The worst thing about it that it takes away the enjoyment of the little simple normal things in life like walking, showering, sleeping well and going out enjoying life without feeling tired.

I was diagnosed with ME/CFS about 5 years ago. The first years were pretty horrible, especially with the reaction of workmates and friends who seem to think it´s all in your mind. I also don´t tell people I´m sick and just struggle day-to-day to work and manage my energy. I have less bad days now but the feeling of isolation, that no one really understands what i´m feeling/struggling with, is the hardest part to deal with.

It’s true that we 'pull it together' for special occasions, for a few hours. We drug ourselves up and do our best. Not many people see what this disease really looks like. We all pray for curious doctors and researchers. They are our only hope.

I use to dress up and do my makeup and enjoy myself. I no longer enjoy my life and go out w my best friends. It's all I can do to work and I just received a final written notice for missing work and not keeping up w work load. The guilt is insurmountable. Nobody wants to come home and go straight to bed on a heating pad. I dont recognize myself anymore. Feeling like you have the flu everyday is not living. We are not lazy or making it up. I'm so fed up w docs and people judging me.

I've had CFS and Fibromyalgia for 8 years...I keep praying for a diagnostic test and a treatment plan that works. God bless and heal us all. 🙏 ✝️🕯🕊

The genius who named it Chronic Fatigue Syndrome - actually caused harm to the patients.

I completely understand 100%. I feel like my life ended sept 21, 2009 around 5:45. The first years I thought were terrible, not being able to workout, ride motorcycles, work, and so on. It has gradually worsened since then. I would do anything to get back to the level I was out 3-4 years ago. I just wish people would know that I didn’t turn into a deadbeat with no ambition or desire to get better. It’s all I think about 24/7.

I went to Mayo after 3 years and was DX’d with ME/CFS, I’m in year 10 now. The only reason I made it this long is because of my mom, she was my reason to just exist. I lost her in August and now I have no one, and im so tired. People don’t get us, my mom at least saw my day to day and understood better than most. My phone stopped ringing years ago, I don’t have any friends or companions nor will I ever again. If I can’t even be a participant in my own life, I sure can’t expect anyone to sign on for this. I talk about my life before ME as my previous life, because in many ways my life ended 10 years ago, I barely exist today. One thing I never expected was the way that stress can quickly trigger a crash, something goes left when I was expecting right and it destroys me. I’m not suicidal but I won’t lie, I often pray God please just take me, let me go to sleep and not wake up. I’m lucky to get 10 semi productive days in a month, spend upwards of 20-22 hours a day in bed, would say im 90% home bound. Sorry I’m ranting on. It is a miserable lonely experience I would not wish on anyone.

Used to run 200 miles a month, regular half marathons. Got hit with a sore throat and have had this for the past 10 months. Swollen lymph nodes, intense fatigue, can barely walk up the stairs. I sit on the floor in stores to rest. I can't support my back when sitting. And I can't navigate road systems or, at times, remember where I am. Friends and family believe me because they knew who I was before this hit me. I could run and think clearly. Now I am winded going up stairs. Negative for lymphoma. Negative for STDs. Never had mono-- negative EBV. Normal-ish CBC. But never ending swollen lymph nodes and unending fatigue. If no one in your life believes you, hear me out. I believe you. I am here with you.

I wish luck to the sufferers and the researches

ITS SO HARD. I feel like I can’t do anything because I’m exhausted all the time it’s terrifying!

This video about Shannon just broke my heart. I’ve had this disease for four years but it feels like a lifetime. The suffering with this disease is horrific. Yes, we need more funding for research but we desperately need some effective treatments. Our quality of life is almost nonexistent.

This has to be one of the most down to earth stories I have watched on CFS I have had this debilitating condition for 12 years and genuinely feel NO ONE understands this horrible condition unless they have been thru it so wish there were more effective treatments My heart goes out to everyone who suffers from CFS

Devastating watching this. What a beautiful woman. Got her life stolen from her right in its prime. Endless pain, suffering and agony - so much fighting. Hope she gets a miracle.

I've suffered for 20 years and every doctor specialist keep telling me it's in my head and I'm depressed. When in my head I want to do things but most days I'm too tired. I take all vitamins to boost my immune system but only helps half the time

My close friend been diagnosed with CFS a year ago and for that time she regressed from moderate to severe stage where she bed bound 95% of time. So far every meds she tried didn’t help and it breaks my heart. But I keep believing she will get better and I’m sending my best wishes to all touched by this horrible sickness, don’t lose hope guys! Praying for all of you 🙏

Overexertion when feeling somewhat only leads to what I call a "crash and burn" event. That is why it is important to pace yourself. It appears that some young COVID19 patients have strikingly similar symptoms that have gone on for several months.

Mine hit me around 27 as well and feel the same way at 42, that I missed a huge big chunk of my life.

