Reversing Parkinson’s Disease With Fast Walking and What the Heck is GDNF??

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Parkinson’s Disease Education

Parkinson’s Disease Education

Күн бұрын

#parkinsons #parkinsondisease #parkinsonsexercise #parkinsonsawareness #parkinsons #parkinsonism
In a video published by ‪@mindmovesinstitute‬ John Pepper, a person with Parkinson's and content creator, discusses fast walking and how it was a game changer for his life with Parkinson's and how it enabled him to "reverse" Parkinson's (I have included a link to the video embedded within mine). In this video we do not deny nor affirm this claim, but rather look at objective research evidence to determine if there is something to this or not. Also, we define GDNF and it's potential role in Parkinson's and the connection with aerobic exercise, including fast walking.
If you would like to learn about John's technique for yourself, please check out his book here: amzn.to/45SJ0S2
Please join our channel memberships here for a more personalized experience: / @parkinsonsdiseaseeduc...
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Пікірлер: 283
@elliottchurchill7314
@elliottchurchill7314 6 ай бұрын
I have had Parkinson’s for 8 years. When I was diagnosed I had a severe gait, couldn’t sign my name, couldn’t move and double click a mouse. I got into the short of pickleball, a very aerobic exercise. As a result of this exercise my walking has improved, my balance is pretty much normal again, I can sign my name and use a mouse. My worst symptoms of hand and leg tremors have improved significantly and I actually have moments where I have no Parkinson’s symptoms at all. So, for me exercise certainly does improve Parkinson’s symptoms to the point where they are momentarily gone. But here is the kicker,it has to be sustained aerobic exercise with elevated heart rate for at least 20 minutes 3 times a week. Simply walking has shown NO visible change in symptoms for me. I’m 58 and now I play pickleball 6 times per week for 2 hours at a time. What I have found is that I get longer and longer periods of symptom relief. I don’t know how it works but there is no doubt in my mind that intense exercise is the best way to manage Parkinson’s symptoms.
@janetpattison8474
@janetpattison8474 5 ай бұрын
If interested, find the YT interview where the older guy with long term PD w/ a severe PD decline has cured himself of , it seems, 90 to 95% of PD , with a keto diet. He didn’t give those numbers but based on how much he’s improved, (if not back to normal now), that’s my guess. Incredible success story.
@henrichabanole952
@henrichabanole952 4 ай бұрын
A😊😊😊
@henrichabanole952
@henrichabanole952 4 ай бұрын
😊😊
@hal7ter
@hal7ter Ай бұрын
@@janetpattison8474 Carnivore is reported to help disappear Parkinson's symptoms al;so.
@sheilaperez8194
@sheilaperez8194 2 күн бұрын
I have had P D for 20 yers. I retired and moved to The Villages Fl line dancing’s is very popular in The Vi In 2008. In The Villages line dancing is very popular.. I would take classes during the day and go to the Square and line dance almost every night. The PD did not progress very down to much. In fact no one could tell that I had it. In 2016 I had ❤ I believe exercise is the biggest help for this horrible disease. 😊 to hav my left leg amputated above the knee. Since then I can’t dance or exercise very much. The PD has progressed quite a bit. 1:42 ❤❤❤
@mindfulnesscoaching6048
@mindfulnesscoaching6048 Жыл бұрын
Thank you. John Pepper has been advocating walking as an effective treatment for PD a very long time
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Yes I am just now seeing him all over the internet haha. I would love to hear from more people who have adapted his technique
@gaba8934
@gaba8934 6 ай бұрын
I was 66 years old when a fentanyl impaired driver crashed headon into us. I had catastrophic injuries- - compound fractures of left and right knee, left humerus, left trochanter and smashed pelvis sticking out of my body. I had 5 burst thoracic vertebrae. Most ribs broken and jaw ripped off my face. All in all 18 broken bones, collapsed lungs, and traumatic brain injury. I died several times but they kept resuscitating me. After 30+ units of blood, many surgeries, and several weeks in a coma and having 3 strokes I awoke and was paralyzed. This is not the worst of it; the perp killed my beautiful wife of 39 years. I was in a nursing home for seven months and eventually learned to walk again. Then there was a criminal trial where the perp dragged out proceedings for three years only to be given a slap on the wrist. This was 3 years of torture. Finally I started getting tremors and numbness issues. I was finally diagnosed with PD 3 years ago and put on sintemet. Doctors say the injuries triggered the PD, but I think it was more the trial torture for 3 years. Today I can slow walk with a cane up to mile. And I can workout on a rowing machine, stationary bike, and an exercise machine. I do my own yardwork and mowing but if I fall I can't get up. I take alot various supplements and avoid refined carbs and bad oils. I have bad pain episodes, but make sure to workout in my home gym every other day which is key to fighting off PD. I wish I could do more rigorous activities but just can't. At 74 I'm holding my own. 🌞
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 6 ай бұрын
I'm so sorry that you had to suffer through this trauma. I've heard of cases of both physical and mental trauma resulting in triggering PD. You can only do what you can do, so keep up the good work on whatever exercise you are able to get done. Anything is better than doing nothing.
@nathalie-josee248
@nathalie-josee248 4 ай бұрын
Good for you ! Just keep it up ❤
@inezzbeadz
@inezzbeadz 4 ай бұрын
You r one Brave man!! I am 65 n just dx w PD. Painful legs pain left shoulder. I am going to red light therapy to help w pain. I don't feel a difference but this is my 1st week got the rest of this month. Will try the gym soon. I take my vitamins n MCT oil to help w memory. Hyper baryk oxygen therapy I wanted to try but too expensive for me
@gaba8934
@gaba8934 4 ай бұрын
@@inezzbeadz Thank you, but I don't know how brave, but I sure was angry and wanted to live long enough to see some justice for my dear wife and myself. The whole ordeal was a nightmare. Speaking of supplements I have good results from CoQ10, leafy green smoothies and now starting the high the high B1 protocol. Taking lions mane which is reputed to be neurogenic. I would like to know more about the red light protocol, too. But yes, I would think hyperbaric O² treatments would be beneficial. Keep the faith, and keep exercising.
@manasikashyap
@manasikashyap 4 ай бұрын
I’m amazed you survived such horrific trauma. Thank you for sharing your story!
@Lavendartea
@Lavendartea Жыл бұрын
Im now fast walking three miles every morning, and it's made a huge difference for me. I'm 65, and was diagnosed with PD four years ago.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Awesome. Good for you! Since you’re early in the diagnosis I think you have a chance to make the most impact. I’d highly recommend you look into some PD specific exercise protocols such as LSVT BIG, PWR!, or Rock Steady Boxing. These will address balance, flexibility, coordination, posture, etc more specifically than the fast walking. But keep up the good work on the walking!
