Sickle Cell: The Enemy Within - BBC Africa Eye documentary

Рет қаралды 113,177

Жыл бұрын

At just six months of age, Lea Kilenga Bey was diagnosed with sickle cell. Her parents were told by doctors that she wouldn’t reach her teenage years.
Instead, Lea has become a beacon of hope for sickle cell sufferers across Africa, battling both the stigmas surrounding the disease and the authorities who fail to provide adequate care.
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Credits:
Featuring - Lea Kilenga Bey, Paul Koyanga Masamo, Albert Loghwaru, Eunice Masamo, Mnyindo Masamo
Directed by Kenneth Jura
Additional directing - Seydou Mwikali
Editor - Mwakesi Mwakale
Cinematography - Joel “Ingo” Ngui, Paul Koyanga Masamo
Camera Assistant - Kanyi Samson
Sound Recording - Edward Ahenda, Brian Ombok, Stephen Misiati
Story Consultant - Hawa Essuman
Researcher - Eva Lisangari
Executive Producer - Judy Kibinge, Peter Mudamba, Bramwel Iro
Producer - Sam Soko
Production Managers - Ivy Kiru, Joan Njeri
Line Producer - Ruth Munyiri
Assistant Editor - Jordan Inaan
Additional Cinematography - Lea Kilenga, Paul Koyanga Masamo
For BBC:
Executive Producer - Peter Murimi
Edit Producer - Desmond Daniels
Reversioning Producer - Anna Payton
Editor - Ian Lloyd
Sound Mix - Jez Spencer
Colourist - Boyd Nagle
Online Editor - Chris Stott
Digital Producer - Tamasin Ford
Social Media Producer - Anusha Kumar
Africa Eye Editor - Tom Watson
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#SickleCellAnaemia #SickleCellDisease #Kenya #Nairobi #SCD #ChronicIllness #WorldBloodDonorDay #WorldSickleCellDay

Пікірлер: 228

@BBCAfrica Жыл бұрын

📖Read more about how Lea is fighting to dispel the myths around the sickle cell 'curse' here: www.bbc.co.uk/news/world-africa-65846412

@ronkeajetunmobi6054 Жыл бұрын

There should be increased advocacy on checking for genotype compatibility before cohabitation or marriage, this will help reduce it. We'll done lea

@MaryLovesJesus Жыл бұрын

Sin shortens life, because of our sins we are separated from God.There is nothing in this world worth going to hellfire for. Repent of your sins and be born again, Jesus Christ is coming back everyone. It's about a relationship with Jesus Christ NOT religion/denomination. We have a relationship with Jesus Christ by repenting of all of our sins, praying and reading the Bible everyday, believe the gospel of Jesus Christ and be born again.

@DaviDavd-xz7du 9 ай бұрын

Happy belated, More blessings and great experiences

@jessdwarrior7422 6 ай бұрын

I have sickle cell, I also have leg ulcer for more than 15 years it stole my life and opportunities, the treatment are so expensive and the government are not helping , it hurts that you can not afford your medications. I have done 3 surgeries. I am happy people are taking about it now , some people just treat us like we aren't human too and it isnot fair ... I also have a younger sister whos also a warrior, i have lost 2 friends and one close friend i watch her in pain then she gave up , it was so horrible . I havent been able to move on from that but i just want people to know that We also have hopes , dreams and we want to live and love and experience life just like you all . Thank you for this ❤❤

@derrickjones2032 Жыл бұрын

I have sickle cell as well and I’m 35 going on 36 this month on the 27th and I believe that we will live a long life thanks to god.

@princessm2893 Жыл бұрын

Amen to that 🙏🏽

@swahiliwithZita Жыл бұрын

May God give you your heart desires. We are twinnies. 27th june

@Girlgonewise Жыл бұрын

AMEN! You will live into your old age.

@derrickjones2032 Жыл бұрын

@@swahiliwithZita That’s so Awesome and thank you very much twin and I can’t wait to come out there to learn Swahili and eat good food.

@RKBro-jr1ts Жыл бұрын

@@derrickjones2032 welcome

@theresaelizabethelijah117 Жыл бұрын

This girl is such a gem, she is strong, smart and determined 😮 My prayers goes to you all thanks for the education about this illness ❤

@mwakachewe4154 Жыл бұрын

Very good documentary, it's worthwhile watching. Being a sickle cell warrior (aged 40), advocate and volunteer at one of the biggest children's hospital in Zambia I can say the battle is real - many people both the illiterate and the learned have little or no knowledge about this serious genetic health condition but with continuous sensitization and education about this health condition, many people around the global will come to know what sickle cell disease entails - because sickle cell disease is not a silent disease but it's a disease that needs advocacy and sensitization in order to fight the myths and misconceptions that surround it.