I know the feeling.. you never feel rested..the dizziness and vertigo...you will sleep but never feel rested ..this is what i probably have cause the doctors dont know what wrong with me..after i had my twins and had to tak w blood transfusion is when i got this hell. Thank you for your video

I have ME, had it for 2 years. Its worse than u may think

Yup, she does just what I did, keeping track of my feelings and symptoms on a day to day basis. I came down with CFS in 1988 and had it bad for 2 years. Mainly extreme fatigue and headaches with brain fog, anxiety, dizziness, joint pain and nerve pain, psychological pain. Finally got better to where I thought I was completely healed. Then every couple of years I got relapses that last about 3 months. After thinking I was rid of it forever after almost 10 years of feeling great I am now in the midst of a relapse in 2020. You think it goes completely away but it creeps back up on you. Horrible.

I was crying while watching this video because I feel bad for the patient and crying for me because I think even my husband and my children never understood what I was going through when I first got sick and can barely get out of bed. It didn’t help that I was the major breadwinner in my family and needed to keep working even if my brain was foggy and can barely hold my head straight. I am a lot better but not completely recovered and came across this video while researching on how to completely recover from CFS.

I look back just 4-5 years ago and it’s painful just comparing now to then. Riding bicycles, walking, yard work etc slowly come to a halt, getting out of bed is a task! It’s frustrating never being able to plan anything because I never know how I’ll feel when I wake up so I miss out on quite a bit. I live hobbies in my mind. My MD diagnosed me 7-8 years ago and doesn’t know what else to do. Some days are ok but they never last...

I was diagnosed at 29 and now I'm 38 and it seems each day gets harder and harder and no one understands. I feel like a thousand bricks are holding me down and I'm constantly fighting to just have enough energy to walk to the bathroom or take a shower.

Please don’t give up hope. I have had CFS/ME since I was 38 and I’m now 60, but it was at its worst in the first 5 years, slowly I have improved, until life is pretty normal now (at least a normal I recognise as worth living). I’ve completely decorated my house and tend my garden, but I still have to pace myself to do these things. In my first 6 months to a year I couldn’t lift my head up off the pillow and had to lay down frequently. My dizziness is always associated with exhaustion, if I’m not exhausted I don’t feel dizzy. I would almost black out if I climbed the stairs. I thought my life was over. I was a mother of 2 young children and I couldn’t even play with them, I felt useless, embarrassed and ashamed. One thing it took me a while to realise in the early days, was that I couldn’t understand what I had done that caused me to relapse when I had felt well(ish) the day or two before. Any exertion would cause me to have a set back but it seemed to take 48 hours before I noticed a decline. I think my main improvements came when I was strong enough to start doing gentle tasks, because although I know I will pay a price 48 hours later I still improved some muscle strength and brain stimulation, maybe even a little joy which in turn, improved my ability to mend. I had no choice but to do some chores even though it made me ill, but at least it help me improve slowly. Now I’m at a stage where, if I go on holiday or go out for the day I manage by avoiding any exhaustion, by taking regular stops and drink breaks as I grow a little tired, by doing that I can keep going all day. You may well think, oh she doesn’t know anything, I have it worse than she did, but I honestly though life was over. It wasn’t. Hang on in there, cling to hope and never give up. Avoid exertion, do a little bit then rest, a little more then rest.

❤️❤️❤️ That is what I live with since 2010 due to a MeningoEncephalitis. Indeed surprised so few doctors even know about it. It took 3 years for a Neurologist to realize that nobody had explained me the problem. I had never heard about it. During the first year or so I thought it was just a question of time. Have now got more and more information that indeed make it clear that millions of people live with this. I try to keep hope that there will sooner rather than later be a solution for me and for all the other people that are concerned by this.

So tired of living with CFS, thank goodness I don't have it as bad as this poor lady, but it still stops me socializing and making plans as every day is different

My best friend got CFS in his early 20’s from glandular fever. He’s a good looking man, as beautiful as the woman in this video. He said exactly what the lady said, my heart goes out to you both, what a cruel disease. I hope they find a cure quickly ❤️

This makes me so emotional. I'm the same way. Ever since I had meningitis for 2nd time I've gotten so much worse. Then covid in Dec. I can barely make it through the day :'( praying for a cure!

Make sure you get a scanner of your brain. I was misdiagnosed for 14 years, untreated for 17 years. In my case the Chronic Fatigue/Fibromyalgia was actually a symptom of hydrocephalus following meningitis. The condition could and should have been detected and treated easily, but, my doctor considered a scanner to be unnecessary and it ruined my life for 17 years. Many doctors don't take this sort of illness seriously.

This is me, Epstein Barr/CFS. i have very little quality of life, only a couple good hours or days each week and those are jam packed with miserable overwhelming past due chores. I wish there was a cure from this chronic sleepiness/fatigue.

Even after being diagnosed after 4 years, my doctor doesn’t take my CFS seriously. “Just get up. Just take a walk.” When I go shopping, my joints ache, I’m dizzy, my muscles are so tired. After that, I’m done for the whole next day. I’m 19, I’ve lost out on my teenage years. I will miss out on college, hanging out with friends, partying, so much more. I wish it was just as simple as to get up.

Wish so much luck to the researchers!! My life has ended too since my diagnosis! It’s horrific! And I’m sorry you are suffering too!

