To all the mothers who are currently freaking out watching this video. Yesterday I saw it and I panicked because my daughter does everything, every single thing showed in this video. I went to the ER and they did an EECG and she is perfectly fine. I don't want to belittle what is the aim of the video, but yesterday, while I was crying on my way to the hospital, I would have liked to read a comment like this.

Praying for all the little angels while holding my healthy princess in my arms. May every child be blessed with good health...

The signs in the younger babies were noticeable but in the older baby in the high chair, I wouldn’t have even noticed them. This is scary. Thank you so much for bringing everyone’s attention to this.

Well im a first time dad of a 1 week old baby girl just looking at baby videos trying to get advice. And i keep coming across videos like this. My daughter doesnt seem to have any of these signs but her dad had seizures as a child so this literally my new nightmare. Im.glad i found these types of videos. God bless every ones baby ! Wish me luck

Thanks for the alert, super helpful to know what to look out for

I’m a nursing student and just want to echo the encouragement to advocate for yourself. Doctors are humans, and healthcare system is failing us all in so many ways. If you think something is wrong, please keep demanding help!

May Allah Pak bless every child with a healthy and happy life... Ameen

Yep happened with my daughter got told it's reflux a year later had a massive seizure was diagnosed with epilepsy.

This should be circulated to all pediatric facilities. My son's infantile spasms were diagnosed, not by the pediatrician, but by a medical student interning in the pediatric practice. She had recently studied infantile spasms and the signs in class. None of the doctors in the practice recognized the seizures.

I feel like this just scared the absolute shit out of me for no god damn reason

Wow I just came across your video and Saturday while babysitting my great grand baby I witness him have these same signs. So I made 3 videos to show his dad which is my grandson and his mom. So his mom and dad took him to the ER he stayed in the hospital 2 and a half days for tests and the brain test came back good Praise God, but they will schedule a follow up appointment with the Neurologist, They was discharged today.

Watching this scares me. I don’t ever want that happening anyone in my family. Especially small babies and children. I have a 6 year old who’s autistic too. I don’t ever want him going through any of that suffering

Thank you for this video!

Lets all pray for this babys🙏

Why haven't we heard of this before?! I can see how it would be hard to detect but the public needs to be informed of what to look for.

My daughter was in this video. If you suspect infantile spasms you should go to a Children’s Hospital, not a regular hospital ER. I learned that the hard way. I got my daughter diagnosed only 4 days after her first seizure. I brought her to an ER close to me and they shrugged me off. It happened a few more times. Looked up infantile spasms and knew she had IS. She was diagnosed 10 minutes after getting checked into a Children’s ER.

it is really important to know that, thanks a lot

If you wachting this and think your baby is ill, go to your pedestrian and check it. My Baby had exactly the same "issues" This was the Startle Reflex. Now she is 5 months and she is perfectly healthy.

Mi bebé empezó a los 4 meses con estos movimientos y mi corazón de madre me dijo que algo no estaba bien, ella dejó de comer y reírse, la lleve de emergencia con su pediatra y me dijo que algo pasaba con ella y la refirió inmediatamente a emergencia, esa misma noche le hicieron un EEG y le diagnosticaron los espasmos infantiles, gracias a Dios se le quitaron le recetaron prednisone por un mes pero quedó con un diagnóstico de epilepsia, aún está en tratamiento, tiene 14 meses y problemas con su desarrollo psicomotor, estamos en estudios de genética para tener un diagnóstico exacto, gracias a Dios ha tenido un buen equipo de médicos en el Hospital de la Universidad de New Mexico

This is is a real condition but the tone of the video is shameful. This video made my wife panic in her sleep deprived state from caring for our child. Frankly, using such methods to spread awareness of a condition is fearmongering. The music, the questions all of it. Spread awareness by being informative not by causing attention grabbing panic.

My 2 week old niece is currently diagnosed with Meningitis. She had fluid in her brain and used to have continuous spasms like these. I hope doctors would spend time listening to their patients concerns’ rather than dismissing everything as normal.