@firstladygift.2431 Жыл бұрын

Hello sis 🇿🇲

@derrickjones2032 Жыл бұрын

That’s absolutely right

@mwakachewe4154 Жыл бұрын

@@firstladygift.2431 Hello

@mwakachewe4154 11 ай бұрын

@DonnellOkafor0304 count your blessings dear - your health condition is 100% under control - I guess from childhood. You won't believe me if I tell you that when I was growing up, I never knew anything about hematologists - this is because all the hospitals where I used to go to there was no sickle cell specialists, all the doctors who used to treat me be it at government or private hospitals had little or no knowledge about my health condition and everytime I had a complication the answers I used to get were " THIS IS COMMON IN SICKLE CELL" and they never used to tell me why it is common or what has caused that complication, hence I ended up mismanaging my health condition especially when it came to medications. Until 2015 by then I was 33 years, that's when I came to know my first hematologist at a children's hospital, he is a paediatrician hematologist but he started treating me and helped me to manage my health condition following to do's and don'ts of living a healthy lifestyle with sickle cell anaemia and here I am living a positive lifestyle with sickle cell anaemia. At the moment, only a few hospitals in Zambia are conducting sickle cell clinics and only a few people born with this genetic health condition are able to access treatment from these hospitals - so the struggle is real.

@mwongelimutua7794 Жыл бұрын

People please, before marrying and having children have a genetic test. SCD is devastating to parents and children

@olawalearemu5490 Жыл бұрын

Genotype test is just enough. Trust me, love will not be enough when the aftermath of the decision the parent made, which they could easily avoid. I had to let go of almost five years relationship I had because of the high probability of some of the children we might have may be SS. I can't watch my wife in pains not to talk of my children. If I know that our genotype could implicate our children medically, psychologically and physiologically, and I go ahead with the marriage. I don't want to call that love, it's just sheer greediness to me.

@elenamonteagudo9855 Жыл бұрын

They do not get married, they get raped

@cyelgreen4655 Жыл бұрын

This strong and elegant young woman is an inspiration. I hope that the governments will start to provide health education and health care for the people.

@humidg355 Жыл бұрын

My friend is 62 and she is doing well by the grace of God. There are things she uses that help with circulation in her own case and it’s working. Certain foods, phytonutrients, light exercise etc

@theyvonnewilliams Жыл бұрын

As a sickle cell warrior, this is so touching and inspiring. Thank you for pushing through the hurdles and helping many others in your country live through this illness. ❤❤

@zablonmatara Жыл бұрын

Inspiring piece.Such a strong girl.Thanks for advocating for the rights of SCD patients.

@bellaolum9768 Жыл бұрын

I lost a close friend to this disease, she was just 32. She would go into crisis and the pain was unbearable 😢

@jessdwarrior7422 6 ай бұрын

So sorry for your loss

@ahronrichards9611 Жыл бұрын

Amazing job Lea! As someone with a family member and friend with sickle cell disease, as well as a patient of a demyelinating disease for more than 5 years, I know the battle it can be sometimes just to get out of bed in the morning! Love the perseverance on your part and that you didn't back down in the face of adversity. You are strong and courageous. Keep on fighting, keep on pushing until you reach your goal.

@Rumis_Ayo Жыл бұрын

A very touching and emotional documentary, Am a sickle cell patient and its really affecting and to much stigmatisation, BUT we are born to live and survive. GOOD OUR PARENT

@Jessy-lu6sz Жыл бұрын

You are a true warrior, and a hero in finding purpose and making a difference. May God continue blessing your intentions.

@janrickbrowne Жыл бұрын

This is so touching. I myself is suffering from this deadly disease. People suffering from sickle cells disease are going through a lot. It not really easy.

@janrickbrowne Жыл бұрын

@@eaciae Amen. Thanks

@mubizz80 Жыл бұрын

Thank you for adding a brick to the less fortunate Kenyan families

@angulucaren1962 Жыл бұрын

Rip my dear sister Maryanne and to my little brother still battling with it 😢may God see him through all these crises.