You are not alone darling,l too have endured it for 14 yrs, don't think big what you have lost,think of what you still have.

A car accident when I was 38 changed my life. I had just begun nursing school and I struggled through, working all week, crashing on weekends, I developed pneumonia/asthma and was sick for 8 months but determined to get my degree, which I did. After back and neck surgery I still declined and was beyond exhausted. Chronic pain consumed my life, effecting my relationships, work, parenting, every aspect of my life. I finally was forced to retire as a nurse. I stopped making plans, withdrew socially and bounced to pain clinics, opioids helped me function but 6 years ago, due to the “opioid crisis” drs. Stopped prescribing. There went my ability to function and many days are spent in bed, daydreaming about what it would be like to have energy and be healthy. I was diagnosed with overlapping pain syndrome and ME/CFS. I don’t talk about it and know I look “lazy”, My first grandson was born a year ago and I want to care for him more, but physically can’t. I so badly want to be the fun, peppy active grandma, and he inspires me to live, but I fear they will find no answers to this disease while I am alive, and I’m condemned to a torturous existence. , At 65 I feel 95, it’s hard to explain, it takes me a month to do what I used to do in a day. My mother had more energy than Me when she was dying and doing chemotherapy. I can’t imagine how young mothers do it. It’s a fatigue you can’t push yourself through. Life without energy isn’t living, it’s a slow death. It only gets worse. I now have contempt for my dr, who keeps telling me to exercise, doesn’t put ME on my problem list (I think he doubts it) refuses to prescribe pain meds and tells me there’s nothing he can do to help me. In this day and age it’s draconian to leave people suffer so. My nights are wracked with leg pain and after 3 or so sleepless nights I’m deranged from sleep deprivation, I hop from bed to hot baths, slather muscle creams, arnica all over, use a tens unit, and heating pads. It’s like a bandaid on gangrene.

I so appreciate willingness to share their stories because most times I feel so guilty and isolated with this condition. I teach yoga several days a week and have other activities but literally need two or three days in between to recover. Even after twenty years of this on the good days I feel like I’m fully recovered and completely engaged in life and then the migraines pain and exhaustion come back again. I learn to thank God for the good days and keep hoping for a permanent resolution but we need to be grateful for what we have. Love blessings and peace to everyone! 🙏❤️🙏❤️

There is a reputable explanation for the cause of ME/CFS. Its a particular brain structure that has been traumatised in the beginning of the illness (that's not psychological). The brain goes into defence mode and triggers the immune system and a massive stimulation of the nervous system. Please have a look at the Gupta program for further information. I went from bedridden and in need of care to 100% health with that. Yes, it sounds unbelievable, but the explanation and the solution are already there

I got chronic fatigue at 24 and finally cured myself at 31 It's like I was so tired there was nearly 8 years of my life I didn't even remember now that I'm through it I appreciate life so much and love every moment 😀 . I was so close to suicide in that time I felt like I lost all my young life😭 because of it but now that I'm going forward I don't look back 😀

Thank you so much for your information and knowledge and enthusiasm about ME! I have had this disease my whole life and it’s not something I would Wish on my worst enemy! I have hope and dreams that I want to accomplish and get very depressed when I can’t live up to do things what normal people can do! I hv given up with many possibilities for the years I do have left concerning my age! I just take one day at a time and pray to God to allow me to meet people in my life that can understand and just be good friends Amen 🙏 Thank you again for all the doctors and researchers that try hard every day to search for a cure! ❤️🙏✝️

I've been like this for the last 8 yrs with fibromyalgia Im getting worst, I feel like a zombie 24/7, I just wish my doctor would listen to me and stop blaming everything on fibromyalgia. I slowly feel like my life is slipping away, if I need to go out for a occasion it takes for forever to get ready n just for about 2-3 hrs max. This alone lands me in bed for 3-4 days 😭 I'm on 40 but feel like I'm trapped in a 70yrs body Sending hugs to all suffering ❤️

Sick since 2016.. Cutting gluten and dairy helped, carnivore diet helped a lot but 5 months after it got bad again.. Trying the COIMBRA protocol (high doses of vitamin d), was taking 100.000ui a day and after 5 days it seems my constipation got really bad so I'm taking 50.000ui now.. Hope it works. I can't work, exercise, socialize or even read a book, I'm mostly bedridden all day. And to think I used to be hired to cheer up parties as a magician, practiced parkour on top of buildings and worked all day no problem.. This condition kills you but still lets you live here. Why?

Back in 2004 I diagnosed myself with CFS. Doctors didnt take me seriously. They thought I was making things up. 16 years later not much has changed. Today I spent the whole day in bed sleeping. I could sleep 16 hours a day and I am still tired. Hopefully I dont experience pain. I am just fatigued/tired/have no energy.

Im so sick of dealing with this, im in my 20s and my whole life has been taken from me

I COMPLETELY understand you.💖 Dr. Bateman is my doctor, and I am grateful that this disease is being taken seriously.