Thank you for the information

thanks for the informative videos

I bet this video created hundreds of anxious parents who are rushing to the nearest emergency departments as we speak

😔😪 GOD BLESS ALL THE BABIES THAT SUFFER OF THAT

my late child infantile spasm being diagnosed by my wife , although he has been kept in NICU for 2 weeks and no one observed what has been going on sadly he passed away suddenly at age of 3 month due to sudden infant death syndrome ,,keep spreading this essential knowledge to help people out there to understand the risk ,,,sorry for my bad English ..i wanted to share my experience for general awareness

My daughter is Infantile Spasms Fighter too. She was first diagnosed with Infantile Spasms at the age of 4 months. Indeed it often comes. Very often. Everyday... We seek treatment by seeing a pediatric neurologist since the diagnosis. I've tried many drugs too. Including Sodium Volpreate, Vigabatrin, Prednisolone, etc ... i'm still remember that she was struggling & restless when its comes. But, after a few years of treatment, she is better now. No more new episode of spasam @ seizures on 2019 till now. Now, Damia already turns 7 yrs old.

Very informative video

Thank you for showing this. It is hard to know if baby having one.

Hiee ..I am from India and I have twins baby boy ...one of them has a problem of seizures ...it starting from when he was just 10 month old ..now he is 2 and half years old but seizures can't stop it comes again and again ..we know how hard it is for baby and their parents also ..I can't imagine..god bless that all child who suffering from that typs of problems

Thnku for sharing this info..

I'm in tears this brings it all back 🖤 my son had these took so many hospital trips until they listened instead of a normal seizure

yeah that's so scary, these babies are so cute and adorable but they may never become functional adults if not treated early. so painful to watch them suffer, i hope all of them have managed to receive the right treatment before any permanent brain damage has been done.

My child is almost 10 and I am just learning about this. As an infant we legitimately thought she was "early" to hold her head up and it seemed she was nodding at us. She had other signs as well. We were also told she had colic or it was related to GERD. One time when she was about a year old the doctor commented on her crying a lot and we said "Yeah she's a colicky one" and the doctor said "Colic only lasts the first few months" and didn't say anything else so we thought she was just ignorant vs the other four doctors (and family members) that said the opposite. Our child was also developing normally until about age 2 when she had a harsh regression. She was diagnosed with "non-verbal autism" even though she had been previously speaking phrases as well as signing ASL regularly. We are working with a government agency to get help but it's been arduous even after 8 years. We still have not had any tests done but routine blood tests, even when we had been worried about seizures the pediatricians would deter us saying "I don't think so....I think she's just having a tantrum.." and things like "Well we could do an EEG but they are very costly and it would take time to get her in and we need more evidence of a problem...I don't think she is having seizures"/"It's not worth it" since our child would have to be put to sleep to undergo an EEG by the time we questioned seizures. I never saw videos like this at the time. I just had learned there are many different kinds of seizures and some of her reflexes sometimes would mimic the rigidity while she would also be crying in pain. YES we took her into the ER for this several times and at one of the best pediatric hospitals in the country. We spent long nights there without any testing done and only a shrug and a several thousand dollar medical bill each time. Some children with developmental disabilities and low cooperation have died needlessly due to medical neglect in many cases. This needs to change! It's hard enough being a parent to a special needs child. Why must we also fight the doctors that are supposed to want to help us???!

I never heard of this before!

God bless these precious babies ❤️

hi if they have a seizure do they respond when you touch or speak to them

Hi My son is taking medication for epilepsy. I can still see these symptoms, I can see the first sign when he wakes up. Th

Push and keep advocating for your child if you suspect this. I had to push for over a month until we got the official diagnosis and got my daughter on medicine. Trust your instincts. You know your child.

What is the frequency of this?

My 2nd cousin as a baby had a these small seizures for a month or two but the NHS didn’t do anything until he died at 8 weeks :( that’s when they confirmed a few days later that he was suffering from certain deficiency’s causing the disorder but I was younger and don’t remember anything apart from painting the Urn with my 1st cousins completely oblivious on what was going to be put in it.

Very helpful video

I also have a baby brother.....God bless these babies😭😭

OMG...never knew this

Great now i think my baby is having seizures every 2 min

What if The doctor won't do anything and my baby head nods for ten minutes and spasms in sleep alot

How can you tell the difference between the head nods and just regular head nods due to lack of neck strength

I was looking for info on absent seizures because my son is having the random eye/face movements and zoning out. Now I think he might have these too… :(

Thanks to internet. It is very useful to add to learning seizure type in theory

This video is important

Thanks ❤

Thanks

Does it has any cure/medication??

