REN - Living with M.E. - May is Lyme Awareness Month - 6th May 2016 - Ren is 26 here.

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Pete Eley

Pete Eley

Күн бұрын

#renmakesmusic #sickboi #mevsme #lymedisease
As we hit the 1st of May I thought it might be relevant to upload this video as
May is still Lyme Awareness Month globally in 2024.
Details:
After taking a break from vlogging his health struggles; Ren, (after finally getting a Lyme diagnosis), reminds us all that Lyme and M.E are real problems that need highlighting worldwide.
Background:
Many Ren fans watching this will be familiar with his health journey over the years that he often captures with the lyrics in many of his songs. As a consequence you probably know that he was misdiagnosed for several years with a myriad of different illnesses before getting a PROPER DIAGNOSIS of Lyme Disease.
However, some of you might not know that Ren has vlogged his journey on various platforms and set up various channels and groups across the internet to help inform the public, add support to fellow sufferers and to insist that the medical profession do more to research and tackle these types of autoimmune diseases!
Some of Ren's videos on these platforms are hopeful. Others are dark and desperate. They are, however, all important in my opinion to understand what Ren and many other sufferers of these terrible diseases were dealing with and where they might be now!
Original Video here: • Lyme Awareness Month
Please do check out these channels:
@mevsme3108
On FB check out the group : Lyme 101

