migraines, screen intolerance, vertigo, inability to sleep, tinnitus, terrible PMS, chest heaviness like an elephant was standing on it 24-7, muscle weakness, exercise intolerance. I did mention some of these in the interview but not all of them. I don’t talk a lot about symptoms to protect listeners. It can be triggering or even traumatizing to listen to someone go on about every thing that’s wrong in their body, and it doesn’t help anything really. And whatever our symptoms, the 4 pillars applies. How our body manifest symptoms doesn’t change the tools we can use to address them. Rooting for you ❤
@jessicanilsson5941 12 күн бұрын
Can u stress now ? Can u perform ?
@jessicanilsson5941 12 күн бұрын
Im triggerd more and more for lonlienessfeelings , maybe it is because of i shut down and are a caregiver
@charlesfuchs 14 күн бұрын
Funny that everyone who recovered is always selling stuff hahahahaha
@jamesos84 14 күн бұрын
By funny… Do you mean it’s amazing how people make it their life’s work to help others whose experience they truly understand?
@legohouse4819 14 күн бұрын
I think you are over estimating. Loads of folks have recovered and are not selling anything. But what is wrong with creating a program based on your own experience and then charging for it? Would you say the same for a therapist? A physio? Acupuncture?
@acissej_01 14 күн бұрын
most people who recover are happy to finally leave the CFS space and vanish into the real world, I don't think it is natural that the ones who have built their career on their own experience are more present in these kind of interviews
@kristinae.7084 4 күн бұрын
If people who have lived through ME/CFS and recovered don't coach the rest of us through it, who is going to help us? Certainly not doctors.
@charlesfuchs 4 күн бұрын
@@kristinae.7084 pay for it
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