@jessibaraza9238 Жыл бұрын

We're in same boat dear It's not easy having two siblings Suffering from sickle cells anemia 😰🥺

@christineparker3805 14 күн бұрын

😢❤💪🙏

@assistivehub Жыл бұрын

This is a very touching documentary. Thank you very much for sharing and educating us. Thanks! 🙏🏽

@maryamusmanabubakar4560 Жыл бұрын

I didn't realise that there were myths like generational curse about sickle cell. Your documentary opened my eyes to some discriminations towards people with sickle cell that i wasn't aware of. Thank you

@dewpew4714 Жыл бұрын

The doctor's labcoat at the hospital is very clean and well tailored. Insightful documentary too

@zenanikibiku2203 Жыл бұрын

Thankyou Lea for using your health to dream,build and inspire for the greater good. May you continue to be abundantly blessed with all it is that your heart desires 🙏❤🙂

@vihmaussivenitaja Жыл бұрын

You are such a beautiful and strong person, Lea. What you do is amazing.

@paulinemugo5236 Жыл бұрын

Lea Lea, you are such a go getter. Nice documentary. Putting yourself out there is soo brave of you.

@alfavyaps Жыл бұрын

This is so nice,I am touched that BBC is bringing the sickle cell conversation mainstream and with the voice of someone going through it all,I have been an advocate of sickle cell in Nigeria and I know first hand the challenges,well don e LEA and thank you BBC

@giftyanntengey4464 Жыл бұрын

If your doctor has advised against it, please do not push yourself. You can support by offering liquids to those who ran the marathon. My name is Gifty from Ghana 🇬🇭. I will be 57 years in July. I have SCA. I am SS. I work in the banking industry. I am a banker by profession. I take 5mg folic acid a day, drink abt 8 or more litters of water a day, I also take a lot of green leafy vegetables. I try to avoid stress as much as possible. During weekends, I do rest a lot. I enjoy life and I love myself. I have a beautiful 20 year old daughter. Management of SCA is the key to ensuring good health. Do not push yourself into a marathon that will put u into crises, it is not worth it dear. Anyways congrats for participating., but love yourself dear, love yourself.

@dluten3 Жыл бұрын

Me being a fellow sca warrior and the struggles I have faced seems so small compared to other countries. Lea is brave to take things on fight for her sca brothers and sisters, and I love it.

@MissAdongo 8 ай бұрын

I lost a sister(RIP) in 2019 due to sickle cell disease. Thank you for the awareness.

@symphytindi716 Жыл бұрын

Congratulations for being so strong and determined... It's not an easy journey

@mutsinzienock743 Жыл бұрын

This is really incredible my dear ,thanks for sharing

@derekbell4641 11 ай бұрын

Rafik, the guy who first introduced me to ABBA (Yes, those sweet singing swedes!) had SCD. So did his sister but 'mildly'. I'd go visit them both when they were having - episodes. Of pain. Very sad. Rafik, the brother, was gone bfore his 18th birthday. R.I.P Rafik Rahman. I've never forgotten you. 😢

@almubarakmuhammadadamisiak3274 Жыл бұрын

I have sickle cell am 33 everyone think we are going to die in any illness we have am still here

@derrickjones2032 Жыл бұрын

Why do people think we are going die I do not like that at all. I have it and I’ll be 36 next week.

@BronzeSista 11 күн бұрын

My friend from Kenya died at 30 with sickle cell.

@christalker Жыл бұрын

Lost all my siblings to this deadly disease 😢. I don't wish it on even my worst enemy. Please intending couples should please take the genotype test very seriously.

@BBCAfrica Жыл бұрын

So sorry for your losses. 😔

@SafiuSuleimon Жыл бұрын

@@BBCAfrica please can I get lea's contact

@CJ-xg6ii Жыл бұрын

What a beautiful person and mission. May God continue to bless your goals and give you strength.💗

@SylviaChuku Жыл бұрын

This is a really beautiful documentary, thank you so much for doing this documentary to help create more awareness. God bless you all.

@KarenNzisa Жыл бұрын

OMG I know her... she's from my home town... I'm proud 😊

@SafiuSuleimon Жыл бұрын

Please if you have her contact number do you mind sharing it with me I am also a sickle cell patient but I don't usually go through crisis maybe because I use herbs to support my medications but I still want to offer some help to her and the community I know what it's like fighting with sickle cell.Thank you.