@ninanovakova5838
@ninanovakova5838 Жыл бұрын
@@parkinsonsdiseaseeducation 9
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Nina Novakova why not 10?
@mariabeekmeijer
@mariabeekmeijer Жыл бұрын
@sarovarimpexprivatelimited6597
@sarovarimpexprivatelimited6597 9 ай бұрын
@trysportuniversity5708
@trysportuniversity5708 8 ай бұрын
Hi - I'm 59 and was diagnosed 3 years ago. Upon diagnosis I immediately realized that i had been fighting the symptoms for at least 25 years. As a elite triathlete my training for sure delayed my diagnosis. 3 years post diagnosis I'm not on any drugs and still train at a high level but I have clearly slowed down by 10% or more. A combination of zone 5 and zone 1 training plus resistance. All totaled 10 hours + of performance exercise. Parkinsons will win but hopefully i can avoid drugs and preserve my lifestyle for years to come.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 6 ай бұрын
Good for you! Stay strong and keep you the great work
@leoandolino4668
@leoandolino4668 2 ай бұрын
if you eat to regrow the myelin you will conquer it. Do not make it your disease. Some have done this.
@MrJOHNMICHAELVEGA
@MrJOHNMICHAELVEGA 5 ай бұрын
You forgot to mention that one should be prudent and have a walking partner especially one that understands what is going on. My wife had Parkinson’s for 24 years. She started the symptoms when she was 42. She walked a lot , did exercises for the vocal chords , legs, balance, with music, with percussion instruments. We did games that I invented. We did everything together. Alas, the end had come for her in 2010,October ! Thank you for your work . From my heart to yours, Michael ❤️🎶
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 5 ай бұрын
Great reminder John Michael. I’m sorry for your loss. It sounds like you did everything to support her in the best ways possible in those 24 years
@janetpattison8474
@janetpattison8474 5 ай бұрын
I hope you’ve seen the YT interview w/ the older guy w/ PD for many years, and was declining very badly, and he has almost completely reversed the disease w/ the keto diet.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 5 ай бұрын
@janetpattison8474 I can believe the keto diet making positive impact on PD due to the near elimination of processed sweeteners, gluten, and other inflammatory foods
@mdtamjid822
@mdtamjid822 Жыл бұрын
Excellent your video content. I hope you give people something better.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Thank you sir. I’m a bit confused by your comment though… you hope that my content is better than it is now? I don’t disagree!
@maryjobell
@maryjobell 10 ай бұрын
Thank you so much for helping us learn. I think John Pepper is terrific!
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 10 ай бұрын
Thank you Mary Jo! I appreciate your comment. I should put a poll up on the community tab, but I'll ask you directly: Would a conversation with John Pepper be valuable to you all on the channel? It would be a chance to have questions answered by him directly.
@maryjobell
@maryjobell 10 ай бұрын
Yes-this would be great! @@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 10 ай бұрын
@maryjobell great! I’ll be reaching out to him then
@maryjobell
@maryjobell 10 ай бұрын
😃@@parkinsonsdiseaseeducation
@user-hr3ou1ri7k
@user-hr3ou1ri7k 6 ай бұрын
My husband and I have bn dx’d with Parkinsons for 10 years. We started lumbar trike riding 2-3 hours per day plus large amt of B vitamins. We have had remarkable success. We are independent and symptoms largely reduced. Continue your research. 👍😉❤️ 5:14 .
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 6 ай бұрын
That is excellent! High intensity exercise can vary in what types and in this case the cycling and supplementing seems to be a great asset to you and your husband. Keep up the great work!
@xjet
@xjet Жыл бұрын
I have always been a fast walker. I am now 70 and was diagnosed with PD about three years ago. Since that time I've increased my walking, taken up resistance training and begun supplementing with creatine monohydrate. There have been measurable benefits to all of these and progression of the disease has been far slower than I was warned it might be. I attribute that slow progression to the amount of work I'm putting in to fight the inevitable.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Without a doubt! You are absolutely right. 👍🏻
@evelynwindsor399
@evelynwindsor399 15 күн бұрын
Op
@the1greatlife
@the1greatlife 7 ай бұрын
I have a friend who has been involved in rigorous exercise since he was diagnosed in 2017. He runs a 3K every year as well. His condition hasn't reversed but it has helped sustain his lifestyle and dampened the progression.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 ай бұрын
Yes! Exercise, particularly high intensity, is crucial!
@ranjitpatel496
@ranjitpatel496 10 ай бұрын
Im going to help my wife with walking from UK thank you.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 10 ай бұрын
Glad this video inspired you!
@Auggies1956
@Auggies1956 9 ай бұрын
I started FW a week ago, with my dog along for company. I'm up to a mile and a half, given my age and lack of any exercise I'm doing good.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 ай бұрын
That’s great!! Great feedback
@auntsally2704
@auntsally2704 Жыл бұрын
Thank you
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
My pleasure! Thank you Sally
@markmarston
@markmarston 9 ай бұрын
My understanding is that John Pepper says the research he read stated that high intensity exercise, for at least 1 hour at a time, every other day, gives the body what it needs to create enough GDNF to support and enable his conscious movements. Any activity will work if intense enough and for an hour at a time. More than 1 hour, he says, does not help and the rest days are important. This is what I’ve gathered by watching his videos. And he says to work your way up to an hour by walking fast as long as you can, if that’s 2 minutes then do every other day for 2 min the first week, then the first day of the next week go longer, say 4 minutes, do 4 min that week and so on.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 ай бұрын
There is a lot of common sense to what he recommends in terms of gradually increasing the walking distance over time, etc. The issue I find is that I have been unable to find a study by Mayo Clinic (his citation) or anybody else so far that shows strong evidence of the GDNF increase. There has been research and it’s ongoing, but there isn’t statistically significant proof that GDNF increases more with fast walking than, say, an intense cycling program, or PD-specific exercise and therapy programs that are high intensity for short bouts. I’m not saying it isn’t true, I’m merely pointing out that more research needs to be done to truly show a link. I talked about all of this in the video, but it’s worth discussing here again. Thanks for your comments Mark!
