Skin Manifestations and Skin Care in Scleroderma, Dr. Christina Lam, Dr. Reina Gonzalez

Рет қаралды 2,758

National Scleroderma Foundation

Жыл бұрын

2022 National Scleroderma Conference

Пікірлер: 10

@lillyrocks2011 11 ай бұрын

Why there's not any medication yet to control the collagen over production fibrosis of our skin!?😢 We need a medication/s for our skin!!! 🙏🏼This HORRIBLE disease turns us into mummies.😞 Please scientists, pharmaceuticals help us!! 🙏🏼🕯️ Give us hope!!

@diptishilwant9304 8 ай бұрын

Yes ..same question ..why there is no cure for this yet ?

@lillyrocks2011 8 ай бұрын

@@diptishilwant9304 Cure would be difficult I think, it will need time also there's not enough research yet because it's supposed that is not a common disease so pharma don't invest much or enough money to study this disease, so far that's what I know.😢 But there are more people being diagnosed with this terrible condition. 😢

@lillyrocks2011 3 ай бұрын

@@diptishilwant9304It's an autoimmune diseases which makes it more difficult. But I can't believe there's nothing to treat the skin hardening, tightening that this HORRIBLE disease causes!!! If only the scientists could find a medication to stop or control the skin tightening we could have a better life quality, a better life. This killing disease is absolutely crazy, a nightmare.

@lillyrocks2011 3 ай бұрын

This is one of the most strangest, and cruel of the autoimmune diseases. A disease that turns into mummies. Please give us hope. Help us!! 🙏🏼

@rositamorales3567 Жыл бұрын

Me encanto su explicación mis doctoras bellas 💐💐, gracias por ayudarnos con esta información es muy importante para todas las personas como yo con scleroderma systemic, es muy dolorosa esta enfermedad más en mis manos 😢ya que yo trabajo ayudando personas mayores en sus hogares, ya me cuesta mucho con la respiración, pero más por el dolor de mis manos y cómo vivo al norte de New York esto agravará más mi condición, pero siempre me ago massages en MIs deditos para Que circule la sangre y la calcinósis con electric máquina trato de afilar mi piel dura 🙏🏻a funcionado por ahora , mas adelante no se que sigue , solo gracias mil gracias a las dos ❤️❤️Dios les bendiga grandemente por su arduo trabajo

@lillyrocks2011 11 ай бұрын

Hola! Rosita, qué máquina utilizas para la piel? Gracias

@abidacassim108 8 ай бұрын

😅😅