@jackcook7889 Жыл бұрын

After watching your documentary I was deeply moved and I pray that all sufferers of this condition find the solutions in the future. I hope that meicicine progresses so you may all find the relief you deserve from this cruel disease. 🙏❤

@mirriammutti5683 Жыл бұрын

Very inspirational documentary by Lea! Very emotional and well done!😊 keep up your advocacy, you are being heard.

@johnlogedi9087 Жыл бұрын

Quite inspiring and a big boost to creation of awareness on sickle cell disease. Well done Lea. Keep the fire burning.

@thabwemba Жыл бұрын

I am a parent to a sickler...he is 7 years now...

@dominiqueslifestylevlog3306 Жыл бұрын

This is awesome 👏🏻 Girl you are on a mission and keep pushing ❤ God has put you in the position to use you and you have the strength. You achieved so much already not just for yourself but for so many others! Praise God. ❤

@odhiambocharles3716 Жыл бұрын

Am a sickle cell warrior,now at 40.running the marathon is a big no pls dont.any 7:05 vigorous activity that inreases oxygen demand is a risk for crisis

@lydiafomuso7168 Жыл бұрын

22:26 very touching moments especially the expression on her face as she turned around. Congratulations!!! You have done more than many politicians.

@janetlalaiseri2329 11 ай бұрын

Leah...you are a true warrior,God bless your efforts.

@nicolebrown966 Жыл бұрын

👏🏼 Good job Lea. GOD bless you and your efforts.

@kephaspeter9521 Жыл бұрын

jst Amazing, Lea is a hero may GOD bless her great advocacy

@elizabethfrazer111 Жыл бұрын

May GOD reveal the treatment and cure for this dreadful disease and make them have wellbeing. GOD bless 🙏

@Daterush_Kafui 4 ай бұрын

I have sickle cell and I am 34 and I am battling leg ulcers . The disease is no joke. One requires massive support

@omotoyosiomolola4149 3 ай бұрын

Hello please as a warrior would you advise parents to abort a child they already diagnosed as a warrior than having them live

@AcekidGolar Жыл бұрын

Warrior Here.. God got us!

@derrickjones2032 Жыл бұрын

He sure Got us

@winniealwayo700 Жыл бұрын

Pheewww what a formidable woman. Iam deeply inspired. Bless your heart lea❤. Thankyou BBC for this wonderful documentary.

@yvonnewanga8536 Жыл бұрын

Lea, you are brave! Thank you for the awareness you have created. May God bless you with long life. He is more than ABLE.

@zakariyamusaogu1971 6 ай бұрын

Your resilience is inspiring, and I hope you find the strength to overcome every challenge that comes your way."

@nanakwasi9360 Жыл бұрын

Great documentary showing a light on a subject that need a solution.we need to push for better care for patients and medicine that help with managing in times of crisis.Thank you

@paleraluswinga Жыл бұрын

Great Job, well done to her.

@NaaSydnia Жыл бұрын

God bless you Sister! I will continue to pray for changes to be made. God bless your Kingdom work 🙏🏽

@a_mateurgarden Жыл бұрын

Take it from me. I've ran in a marathon and still planning to run more and I'm a sickle cell patient. You can do it 💪

@achayootto4221 Жыл бұрын

My sister tried jogging, any stress causes a crisis

@JohnBosco.1308 Жыл бұрын

Please always provide links for donations for people who suffer needlessly in the world, especially in Africa.

@mommingitout Жыл бұрын

this is so heart warming, i have a sister who has ss n we were told she won't live pass 18 now she is 23 we thank God everyday, tho when she's in pain it takes a toll on her n fam cuz theres nothing we can do to ease her pain, often times we don't know what to do.

@faithmumbi Жыл бұрын

Hey Lea. Glad to know you are keeping on. One of primary classmate never made it to this far, God has His ways and very happy to see this. #Youarebeingheard #07 #Theworldisbeingeducated #youlookawesomedespite

@rilwanbello4850 8 ай бұрын

I love you, Lea. thanks for all you do. many love from Nigeria

@MrThorn-vs2up Жыл бұрын

This is why we need medical researcher doctors..it's not a joke ..when it hits u ..when the disease hits u then one understands the importance of doctors ..

@victoriousco Жыл бұрын

True, Nyanza and Western Kenya have largest number of those with sickle cell in the country, a research center has been initiated at Joorth aka Russia hospital. My sister passed on at 19 years in 1994 so I applaud Lea for doing her best to address the situation for the warriors and their families.

