Riding the Rheumatoid Arthritis Rollercoaster: Methotrexate, Medication Changes and More with Ali

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Riding the Rheumatoid Arthritis Rollercoaster: Methotrexate, Medication Changes and More with Ali

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Күн бұрын

Have you ever felt overwhelmed with changing medications? On Episode 76 of the Arthritis Life Podcast, Ali DiGiacomo describes the emotional roller coaster she experienced while managing a flare up of rheumatoid arthritis and switching up her medication regimen.
Ali & Cheryl also discuss what it’s like to have costochondritis and how they cope with unresolved health issues while still trying to live a full, joyful life.
This episode also includes reflections about how to cope with social media jealousy within the chronic illness community, how to set boundaries with friends and loved ones during Covid times, and more.
For full episode details plus a transcript, go to the show page here: arthritis.thee...
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All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Пікірлер: 4

@wallhagens2001 11 ай бұрын

Thanks so much for sharing your experiences. I was diagnosed with RA four years ago and it's so hard dealing with the instability of the situation. Some periods of time I feel almost normal, then I'll have months where I'm laid up on the sofa. It's a real crazy-making illness and so hard for people to understand. I am having to learn to be patient with myself and forgiving of myself when I'm going through rough patches.

@ArthritisLife 11 ай бұрын

I'm so glad that our stories resonated and were helpful! I completely agree that the instability / uncertainty is one of the toughest things to deal with. For me, it helped to work as hard as I could on accepting the ups and downs, rather than searching for a way to control things perfectly. Being patient and forgiving, as you said, goes a long way. Sending lots of support your way! - Cheryl

@0nly0NE. Ай бұрын

I started with lifestyle changes ( no insurance) and hit near remission but then couldn’t keep that up because I needed to take classes to get to my career goals. So then I tried Enbrel (it worked well but with weird side effects) and built up antibodies after missing a dose by a day or two after less than a year of taking it. Then I switched to Humira and that worked with lifestyle changes for a while and then I wasn’t sure if it was doing anything. After less than 2yrs of that I moved states and had no health coverage again and did just lifestyle changes for 1.5yrs, after which it was flaring up for long enough I finally figured how to get health care. Now I’m on methotrexate (about 2.5 months) but I only take 6 and I think I need to up the dose now, but I can’t for a few months because I’m out of state. So back to trying to be more careful with lifestyle. If only I could fix my sleep issues I could maybe be doing better with lifestyle changes. Oh well. Thanks for sharing. It is good to hear other people’s experiences, especially from others that have had to try multiple things to manage their RA.