@leoandolino4668
@leoandolino4668 2 ай бұрын
KZfaq has a video of a frail 82-year-old man with Parkinson's who could not walk but only sit and had the many other issues associated with it. His son as I recall convinced his mother to put him on a carnivore diet and after one month he was walking at a fast pace around the kitchen over and over again with his son in tow just in case he might lose balance which he didn't in the video. He also laughed as his wife teased him. Another man (he has his own KZfaq channel as a result of his success) much younger and afflicted with Parkinson's for about 20 years to date (began in his 40's as I recall) who went on a carnivore diet (or keto diet) about eight years into his PD as I recall. He has reversed it to a great degree as you would not know he has it - no shaking, stiff facial issues, etc.). He had to quit his job when he was diagnosed with PD as it was that bad. He and three others are putting together the science behind his recovery. My point: take it upon yourself to get better and do not rely on conventional medicine and the drug companies as they are inept and ridiculously expensive. People are successfully rescuing themselves and there is hope for you - you are no different. Something is out there that will help you improve greatly if not conquer it completely.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 2 ай бұрын
You are right! Carnivore diet is a ketogenic diet, as you said, and anything that helps create a state of ketosis in the body can do wonders to heal sick and damaged mitochondria and therefore slow down or stop cell death in the substantia nigra and virtually anywhere in the body. I just read the book “Brain Energy” by psychiatrist Dr. Christopher Palmer, MD where he dives deep into mitochondria and metabolic root causes of disease. I learned so much! And what you say is right on par with what he talked about in the book. I’ll link it here: www.amazon.com/dp/1637741588/ref=cm_sw_r_as_gl_api_gl_i_EQMWQ4781AQ4627F8K4E?linkCode=ml2&tag=hylandptw079-20
@leoandolino4668
@leoandolino4668 2 ай бұрын
@@parkinsonsdiseaseeducation Thank you!!!
@ramoncabassa214
@ramoncabassa214 2 ай бұрын
Surfing has helped me tremendously
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 2 ай бұрын
🏄‍♂️🤙
@varuninnz
@varuninnz Жыл бұрын
I think walking in short increments at regular intervals is far more beneficial than doing straight 3 mile walks initially. For example: Walking anywhere between 5-15 minutes first thing in the morning, then after breakfast, lunch, dinner and before bed is much more beneficial than doing a 3 mile walk or 5km in one go. - Tip: 15 minutes of walking, 4 times a day will is equivalent to 60 minutes in total which is more than enough to complete your daily 10k steps.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
I agree. Breaking things up is definitely realistic way to manage and conserve energy and still get the “reps” in.
@NMW80
@NMW80 11 ай бұрын
Any exercise is good for you
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 11 ай бұрын
True, BUT high intensity exercise that increases cardiovascular stress/workload and contains high effort does more to change the brain than certain other types of exercise. In short, if it doesn’t challenge you it doesn’t change you.
@judygrainger5380
@judygrainger5380 9 ай бұрын
You do have to be careful though. I enjoyed a longer walk than usual yesterday, and am really paying for it today 😢😢 Got too enthusiastic unfortunately unfortunately.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 ай бұрын
Yes it’s important to pace yourself. And when it’s hot out it’s really important not to overdo it
@franksam6818
@franksam6818 Жыл бұрын
A close friends father was diagnosed cancer riddled 12 lbs in his lymphnodes etc. Given 30 days to live. He decided to stop wearing his bee protective wear, when tending to his hives. Allowed to get stung because of research he did on cures. Lived for 18 years more, cancer free. During those years he treated others for free with different ailments. Parkinson's being one. People with extreme shakes would settle dramatically minutes after receiving treatments. Bee defensive -1 is one attribute the Bees have. As well as honey will kill the mold cells, because of basically starving it of water etc.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
That’s pretty incredible! I assume since the venom has an immune response as well as a neurological one that it can settle the symptoms? I wonder how long the effects last
@franksam6818
@franksam6818 Жыл бұрын
@@parkinsonsdiseaseeducation Yes, like I wrote above. Bees contain whats known as (Bee Defensive -1). And as you know mold has a whole host of side effects & more common then people think. And is rarely tested for, when it should be a priority. Pure honey has a high infinity for taking H2O out of the cells, killing molds. The Bees my friends owned in Pennsylvania were huge. He owned 120 hives. The Bees would know where to sting on the person, whether on the back or arm. And on the meridians, where they'd leave the stinger in. The effects would come about anywhere from 5 - 10 minutes. God attends to all things. 😁
@anithaptl005
@anithaptl005 8 ай бұрын
​@@franksam6818Would like to know more about it, please do let me know as one of my close relative is suffering from parkinsons
@georgeking2369
@georgeking2369 5 ай бұрын
What a load of bloody crap if bees could help the NHS would be treating patients with it and would be saving thousands
@notmeee7302
@notmeee7302 4 ай бұрын
@georgeking2369 YOU ARE VERY ENTERTAINING! Do you really believe that? They, the FDA, WHO, & CDC CAN NOT PATENT IT OR MAKE MONEY OFF OF NATURAL REMEDIES. Have you not learned anything these past 3 years??! Much love and lots of learning! Bee stings also good for Rheumatoid Arthritis
@fractalbeans9513
@fractalbeans9513 7 ай бұрын
GDNF, as well as other BDNF (brain-derived neurotropic factors) increase in a ketone-rich environment; possibly, fast walking/aerobic exercise puts the body in ketosis, unless there is carbohydrate intake.
@rwentowski
@rwentowski 7 ай бұрын
Family history - grandfather, father, uncle, brother, sister. I have been having mild cognitive problems. I have been a walker doing 10000 plus steps a day. Plus other weight training exercises. Hopefully I am staving off PD
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 ай бұрын
You’re off to a great start!
@janfranklin2114
@janfranklin2114 8 ай бұрын
❤ we are just beginning the diagnostic phase with our initial visit to the PCP. My husband was given a referral to a neurologist and the doctors emailed it over to that office. In an effort to be proactive, my husband called (our insurance does not require referrals to se a specialist) only to be told they needed the referral from the PCP before an appointment could be made. It would probably take two weeks for them to call, and then probably February before he can get in! I’m beyond angry. We have emailed our PCP and are hoping to get an appointment somewhere sooner. No wonder people turn to the internet to try and diagnose themselves. Exercise does seem to be important in living well with PD, thank you.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 8 ай бұрын
I know that must be so frustrating. Exercise is crucial in living well with PD, so you are correct! Please let me know if you have any questions that you’d like to see a video on
@inezzbeadz
@inezzbeadz 4 ай бұрын
I didn't get any help from my Dr besides Physical therapy. I looked into it myself. Oxygen treatment I wanted to try but ins won't cover. So I just started red light therapy my first week
@roryblake7311
@roryblake7311 Жыл бұрын
In my KZfaq channel, I work with the Microbiome. In humans, Walking circulates the lymph system carrying nutrients from the gut to lymph nodes (including the brain.) The lymph has no pump, such as the heart, which circulates the blood. We're finding the Microbiome produces neurotransmitters. Anything you can do to circulate remaining neurotransmitters seems beneficial.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
The microbiome is SO important. What’s your channel I’d love to take a look. What you say makes perfect sense in light of the lymphatics and how they would carry nutrients to and from the brain in addition to the vascular system. I hadn’t considered the gut actually producing certain neurotransmitters
@roryblake7311
@roryblake7311 Жыл бұрын
Rory Blake
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Duh, I should have known that. I forget sometimes that accounts on KZfaq are the channels. Yours happens to be your name :-)
@roryblake7311
@roryblake7311 Жыл бұрын
@@parkinsonsdiseaseeducation Put a link to your channel under my post. I liked what you do!
