Living with Skin that Keeps Falling Off and Just Wanting to Play (Epidermolysis Bullosa)

  Рет қаралды 1,426,392

Special Books by Special Kids

Special Books by Special Kids

4 жыл бұрын

Brady lives with epidermolysis bullosa, a condition that prevents skin from staying attached to his body. His body is full of open wounds, but Brady just wants to play and act silly with his brother.
Help cure EB: www.ebresearch.org/donate.html
Follow Brady: / brady.thebrave
SBSK Patreon: / sbsk
SBSK's Socials:
/ specialbooksbyspecialkids
/ chrisulmer
/ specialbooksbyspecialkids
/ sbsk

Пікірлер: 236
@romanireva
@romanireva 3 жыл бұрын
Rarely have I seen such a beautiful child.. he looks like an angel .
@lisanelson6073
@lisanelson6073 3 жыл бұрын
I completely agree
@lillymurray8408
@lillymurray8408 3 жыл бұрын
He really does. His eyes are just stunning.
@anshumanpes
@anshumanpes 2 жыл бұрын
I, too, just thought of the same.
@yldzyldz790
@yldzyldz790 2 жыл бұрын
Every child is an angel but this one is very cute though.
@ventiquattrodan8329
@ventiquattrodan8329 2 жыл бұрын
He is... 😇
@sharimagnetti3257
@sharimagnetti3257 2 жыл бұрын
I just want to give Leo and Brady's mum a big hug she looks so tired emotionally and just be able to help her have a little break even just to make her a coffee and let her sit It's a hard job being a mum as it is let alone having a child with an illness or disability but your doing so well mumma you got this!
@user-jm4lk5vw1j
@user-jm4lk5vw1j 3 жыл бұрын
- if you had one wish what would it be ? "for Brady's disease to get better" this made me cry
@reggieandenzoschaos7726
@reggieandenzoschaos7726 2 жыл бұрын
Without hesitation no less. What a beautiful bond
@creamerasant
@creamerasant 2 жыл бұрын
Me too 😩
@savannahandluis958
@savannahandluis958 Жыл бұрын
It looked like he almost cried too 😢
@dobby4me
@dobby4me 3 жыл бұрын
"Because Brady's the bravest kid I've ever met." Wow, that's awesome. What brotherly love, family love.
@VendettahHelsing
@VendettahHelsing 3 жыл бұрын
Cute, the older brother look just like dad youngest just like mom
@seventh8932
@seventh8932 2 жыл бұрын
Leo whispers, "I will answer this one for you." Just melts my heart. ♥️♥️♥️Amazing elder brother and Brad's so brave. What a lovely gift you two are to your parents.
@quartz14girl
@quartz14girl 2 жыл бұрын
That was the part that got me. Him wanting to be a ball boy and his brother answering. Officially melted my heart.
@phyllisbuckley7866
@phyllisbuckley7866 2 жыл бұрын
I have.a special ring on my finger I blessed him with it I hope it does something for him God bless him
@Frosty0762
@Frosty0762 6 ай бұрын
Yes! I loved him whispering the answers to him all nonchalant 😂❤ such a sibling thing. They're so sweet
@yourmajesty122
@yourmajesty122 2 жыл бұрын
I've seen kids cry and complain with this but this kid seems oblvious to the fact he's got a very serious painful illness. He's still so happy with his family, especially his brother
@ineedh2o608
@ineedh2o608 3 жыл бұрын
These two boys are adorable
@leeartlee915
@leeartlee915 2 жыл бұрын
These boys are SO friggin’ cute together. Wish my sibling said they loved me that much growing up…
@Frosty0762
@Frosty0762 6 ай бұрын
Mine never told me once until I was almost 18 and then never again. I feel you
@TVHouseHistorian
@TVHouseHistorian 2 жыл бұрын
BEST mom and dad - EVER ❤️
@cstpa1
@cstpa1 2 жыл бұрын
EB makes me the saddest it looks like it hurts so much. i pray for the cure.
