I was diagnosed in April 2019. First back surgery was Feb 2019. CES happened 2 months later when my back went again. It was 3 days after that when I went numb from the waist down (Friday night). I only knew what CES was from my own Google research so I instantly knew what it was straight away. I went to hospital after ringing an ambulance but when I was there they tried to send me home with meds. I was persistent and said no. Finally gave me a bed and after an urgent MRI in the morning I was diagnosed with severe CES and was operated on, on Sunday morning. My back was opened up and was also infected from the previous operation so I was in for 5 days to clear that up as well as recovery from more disc removal. I was very lucky but only down to knowing what CES was. It's taken 5 years to get to a stage where I'm almost recovered. I still get a stiff back easily so have to keep mobile daily, walking, and sports massages monthly but I have no feeling in part of my thigh and also have slightly numb toes but everything else is functioning. My heart goes out to all suffering and having to live wlth CES. You're stronger than you think and very brave. More awareness about CES is desperately needed.

MY NAME IS HEATHER. IVE HAD EQUIDA EQUIDA FOR 17 YEARS. THANKYOU FOR YOUR ENCOURAGEMENT.

Sam! You have no idea how much I needed this video today. My name is Evan and I’m from Chicago Illinois. September 16 of this year, I was admitted to the hospital for emergency laminectomy and decompression surgery. Today I was feeling low, unworthy of the lords love and I let the evil one attack my thoughts. I went for a walk outside to look for peace and happened upon your video. I just wanted to say thank you. I am praying for your recovery my friend, please pray for me as well.

Thank you for sharing your story. Mine is quite similar. Wishing you the very best…..

Thanks for sharing your experience....I'm 7months into my recovery and have started to walk a few steps unaided ...it is hard work but with time and determination I will be able to walk again. Stay strong!

I had my operation July 2020 after suffering for 10 months..im still healing and beleve God gonna fix everything

Hi Sam amazing to hear your story , I am now 12 weeks into my recovery from an emergency operation for cauda equina syndrome. I damaged my back at work Jan 23 back and forward to docs pain killers anti inflammatory drugs was all that was offered. Eventually, my gp agreed to an orthopaedic referral I waited 5 mon5hs in agony and the referral was not even a face to face it was a 3 min and 16 second phone call where I was told nothing wrong with me exactly 2 weeks later I was rushed into hospital L4 L5 discectomy and L4 Laminectomy . My surgeon told me the same your at the mercy of nature over the next 18 months to 2 yrs. Thank you you give me hope my friend Stephen.

It’s been approximately 13 months and I’m fully recovered with just some slight numbness in my pinky toe every once and awhile. But I’m pain free and everything functions as it should

I broke my hip, had a dynamic hip screw to put it back together, …learnt to walk Then a year later my femoral head of the same hip got necrosis and I had a full hip replacement…learnt to walk again. I’d had 10 months of being over the hip saga and was back working as an electrician looking forward to a decent and pain free xmas for the first time in 3 yrs days before xmas I had huge slipped disk incident while just getting dressed and had emergency decompression surgery for l4-l5 on xmas day. Currently I’m learning to walk for the 3rd time, ..I’m 2 weeks post op with drop foot on my right foot and weak hip muscles as the l5 nerve is currently paralysed. ….something somewhere likes knocking me off my feet and whatever it is we need to have words, but I’ve done it twice and I’m determined I’ll do it again.

Thanks for sharing your story! I'm having CES from August 2018 and with almost no progress, which made me so depressed, but I had surgery so late, 5 days since the red flags cause even I knew about CES since the beginning, noone believed me, not even doctors, not even after MRI. What you told about the struggles shows how only people with CES and spinal cord injuries could understand, how numb we could become not just outside, but also inside. Im going to watch this video again and again to inspire me! Thanks for your motivational words.

You and youe videos are an inspiration to me, thank you for these. I got operated on 5 days ago. I cant walk on my own, i need a walker and I cant go to the bathroom. Its the hardest thing Ive ever gone through and im terrified. This video does give me some comfort.

Thank you so much for sharing your experience..not enough known about it FOR SURE

Just wanted to say thank you for sharing your story. It's really done me the world of good. Your the first man I've found doing a video like this. I wish you the very best of luck. 👍

Top man buddy, keep fighting to get fit.

Thank you for sharing your story and strength.

Thanks alot for sharing the inspiring story

Thank you for sharing your story. Very encouraging as I begin my recovery journey.

Thank you!!!!

Thank you for making this video! My partner has undergone surgery for CES and this is what we need. ❤

thank you soo much for sharing this i hope your better your story has helped a lot of people god bless

I remember thinking the hospital were being very dramatic..I've had disc problems for years,have def been in more pain..when I learned how fortunate I'd been to have been referred immediately to the emergency room and surgery within 24hrs..I still cry knowing what could have been. I have residual problems,bowel and urinary in particular, but could have been so much worse. Much love to anyone who has been affected xx

!!!! God bless you brother!!!!!

Thank you for this video. I had an emergency surgery on 11/23/21. I was misdiagnosed like you with stating it was sciatic nerve. I have lost my feeling in my foot and bladder and bowel problems. I am still not getting the feeling back in my foot and I am going to therapy 2 times a week and I feel just like you from the beginning of being depressed. Thanks for this.

Many kind thanks for sharing my friend.