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Thanks Rory! Did you mean the one on your channel about the walking?
@satishsurve3921
@satishsurve3921 Жыл бұрын
@coffee_5647
@coffee_5647 Жыл бұрын
I hope you will do a video on high dose thiamine therapy for Parkinson's. My walking speed has improved greatly (and spontaneously) since I started it, so much that my partner noticed right away.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Thank you for the suggestion! That is a great topic. Are you in the group on FB that Dr. Constantini used to run?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
That does seem like a significant amount. You’re right I think there are two groups
@creativedwellstuff
@creativedwellstuff Жыл бұрын
I would interview Daphne Bryan who wrote the book that outlines Dr. Costantini’s work.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Great suggestion. I’ve heard about her
@simplecomplicated1394
@simplecomplicated1394 11 ай бұрын
how much thiamine do you take ?
@mariabekker970
@mariabekker970 3 ай бұрын
Thanks
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 3 ай бұрын
Wow! Thanks so much Maria!
@shshforward
@shshforward 5 ай бұрын
There are 2 obstacles to my trying this out: 1. Aerobic exercise that's vigorous enough to make me feel energized causes a worsening of my arm tremors. 2. I'm trying to overcome fatigue, though often I am tired after exercise, not during, but the exhaustion afterwards really limits me. Do you have any suggestions for those 2 obstacles?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 5 ай бұрын
Hey there! I wanted to follow up with a clarifying question, if I may. Are you exercising when your PD medication is at its best or when you are closer to wearing off? That make make a difference with the tremors. As to your second barrier, it sounds like you might be struggling with fatigue. In that case you will need to pace yourself when starting a regimen of more intense exercise. See if my video on fatigue may be helpful: kzfaq.info/get/bejne/a6d9a5djm9jZd3U.htmlsi=HXfxKJvZvYN3SkiL Also, there is a link to John’s book on Fast Walking in the description of this video. Maybe try to follow his protocol and see how it works for you. I know he recommends incremental increases in walking time and distance.
@elizabetholiviaclark
@elizabetholiviaclark Жыл бұрын
It's not even Parkinson's right now. I'm thinking back to the date when my neuro first mentioned it, and that was about six year ago. So, I guess I've had Parkinson's for about that long at least. I have other medical problems that I'm trying to address, but I'm being run ragged by all the appointments, referrals, new people, getting rushed all the time, etc. I have a lot going on at home right now and I'm alone so it's just me trying to get a mountain of work accomplished. Yesterday I spent half the day trying to make two medical appointments, including with a PT, and all I could manage to accomplish was changing an appointment with my PCP. I've left messages for the others to please call so I can make an appointment. I have been disabled for 25 years, but I've never been this stressed over medical care. And nobody is listening if I mention the stress. None of them are listening. At this point, I trust my neuro and I'm not sure about anybody else. I can at least say I'm very lucky with neurologists. I've had two, and they both have been amazing. The rest are in such a hurry that they don't even know I'm alive. They don't even recognize that they're dealing with human beings. We're just a fast food meal being shoved down a broken assembly line.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
I’m glad you have found good neurologists. In general nobody seems to have time for anybody in offices and people get run through like an assembly line or “a fast food” place as you put it. Thanks for your comment, I hope you find help with who you are looking to get connected with locally
@judygrainger5380
@judygrainger5380 9 ай бұрын
Sounds really hard for you!! Especially if you're on your own and having to deal with all of that!! My heart goes out to you. All the best. It's not easy Especially when you have Parkinsons and no energy!!!
@nathalie-josee248
@nathalie-josee248 4 ай бұрын
People do not know the disease if they do not have the love to stand by a sick person. But there’s a lot of strength to be found there. Keep your spirits up cause research is advancing. Exercise is part of the solution. ❤
@keithmcneil1286
@keithmcneil1286 Жыл бұрын
❤❤
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Thanks for your comment 🙏
@MLStanleyK
@MLStanleyK Жыл бұрын
Thanks. I am in my 1st year of diagnosis. I also have been a daily exerciser for 25 years. I am 68 so I can't do the volume that I used to, including running since my knee couldn't take it anymore it, but I do a number of warmup stretches and then time on the rowing machine & stationary bike.. Exercise does seem to help.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Exercise is MEDICINE for PD. 💯 correct that it helps. Keep up the good work. Have you looked into any PD specific programs such as LSVT BIG, etc? You might also consider saving this playlist: Parkinson's Disease Education kzfaq.info/sun/PLw5LNHfk3CMnSdJkRfzY5AQvEE_hxsPWL
@CherylCharles-no7dg
@CherylCharles-no7dg Жыл бұрын
Hi
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
👋
@thariyanmathews4356
@thariyanmathews4356 8 ай бұрын
@@CherylCharles-no7dgi
@marcosta183
@marcosta183 11 ай бұрын
What about suplementation like Benfothiamine (vit. B1) and Vit. B2 ?? I mean to reduce the symptoms of the PD?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 11 ай бұрын
Supplementation is a great way to manage symptoms of PD. As you pointed out, high dose B1 can be a great help. Others include glutathione and mecuna puriens. Again, the intent of this video is to discuss the anecdotal claims of one person. I do not advocate for fast walking, or any exercise, being the only way.
@bubblerings
@bubblerings 10 ай бұрын
John Pepper video Reversing Parkinson's Disease... on Mind Moves Institute channel was worth watching, whether scientifically accurate or not.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 10 ай бұрын
Agreed. Which is why I provided a link to that video for all to access it. :-)
@bubblerings
@bubblerings 10 ай бұрын
@@parkinsonsdiseaseeducation wayyy cool! 🌻🎈 Liked your vid too! (got here from Pepper's)
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 10 ай бұрын
I appreciate you saying so. Thanks for being here!
@tutuhuckelberry2983
@tutuhuckelberry2983 11 ай бұрын
Not big on walking. I can't walk across a room without losing balance, running into something, or falling. What I wanna know, is how is it I can get on my bike and have perfect balance and ride briskly on the road. Why? It makes me long to be on my bike always missing riding when I m not. It just doesn't make sense to me.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 11 ай бұрын
Walking as the "go-to" exercise may not be right for you, as John Pepper advocates, but it certainly is important to practice walking with BIG steps and BIG arm swings. That's what we would teach in LSVT. You can do BIG steps when using a walker even, so it isn't limited to those who can walk without a device. In answer to your bicycle question, this is a great question for a future video. Our channel members can submit questions to be answered in a future video.