Пікірлер: 43
@sammyd8860
@sammyd8860 2 ай бұрын
This guy is so impressive ! So passionate & driven, so articulate and so intelligent in his understanding of really complex subjects. He has a thirst for knowledge (not just about his medical condition) and he has taught himself so much. Even if he wasn't a creative genius at story telling, writing, song writing, singing, rapping, producing, directing, playing guitar, bass & piano ; even if he didn't display incredible tenacity, compassion and the overwhelming desire to support and lift up others ; this one video would have convinced me that he is a really remarkable person
@jorice5528
@jorice5528 2 ай бұрын
Here here, well said 100% ❤
@jasonklenetsky5687
@jasonklenetsky5687 2 ай бұрын
Ren is something else, I tell ya what. I really hope his recent success will bring more awareness to this cause. His voice is needed and so greatly appreciated by so many people still suffering. Thanks Pete, for posting this and being part of the solution.
@ClaireW-HippyHobbit
@ClaireW-HippyHobbit 14 күн бұрын
Ren fan and living with ME. It's taken stem cell transplants and huge cost and months at private clinic in Canada to get Ren well again. He is exceptional, and I'm glad that someone got out this living hell, and that it was him
@GarnetJ
@GarnetJ 2 ай бұрын
And this is why it meant everything when Ren got #1 on the UK charts with the Sick Boi album 💕 It was heartbreaking in this video when he thought any hopes of a music career were over 💔 But it’s incredible to see how far he has come!! He has stayed true to his promise of continuing to fight for awareness and more research funding. Ren is the voice for the voiceless and a ray of light in the darkness for many who are suffering every day. I’m glad he is sharing his story. I’m looking forward to the release of “Troubles.” It would be great if it hit the charts!
@SandraP3796
@SandraP3796 2 ай бұрын
You are one of the “But you don’t look sick”, sick people Ren ❤️ Thanks for this Pete
@pammccoy3111
@pammccoy3111 2 ай бұрын
I have MS, and i will join you on this mission. ❤
@sampanther8854
@sampanther8854 2 ай бұрын
Thank you so much Pete ❤️ sharing this can make a difference and I adore Ren's determination to fight this battle not just for himself but many others who feel lost in the dark 🙏🌟
@belgand5555
@belgand5555 2 ай бұрын
It actually made me tear up to see Ren being so strong to get this across… thank you for being who you are Ren and thank you for never changing., ♥️♥️♥️ and thanks Pete 🙏🏻
@DebiMaria_
@DebiMaria_ 2 ай бұрын
Who is this human!?! Man……. I am speechless
@jorice5528
@jorice5528 2 ай бұрын
A phenomenal human & the Artist of our time. Look into his story & musical journey, it is magical & uplifting in the most glorious way ❤
@user-om1sc4uc7j
@user-om1sc4uc7j 4 күн бұрын
And you still take time to bless all of us with your music ..you are a very special person thank you so much.
@jonathanvince8173
@jonathanvince8173 Ай бұрын
Lyme disease comes from a Tick bite that ticks were tested in a Laboratory in the area of Lyme in America they escaped ad ended up in countries around the world. It was supposed to be a Bio weapon as that laboratory was shut down and I think destroyed as belonged to certain weapons organization. I wonder if lab leaks cause other things to happen recently?
@fionaclark4346
@fionaclark4346 2 ай бұрын
Thank you so much Ren for putting this out again, on behalf of all those of us who feel forgotten, shut away behind closed doors, and desperately trying not to lose hope as the years slip through our fingers. Your lifeline of hope is a shining light in our world of darkness🕯️❤
@Lozza2993
@Lozza2993 Ай бұрын
I asked them to test for lymes and they refuse because I don't have an active bullseye rash. Diagnosed with fibro and cfs with no treatment/management plans, specialist appointments, nothing. Just left to deal with it alone.
@PeteFindsObscureStuff
@PeteFindsObscureStuff Ай бұрын
I'm so sorry to hear this. Did you ever have the 'bullseye rash' in the past?
@Lozza2993
@Lozza2993 Ай бұрын
@PeteFindsObscureStuff no, but had bites from being in forests and long grass areas that hold wild animals associated with ticks and getting flu symptoms, etc. It's said that not all lyme cases present a bullseye rash 🤷🏼‍♀️. I don't think it's certain, but I do think enough of a possibility to at least check.
@lefantthepainter
@lefantthepainter Ай бұрын
I had the rash, and the doctor misdiagnosed it as tinia. A year later I could barely walk and had unbelievable panic and rage. Finally diagnosed and treated for 3 years, but now I have Parry-Romberg syndrome!😫
@jodienaiburg4076
@jodienaiburg4076 Ай бұрын
Ren is an real life Angel.
@iamsquatty
@iamsquatty 2 ай бұрын
Ren is such an amazing advocate for lyme disease and all the other mental and physical health issues he's experienced 💜💜🥹
@MustardMischief
@MustardMischief 2 ай бұрын
Ren ❤
@jenniferrivers969
@jenniferrivers969 13 күн бұрын
Ren you are amazing. Thank you for your good work in talking about this and advocating for solutions. I had Lyme Disease-which took almost three years to diagnose. It was the most debilitating thing I’ve ever experienced. I had many symptoms. As a holistic practitioner, I tried everything. And I sought out all the alternative practitioners. It was far too late for me to take antibiotics, but I was glad that I didn’t because I knew how it would wreck my immune system. What finally helped was biomagnetic therapy. Honestly, it was a miracle. Anybody who’s going through Lyme disease and wants to try something different, I highly recommend biomagnetic therapy.
@mashr52010
@mashr52010 Ай бұрын
Ren gave me hope again. I wanted to give up and then my friend shared Ren with me. Keep up the good work spreading awareness. We can unite and I’ll be sharing this with my doctor who actually listens and cares.
@louisesnowdon7624
@louisesnowdon7624 18 күн бұрын
Ren you are a Very Special Guy.Thank You for your Amazing music and using your Platform to discuss these Long Term illnesses.
@kevbruce9191
@kevbruce9191 Ай бұрын
The answer is 💰 The Money Game. Because the numbers are not big enough the research doesn't get the funding. Very very sad 😔
@MrandMrsBurns
@MrandMrsBurns 20 күн бұрын
👏🏻👏🏻👏🏻
@ezrasace
@ezrasace Ай бұрын
Thank you for sharing, Pete! ❤❤❤
@PeteFindsObscureStuff
@PeteFindsObscureStuff Ай бұрын
Thanks for listening
@primitivedogs4638
@primitivedogs4638 2 ай бұрын
ME diagnosis 1998! No different today.
@primitivedogs4638
@primitivedogs4638 2 ай бұрын
Yes, I had lymedisease. NO clue If still...
@alouise01
@alouise01 2 ай бұрын
That was all very well said Ren, THANK YOU! I didn't realize that May is ME and Lyme disease awareness month. I tested positive for Lyme disease way back in 2002. However, repeat tests were negative. A few years later, I was diagnosed with ME and Fibromyalgia. Back then it felt like no one had ever heard of either of these. In 09 I had some freaky shut happen with my vision, so I was given an MRI. That showed over 50 lesions on my brain and 3 on my spinal column. I was diagnosed with MS. I agree that when they find out how to cure one of these diseases, the cure for all or a lot of these other diseases will have a cure as well. The causes are connected and the treatments will be too. Living in the US, makes me feel like one huge reason we don't have more cures is because this country makes $ from the sick. The pharmaceutical industry is the mafia of today. My monthly medications cost $32,000!!! I agree that we need to rise, and band together if there's to be hope for future wellness and an end to the suffering that you, me, and millions of others are facing ♥️❤️‍🩹🧡❤️‍🩹🧡❤️‍🩹🧡❤️‍🩹🧡❤️‍🩹
@momishka7
@momishka7 2 ай бұрын
Our sweet boi ❤❤❤
@anetteandersson2778
@anetteandersson2778 2 ай бұрын
❤❤❤
@hilarycharman-2924
@hilarycharman-2924 2 ай бұрын
Thank you Ren. I've shared that to my friend who has ME in the hope it may help. God bless you ❤
@jeanninegervais5874
@jeanninegervais5874 2 ай бұрын
Thank you Ren. ❤
@susybetts3876
@susybetts3876 Ай бұрын
You’re amazing Ren I hope this is heard and acted upon by the people who can find a cure. ❤
@momstin58
@momstin58 2 ай бұрын
Thank you Pete 💜
@kt_kroovy1031
@kt_kroovy1031 2 ай бұрын
🌹🦇🌹🦇🌹🦇🌹
@AshleighJane-nd2qx
@AshleighJane-nd2qx 2 ай бұрын
Polycystic Ovarian Syndrome(PCOS), check out the similarities..
@sonjavanderwalt5417
@sonjavanderwalt5417 2 ай бұрын
🪽🤍🪽
@libby215
@libby215 Ай бұрын
Different clinical departments seem reluctant to communicate with eachother - and it's aways to the detriment of the patient - the people who they've done all their training to help in the first place, it doesn't make sense.
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