I feel your pain, I really do. Ppl see you and think your absolutely fine, but what they don’t realize is that the majority of times that they don’t see you, isn’t because they ‘missed you in the local shop etc’, but were all the times you couldn’t even get dressed to leave the house, never mind go to the shop. I have suffered from this - as a secondary condition - since the age of 12 years old. I was a competitive (junior) athlete and heading for the training which takes you on to compete in the Olympics but I had to stop due to exhaustion and breathing issues. I have so many symptoms that the medical profession do not know what to do with me so they’ve given up....particularly since I went from a size u.k 10 all my life and I’m now a size 16. It looks like water retention but if you touch it you would think I’m a body builder as there is only a thin ‘soft’ layer of fat and whatever the other part is (ie fat/fluid), has the appearance of cellulite - which I’ve never really suffered from - well a small amount which I’m told is only detectable by me (🙄 of course). Tightness makes me feel like my skin is going to split but my G.P has never seen anything like it before 🤷🏼‍♀️ The scariest thing which I feel ppl need to know, is that I have had sepsis 5times and severe sepsis (which inc 2+ organ failure & more symptoms) and I nearly passed from it, I was given a 50/50 chance of survival and that was prior to the Op, the hard part is the recovery process. The reason I mention this is because I didn’t have clue that I was a walking on borrowed time, because ALL of the symptoms were those that are very common for Chronic Fatigue so please, if you start waking in the night feeling & then being physically sick, or the drowsiness gets even marginally worse, your legs feel shaky if you try to work, your anxiety/stress levels...(possibly adrenaline feels high)....feel worse and you feel feverish or clammy, even if you check and you don’t have a fever - so just under what would constitute a fever and more importantly when your temp is below 36.....then it would be worth going and getting a blood test because i had 2 Ops for severe Sepsis in the space of 3days and apparently you do not need to have cut yourself for an infection to get in to the body. What I will say is that 1 of the various conditions I have is SLE (Lupus), so I’m not sure if ppl with SLE are more at risk, I really don’t know. It’s better to be safe than sorry as much as it is very scary. I have 4 children and other family yet none of them knew I was in hospital having a life saving Op. I hadn’t even had chance to speak to anyone and I also went in to sceptic shock after the 1st Op, but i didn’t know until approx 5days later - so no matter what life hits you with, ALWAYS THINK POSITIVE. Not once did I ever think I was going to die, so state of mind is a very strong tool in life.

I was diagnosed when I was 11 years old. I'm almost 39. I've had to learn to live in silence since w/this w/o direction since 1994 until I met a doctor willing to help me function by prescribing me unique medications not recognized as formal cfs medication circa 2003. I barely knew anything more than my energy was unlike others . That was the extent of my knowledge at that time I was unaware of how much everything else I was going thru intertwined. I didnt know how to get better. Since getting this regimen I stopped going to regular doctors for the most part several years ago circa 2008 unless absolutely medically neccesary. I still see the same doctor though who has given me the ability to function normally and I'm scared of the day he no longer can prescribe what makes me human again. People look at me with such disgust I feel. For me, This medicine combination was able to enable me to function as a normal human being. I was able to finish college and have a healthy career for a decent time, apps 12 years of a career. Dont get me wrong, I struggle but had to in silence because since I was young, noone understood CFS, later someone else diagnosed me with Fibromyalgia which I hear can be typical and almost the same which I find hard to completely understand. My main large obstacle has always been fatigue, horrible massive amounts of fatigue that never stops. It only stops when I have a good day at random AND IN CONJUNCTION WITH meds I've been taking for 17 years. My personal saving grace medication I suggest you ask your doctor about will be controversial still but should not be. I also suffer from anxiety and depression and after finding my brother who shot himself, PTSD. I feel lucky I got a doctor who knew how to help change my life. Without who I wouldn't have a family, husband, or children. I consider myself very lucky. Ask your doctor about long acting stimulants such as concerta or nowadays Vyvanse. This drug coupled with the neccesary medications that fit your unique self, this is not to say you should ever take these meds without being under the care of a physician. When used in conjunction with occasional and only when neccesary medication to control panick disorders, my ocd and depression and my pain I have been afforded the opportunity to live. I tried anti narcolepsy meds, ugh so many things doctors tried on me but for me what worked was a hefty dosage of delayed response medication that slowly disperses throughout the body acting to follow the name "long acting " for me my dose of vyvanse I've been taking since 2007/2008 with the use of one or two 30 mg instant release help to get me out of bed. When the medicine kicks in after about 1 hrs which never has gotten quicker or longer nor have I ever grown tolerant of the medication and it not worked but once out of bed, I feel human and normal. It's amazing. Without vyvanse I am for most part bed ridden. It's the scariest thing to have 2 kids and even with meds I still have many many days where I'm just in bed. No one gets it. It's horrible. I feel like the majority of days with meds are good days though. Especially once I get up and moving and have something to help ease joint and muscle pain as well as deep tissue issues left over from car accidents and being bed stricken. If I'm lucky enough to have both to get me thru, that's how I've stayed in tact. I dont abuse the medicine although anyone at Walgreens will take one look at your line up and one pharmacist actually said, "quite the cocktail you have" I was disgusted. She acted as if I had a choice to be miserable or to be functional. As if I was given the choice I wouldn't choose no medication over being healthy and happy. How disgusting that mind frame can be, how toxic and quick it will spread. I know that keeps me ashamed. Dont stop until you meet a doctor who values your quality of life. It changed mine I have no question.

