Sarcoma survivor discusses symptoms he had before diagnosed with cancer

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Sarcoma survivor discusses symptoms he had before diagnosed with cancer

Рет қаралды 64,290

Күн бұрын

For additional information visit www.cancerquest...
Ned Crystal is an Atlanta native and sarcoma survivor. Ned was diagnosed at a young age and is very active in the young cancer survivor community and survivorship issues in general. In his interview Ned discusses his experience with cancer treatments and his caregiver/social support network.
To learn more about cancer and watch additional interviews, please visit the CancerQuest website at www.cancerquest...

Пікірлер: 96

@rogerhardcastle6019 4 ай бұрын

I had a large sarcoma removed from the rear of my right thigh in Oct 2020. Upto sitting on a hard garden bench I had had no symptoms of any kind. It felt like I was sitting on a paperback book. I was unaware that the rear of my thigh was swollen. April 2024. Both legs functioning equally well. I just have a neat scar most of the length of my thigh. There are some after effects from the radiation treatment but not too unpleasant. Best wishes to everyone.

@geoffreymccann2841 9 күн бұрын

I have almost the identical story just going through the radiation process now after surgery.

@toniaduvall1370 8 жыл бұрын

I hear you. cancer freaking sucks big time. John died Jan. 16, 2016. I'm still bawling my head off everyday. I loved him dearly. we we're married 18 years 1 month and 16 days. this depression is getting me really down. I don't want to do anything. I've even almost stopped eating.

@nikicarrie4071 Жыл бұрын

I'm sorry 😞 ❤️ he would want you to live ❤️

@jordancarson885 Жыл бұрын

I really hope your okay❤️

@umarqulachilov9405 8 ай бұрын

Actually fasting and 21-40 day water only fasting is actually good against cancer

@PatriciaAShelton-no6cq 4 ай бұрын

It's been eight years an I'm here looking through videos on sarcoma cancers. How are you doing? I always read thru the comments. We all all here for one reason, Cancer. I have just been diagnosed with a rare cancer in my left ankle called leiomyosarcoma. About to start radiation therapy then after those treatments I will have limb sparing surgery to remove the tumor and surrounding tissues. Amputation of the foot an ankle was recommended, but I just can't. I'm a senior an I don't want to be wheel chair bound. Of all the patients I see as I'm sitting in the waiting room,those with Amputations are in wheel chairs. Some might be from bone cancer a lot are from diabetes. The ones I've seen so far are elderly like myself. It's hard on my husband more so than me. I've been his care taker now for 16 years. He's worried about himself an who will take care of him. It's hard to deal with all this. I pray you you are doing better now. That each day you're given is a blessing. Try and move on enjoy life as much as you can.

@tarnthamuaapithorn9161 4 ай бұрын

Rest in Peace

@toniaduvall1370 8 жыл бұрын

I just lost my husband to this kind of cancer. I miss him so much.

@Ihihana 8 жыл бұрын

+Tonia DuVall Me too :( i lost my husband nearly 4yrs ago from Sarcoma Cancer, he passed 5months after he was diagnosed. And even went through a 15 1/2 hour surgery. :( leaving behind his beautiful children who miss him dearly. And not a day goes by that i dont think of him or miss him, or even cry for him :(

@toniaduvall1370 8 жыл бұрын

Yea it's very hard without him here. We were separated. But that didn't mean I didn't still love him. My future husband, has been my rock through this. Just right now he can't be with me like we both want. I'll always love John. He was my first husband.

@rsar61 7 жыл бұрын

Tonia DuVall I'm sorry for your loss 🙏🏼

@rsar61 7 жыл бұрын

Ihihana Iam so sorry for loss you and your children are in my prayers

@Bai32771 6 жыл бұрын

Amen!

@I.am.Keara.Nichole 6 жыл бұрын

I was diagnosed with Epithelioid Sarcoma back in February of this year. I found out that this lump that I had in my hand for 6 years was cancer this whole entire time. I'm just grateful because it could've took my life. As a result I hand to go thru radiation and then they amputated my index finger. It was one hell of a journey and still is.

@PlayJewel 5 жыл бұрын

Keara Smith how big was the lump?