@DAVEJJR
@DAVEJJR 2 жыл бұрын
May God in heaven guide this family always, and may he choose to heal this beautiful young child into a life of no more pain but happiness and health….
@lesliekriel6498
@lesliekriel6498 2 жыл бұрын
Amen
@ellie3365
@ellie3365 3 жыл бұрын
I just want to hug the mom
@sharimagnetti3257
@sharimagnetti3257 2 жыл бұрын
I've just watched this and I felt the exact same she looks so broken inside but trying to hold it together and it must be exhausting :-(
@stephaniep104
@stephaniep104 3 жыл бұрын
"Happy person" that said it all. This is a family I look up to. Everything you do is seen!
@Kai-eb1fv
@Kai-eb1fv 3 жыл бұрын
These kids are lucky that they’re always going to have a best friend growing up :)
@24kstar
@24kstar 3 жыл бұрын
ADORABLE. Hands down.
@TheLifeTerm
@TheLifeTerm 2 жыл бұрын
Such a precious Little Man. One comment says that he looks like Angel, and I couldn't agree more. I pray that a cure is found for EB, and very soon. Such a devastating disease. 🙏👼
@jwilcox4726
@jwilcox4726 2 жыл бұрын
Happy Mother's Day to their mom. I so hope he can get skin grafts when he can age wise. Two more work but my grandson is special and he only has Nana to play with. Learning to write and speak at the moment. So great the boys are together, playing and having is what counts at their age. All about playing. Bye bye. Let's cure EB. Amen to that. God bless every one involved with EB and finding a cure. Peace & Hope.
@colinspence6130
@colinspence6130 2 жыл бұрын
I knew already knew Leo was amazing. I did not know Brady gives him the additional superpowers to be such a loving and caring young person. Heartwarming and thank you for sharing.
@chloesymone8823
@chloesymone8823 Жыл бұрын
brady is so precious omg 🥹 so sweet ! Praying for you love ❤
@fayesmith2406
@fayesmith2406 24 күн бұрын
He is a beautiful child indeed. I pray God will heal him. Sending love to this family!
@thousandyardgavri2785
@thousandyardgavri2785 2 жыл бұрын
Im touched by their brotherly love. I can tell in the future, they will inspire each other
@jatoliv6655
@jatoliv6655 Жыл бұрын
He's such a beautiful and strong child! 🥰🥰
@jo-jo83
@jo-jo83 3 жыл бұрын
He has the eyes of an angel 😇 such a beautiful boy god bless you 💖 keep playing little man nothing is more important than a good smile like yours 🥰
@xxxxxxxxx1652
@xxxxxxxxx1652 2 жыл бұрын
beautiful children!! and their parents are awesome!!! i wish them all the best
@musicis4you888
@musicis4you888 2 жыл бұрын
These two kids seems very intelligent for their age , what a beautiful family ❤️
@eliselaughlin1886
@eliselaughlin1886 3 жыл бұрын
Such beautiful boys.
@rosesippel2932
@rosesippel2932 2 жыл бұрын
Such a gorgeous little boy 👦 💙 I pray 🙏 for this child & all others God Bless his brother is so sweet
@Sarakate601
@Sarakate601 3 жыл бұрын
Sooo sad!! He’s such a handsome little guy!
@eve9287
@eve9287 Жыл бұрын
Brady is such an angel so charismatic and energetic his smile is so contagious poor kid😢I hope that a cure is found so that he can live out his life
@cindyharrelson4753
@cindyharrelson4753 2 жыл бұрын
Those two will stand together for as long as they live….so loving this family ☺️🥹😉😍
@aliyaali8153
@aliyaali8153 2 жыл бұрын
The way he said he's a happy person . he truly is .