@hal7ter
@hal7ter Ай бұрын
The comments below are so helpful!!!!
@suzzygreen
@suzzygreen 9 ай бұрын
I live in south africa west rand
@suzzygreen
@suzzygreen 9 ай бұрын
I walk with a walker.what do you think
@defrank1870
@defrank1870 Жыл бұрын
Ambroxol, bovine colostrum or Benfotiamine Take your pick
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Have these been shown to improve symptoms of PD?
@defrank1870
@defrank1870 Жыл бұрын
@@parkinsonsdiseaseeducation Ambroxol, yes, it's on phase 3 trials... It triggers enzymes that fight the disease. It also eats away at ASyn aggregates that lead to a worsening of the disease. Seems like thiamine does the same thing, I took both separately and they both seem to work. Bovine Colostrum fights gut inflammation, which is often a comorbidity of the disease. If you have gut inflammation, toxins from food etc cause damage to the body, making your situation worse. Colostrum fights leaky gut. Enzyme deficiencies and leaky gut seem to be two culprits of this disease. Which is why diet and exercise is said to be important. I'm assuming exercise helps generate enzymes, and diet would cut down on inflammation and toxins. I'm mostly on a mediterainian diet now also.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Yea this all makes complete sense regarding gut health and very interesting that the ambroxol helps to break up Alpha-synuclein! Thank you for sharing!
@sarahlange8989
@sarahlange8989 9 ай бұрын
Great info! Do you have source(s) I can refer to in sharing with PD friends not familiar with this approach?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 ай бұрын
Do you mean this supplement protocol? I’m not familiar enough with it to give you a specific recommendation. If you are talking about John Peppers book I can send you a link.
@dewanundbheekharry5115
@dewanundbheekharry5115 Жыл бұрын
I usuaĺly walk 4 to 5 km in 40m. My right hand tremors some 6mon back. Is it going to be ok doctor? Waiting for your answer.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Hi there Dewanund. 👋 I personally wouldn’t be able to predict the prognosis of your Parkinson’s disease (assuming your tremors are due to Parkinson’s) as that does seem to be a very individualized experience. The generality of the situation though is that those with tremors tend to have a slower overall progression of PD and those who are actively working to modify the disease profession with intense exercises, increased physical activity, diet modification, etc will also tend to be able to slow the progression greatly
@rogercarolminchin5922
@rogercarolminchin5922 11 ай бұрын
😮​@@parkinsonsdiseaseeducation9 M
@monaasmr2936
@monaasmr2936 Ай бұрын
❤❤❤❤
@Sanam3105
@Sanam3105 7 ай бұрын
Iam feeling very low and depressed and since 2yrs iam suffering from PD, Iam 40 yo female.....it started with left finger now my left arm and leg is having tremor.....and when i heard from doctor its progessive & the level of intensity and symptoms increase as time goes by is putting me in lot of fear ...i recently started with benformet forte... Iam really scared if i will end up bed ridden
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 ай бұрын
Keep your chin up Sanam. There is only reason to hope because you can do so much to keep things from progressing quickly. The only way is to keep as active as possible. Seek out community (such as here on KZfaq) and exercise exercise exercise. I hope this older video gives you some inspiration: Do the Stages of PD REALLY Matter?? kzfaq.info/get/bejne/gJ2dgqiLs7WWn2Q.html
@Sanam3105
@Sanam3105 7 ай бұрын
@@parkinsonsdiseaseeducation okay 🙏🙏🙏
@johngeraghty2757
@johngeraghty2757 Жыл бұрын
How about MSA - Multiple System Atrophy ? Any information about natural things you can take.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
I need to cover MSA and other Parkinson’s plus syndromes. I am not so well versed in supplements but could look that up
@acarlX
@acarlX Жыл бұрын
Good to know that fast walking can help in some fashion with PD.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Indeed, but as with many treatments or exercises… it isn’t everything
@Onemattressatatime
@Onemattressatatime Жыл бұрын
Have you heard of anything with the medication FGF-1 ? From Zhittya Genesis inc
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Hi Glen, I hadn't heard of this until your question prompted me to look this up. This is fascinating! I can't wait to see what they come up with in human trials. Looks like so far the experiments have been only animal at this time, but seems like they are looking for trial participants.
@naguarachamo1
@naguarachamo1 Жыл бұрын
They have human subjects too...have been testing humans for several months..
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Well I literally looked up Zhittya Genesis website and they are the ones that said that they haven’t had results form human trials… maybe the results just aren’t published yet depending on the phase of the trials. Do you have a resource?
@naguarachamo1
@naguarachamo1 Жыл бұрын
@Parkinson’s Disease Education you did not look very hard...They have videos on KZfaq with human results thus far.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
No need to be snide sir. I didn’t have much time to thoroughly look this up as I only heard about it from the above comments. Would you be so kind as to share those video links here in the comments for others to see?
@mehrdadborzoee
@mehrdadborzoee Жыл бұрын
Hi Dr. my dad's hand is start shaking a bit like since 2 months ago and now we r worring ,he is 64 and we r worry about him .is that parkinson ?how we should make sure ha has it ?thx for answering - if yes can he workout in gym like light bodybuilding
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Thank you for your questions. A tremor by itself may not be Parkinson’s Disease and could be onset of benign familiar tremor or essential tremor. But it it best to rule out other conditions. The best course of action is to see a neurologist, preferably a movement disorder specialist, to do a thorough examination. If he does have PD then he needs to get evaluated by physical therapy, occupational therapy, and speech therapy to get a plan of action. Exercise is of course a crucial part of treating PD
@inezzbeadz
@inezzbeadz 10 ай бұрын
I 64 n went for brain mri to see if I in fact have pd. I was healthy all my life, my married this last weekend, I could hardly dance w him. It's effected my daily routine. Be careful depression doesn't set n. I will start back at gym light weights. I also on vitamin b1 etc
@sahogrygoryan7993
@sahogrygoryan7993 Жыл бұрын
Stickers are best 🇺🇦🧡
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Stickers?
@vintage_violet
@vintage_violet 3 ай бұрын
Amazing! I wonder if this has to do with nicotine therapy, I’ve heard it may help reverse some of the symptoms (not smoking just the plant lol).