Is there any proper treatment for this,is it curable please let me know you any diagnosed

my son had a brue in June 2023, since then struggled to eat. coughing started, choking started, gasping started etc. bought a preemie nipple. hes been different since. idk where to go. pedi says reflux or throat spasm. hes now 3 months it got better with the nipple but started getting worse today. i feel alone. please anyone tell me if you had this problem too? he just did gasp... and almost as if he was holding his breath. he does pretty good at pushing the bottle out or turning his head its not hard to tell if he wants the bottle out... so i know its not that. i been having to watch him breathe, listen to him etc. making sure he stays awake while eating. idk what else im doing wrong. they still dont know what causes brue. idk what i did to cause it? they said it just happens... just happens my ass i wanna know what i did wrong. i explained in very tiny details.. i wrote everything down. 😢i feel helpless

I wish doctors/pediatricians would take parents more seriously. I probably didn’t sleep for a month after I had my baby and I knew something was wrong with her… I expressed my concerns to her pediatrician & I even went to a childrens hospital. They told me that I looked tired and that I probably had postpartum depression. They didn’t even do anything for my baby or at least tell me what they could or couldn’t do. She was bleeding and I eventually switched her formula. I was still trying to breastfeed at the time but I had to stop so I could recover and try to sleep again because I just couldn’t anymore so my Ob prescribed me medication. After her formula switch things got better and I wasn’t as stressed so I was finally able to get some sleep 1-2 hrs a day and it went up with time to 3 hrs then 4, 5, 6. Anyways, yes I was tired. Yes my body was giving out. I was weak and couldn’t carry my 7 lb baby anymore. I needed help myself. Yes I did. But they made it seem like I was overreacting and that I probably had depression when in reality I had my own sleeping issues but the stress about my baby’s health wasn’t helping so I needed answers! They just blamed me & said I needed to get help for my depression. & that my baby was okay as is.

Tuberous Sclerosis, one syndrome that can have Infantile Spasms as a symptom, can be partially diagnosed by shining a woods light (black light) to detect hypopigmented spots on the skin. Most GP's and pediatricians have them to find lice. Also, there can be a cluster of white hair. These can be on the forehead along the hairline or anywhere on the body. Also, a cluster of brown spots.

One important reason that babies must be diagnosed early, is to rearrange immunizations. Because, some of them can cause high fevers or can even cause seizures in a baby predisposed to seizures. Some doctors will put off immunisations if the baby is not going to day care. Also, getting the baby early childhood services through the school district is necessary. Many babies have low muscle tone and will be speech delayed. Also, it gives the family services from people that understand what you are experiencing.

More parents should be made aware. I have 5 kids and have never heard of this. My kids didn’t have it but what if they had? I would have thought it was just jerking

Thank you, this video is really helpful.

They do an ekg in the hospital after you have the baby and if the brain waves were abnormal they would definitely say something about it before being discharged but it’s best to talk with your pediatrician and record anything you want to question to you’re pediatrician

my baby has same problem. how can we resolve this problem pls help

Thanks for the anxiety

This video helped us act quickly. Thank you.

I don’t know much but as a med student I would say video the episodes, which I’m sure most parents do. The doctors who turn you concerns away even then are truly truly truly negligent 😡

There are videos already on KZfaq of kids having infantile spasms and seizures. Not new.

I noticed repetitive head nods to my 9-month old sister a few times, i already told my mother about this but she just said its nothing. How do i tell her about this? I just wanna be cautious.

You can definitely see how this can be mistaken for normal baby behavior.

Wow amazing thanks alot

Oh my heart. Father god bless these babies.

What i do my baby also doing same last 6months giving treatment but not well please sir giving suggestions for this treatment

Thank you 🙏 🙏

I am a trained Nurse/Midwife and I see this alot in new born babies, especially immediately after delivery. I saw it as startle reflex,i never knew it was a red flag. I will take note next time I take a delivery or handle a neonate

Are children recovering from this convulsion and being normal?

Is this something that a cops can grow or of? My daughter did this and other things as well when she was younger. She had major physical developmental delays. Didn’t crawl until she was one and didn’t walk until over 1 1/2 years old. She’s fine now. But I always was concerned about her behavior but of course things were overlooked

Is this clips originaly spasm childrens video? Please clarify sir urgent

My baby had this and it was because of increasing of lactic acid in her body because she already has some brain disorders but I hope she will be fine because they did many tests when she was at the hospital but I hope that this won't happen again. I wasn't sure that it was spasm but because of this helpul video I took a video for her and it was spasm and I took her to emergency.