@tracy4591
@tracy4591 3 жыл бұрын
Wishing and hoping for a cure for Brady ❤ This family is so kind and loving :)) I wish them many blessings and good health 🙏
@Missy-vm8fr
@Missy-vm8fr 2 жыл бұрын
Brady, you are a most beautiful, adorable, and brave little guy!!! You could totally be a childrens model. Thank you for sharing your story! 🥰🥰🥰
@daisyhoney3088
@daisyhoney3088 3 жыл бұрын
These two are adorable and fun to watch!
@Missy-vm8fr
@Missy-vm8fr 2 жыл бұрын
OMG!!! I have never seen such an angelic, adorable face!!! ❤️Brady!!!
@junekendall-yq1jx
@junekendall-yq1jx 9 ай бұрын
Hope these boys live long happy lives. My grandson born with EB told not to live long now 19 years old. So happy still have him. Good luck I pray there's a cure sometime for this nothing tried has worked.
@francoiselang6085
@francoiselang6085 2 жыл бұрын
What a beautiful, courageous and fun family! Brady has such a spirit and his brother Leo is such a gentle soul.
@helenwhite1748
@helenwhite1748 3 жыл бұрын
what a amzing family keep smiling you all
@shannasharp8917
@shannasharp8917 2 жыл бұрын
He is so so sweet when he says I love you to his brother 💜💜
@vanessaleinert9068
@vanessaleinert9068 2 жыл бұрын
Thank you so much for bringing light to this. So precious love the bond between Brady and his brother.
@Teenywing
@Teenywing 2 жыл бұрын
I made it to almost one minute before needing to start crying. The most amazing family and it must be such an honour to know them. Two boys like those take a pretty awesome mama and daddy♥️♥️♥️
@tammiesanders5539
@tammiesanders5539 2 жыл бұрын
You boys are amazing, a conductor, is a great job!! Prayers for you all young lady, your a great mom
@vanchhangte6526
@vanchhangte6526 2 жыл бұрын
Bless this child ! 🙏🏼 He got a healthy happy loving support. ❤️ Loving is the kindest
@lynnlabo6594
@lynnlabo6594 2 жыл бұрын
What a beautiful family I will keep you all in my prayers and that they find a cure
@persephoneblack888
@persephoneblack888 Жыл бұрын
These brothers are so precious 😭💗 I hope this family is doing well 🙏
@nahlaleighton6113
@nahlaleighton6113 2 жыл бұрын
He is absolutely just the cutest little pair of boys I have ever seen. They are blessed to have them as there children. I am so jelly! :)
@scoopydaniels8908
@scoopydaniels8908 2 жыл бұрын
Omg.. When the older brother kid-whispered "I'll take this one", I thought he was going to say something really profound about what they were going to do when they grew up.. When he let us in on the train conductor/train engineer dream complete with sound effects, I lost it!! Too funny, and I love the pure innocence of kids of a certain age
@shastollings1305
@shastollings1305 2 жыл бұрын
He is so adorable. what awesome brothers! Thank you for sharing.
@lapetitemorte526
@lapetitemorte526 2 жыл бұрын
Grady’s parents are awesome. This family is just so beautiful.
@ginaandseason2774
@ginaandseason2774 2 жыл бұрын
I saw a video with his parents when Brady the brave was a baby. So happy to see an update. Bless you all. Brady is a stunning child. He could get into modeling!
@tristanmason7405
@tristanmason7405 2 жыл бұрын
Brady has the most true, beautiful smile. Praying for you Brady bud!
@LoLowashere
@LoLowashere 2 жыл бұрын
Wow. They're both such handsome little boys. Especially brady!
@xboxmoonpartingty104
@xboxmoonpartingty104 Жыл бұрын
what precious angels Brady and his brother are Brady WILL get better!!
@kintoowangmo1644
@kintoowangmo1644 2 жыл бұрын
Brady you are a gift from god. So precious. I love you ❤️
@meagain7669
@meagain7669 3 жыл бұрын
Soooo cute
@MH-yt1pe
@MH-yt1pe 2 жыл бұрын
We love you Brady...may God bless you always❤
@presto709
@presto709 2 жыл бұрын
I think the host of this series has found the best way to bring attention to people with special needs. He is amazing with kids and adults. I don't have a lot to give but I give when I can because of this channel.