Thank you. I love you.❤️

Thank you for this meaningful sharing. I just gone CES surgery few days ago and now back home for recovery on my right leg which is still numb..senseless.By watching your video, I am motivated to fight for my recovery....Thank you very much..👍👍👍

Thank you for sharing your story. I had surgery last week for CES and I know there’s a long road ahead. Like you I will take whatever healing comes my way with a smile. Thank you

Than you for your video, did you have sciatic pain in both legs?

My fiancé is suffering from CES after he had emergency surgery 6 months ago. The nerve pain dosage isn’t helping much. Doctors won’t give him more meds. Waiting for weeks now to get in to see the neurologist. His leg, groin, foot numb. It is so hard to watch him go through this. It’s so unfair to him and us. I am seeing for myself and him it’s destroying our relationship. Marriage is now off. I hate this syndrome.

Thanks for vdo

I had this surgery 3 weeks ago my bladder stopped functioning before surgery and I was having difficulty in walking I start walking 2nd day of surgery with help 3rd day with stick 4th day I was walking without any problems I’m still on catheter n my bowels still not functioning properly but I’m going out for walks eating healthy my hips are still numb no sensation but I’m mentally stable and strong now after watching ur video thank you for encouraging us

I had L5 S1 emergency surgery done after I went numb on my left side from waist down and was diagnosed with CES. It’s been week ago today and I’m walking unaided I have bowel function. What I’m still experiencing is some numbness in my saddle area as well as calf and heal. There’s a lot of hope I try to remind myself. I just hope this saddle numbness goes away

Thank you so much man for this motivation I'm also suffering from this this day 27 from my surgery .. I'm walking with the help of stick

God bless you for sharing this video because I have been diagnosed with CES March 2018. So much has changed and it is hard to wrap my mind around what to do about it. This video helps. Thank you,. I am trying to map an exercise routine and a plan for eating better. I have gained a lot of weight due to not being able to exercise like I used to. My feet are swollen which makes a lot of exercises impossible at the moment. Do you recommend any particular exercises I can try? I love swimming or at least I did before CES.

Hey hi, nice to hear your story, it really gives hope and motivation to all those who are suffering from this. I am also having CES and recently have undergone with surgery. But still there is numbness around my buttock and private parts. Also having numbness in my right foot. Am able to walk slowly. Doc said it will take some time to heal. Could you pls advise me wt kind of exercise we could perform to recover from it? Is there any exercise to minimise the numbness? Pls reply Thank you!

Thank bro

Love this fn song

how long does it take to ur bladder to work again?

Please send me the exercises you did to overcome this problem

Seriously that's really great to hear your recovery story my abba had also had surgery on 11 Feb 21 he gets motivated when I share Ur story with him can u tell me when did he gain his bladder and bowel sense again His legs are working he is walking with the help of walker there is some numbness in his right feet Do reply Thanks a lot to share 🙂

I'm fighting the same thing at the moment

Hey sam , I have one question?? I'm 21 i had a disc bulge which was healing but then I travelled in auto and had a jerk . After that some days later i felt weird sensation in private area. Few days later o felt pain in both legs although very less and on scale of 1 to 10 its 1 . I don't have back pain. Ever since I am in a state of panic of this being cuada equina syndrome. 2 weeks went that way since last one day I'm having urgency in urination. I don't have numbness in any of my legs . I just don't know what this is. I talked to my parents and didi about this, and they think that this all might be in my head , sometimes urgency of urine happens. She also said that if i had disc herniation i would not be able to sit stand and walk. Yes i can walk upto 3 hrs . Sit for more than 2 hours. But these symptoms they are confusing me. Can you suggest something?? Actually I'm in rural area right now and I have decided to go to City and the government hospital there. Even I think that it can't be cuada equina syndrome because it's been 15 days since that incident and majority of times symptoms of CES appear suddenly but in my case things are different. I Just hope it's not CES . Actually I have a problem of overthinking and panicking regarding everything. I even panic regarding small test so even I think that to this is all in my head. Is my sister correct that as i googled everything regarding CES And watched somany vedio on it. Could it be that . Please help and reply

Hi, i just had my Micro Discetomy L5S1 surgery and diagnose for CES. I can walk, but i loss my sensation for bladder in passing of urine. How many months did you recover when u had your sensation back? Did you have self catheterization? Hoping for a reply soon.

Why did they diagnose you with CES after the decompression operation?

Did you have urine retention and incontinence of faeces? How long did those take to resolve? Thanks for sharing.

Can I recover from numbness and weaknesses after spine surgery ???

How are you now sir? Do you able to control bladder and bowel? I hope youre doing well sir

Sir My mom is undergoing through the same condition(cauda equina) bulging disc at L4 L5 compressing the nerves. She is 49. But her pain not so severe right now. Finds no difficulty in walking and bladder or bowel incontinence at present. Of course surgery is required to have a permanent solution. Is it necessary to do surgery immediately, or should I wait.

I was suffering from cauda equina syndrome and had my surgery on 15 apr 21, I was having disc bulge at L5 S1 level, however I was able to walk on the same day after my surgery and had control on bowel movement but need to apply little bit more force. Still catheter is fixed can you tell me when I will be able to have normal bladder function and catheter can be removed, I am 37 years old

Thnx bro ...m also suffering ...anybody from bombay?

When my Catheter is removed I have to make pressure while urine can u plz tell me something positive

Can you clime steirecae?

Please sir Hindi me bataye

Hello Sam, mene bhi aspko msg kiya h pls reply me

Sir please mujhe bataye ki Cauida equina syndrome se kaise thik ho sakte hai please sir bataye meri helf kijiye please sir......

Thank you. I love you.❤️