Ive been suffering severely with this for decades, my life is destroyed and in shambles. I have no life. My doctors have not been much help at all.

I'm in a similar position to you. It's great that you're showing people what it's like. People just don't get it. At the moment I'm following CFS health with Toby Morrison, which is brilliant, and I feel I'm making some progress now.

I know exactly how you feel, I really do.

Had mine four years I got all this too wrecks your life people don't get it.

I had a bunch on Vaccines to go to INdia in 1996. By 1999 I couldnt work anymore in my profession of Musical Theatre Actress. I was at the peak of my career. I did a few more short shows with long periods off in between. I now perform my own music and have 2 CDs but still can't manage to do the 8 shows a week in theatre. I was diagnosed with CFS in 1999 but more correctly diagnosed with mercury poisoning and toxic poisoning from vaccines in 2009. About 18 mths ago I removed LECTINS (DR Gundry) from my diet which immediately stopped my weekly migraines!!! Wow. I have been detoxing for maybe 15 years, so am much better. I am about to do the MMS protocol and am taking ASEA for my gut. I think healing the gut and detoxing heavy metals and viruses is key. All the best everyone!

Omg I deal with everything u said, makes me really sad The fear of driving, getting dizzy when taking a bath literally everything you said I can't take the stairs, run, exercise, any physical activity, carrying boxes, standing for a long time in waiting lines or when cooking in the kitchen I have been dealing with this all my life since childhood and I'm sick of it

When people are screwed they're screwed and I know about that. Trying to stay positive through some of these struggles doesn't change your pain or illness. You go see your Dr about extreme anxiety, depression or an illness like chronic fatigue syndrome and after your appointment you go home feeling exactly the same or maybe Dr gives us meds that make us feel worse or that have terrible side effects. When people commit suicide because they prefer to be dead than to keep dealing with hell on earth others are quick to judge and call the person that commits suicide selfish and a coward. It's easy to judge when we are not in the other person's shoes. The only way to really know how much someone else suffers is to be inside their brain and body 24/7.

I just watched a video on spinal fluid leaks and the symptoms described at the start of the video perfectly match the symptoms of a spinal fluid leak.

I have CFS which started at age 22 and I had no idea what was happening to me. It wasn't until many yrs later I was diagnosed but the treatment you get is non existent. Medical 'professionals' can be quite dismissive, condescending, mocking. I was told it was because I had no children by one 'expert' chronic fatigue doctor. Yes a Dr in a chronic fatigue program told me this. This program which I had to wait years for. It hasn't helped me at all as they expect you not to have CFS while participating. Well now I am a mom and it never went away. It's worse than ever. People's behaviors and beliefs surrounding this are incredibly disappointing but detrimental to our well being. A lot of life wasted. It's like you died yet are still around to watch life go on. When I have no energy to do anything I literally chew coffee beans because making a cup is out of the question. Then I hope to hell that's enough to keep my brain from shutting down/off. It seems to be related to the nervous system, stress and possible trauma/s as before it happened to me. The immune system attacks the nervous system including the brain and maybe causing inflammation in many areas in parts of the body which effect functioning from what I experience. I mean we know it can happen. There is a woman living without a nose because her immune system attacked itself. Most of us are trapped at home trying to recover from what feels like a constant body flu of the worst kind. It's astonishing it's gone on this long and effects so many yet there is so much ignorance. I have known two people with terminal cancer you would NEVER know it by looking at them. One has since passed in 2020 but she had more energy than me. Likely with all the drugs she was on. She worked and I seen her everyday as we hung out and she lived next door to me. So looks can be deceiving when it comes to illness. I wish people were less judgemental on something they know nothing about. Why I avoid people as much as I can. It's a cruel illness but mostly because how people behave in addition to what you already survive.

I have had ME/CFS for around 18 years and my heart goes out to all sufferers out there. My symptoms have greatly effected my quality of life but I know most have suffered worse than me. Almost immediately I felt my condition was not being properly diagnosed and doctors were not asking the right questions. I was continually tired, I found it difficult to think, my work became stressful and was causing me anxiety, I had aches and pains that would flit around my body and much more. Through frustration with the NHS I decided to research what the hell was causing my health to be this way. It took me a while because my mental capabilities were very low, but over a few years I started to notice patterns of information that directed me to my current understandings. I will now tell you something that few will ever tell you but is my honest interpretation and sincere viewpoint. It is counter to all you have been taught but if you open up your mind there is a connectivity that leads to a dark reality hidden in plain view. My first connection was realising that Gulf War soldiers that were given a Cocktail of Vaccines suffered many side effects and thousands were ill... this was called Gulf War Syndrome. I then remembered that not long before I became ill I too had been given A Flu and Hep B vaccine. However I still trusted the Health System and could not imagine that they would give me something that was not tested properly. I found that very little research was being done to find the cause of CFS or ME which raised red flags for me. I was also finding claims of Vaccines causing Autism but all health organisations were saying them was no proof to suggest this... none of this was making any sense... why would they intentionally feed dangerous vaccines to us and NO Doctors were coming forward with their concerns???? Some time later and because I was looking into Vaccines I started to get Conspiracy videos being suggested to watch... one caught my eye, I watched it and I fell into the Rabbit hole... because of my experience and knowledge I happened to watch a video that within seconds it blew my concepts of reality to smithereens and that was the last piece of the puzzle I needed... I had the weapon, I had the WHO and lastly the motive. I had not seen this coming and it shocked me to the core. So on top of my CFS I now have this added Mammoth around my neck. I now believe that vaccines cause many complications and goes beyond CFS,ME and Autism.... when you look at the characteristics of these three they will differ greatly from each sufferer, with differing symptoms and severity but they are all related the the nervous system and to the functions and control systems of the brain. Now look at other similar conditions such as MS and Fibromyalgia and I highly suspect many others too are linked to Vaccines. Do your own research and also check out personal cases at " Vaxxed " on youtube.