@ruddyn8542 Жыл бұрын

The only way is to test for carriers before having a baby with your partner when intending to start a family

@audreymukoro2161 6 ай бұрын

Thank you so much Lea for your unwavering support to our fellow sickle cell warriors in Taveta, Lets keep doing what we can to help our sickle cell community anywhere we find ourselves. Sickle Cell can't stop Us... Let's keep making impact one at a time. Audrey Mukoro Founder Audrey Sickle Cell Foundation Nigeria.

@lovepeace4065 Жыл бұрын

This area needs more research and time but it’s not getting the media attention worldwide and it’s a huge problem for suffers. 🙏🙏🙏

@tobym7653 5 ай бұрын

Thank you Lea for sharing your story sista x Stay strong, healthy n fabulous beauty ❤️⭐️❤️xxxxxx

@marcellinodadon1103 11 ай бұрын

_...i have Sickle-Cell Anemia...and it's hard when doctors and healthcare professionals think that we're all drug addicts..._ 😒...

@shohamuwokovuhalisi.2648 Жыл бұрын

Congratulations to her and to Taita Taveta county for the Clinic. Taveta the place where I grew up.❤

@evelynosur5557 Жыл бұрын

I know Leah❤ She was steps behind me in high school. What a beautiful young lady with a story strength and resilience!

@falcaonamisi1377 9 ай бұрын

My brother passed 2022 through this disease but these girl she is of help to the community

@steviedjazz1109 Жыл бұрын

Lea what an amazing woman you are ! I hope you are well much love to you from Germany 🇩🇪🇩🇪🇩🇪

@felixboris1560 Жыл бұрын

if she didnt inspire you i dont know what will im not crying there is just dust arround🥺🥺

@BBCAfrica Жыл бұрын

Same! 🥹

@OLAYIDEMACLEAN-sj2vc Жыл бұрын

Watch is documentary in memory of my dear friend RIP❤❤ sickle cell is battle, please take care of yourself.

@rodrickmadangu6122 Жыл бұрын

It's hurting, be strong

@caro.caro.9578 Жыл бұрын

I do have sickle cell treat. It's been tough all my life. Howard University has been doing research.

@kukuakukua Жыл бұрын

@caro.caro.9578, you mean you have traits or you have the disease? Life shouldn't be though with a trait. The disease yes but traits should have a normal functioning life just like those without. I have traits, my husband has trait. We are one of very few couples by the grace of God to have children without the disease

@caro.caro.9578 Жыл бұрын

@@kukuakukua I have the traits and know friends who had Sickle Cell disease and didn’t live to 30 years old.

@kukuakukua Жыл бұрын

@caro.caro.9578 yes many people die before age 30, especially in africa. It's a terrible disease. There has been a few success stories here in the US through bone narrow transplant but it's still not that easy option for everyone.

@africansister Жыл бұрын

@@kukuakukuahope u stop having babies because that disease never goes away, my mom had 4 children before she got her full sickle baby and she lost just at 2 years in the 90s.

@kukuakukua Жыл бұрын

@africansister by the graced of God we are blessed with 3 healthy miracle babies. No more babies. You are right, it doesn't go away and as a healthcare provider, I wouldn't encourage anyone to do what I did. It takes a special faith.

@sibongiseninomusamoyo1438 7 ай бұрын

Well done Lea 😊

@comradejohn5302 Жыл бұрын

We are together in this...as a medic

@FelyCitylegacyacademy Жыл бұрын

Awww sister i love you. God will see you through and in fact God is your strength. ❤❤❤Last week I watched the story of Michael on tuko my story and it affected me so much. I love Michael and I wish I could do something to help him. He is a very sweet boy. I just wanted to give him a warm hug. But we live in two different worlds.

@Mboki2 Жыл бұрын

We’re in the same world! If you’re honest you’ll just get to him

@tshidioageng6918 Жыл бұрын

Sickle cell cell is not common in South Africa.. that's why I was surprised that it common in WA and couple have to visit doctor before marriage.