How is these little babies!

What if a spasm happens while eating solids?

So happy it is nothing serious ,but for me everything in this video became our worst nightmare my son now is 27 and has had epilepsy all his life ,its so scary to watch and no drugs can stop it ,that seems to be his life ,sadly

New dad here: so Zoe got the rota vaccine (8 weeks on Tuesday morning). In the afternoon she had moro reflex (looks like this video) almost every time I laid her down. Called 112, took her to the hospital where she spent 3 nights with the mom. Had her eeg, blood tests, urine tests all that stuff, really cool dutch doctors looking at her telling us it's moro reflex, but because I was freaked out of the infintile spasms I could not be soothed. The neurologist said its impossible for her to have epileptic infintile spasms at the age of 2 months. The day after it was less, the fay after even less and now its almost not happening. I read a bunch of research papers about infintile spasms (both benign and epileptic), understood how super low the odds are of them being this. And now I read that a bunch of kids had sensitive startle reflex after 8 week vaccine. The few little hair I have left on my had could have retained its non-white color had I not been freaked out to death by this video. Advocate for your kids, but know it can be 50 other things before it's infintile spasms that will cause your kid to be a vegetable for the rest of their life. Overtreatment is also a real danger (read up on benign myoclism of early infancy for example). Take care of yourselves and best of health for your kids PS: even though i think it was cause by the vaccine as a side effect, im not a moron and will be giving her all the vaccines she is recommended by the modern medicinal expertise and be thankful we live in a time these are available for us for free

Hindi language me bataiye ki is pache ko kya problem h sir please reply me

This just scared me so bad 😭

My baby does this alot shez 15 months i always thought shez scared ..recently we have done some test which shows seizures in brain

😢 that’s what all doctors tell me I’m sad his legs spasm and arms flap sometimes he can’t eat like he’s choking and wants to puke he’s 8 weeks old . Help me I’m in Washington state

If it stops by giving food, holding baby or anything else, does it means is not a spasm?

My baby has been doing this since he was born, but only when he hears a loud sudden noise. How do I know if it’s for sure Infantile Spasms? Also, does if count if my baby is sleeping and jumps like that?

Can someone please explain to me the difference between an infantile spasm and a myoclonic seizure?

My baby has been sallam attack ,l what do

my daughter doing same things from 4 months to 2 years I always make videos and consultant with pediatrics near me but they always say that's nothing disturb ur child she do like this and after 2 years when it becomes strong seizures then they diagnose. Now she has development delay and autistic features. I am going through with really bad condition because of doctors irresponsibility

I am actually worried of my son. I noticed that his hand is moving uncertainly same as his legs while his asleep it happened from a day he was born and his 1month now.we can't visit a doctor because of this pandemic and worried financially. I takes videos on him.

I'm here looking for answers for my nephew/my niece's son. He is having these type of episodes since birth. Now at two months old his head circumference is measuring abnormally large. While in utero my niece was having seizures spontaneously that a reason was never diagnosed. After giving birth, she no longer does but her son is. This is devastating as she is not getting any answers. Doctors run test and just send her home saying either they aren't sure, or they will have to run more tests. Does anyone have any suggestions. I feel like time is if essence and I am just desperately trying to find things to consider. After viewing this I believe it is definitely considerable. Thank you all for sharing

How frequently they occur ?

Hello ..my baby is 3months old now .after the vaccine i noticed something.like reflex .but when i watched this video ..i was suddenly scared.what will i do.😥😭

My 1 year old baby since his birthday same condition plz pray for him

excelente

Hi everyone I'm Abel from Philippines and I have son suffering from infantile spasm and he is now 4 year's old its a grate pain for me seeing his condition kindly help us pls..the problem is we are lack of financially to his medication.

I freaked out watching this video as my 3 months old baby was getting spasms like this continued for 1 week and it stopped completely. What i did? As soon as symptoms started showing up I started praying and rejected all those symptoms in the name of jesus and started proclaiming word of god from the Bible on him with authority-as a mother ❤ and my baby is completely healthy and no more spasms with the grace of God. Praise god🥰

what mean of baby seeing down in his hands and his like he biting his lips ,the baby is prematurely born

0:44 saraf maybe, defective effect maybe. I don't know,but I wove you.