Research in Essential Tremor

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International Essential Tremor Foundation (IETF)

Күн бұрын

What’s happening in the area of essential tremor (ET) research? Dr. Holly Shill, director of the Lonnie and Muhammad Ali Movement Disorder Center at the Barrow Neurological Institute in Phoenix, gives an overview. She touches on the cause of ET, pathology, the hereditary aspect, new medications being studied and more.

Пікірлер: 10

@marcydobbs1653 Жыл бұрын

Every new piece of information makes a difference to those of us with ET+. I'm 75 and have always had a tremor. It is increasing in amplitude in the last 15 years. Please keep pushing for more studies. Thank you.

@sfjessy1 Жыл бұрын

Thank you so much! My family has familial Essential Tremor: my grandmother, my mother and her brother and my mother’s four children. A neurologist at UCLA once told me that having it so strong for generations would be great for researchers but none of us have ever looked for studies. I started inderal in grade school or high school, hit my limit of meds and had DBS a few years ago which has been wonderful. My brother takes a small dose of primadone and one of my sisters who is accelerating fast in her forties and fifties is nervous about medication but is clearly uncomfortable. I would love to find studies.

@jibrilmegbako9462 Жыл бұрын

What's the meaning of DBS pls?. I'm suffering from d disease too

@rachellederanger1012 11 ай бұрын

I suggest that you look up the information you are asking for, yourself to get accurate info. I actually had an appointment date for March or April for the DBS procedure, right at the onset of the COVID pandemic, so I decided to put it off until I felt safer about even going onto a hospital. ...I didn't want COVID in my brain...😢😂. I was kinda relieved when all elective surgeries were halted! My tremors were very bad, like a really old person with Parkinson! I went to a neurosurgeon specialist, who happened to be holding a seminar the very next day! I can't think of his name right now, but he's in Beaumont, Texas. There was, I think, another specialist and a few pharmaceutical reps representing their particular device. After hearing the audience members who had had the DBS, and seeing their results, and seeing the slides and details, I got really excited! I even called the presenters my heros and had some take a picture of them with me.😊 At about 52 or 53, I was the youngest in the room, but my tremors was the worst, by far. I'm glad now that I put it off because situations in my life soon after that surgery date, would have been too hard right during my recovery time. I am adopted so I don't know family history of this and other inhaditable neurological issues that also effects my life. I do plan to look into these trials.

@albertvital383 8 ай бұрын

I found this intriguing as someone currently studying the Nervous System in college and living with ET. Thank you. I look forward to expanding my knowledge to someday assist in this area of research.

@josephsonners2743 Жыл бұрын

Thank you for putting these on! Look forward to more

@tonymurphy9112 3 ай бұрын

My daughter and I both have ET. Cannabis definitely works and is very effective. My daughter studies in the Netherlands and has tried Cannabis on a regular basis and she swears it helps her shakes. As a young man I also tried Cannabis and I felt it improved my memory and I was able to study and pass my exams.