@FredRoxstar Жыл бұрын

Its not an easy journey but God continues to carry me through

@halmamudy1 Жыл бұрын

God wanted you to be advocate to people who can’t stand up like you❤️

@dijasquare5195 Жыл бұрын

I never knew that desease was so ravaging in Kenya. I developed the less severe form (AS) but still it causes me pain in my legs and they are often swollen when I sit down or stand up for a long time. People sometimes look awkwardly at my legs without knowing what am going through. I feel so much heat in my feet due to the lack of oxygen… . May God assists us🙏

@justice101__ Жыл бұрын

Prayers

@isaacmwau Жыл бұрын

This one has really touched me and I think it's now time the government n leaders to in for the support of our brothers n sisters battling this disease, many ppl are suffering in silence, stigma n all kinds of pain but I must this very lady from my home area is God chosen to coming out n speaking for thousands of ppl outside here,so encouraging atleast someone gets hope of life.... barikiwa sana mghenjiwa n I wish you all the best 🙏

@ponleajo7324 Жыл бұрын

Kudos, to you a wonderful sister but please work on the preventive measures too

@lydiafomuso7168 Жыл бұрын

21:12 the life of an activist! Those people looked like they didn’t care. Maybe they did but they should be the ones battling for the sick and not the other way round. At least they ended up with a clinic which is very laudable

@bb7503 Жыл бұрын

I have the sickle cell trait ,it affected my left eye snd also causes bone pain,i try to exercise every week ,

@arlenelee3881 Жыл бұрын

One of my son has the worse type it was very painful . We have another son and was blessed with a perfect match for bone marrow transplant . We are so grateful to God that he isn’t struggling with the daily challenges any more . Only God is able to help us.

@clarakk2295 Жыл бұрын

She was my class mate at Moi Girls Nairobi proud of her

@lilianbelinda Жыл бұрын

I lost two of my bros they never reached 15... I myself am a carrier and I remember before I knew what it was, I used to curse, there i days i loathed getting out of bed coz the pain was just out of this world, People think u r lazy but u really cant withstand the pain, closed shoes sometimes feel like u r walking on fire.... medication gives u extreme acidity. there was even a xhritsmass i spent in bed. and to add it up u have no job... wueh this is a life sentence

@joelenenakova6910 Жыл бұрын

I know of three post graduate young people who finally lost the fight, just aftee starting new jobs, one of the saddest stories

@gms2602 Жыл бұрын

🇧🇧⛪📖🙏🏿Blessings Lea. I Am From The Beautiful Island Of Barbados🇧🇧🙏🏿 👋👋👋CONGRATULATIONS To You For Your STRENGTH AND BOLDNESS🙏🏿 In FIGHTING For The BETTERMENT Of Your Self And Others🙏🏿I Am In My Sixties I Have Sickle Cell Trait, My Daughter Who Is In Her Thirties Has It Also🙏🏿 Keep The Good Work Up 👍🏾🤗Continue To FIGHT To Stay Strong📖⛪🙏🏿

@eunicemasamo3092 Жыл бұрын

Geat

@Mo-wk3rg Жыл бұрын

Lots of sickle cell anaemia/yellow fever/TB in Migori ....help me understand why Soo many people have these diseases over there

@jiritmwabakkuk5553 6 ай бұрын

We are strong We are beautiful We are amazing ❤❤ Sickle cell is painful, but we will be alright 👍

@omotoyosiomolola4149 3 ай бұрын

0 seconds ago Hello please as a warrior would you advise parents to abort a child they already diagnosed as a warrior than having them live

@esenamportiakavey8893 Жыл бұрын

I lost three siblings due to sickle cell

@RKBro-jr1ts Жыл бұрын

*WHO CAME UP WITH THAT IDEA OF BELIEVING PEOPLE WITH SICKLE CELL DO NOT SURPASS THE 25YEARS OF AGE😢?THAT PERSON WAS A FRAUD,I GOT A BROTHER INLAW WHO GOT SC ANAEMIA AND HE'S ABOVE 25 AND LIVING A HEALTHY AND NORMAL LIFE*

@cynthiahenry5585 11 ай бұрын

🙏🏽🙏🏽

@akos5146 Жыл бұрын

So, with all the beautiful buildings in Europe and America, its what they built for Sickle-Cell patients?

@la2114 Жыл бұрын

I lost my dear Chidima to sickle cell. She was 32 years.😭😭

@abongomuhanji296 Ай бұрын

Only God’s grace carries us from one day to the next.

@kerripendragon4888 Жыл бұрын

With sickle cell, the maximum distance you should run is just 0.5 miles!!! 0.25miles one way, 0.25 miles back. That is a safe distance + plenty of water before the run and after the run!!! 2 litres total minimum at least...2 litres!!!

@alainbelanger9852 Ай бұрын

24%?! That’s nothing short of a public health emergency. I can only imagine the massive response this would have incurred in a Western country if around one quarter of a local / regional population were to be afflicted by such a devastating disease!