You don't even have the energy to be angry.

I got CFS after a virus that nearly killed me when I was 28. Will be 50 this year. Don't have anything to add outside of everything that has already been said. Preaching to the choir. Have tried everything I've heard of so far. My diet is as good as it gets.

So relatable! I have CFS along with my AS. Someday if you were so tired you can barely breathe. Thank you for sharing your story, I hope the medical community can find a solution soon. It sucks just drifting along some days. Thankful for the good days!

I too feel like I died at 27 too, I just turned 45 in November. After finally being diagnosed, I realized I had likely unknowingly had ME all my life. I was often sick as a child with many ailments. I got ear inflections so severe & so frequently. They had to surgically insert tubes. I've been having periods of being ill with what I believe was the ME since my early teens. I also have been getting chronic kidney stone blockages requiring surgical intervention beginning at 19 that reoccurred every 1-2 years. I had thought my symptoms were from recovering from that, although it did likely contribute as I've learned everything does. I'd also got begin having UTI's as a child & kidney infections began in my late teens. Also had severe EBV at 18 & a list of other health issues. I was resilient as a child as I never had so many days ill that I don't recall feeling it was anything that wouldn't get better. I was able to feel close to fully recovered after periods of a few months, with the longest time I was close to being bedridden was roughly 18 months. It was affecting my ability to work & care for my daughter. Her grandpa would take her & pick her up because I was physically not able to get up. I just felt like my body was giving out & wouldn't be able stay awake no matter what I tried. (I'll have to try & continue later cannot focus any longer)

Appreciate you sharing your story so very much. I have 3 little kids. Things are worsening pretty fast now. Tired of trying to explain to people 'why i can't'. 27 is so significant! I can trace the start of my journey back to 27 too. May the Good Lord bless you and your family and may you find a new way to live, not just exist

The breathing problems are the worst. The migraines, the pain, weakness, brain fog, poor temp control, tinnitus. The list goes on and on. 8 years of it.. And my son now has it too.

What a mysterious disease. And it only seems to affect woman with a strong support system. Fascinating

I feel like I died when I was 33 and I’m 51 now and cant help but feel like I’ve wasted away the best years of my life. I’ve been diagnosed with chronic fatigue and fibromyalgia...how do I get tested for Myalgic Encephalomyelitis? Working from home during this covid19 pandemic only convinces me more that something is really wrong with me...

October 6th 2005 I literally feel I ceased to live..

Great video, thanks for sharing ❤️

How are you doing Shannon? I have CFS and understand what you are going through. I can tell you that I have limitations but I am much better than I was when it 1st started. Cycling really helps me a lot and it seems to give me a boost at least for a day. I hope you are feeling better, don't give up hope. Try to do things that make you happy and exercise in gradual increments, also consider less medications because some meds make your body worse instead of better...these are just some ideas for you to consider...I hope you are better

I suffered r with chronic fatigue for a couple of years and I’ve gotten a lot better I did a couple of liver flushes and got on some good herbs and went gluten free and cut down on carbs and sugary drinks , and praying to God had helped me alot !!!

My family try to understand but since I'm half fruit bat on a normal day I guess it's tough! It got real when my teenage son got sick. Thank God I had been on the road and could get him back to health within a few months. That is my reward for 18 years of spectating my broken body. And the vigour of getting him right helped me improve my own health too.

My calendars are full of numbers, what my energy percentage is for a given day. What we do is so similar. And I put X marks for little projects completed in order to encourage myself.