@yasminister2011
@yasminister2011 Жыл бұрын
@Marissa_loves_Jesus
@Marissa_loves_Jesus 2 жыл бұрын
This baby just melts my heart. God I pray for a cure for EB and for Brady and his family as well as others out there dealing with this condition. God bless Brady and his family.
@thecriminalopinion2094
@thecriminalopinion2094 2 жыл бұрын
If someone wants to be Brady’s friend what should they do? Brady- Help me. 😭😭😭
3 жыл бұрын
The skin may fall off but their strength never will!💪
@lyndseyreed949
@lyndseyreed949 Жыл бұрын
Gosh he's so gorgeous. Such a sweet boy, and so lucky to have this family. They all seem so wonderful.
@adt3739
@adt3739 2 ай бұрын
Omg what an absolutely beautiful child he is 🥹 so well spoken as well. 🖤
@mirelairinapetre6503
@mirelairinapetre6503 2 жыл бұрын
You are such a beautiful Butterfly- Angel ! And you are so lucky to have an amazing brother!❤💙❤
@r987p
@r987p 3 жыл бұрын
Special little boy! The mom me cry too... hang on little guy and mom! I hope things get better.
@kamithompson2770
@kamithompson2770 2 жыл бұрын
What a beautiful family. 👨‍👩‍👦‍👦
@n.1480
@n.1480 2 жыл бұрын
they’re both so adorable omg.
@gabrielfelix1759
@gabrielfelix1759 2 жыл бұрын
man that kid is rad
@ilcarlino752
@ilcarlino752 2 жыл бұрын
What
@laurenanderson7330
@laurenanderson7330 2 жыл бұрын
@@ilcarlino752 he’s rad
@ilcarlino752
@ilcarlino752 2 жыл бұрын
@@laurenanderson7330 k
@carenhodder9640
@carenhodder9640 2 жыл бұрын
Wot a handsome, handsome little boy Brady is. His older brother loves him so much Brady will never want for love and protection. Love seeing their beautiful relationship they have, may your futures be sunny and little Brady find a cure. Love to you both ❤ xx
@Frosty0762
@Frosty0762 6 ай бұрын
I love him! He's so beautiful and precious and very very smart for his age. I love seeing his excitement, especially when Chris was fixing the toys for him. So cute 🤩 I don't think he even realizes his limitations. You can see him tense up and drool and struggle but, he doesn't show any pain or emotion towards that. He's such a brave and strong little man! I hope they find the cure soon. No child deserves to live like John Hudson is now at 20/21. I hope he's able to he treated/cured before he gets much older. Such troopers these babies are. ❤
@rosie6
@rosie6 2 жыл бұрын
Such a beautiful kid, an angel
@its_annie8804
@its_annie8804 Жыл бұрын
I love him and this family bless all of them ❤
@Teenywing
@Teenywing 2 жыл бұрын
Leo is the best big brother in the whole wide world. He is so special and there aren’t words in my vocabulary to describe how loving, caring, helpful and wise he is. (And gorgeous just like his bro) i wish so much I had a brother like that.
@effieschroeder6560
@effieschroeder6560 2 жыл бұрын
I was watching this and my 3 year old brother peeked over my shoulder and said “I love him” about Brady. I love all three of these boys
@vladimirwilliams2517
@vladimirwilliams2517 2 жыл бұрын
This kid is so nice and to think of the ilness he has breaks my heart
@kristinacvetkovic5620
@kristinacvetkovic5620 2 жыл бұрын
Beautiful boy. He is an angel ❤️
@erikaf561
@erikaf561 2 жыл бұрын
He’s so cute!
@burly636
@burly636 2 жыл бұрын
What a sweet little boy and his brother. I saw him on another show about EB. Little angel face...