@maryareyes3688 3 жыл бұрын

Why did you have to go through radiation even if they are going to amputate it? I’m scared

@awa_iwa 3 жыл бұрын

How are you love? I'm also a sarcoma Survivor had a lump on my bicep. Was diagnosed in March they remove my tumor in June but they also remove my bicep

@I.am.Keara.Nichole 3 жыл бұрын

@@awa_iwa Oh my goodness! That’s horrible !! But im doing better now, im able to still continue my hair career. Just occasionally my hand cramps up sooo bad and im permanently not able to bend my middle finger due to the surgery. How are you doing sweetheart??

@I.am.Keara.Nichole 3 жыл бұрын

@@maryareyes3688 I had to undergo radiation to see if it would shrink the tumor, overall it did. Radiation is just like signing up for sun burn everyday for 6 weeks. I hated it so much and all I would do is cry.

@theultimateholy3189 Жыл бұрын

Cancer is no joke, i thank god that this guy survived it. It is hell knowing your gonna die when its not treated well but im thankful someone survived cause not much people survive from cancer....

@Lionofjudah24 5 жыл бұрын

It sucks but may God comfort you and your family

@olyacarell6434 2 жыл бұрын

God does not exist. Grow up and stop believing fairytales

@ggaggagga4 5 жыл бұрын

I noticed a non-painful lump on my right biceps muscle a few months ago. It seemed to have gotten a bit larger so I went to the doc. He ordered an MRI and it came back so "normal" that the report sounded like the Radiologist didn't see any evidence that ANYTHING was actually there. I've decided to seek another opinion. This just doesn't feel "right".

@mckaylah4539 3 жыл бұрын

Did you ever find out what it was?

@Gecko12396 2 жыл бұрын

What was it? Xx

@nemospence2724 2 жыл бұрын

What was it bro? It's been 3 years since you posted this comment.

@monicamadrigal660 Жыл бұрын

Have them use die with your MRI

@sookie4195 Жыл бұрын

I’m a retired medical professional and I would get a second diagnosis.

@PatriciaAShelton-no6cq 20 күн бұрын

I have leiomyosarcoma cancer in my left ankle. Thru with radiation surgery coming up on two weeks. Surgeon wanted to amputate but i just can't. Limb sparing surgery is what i have chosen,which i have seen a plastic surgeon to reconstruct the area once surgeon has removed the tumor and surrounding tissue hoping to get a clesr margin. She informed me that getting a clear margin is going to be difficult in that small space. Hoping she won't leave the foot with no use. A lot to think about. I'm a senior and my five year outlook with nothing none is fair. Maybe i should do nothing just live day to day as long as i can not in hospitals and being tested all the time. I have spent so much time going to Drs this year. Since it's rare i have to travel over a hundred miles just going to see my surgeon/ oncology.

@RSO-IV 3 жыл бұрын

I lost my dear son of Lung Soft Tissue Sarcoma, 17 yo abt 10 months ago. In Aug 2020 in his sleep after 5 days final palliative treatment in a very private care hospital. . The doctor expected him to die soon. The last day, the doctor forced me to bring him home eventho he looked very healthy on the last day. Even he has having shortness of breath aided by oxygen, he look so healthy at that time. I do think, the death will be extended for stretching another 2-3 months. We cared for him well that night until we were faill asleep at 230am. Once my wife woke up at 5am, my son just seemed leave us couple minutes ago I think. And I remembering him very tight everyday. Lost him very dear. 😭😭😭

@JoyRam13 3 жыл бұрын

You will see your aon again. This world is created and it hqs its Creator who is The King of Glory. In The last day wich is soon to come He will bring back this fallen planet Esrth into his WILL and Heavenly Kingdom. Than all who died will witness RESURECTION and ETERNAL HEAVENLY DNA will be given unto them. Be strong, time is short... Soon we all are going home. In Jesus name we all have been redeemed.

@I.am.Keara.Nichole 3 жыл бұрын

Wow your story has touched my heart. You stay strong and up lifted. Hang in there 😘

@Mina-hq3lq 2 жыл бұрын

May God bless your son and give you strength!

@cinderthedragon2076 2 жыл бұрын

Sorry to hear this

@Knowm-qo3ly 2 жыл бұрын

hey @RSO IV ....MY DAD is suffering from same lung soft tissue sarcoma ...his left lung has been filled with fluid ,doctors said it is uncurable and had to daigonised with chemotherpy....could you please tell me what precaustions should we take for him?

@nikicarrie4071 Жыл бұрын

Ty for sharing your experience

@msingh9634 23 күн бұрын

I had kaposi sarcoma last year. My consultant said it will likely come back but won’t kill me

@dannorlander8993 2 жыл бұрын

Just diagnosed with MPNST

@nemospence2724 2 жыл бұрын

How are you bro?