Ten days into eating whole food plant based diet of vegetables, fruit, whole wheat and beans. Eating some eggs, butter, mayo, olive oil and coconut oil. Had small amount of meat only twice. Limited myself to low to no processed food, low sugar, low sodium, low carbs, low omega 6, low meat. Drinking water only, purified atm. Been taking pico ionic magnesium and using transdermal magnesium oil several times a day. Fasting overnight at least 12 hours. Worst of my inflammatory muscle pain subsided within six days. Brain fog and fatigue lifted. Sleeping better and waking up rested. Able to function at higher level and not have to lie down during the day. Muscles less stiff and sore and achiness is gone. Magnesium helps the body to detox so it can cause some kidney discomfort and cause irritability at first as the processes that utilize the magnesium wake up. Magnesium helps to relax the tense tight muscles and helps to relax and fall asleep. Less headaches and less insomnia. My body always felt wired, now it feels more calm. CFS and fibro have robbed 9 years of my life. I had to stop working because my body could no longer handle it. I hope that this protocol will continue to help me get better. Maybe this will help someone else, too. I looked into the gut microbiome connection to inflammation and think there is something to that. Also, many of the symptoms of magnesium deficiency are the same as the symptoms of those who suffer from CFS and fibro.

Ove been going through this for six years now. I feel like I'm loosing my mind. I'm weak and tired and I don't injoy my life anymore. One dr told me it was my wizdom teeth. I'm going monday to get them out. I need all the prayers I can get God bless.

I truly believe this is a symptom of stress /major depressive disorder. I believe its the physical side of mental depression where the body is just tired , just as tired as the mind is so the mind shuts down and then leads to the body not wanting to function like it should. Theres a point where the body cant take anymore chemical shock of the immune response to whatever it is that triggered the overwhelming symptoms. . I also think biofilm has alot to do with this disorder. Biofilms can coat nerves and hinder the responses of nerves in chronic conditions. This disorder is like a dimmer switch on a light bulb that is permanently set at half way.

Is anyone else suicidal due to their illness? I am very measured about my decision. I've been sick with CSF, Sjogen's, Lupus, Fybro, Narcolepsy + a whole bunch of other associated illnesses since I was 26, I'm 41 now. Even my brain is being affected by the auto immune diseases. I've tried EVERYTHING to get better. I just finished an intensive hospital program but it did nothing to help. I am going to have to get a wheelchair soon. I have a 5 yr old son. I feel SO guilty I can't do normal things with him, like go to the park, take him to the zoo, etc. He was an accident/miracle (I was apparently infertile) I'm a single parent too, so it's even harder, in that there's no relief or time off as a parent except when he's at kinder and daycare. I've heard that having CFS is worse than having AID's. No one understands how difficult it is. Eg. Brain fog. I just got a $330- fine b/c I didn't remember the speed limit in the area where I have lived in for my whole life changes at certain times. I forget everything. It's like having dementia. These illnesses are HELL. If I talk about being exhausted to people (even if they know I'm unwell) so often they'll answer with, ''Oh yeah me too.'' and I'm like, ''you actually have NO IDEA of what I'm going through.'' I plan in committing suicide when my son is happy and married and can let me go. ''Agony'' - that's the perfect adjective.

30 plus yrs and has only have gotten worse! This video really hit home! Feel like I've been over looked😢 It's really no way to live...

I got it. It’s so often from Lyme disease I’ve been living like a ghost for almost a decade. It lead to Autoimmune Encephalitis. I am wondering if I’ll ever be that person I was for 42 years before this hell started. Doctors are ignorant. They actually look up the medical terms I use. Someone needs to help up.

Life feels like it's over for me, but seeing this gives me hope xx

I have wasted and lost my youth because of CFS

I have fibromyalgia. I haven’t been diagnosed with CFS but I’m always tired and have no energy. I’ve read the fibromyalgia also makes you feel like you have no energy. I’ve tried a no pain no gain, but only lasted a few minutes and I’m bedridden for the rest of the week. I’m only 46 and it sucks that this happened to me. I’m not giving up. I hope to find something to turn my life back to normal 😢😢😢😢😢

I have been dealing with this for 15 years and can't seem to find any Dr to help. I would love to hear what has helped some of you.

I've only recently woken up to what my daughter is going through with this. Yes when you are feeling great its easy to say "Oh it will be fine!"....but for them it is NOT fine. I will be a better father now. NO 21 year old girl wants to be in bed most of the time!

I was slowly developing worse and worse chronic fatigue, until I found Elliott Overton and the work of Dr Lonsdale and Dr Marrs and thiamine deficiency. After a few weeks of doing the protocol and a very nutritious diet, walks outdoors, etc., I'm feeling much better. I was only at a mild stage of chronic fatigue after a few viral infections though, not as bad as someone who gets diagnosed. I hope someone looks this up and it helps someone. I was slowly losing myself before I found vitamin B1. I also started taking dessicated liver pills around the same time, rich in digestible forms of basically everything your body needs to have a healthy transmission of oxygen. But I know it wasn't just the liver pills, because B1 had an immediate effect the day of starting taking it and the next day.

I’ve suffered for about 18 years. I was able to feel a lot better thru nutrition. I don’t drink alcohol. Flour/sugar/fatty animal protein make me feel worse. I’m human, so the nutrition can be hard, but when I eat clean - I feel 90% better. Good days and bad days.

I overcome my chronic fatigue when I have been diagnosed with Celiac disease, Hypothyroidism, Ibs and unfortunately most severe ones. I wish you all the best my darling .

I was just six years into my career of passion, acting, after 12 years of practising law. And then I got sick. I struggled hand to mouth to continue to work. I lasted 12 years. Total disability now last five years. I'm just so sad.