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 3 ай бұрын
Hey Violet. Actually GDNF is produced naturally in the brain and tends to be produced in higher amounts with intense exercise regimens. That said, there’s no guarantee you could totally reverse PD with routines such as fast walking. I made this video not to discount the possibility but to recommend using caution before believe everything you see online about so-called cures for PD. What I can say is John Pepper is real, his experience is genuine, and in his case fast walking changed his life
@dell9604
@dell9604 Жыл бұрын
Hi. Can you say in percentage terms how sure you are that fast walking can reverse Pd? Thank you.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Thanks for your comment Alan. Did you watch the video fully? I ask that first, because the reversing PD with fast walking isn’t my claim. Percentage wise I am not sure I can even give a rating, as in my opinion this is purely anecdotal regarding the gentleman discussed in the video. I think terms are also needing definition in this case. By “reverse” I think John means his symptoms haven’t progressed or have improved enough that he has kept things significantly at bay with fast walking. You can’t “reverse” a disease process with no known origin, but you can greatly slow it down and also protect other neurons from dying. That’s what the role of GDNF is as a neuroprotective factor. I’d personally like to see more research done in this area, as it seems scarce. I hope I’m wrong, but as far as I know there is no research that shows this to be true in numbers significant enough to make changes in the way the disease is managed. Unfortunately I’m also enough of a realist to recognize that money also drives decisions in medical treatment and in drug prescription so… will they ever find a cure for PD? If they do I fear they may not reveal the secret.
@dell9604
@dell9604 Жыл бұрын
@@parkinsonsdiseaseeducation Thank you very much for the comprehensive comment
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
My pleasure sir!
@kittbarnes8121
@kittbarnes8121 11 ай бұрын
My wife died last year from Parkinson’s in year 22 after her diagnosis , on her death certificate the cause of death listed is “Parkinsonism”, my feeling is that dementia once it set in escalated her demise . We tried everything imaginable to reverse dementia to no avail at her major Parkinson’s treatment clinic. Movement training and exercise were paramount in her living a fairly well and productive life for 15 years and oft forgotten ,lots of hydration .
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 11 ай бұрын
@kittbarnes8121 what you say is true, because sadly not all persons with PD progress at the same rate. I’m sorry for your loss, I’m glad that exercise helped her for the first 15 years, as it should. I assume you watched the whole video, but I hope it came across that I am skeptical of the claims that John Pepper makes about his PD journey.
@suzzygreen
@suzzygreen 9 ай бұрын
I walk fast with a walker😊😊😊😊
@lindaabernathy4876
@lindaabernathy4876 Жыл бұрын
Could it be that Pepper's diagnosis was incorrect?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
There may be a remote possibility that he was mis-diagnosed, but he has been examined by multiple physicians who have confirmed his diagnosis. So I doubt that he was mis-diagnosed. I think his is a case where he found the best weapon for HIM in fighting against PD and it has really worked to keep things at bay for going on 3 decades. As I say in the video, results vary. Some individuals do very well on high dose Thiamine (B1) and others do not. It is not always predictable.
@sarbanidaschowdhury2465
@sarbanidaschowdhury2465 9 ай бұрын
My mom is having arthritis..So she cant walk fast. So whaat else she can do?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 ай бұрын
Hi Sarbani. I’d suggest low impact type of exercises. She can try exercises from LSVT BIG or PWR! These programs address flexibility, balance, muscle endurance, posture, walking, and can build stamina. They would also help to increase dopamine and GDNF
@sarbanidaschowdhury2465
@sarbanidaschowdhury2465 9 ай бұрын
@@parkinsonsdiseaseeducation any reference where to get them?
@belindaelisa5618
@belindaelisa5618 4 ай бұрын
Contact report 578 'Billy' Eduard Albert Meier (BEAM): Then the last question: You once said that there were natural foods that could prevent or simply slow down Parkinson's disease in a highly concentrated form. You mentioned vegetables that contain natural nicotine, which, when eaten, has an alleviating or preventing effect on Parkinson's disease. Ptaah: 65. That is correct. 66. Pure vegetables, such as tomatoes, peppers, aubergines and cauliflower, etc., which contain natural nicotine are effective against Parkinson's if eaten frequently. 67. A very effective extract can also be made from these vegetables, which can produce very beneficial effects.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 4 ай бұрын
Can you enlighten us to where this came from?
@suzzygreen
@suzzygreen 9 ай бұрын
I can walk on my own i use a walker i walk fast our roads are very bad hence the walker 😊😊help
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 ай бұрын
Hey, fast walking using a walker is better than not walking at all! Keep it up!
@osmondwilliams2762
@osmondwilliams2762 7 ай бұрын
The background music is irritating and distracting. 4:57
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 ай бұрын
Thank you Osmond. While I am surprised that this is the first complaint about music on this video, I do recognize that background music may not be the best choice for these types of videos. In the future I will be amending that.
@michaelcarr304
@michaelcarr304 7 ай бұрын
@@parkinsonsdiseaseeducation What a childish response. It does you no credit at all. I dislike background music too, btw - it's bloody annoying when you're trying to absorb information. If you were giving a lecture in a lecture hall would you have music in the background?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 ай бұрын
I appreciate your comment Michael. I’ll be the first to admit that I was quite irritated by Osmonds comment, not because I don’t want or welcome feedback, but that the tone in which is was written basically stated in my mind that this was the only thing that was noticed about the video to him. I am not offended that he didn’t like the music, but a blunt “the music is irritating and distracting” is not as well received as “the material in this video is good, but in the future would you mind not having music in the background?” I do listen to feedback, as I don’t include background music any longer and that’s been the case for a while in more recent videos. So, thank you, I respect your opinion and I recognize that I could have worded my response more charitably and avoided a rash reaction. I will amend my prior comment and unpin from the top
@redcap282
@redcap282 7 ай бұрын
@@parkinsonsdiseaseeducation Fair enough. Thank you for taking the time to respond :)
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 ай бұрын
My pleasure!
@billdew5516
@billdew5516 Жыл бұрын
where can i get more info
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
This is Johns website. I have no affiliation with him other than being connected on social media. www.reverseparkinsons.net
@nelsonthomas6263
@nelsonthomas6263 9 ай бұрын
I am a 38 yr old person ,I am quite not sure whether I have PD or not,At times I have Tremors,but mostly I am without tremors ,I am not sure whether I have PD or not
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 ай бұрын
It could be, or it could be other conditions such as benign essential tremor
@manuelsinco920
@manuelsinco920 10 ай бұрын
THAT DOES MEAN WE CAN STOP OR REDUCE OUR MEDICATION?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 10 ай бұрын
Hi Manuel. I cannot tell if this is a question or a statement. The short answer (if this is a question) is this: High intensity exercise can potentially provide a chance to possibly reduce or stop medication. I do not advise stopping or reducing medication without consulting with your neurologist.