@Geeknuts-rh7re 11 ай бұрын

Hey pls reply what is your treatment

@SAURABHKUMAR-rc9kh 4 ай бұрын

@@Geeknuts-rh7re Hello brother how are you

@spookily1661 3 жыл бұрын

I thought I had a tumor it’s just a bump I have no symptoms

@user-pr3jv4mc3n 2 жыл бұрын

I dont know what to do I have bump on my leg I squished it and an white thing came out I dont know it was just ingrown hair or something serious pls help.

@baneverything5580 2 жыл бұрын

Just an ingrown hair but get it checked.

@user-pr3jv4mc3n 2 жыл бұрын

@@baneverything5580 yes it was ingrown hair nothing more

@PatriciaAShelton-no6cq 4 ай бұрын

Nothing to worry about. Our lumps are under the skin . Nothing to see on the skin. They're actually tumors. You just have common bump. But always have things checked out if it concerns you.

@SovietKlim77 Жыл бұрын

I’ve noticed a couple of lumps on my leg 2 of them on my left leg and one slightly big one in my right leg I’ve had this for years but I’m still worried

@darkvenom4465 Жыл бұрын

Bhai what is it I also have this two calf right and left but in my case this is defferent I have lump but I don't know is it lump or something because that lump is tall that tall and all my calf first I thought this is muscle but when I press it it slightly go to left not go right aur uppper not big and no invisible lump no pain no other symptom but I can do pulsatile I can beat my calf like heart in my two calf this is for 1 year what happened to you bro and when I press that lump it hurt but I my opinion I think this is muscle becouse lump are big

@SovietKlim77 Жыл бұрын

@@darkvenom4465 ended up being fatty tissue still get urs checked out

@umarqulachilov9405 8 ай бұрын

@@darkvenom4465do fasting. 21-40 day water only fasting.

@gailpool4042 7 ай бұрын

An atypical lipotomous tumour does not metastisize.

@7980flh 3 жыл бұрын

I start radiation on Tuesday. Surgery to come. My left upper thigh. Very large Sarcoma. How are you today?

@henrymendezgg22 2 жыл бұрын

how r u!!!?

@laughmouth Жыл бұрын

You good?

@ozkan38 Жыл бұрын

How’d you go?

@pankajrohaj 7 ай бұрын

Hey mate. How are you now? I just got diagnosed with osteosarcoma last week.

@williamcooper2050 Жыл бұрын

I have this as well Baseball size inner rt. thigh top by my groin area . I thought it was from slip and fall on ice to concrete in 2018 e>R. visit C.T scan showed lump the size of a baseball. Now I have appointments at University of Michigan Ann Arbor Rogel Cancer center. We Shall see whats next. E.R thought Lipoma Referral dr. thinks Sarcoma due to location intra muscular versus external muscular.

@ark5390 Жыл бұрын

Goodluck, let me know what happend

@williamcooper2050 Жыл бұрын

@@ark5390 MRI scheduled with dye concentrate is next.

@ark5390 Жыл бұрын

@@williamcooper2050 Alright, wishing you the best and also goodluck. And Thankyou for keeping in contact😊

@williamcooper2050 Жыл бұрын

@@ark5390 5-5 at Rogel CTC. Ann Arbor appt. initial consult next step the MRI

@williamcooper2050 Жыл бұрын

That Place is HUGE!!

@shereehardin5783 6 жыл бұрын

it's different from skin cancer right?

@borgir8889 4 жыл бұрын

Yeah

@oo3393 3 жыл бұрын

There is a skin cancer that’s called angiosarcoma.

@PatriciaAShelton-no6cq 5 ай бұрын

Yes,these are tumors.

@spookily1661 2 жыл бұрын

I have many small moveable bumps in my bicep thought I had cancer but I don’t think it is because cancer can’t move it moves and it is not painless. There’s a lot of them and they are small

@PeeMonster 2 жыл бұрын

Liposarcoma can move.. you should go get checked

@gausskid2394 2 жыл бұрын

Please get checked dudr

@sookie4195 Жыл бұрын

Cancer can move. Retired oncology nurse.

@PatriciaAShelton-no6cq 4 ай бұрын

Get it checked out.

@katrinakostas2367 Ай бұрын

Sarcoma cancer is painful and moves. Get that checked out!