Excellent video. Thank you.

I'm 69yo, and have been suffering from ME/CFS for the last two years. My doctors have resisted giving me an official diagnosis, I'm sure because they have no treatment, thereby condemning me to suffering. On top of that, I can't even tell you how often I've been told "just go for a walk," yet every time I do, my symptoms become even worse. Is there no hope? 😢

I’ve felt like this for 3 months now so depressing 😥😓 I found when I don’t eat (fast) I have the most energy. Death in family and cancelled wedding/break up, constantly changing residences. I’m tired. Tired and sad.

Insightful Video Thank You.

I can't look almost normal in my better days, I can't stand for a minute . I feel horrible and don't get any help.

I am this person in the video. Third bout. First one after thyroid storm. Second came 20 yrs later after surgery. Third has been going on for a year after catching a respiratory virus. Worst ever had it. Please God, save us from this. I beg for miracles. At least the videos and the support groups are consoling. Otherwise I would feel completely nuts.

Crazy that more money goes to other sicknesses like cancer because people die. But if you have cfs you are basically dead but it’s a really slow and cruel one… there should be more research to this terrible decease!

The harder i fight it the worse and weaker i get, ive got cfs and fibromyalgia and hypothyroidism etc multiple symptoms, mines so severe that im bed bound most of the day,every day😢

Such a great video. It’s really hard because a social life can be difficult and people have trouble understanding what it feels like to experience this firsthand. So many doctors refuse to diagnose ME/CFS as well and that can be frustrating. One common factor I’ve seen is that many have had glandular fever or childhood Epstein-Barr. The orthostatic intolerance I’ve had many episodes while other people I know have had more migraines etc.

Please find a doctor who understands Autoimmune encephalitis and autoimmune neurological disease. No one deserves to live like this. ME/CFS is the diagnosis for so many illnesses. I’m sorry you suffer. I feel the same pain and loss. 😢

Is there a direct link between dental implant and chronic fatigue syndrome.? etc Titanium galvanic reaction with the body, rashes below links, sub-clinical symptoms affecting one's immunity.

I am 48, female, a long history of cramping and diarrhea.plus my husband having IBS for a years,However I was able to control both with Imodium until January. I have been in severe pain since middle of January and have lost 20 pounds. The pain has progressively gotten worse. It started as a “bladder infection” pain, but all urinary tests came up negative. I even had a CT and ultrasound done. I then had a colonoscopy and upper endoscopy done which the results are most likely Crohn’s disease and CFS but I’m waiting for blood test results to confirm, the Prometheus test was done. However I am still in a lot of pain, I have pressure also, all of it right above my bladder. The pain is as bad as my childbirth labor was. I have had a total hysterectomy, appendectomy, gall bladder removed also. Also, I have this weird sensation of a string pulling through my genitals. That’s the best way to describe it, but it kind of feels like a nerve or tendons being pulled. There is also throbbing in my abdomen and genitals. I have also been to my gynecologist, nothing abnormal shown as I figured with my hysterectomy. I believe I am at least gluten intolerant, but tests show I am on borderline of celiac disease. I have been trying to correlate the pain with something and I noticed as my bladder fills up, the pain increases. But here’s probably the biggest clue, when doing the prep for my colonoscopy, as soon as my bowels were clear, I had no pain, not even when my bladder filled up. I didn’t start hurting again until hours after eating again the following day when my bowels filled up again. Also, I noticed that when I take Imodium for diarrhea I hurt more, probably because the stool is sitting in there instead of going right then. i was then introduced to a chinese herbalist Dr sale bashiru i got the herbs and oil a long with my husband IBS. just about 3 months past without pains and symptoms and my husband fully cured also.here is my email. chamcheng362@gmail.com whatsapp +17372079382

Do you find that changes in air pressure impact your symptoms? Is it worse at altitude as opposed to sea level?

Can we get a ME/CFS gene bank going? Both Genome,Exome, RNA Analysis... it is extremely hard to get a hold of the original large scale of *** the NIH 2000 Wichita Study *** where they studied CFS/ME patients genes vs. Healthy controls with over 200 participants for the large scale genetic study of ME/CFS patients genes vs healthy controls participants genes... I can't find the raw or individual data anywhere and I had it saved on the cloud and personal device and the files were removed by the NIH. Not joking! It revealed that genes involving: 1) The immune cells (NK, Dendritic, other white blood cells) 2) Neurological genes (involving Central Nervous system, Automatic Nervous system, Sympathetic Nervous system, and Peripheral Nervous system, and Dendritic cells in the brain), 3) H-P-A (Hypothalamus Pituitary Adrenal Axis) Axis Genetics is the CURE and it would be custom to what's going wrong with the person's genome or epigenetics, but it's a CURE that NOBODY ELSE is talking about! The government is trying to suppress this, *** Ex Vivo Gene Therapy and Cell Therapy *** that WOULD CURE this in ONE TREATMENT! Also knock off the smilely faces and sad faces because it makes people who have this look like it's a depression problem instead of a biological problem