@fergurburger5054
@fergurburger5054 9 ай бұрын
What if a person is unable to walk fast? I just found out, a friend of mine has PD.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 ай бұрын
Honestly walking fast can often be easier than regular walking for folks with PD. Skipping and jogging or running can improve ability to walk where normal walking is smaller and more difficult. It’s a different neural pathway to walk fast than to walk at a regular pace. If you tell yourself to walk BIG you will improve stride, arm swing, and speed without focus on fast walking. It’s about effort level
@clintonpowell1443
@clintonpowell1443 Жыл бұрын
Fast walking sounds good. But what about those of us that have a hard part of walking?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
I agree with you. I’d say that this would work best in folks who are first diagnosed as a way to prevent symptoms from worsening. Also, I think it would possible to get therapy to improve overall walking, balance, and stability and then progress to fast walking as a way to improve things further and to maintain. I’d encourage you to also watch Johns video mentioned in the description. He discussed helping a man that came in to a conference in a wheelchair and he helped him to walk. Sounds crazy, but I do think it’s possible with what he terms as “intentional movement.”
@earlmooch9569
@earlmooch9569 Жыл бұрын
I have the same issue with walking. I have been on a stationary bike at the gym. Five months in, an hour a day, now doing over 11 miles in an hour. This has helped my symptoms greatly.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Earl you bring up an excellent point with the cycling… The reciprocal pattern required for a bike is actually the same pattern of motor movement needed for walking, namely, as one leg is withdrawn the other must extend and then retract/withdraw. The cycling can reinforce walking movement patterns both at the brain level (Central Nervous System) and at the spinal nerve root level (Peripheral Nervous System). All this to say, doing the cycling and then immediately trying to walk BIG could be a way to work on increasing your walking little by little
@clintonpowell1443
@clintonpowell1443 Жыл бұрын
@@earlmooch9569 I get on one of the bikes at the gym. Just to warm up, and I do .5 miles in under 10 min. Then I work out with weights fore 25 to 30min. Sounds good.
@dogdogjm9
@dogdogjm9 2 ай бұрын
im41 i've got Parkinson n cant walk very well. feel disappointed to myself
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 2 ай бұрын
I am sorry to hear that you have difficulty walking. Try not to be discouraged, Parkinson’s will always make walking a difficult task, but high intensity exercises help. At 41 there is a lot you can do
@caroljones151
@caroljones151 9 ай бұрын
The dose that Dr Costantini recommended for those that want to follow the high dose thiamine protocol is 4G a day of thiamine hydrochloride , not 100mg of thiamine mononitrate
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 ай бұрын
Hi Carol, I never said anything about what the protocol was for high dose thiamine in this video.
@insum9868
@insum9868 4 ай бұрын
re-read his old website
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 4 ай бұрын
Daphne Bryan has the most current information and she also is in close touch with a physician
@caroljones151
@caroljones151 3 ай бұрын
Daphne Bryan has the same access as you or I to the protocol of the late Dr Costantini, the original protoco has not changed since the doctor died. Daphne at 100 mg of thiamine mononitrate is not following the original protocol (dose or substance) no matter which Doctor she is currently talking to. i@@parkinsonsdiseaseeducation
@caroljones151
@caroljones151 3 ай бұрын
The dose and the protocol has not changed since Dr. Costatini died​@@parkinsonsdiseaseeducation
@ohblimey21
@ohblimey21 Жыл бұрын
John Pepper is wrong on this silly theory. And many people with PD who know him don’t even believe that he has PD. Even if GDNF DOES protect neurons - which the presenter can’t find evidence for at Mayo, surprise surprise- It doesn’t matter which cardio activity you choose: the key is 80% of maximum heart rate and frankly this is very very hard to keep up for 20 mins +. Most people just can’t keep this cup in their 60s, 70s etc. when I was diagnosed I thought Pepper was a gift from heaven. I walked my butt off but gradually got worse and worse. And btw I measured my heartbeat once during one of these walks and at no point did it reach the magic 80% outlined above. When you provide him with this sort of evidence he’ll always blame you for its lack of efficacy: either you walked too slow, or too fast, or you didn’t rest in between days. Most people who’ve followed his lead haven’t had great results from it. He’s not a charlatan, he believes he’s right, but then he always does and irritates others beyond measure. I’ll tell you what: those of you who claim that it’s ‘working’ for you, come back in 3 years and tell us that you’ve not progressed in this period eh? I won’t hold my breath.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
I’ve honestly been skeptical from day one. I tried to present this in as unbiased of a manner as possible. I once challenged him regarding diagnosis and suggested that there are simple tests to determine proof of having PD currently. He became very defensive. Not surprised really
@Bestvidoes3078
@Bestvidoes3078 11 ай бұрын
​@@parkinsonsdiseaseeducationhomeopathic medicines works excellent in parkinson's
@sarahlange8989
@sarahlange8989 9 ай бұрын
Do you have a source that explains exactly what homeopathy is effective, dosages + rationale? I don't know where to start on this front. Much appreciated.
@Bestvidoes3078
@Bestvidoes3078 9 ай бұрын
@@sarahlange8989 meet your nearest homeopath
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 ай бұрын
@sarahlange8989 I have to admit that I am not well versed on homeopathic treatments for PD. I’d look into Dr Laurie Mischley and her work. She is a Naturopathic physician. seattleintegrativemedicine.com/
@kanchpandit432
@kanchpandit432 Жыл бұрын
💌💌
@varuninnz
@varuninnz Жыл бұрын
btw what is your facebook group?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Parkinson’s Warriors International. m.facebook.com/groups/pdwarriors/?ref=share&mibextid=SDPelY
@daisyk9845
@daisyk9845 5 ай бұрын
How can one walk fast when the essence of pd is making your slow.?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 5 ай бұрын
Hi Daisy! Great question. All movement requires a higher effort level with PD, even movements that for a person without PD would be second nature. Exercise programs that really help to improve the movement in PD require a higher effort level, thus the term forced, intensive exercise. For example, with LSVT BIG, folks don’t move as big as they should, and even with the therapist modeling the size movements that are ideal it sometimes takes a combination of modeling, verbal cues, and tactile shaping cues. Plus repetition for the 4 week protocol gives ample practice under the guidance of a therapist. Eventually when the patient recognizes how big they need to move they can get there with a higher effort level of movement. The brain recalibrates what “normal” feels like and then they can internalize that effort level. Fast walking is no different. Just because the disease results in more slowness of movement doesn’t mean that a person with PD can’t muster up the effort to make it happen. Hope that makes sense.
@ivankos3305
@ivankos3305 7 ай бұрын
Cue1
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 ай бұрын
?
