Ehlers Danlos Syndrome Explained Clearly

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Күн бұрын

Ehlers Danlos Syndrome (EDS) explained, including subtypes such as Hypermobile EDS and Vascular EDS. We look at the hypermobility criteria (including Beighton score), as well as Ehlers Danlos Syndrome treatment.
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Video Timestamps:
0:00 What is Ehlers Danlos Syndrome?
0:25 Ehlers Danlos Syndrome Pathophysiology
1:17 Ehlers Danlos Syndrome Causes
1:50 Ehlers Danlos Syndrome Symptoms and Signs
4:17 Ehlers Danlos Syndrome Diagnosis
6:15 Ehlers Danlos Syndrome Treatment
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Please remember this video and all content from Rhesus Medicine is meant for educational purposes only and should not be used as a guide to diagnose or to treat. Please consult a healthcare professional for medical advice.
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Пікірлер: 32

@Raittway 11 күн бұрын

I'm 66, my daughter was diagnosed a few years ago. I had health issues my whole life. I used to bend my thumb to freak out friends when I was a kid. A doc kept me out of gym from 7th thru graduation! That never happens. I had major knee surgery at 19. Right now, I need bilateral reverse shoulder replacement, knee replacement and my spinevis bad. My joints are full of arthritis, spurs, blown clavicles and one rotator cuff is almost gone. I hemmoraged after delivering 3 kids. Had to have a hysterectomy at 38!! Prolapsed bladder and uterus. I finally found a specialist an hour away. I'm so anxious to speak to him.

@missillicity 3 ай бұрын

There are no doctors with availability around me 4 plus hours out. my mom is diagnosed. i have all the symptoms. yet no doctor will diagnose me, and im in limbo and im in so much pain everyday. i had a big surgery 2 years ago and my life flipped and i havent been the same.

@Emily7778 2 ай бұрын

Its so difficult. I finally found a doctor who will see me and my appointment was scheduled 8 months out 🙃

@GizmoGremlinDog 2 ай бұрын

I asked my GP about EDS as myself, my daughter and son have symptoms. She asked "what's that?" So I'm pretty much screwed if this is what we have

@ascargot Ай бұрын

Same with me. I live in Ontario and apparently the only ones that can diagnose are the doctor of the Ehlers-Danlos Clinic i Toronto, with a wait list of 2.5 years.

@skyetoddmakeup 29 күн бұрын

I live in Texas and just got diagnosed after searching the state for 5+ years for a doctor who could help me. Even though it's not a rheumatological condition, my local rheumatologist is familiar with it because his son has it, so he's treating me now. But I totally understand. It's been hell.

@nichole634 22 күн бұрын

My primary doctor referred me to a geneticist who sent me the genetic testing kit from invitae in the mail. Everything was Teledoc / phone conversations aside from the cheek swab at home.

@shannongreenwell1278 3 ай бұрын

Awesome job on explaining EDS! Keep up the great work! I have Classical EDS and not many physicians have an inkling of a clue what it is! Which means going to hospital for a EDS patient is very difficult and scary! Luckily my Neurologist’s office is very familiar with EDS and POTS, which I have. I have GERD AND PCOS. Along with Migraines and CCI( I sleep with a CCollar on at night). I could do these things as a child and young adult and a teenager, but due to a fatal car accident that killed my mother and mangled me I am unable to do much of anything at the moment. I am still very hyper mobile however! Especially in my arms and knees and the tops of my feet’s. .

@Raittway 11 күн бұрын

I was in the hospital last weekend. My neck was shooting pain into my head that was unbearable. Not one person heard of EDS.

@19HuskyWolf70 Ай бұрын

My girlfriend is struggling with EDS life, she can't sleep 4 hrs on average a night, can't eat. Doctors in Michigan have no clue. She also is dealing with MCAS

@faree38green 9 ай бұрын

Excellent presentation re Ehlers Danlos

@RhesusMedicine 9 ай бұрын

Thank you!

@tessaelisabeth7393 3 ай бұрын

I was diagnosed with EDS recently. It impacts my entire body. Does anyone have severe tummy problems from it? I am looking for another doctor bc they think I have something else (POTS)

@shannongreenwell1278 2 ай бұрын

I have GERD due to my EDS and I have POTS, too. I have cEDS.

@liliumdahlia 2 ай бұрын

I have irritable bowl syndrome and a prolapsed pelvic floor

@anntunaley9974 2 ай бұрын

U most likely have gastroparesis. Most of us with EDS do.

@user-vi2hx9ui5j Ай бұрын

I have terrible stomach issues. Pain. It feels as though I can feel my food moving through my intestines and it’s just pain. Makes it hard to eat at all. I have no idea how to deal with it.

@Baragaki_Lily Ай бұрын

I have POTS, fibro and now possibly this EDS' thing- before all the watchamatchacallit diagnosis- my tummy has suffered the horrors™ since i was born into this wasteland. A lot of puke and sh❤t in my life until I ended up malnourished in 2019 and in 2020 when i almost threw up my gut out of my useless body the doctors took me seriously- and treated me accordingly- After 2 and a half years of eating tasteless stuff now i'm okay and not actively dying (fat and happy or so they say). They told me at that time i had irritable bowel syndrome but now i know it was related to the illness i've mentioned at the start of this rant, it sucks! It really does! I can't remember how cheese or french fries taste like but i can eat Oreos and drink vegan strawberry milk to my ❤'s content so it's okay . Now i'm fully experiencing chronic pain, fainting at least twice a week but without sh❤tting myself to death so it is an improvement! 🎉🎉🎉

@JS_bioclasses12 10 ай бұрын

Nicely explained

@RhesusMedicine 9 ай бұрын

Thanks 🙂

@waelfadlallah8939 10 ай бұрын

Thank you 😊

@RhesusMedicine 9 ай бұрын

You're welcome 😊

@ngocquynhnhuhuynh3227 6 ай бұрын

Luckily, I have only hypermobility (up to now), so I can’t run

@user-sm7ue1cb6y 29 күн бұрын

Plus Cranial Istability, and Occult Tethered Cord..

@krealyesitisbeta5642 4 күн бұрын

*The syndrome that makes you the pirate king.*

@happyhenryxii1956 5 ай бұрын

@dr.moustafaibrahim6810 21 күн бұрын

My wife applied for divorce after she got to know that's no cure for me and she left me suffering by myself in New York hospitals cuz I have EDS

@Raittway 11 күн бұрын

I'm so very sorry. She sounds like my ex. He hated me for being sick all the time. I didn't know it was EDS until my daughter was diagnosed a few years back. I almost died from sepsis and he never visited!! Your wife and my ex should go on a date. Lol ❤❤