@jmjung9
@jmjung9 3 жыл бұрын
What a beautiful little boy!!! Anyone that disliked this must have no heart
@luismanchado9830
@luismanchado9830 5 күн бұрын
Que niños más bonitos y que padres más valientes. Que Dios les bendiga a todos
@jordanbuckland2898
@jordanbuckland2898 2 жыл бұрын
What a beautiful strong family. I want to hang out with these kiddos
@hugoboss5895
@hugoboss5895 Жыл бұрын
Wow it must be so hard for him his folks and his brother but cho cho they have fun and they all all amazing.
@marleenninaka1303
@marleenninaka1303 3 жыл бұрын
Hi everyone: It's so nice to see you all again on KZfaq. I want to meet you all one day. Take care and stay safe.
@reema9169
@reema9169 2 жыл бұрын
God bless you and your family ♥️♥️♥️♥️♥️♥️
@sebastianblackandwhitewatc2722
@sebastianblackandwhitewatc2722 3 ай бұрын
This kids are beautiful and his fathers to, i hope then to be alright and i want the to never give and Build a better future!
@monica5840
@monica5840 2 жыл бұрын
Deus, Nosso Senhor, que sois todo poder e bondade, tenha piedade das crianças que sofrem e de seus familiares. Inspirai os cientistas e médicos a encontrarem a cura para essas doenças que trazem tanto sofrimento à humanidade. Cubra com o seu manto todas as pessoas que sofram de doenças até agora incuráveis para que elas sintam alívio de suas dores. Amém. These two young brothers are so beautiful, and so are their family. God bless you with courage and resilience. Thanks for sharing this story.
@tocalifedariusLOL
@tocalifedariusLOL Ай бұрын
Oof... it really has me finding out everything that poor boy has to go through... hope he gets better soon. ❤🙏☺🙂
@toryberch
@toryberch 2 жыл бұрын
Nothing better than brotherly love 💕💕
@JonathanHernandez-mm3nd
@JonathanHernandez-mm3nd Жыл бұрын
May god be with Brady and god bless Leo.
@HismerciesareneweveryAM
@HismerciesareneweveryAM Ай бұрын
I honestly can't imagine seeing your child hurting all the time, and also the really challenging and rare situation of constantly managing symptoms. Trying to explain to a young child why you shouldn't itch your skin and why you are in pain all the time sounds like the job of a super-human...😢 Prayers and love to this family and this amazing boy!!
@ps6474
@ps6474 3 ай бұрын
Brady is so precious both inside and out❤When the brother said...I'll answer this one for you and Brady is the bravest kid I've ever met, oh my heart, but what got me to tears..For Brady's disease to get better, such pure love. So cute and funny when Brady started twerking saying poopy butt, kids are so silly, made me really laugh.
@willielee2376
@willielee2376 2 жыл бұрын
🙏🏿❤️🙏🏿❤️🙏🏿❤️🙏🏿 Great kids Great Job Mom and Dad
@kristinminiscalco5592
@kristinminiscalco5592 2 жыл бұрын
Wow...he is stunning!💖💖💖💖💖💙
@anamairazapata6306
@anamairazapata6306 Жыл бұрын
These 2 brothers are soooooo adorable
@theflowerinthegardenbeauti9393
@theflowerinthegardenbeauti9393 2 жыл бұрын
These child are so adorable 💕💕💕💕💕💕💞
@maruca1580
@maruca1580 5 ай бұрын
Son tan bellos, esperemos que pronto haya una cura para Brady y su mami tenga un poco de paz y descanso
@blairariavanderkamp3405
@blairariavanderkamp3405 Жыл бұрын
They are adorable!!❤❤
@ruthn7847
@ruthn7847 Жыл бұрын
Prayers for both angels!!! Prayers of healing, mis ninos lindos!!!
@justicewillprevail1106
@justicewillprevail1106 26 күн бұрын
He's such a adorable abd sweet kid...
@ishysaiyanprincefitnessfre4299
@ishysaiyanprincefitnessfre4299 2 жыл бұрын
Iknow how this kid feels 😣 skin conditions are painful 😣
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