@ivankos3305
@ivankos3305 7 ай бұрын
@@parkinsonsdiseaseeducation It's on the market now
@michaelkenney2152
@michaelkenney2152 Жыл бұрын
I’m sorry but I’m going have to disagree with you . Your friend didn’t reverse or even eliminate Parkinson’s from his life he might just have a mild form of the disease that allows him to go on with his daily life without thinking about the symptoms. I know myself that there is no cure for Parkinson’s disease because I have a unique form of the disease myself, since starting at home therapy I walk around here often and I still have symptoms and I’m on a heavy dose of medicine, I have to take 15 extended release tablets daily
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Hi Michael! 👋 The funny thing is, you aren’t disagreeing with me haha. The title is meant to grab attention and honestly is borrowed from John Pepper himself. Neither he nor I are meaning to say that PD is truly going away. But in his case fast walking has kept the symptoms at bay such that he only needs an MAO-B inhibitor rather than levodopa. He stated recently that when he stops exercising the symptoms get worse. So nobody is claiming that he doesn’t have PD any longer, just that the symptoms are managed through fast walking routine.
@sudarshansharma5398
@sudarshansharma5398 9 ай бұрын
😊
@ladyg0726
@ladyg0726 6 ай бұрын
A misleading and disrespectful waste of time. A shame to use such a title for those seeking help and hope.😢😢
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 6 ай бұрын
Did you actually watch this video? John Pepper’s book is literally called “Reversing Parkinson’s” so I’m not the one who is potentially misleading. If you watched the whole thing, you’ll see that I’m trying to protect the PD community by advising that you should exercise caution in believing everything that you see and hear about treatments for PD. There are a lot of snake oil salesmen out there. I’m not saying John’s methods don’t work, I’m suggesting that further research would be indicated to show the entire medical and scientific community that intensive exercise can “reverse” the symptoms of PD. Id suggest reading John’s book and judge for yourself.
@tombork2281
@tombork2281 Жыл бұрын
I have PD, but it's not Parkinsons Disease. I must have the wrong channel
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
🤔
@billdew5516
@billdew5516 Жыл бұрын
obviosly it isabny arobic
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Yes, it would be a form of aerobics.
@yvonnebasson8652
@yvonnebasson8652 3 ай бұрын
Can you really?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 3 ай бұрын
Well, that’s quite the question isn’t it? I’d watch the video to find out my opinion. Let’s just say, results may vary…
@mariaparker5735
@mariaparker5735 Күн бұрын
@@parkinsonsdiseaseeducation
@fionaforward3358
@fionaforward3358 2 ай бұрын
Absolute nonsense.If Parkinson’s was so easy to cure it would not be the terrible scourge it is.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 2 ай бұрын
Cure is not a word used in this video. Reverse means improving the symptoms and keeping them at bay, not eradicating the disease. Just wanted to be clear that John Pepper isn’t claiming that, nor am I. I hope you watched this whole thing to see the perspective offered on my part
@tj2070
@tj2070 Жыл бұрын
Hmmm … in my opinion, after watching this episode twice through the past 2 days, I feel the best service you can provide the PD community - is to take the posting down! To your credit, you emphasize the anecdotal nature of everything you are, or will cover. Why then - do you, out from nowhere - bash High Dosage Thiamine (B1) usage? Especially when there is a significant amount of an edit Al reports, along with a broad variety of formal, all-be-it-limited clinical studies easily available to review? It seems you may be assigning B1 to snake oil, which for one, I take offense. Simply - I don’t understand what I felt was a cheap shot that might cause unwarranted fear, uncertainty and doubt.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
I want to understand this. Where in this video do I “bash” B1 Thiamine therapy? When mentioning any treatment method, particularly supplements, my only intent is to give the advice to proceed with caution and to not expect the same results as another individual with PD who is doing the same thing. B1 works really well for some people, but not others. I was not intending to compare that to anything else or to suggest that B1 therapy should not be attempted to ease symptoms. I can’t help that maybe what I said was misunderstood or taken out of context. I rewatched the part of the video that you are referring to and I did not say anything negative about High dose B1 therapy. I said that fast walking may not work for everybody with PD just as B1 may not work for everybody with PD. My friend David who has the Life with Parkinson’s Channel, and he is a PWP, has said himself that B1 didn’t work for him. Is he bashing the treatment altogether? Absolutely not… and neither am I. Here is his video on the subject: kzfaq.info/get/bejne/nr-bl7J4q9jFhWw.html
@tj2070
@tj2070 Жыл бұрын
Yes, perhaps I overreacted. Starting at timestamp 4:30, you refer to JP’s fast walking anecdotal evidence. You the continue: “… that is not to say that is proof that it (fast walking) will work in all persons with PD - any more than HDT or Vitamin B1 might work [for others.]. Your HDT statement seemed to appear out of the blue, especially when the intent of the post was presumably wholly focused on JP’s fast walking. There wasn’t any HDT follow-up. Both my wife and I were stunned by the one-off subject change. I continue to feel the out of context stmt risks promoting FUD, especially as I personally, appear to be benefiting from HDT.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
I certainly apologize if what was said sounded like I was in opposition to that in any way. I could have stated it more clearly. At any rate, I promise to do a future video covering B1 Therapy and make it clear that it could be a viable treatment option to supplement existing PD treatment, which I do believe!
@tj2070
@tj2070 Жыл бұрын
Appreciated. Funny thing about investing B1 - when by pill, a significant % will not get to where it’s needed ‘cause the digestive process will “digest.” Sub-lingual absorption seems to work really well with relatively low, low dosage, compared to oral consumption of pills.
@tj2070
@tj2070 Жыл бұрын
… injesting, not investing.
@trinitodbone
@trinitodbone Жыл бұрын
WHAT THE HECK ARE YOU TALKING ABOUT GET A DAY JOB BRO WALMART'S HIRING
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Watched the video and you still don’t know what I’m talking about. Jokes on you. 😂 😂 😂
@trinitodbone
@trinitodbone Жыл бұрын
NONSENS.E... WHAT SCHOOL DID YOU GRADUATE FROM
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation Жыл бұрын
Watch the video in its entirety and then we’ll talk. You’re basing your comments on the title alone, which is meant to cause curiosity so that you will actually listen to what is being talked about.
@franksam6818
@franksam6818 Жыл бұрын
​@@trinitodbone Youve clearly been indoctrinated by the med system.
@gerrycogi
@gerrycogi 10 ай бұрын
Hahahaha.
@halhosmer1820
@halhosmer1820 7 ай бұрын
The only research you need is under your own brain stem. Get out and give it a try. 1 hour every other day walking as fast as you can and keep it going. Hell, get a long-legged dog.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 ай бұрын
Can’t hurt. But research is still important. Claiming that this is a one size fits all treatment for PD is not very accurate.
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