I’m sorry what happened.

RIP ur sister

@@blondieclown it’s genetic she was born with it and didn’t get a lung transplant

@@mohamedhashim3081 thank you

@@staciemae im sorry my younger sibling has cystic fibrosis and was on my account. sorry for the loss, i deal with it myself. i hope you're doing well

Chris VS Cystic Fibrosis what insurance do you have ? I have cf too

Keep at it, I'm proud of you. There's people that love you and want you to have a quality life :)

camelia markham I dont think so.

camelia markham ummm I have cystic fibrosis and you have to be born with it and you should have been known about it🙄🤔

That Girl Reacts you know there are slower cases of cf right? You can go your whole life with a really mild case and not know.

@TA A I'm just basing it off people being diagnosed very late. I dont know too much about the illness myself

camelia markham what insurance do you have ?

I'm sorry 🥺❤️

@@shannonmeek2436 people staying new donor lungs will get damage like their old lungs over time is that turth or not then is turth they can get damaged too like old lungs I dont understand that why people staying it then like Stephi Lee stay new lungs will get damage like old lungs and I see video on KZfaq call I need to breath sisters call Nikki and kristie narrator stay new lungs will get infected over time with cf again what do people believe is turth or not I Google it transplanted lungs will not have CF and will never develop it, I dont believe it turth or what let me know Thankyou for your time from jess sellars xxxxxx

@@Jess-wk5jo CF is a genetic condition so new lungs can buy time with the strong likelihood of a longer life but we cant cure CF, its part of their DNA.

@Tgon Mwort What are you talking about?

I watched it 5 hours first time,very interesting and sad

me too :)

Covid is like 10 times worse because our lungs are already bad then if we get covid that means we have 2 lung diseases and we are so much less likely to live and in public we cough so during covid everbody stares at you pretty much the whole time and we need to wear masks all the time and no mask breaks unless we are outside away from everbody or we are vaccinated and i know because i hve CF.

Darrin's Channel How did it go?

While cf might be terrifying I hope you don’t worry about it too much it’s better to get a firm diagnosis with the proper meds than a wrong diagnosis and poison I found out I had CF after a moving to England after years of the wrong medicine which the doctor said made things worse since you went so long without finding out I hope that you have a mild case of CF as well...

1 year on I think Darren is gone.. rip mate

how are you in your treatment?

@@Momo-bb2fn Won't say good but okay..

@@sumaiyashahid5532 well at least okay is alive, wish you the best

Just found this video again, how have you been how are things going?

@@Momo-bb2fn hmm things are okay!

Completely agree. I've not long found out I'm a carrier of the CF gene so have been looking into it and it seems remarkable that people survive so long without diagnosis.

There is, in fact most cases are diagnosed at prenatal care, even during pregnancy. But I’m assuming they are exceptions. Such as in this case.

So true omg

Molly herself is sooooo cute

😳🤯 whattttttt

Dhan Flores i came to see how real people deal with it

Armand Diaz It’s honestly not as bad as they portray it to be, but it does depend on the type of cf you have. Me for example, I’m doing fine.

send help its worse then in ffa for my fsmily :/ my lil bro is 9 and at a few months was on life support, at 8 had part of his lung removed, spends half his life in hospital

@Tgon Mwort How do you know?

I have cystic fibrosis too and most of the medications that you were listing are the almost the same medications I have to do too. I was diagnosed with CF as a newborn. I am 13 now and it’s hard I’m in the hospital all the time. I have to take my albuterol, hypertonic saline, then I do my vest, following with my vest, Toby pod inhaler. I take a lot of pills too. I’m sorry if my spelling is a little off There’s a lot of medications I have to take and it gets a little hard to pronounce them. I think the most effective mask for me is the one that straps onto your face so you have to breath the Medicine in. I’m sorry you had to go through that and I hope you have a great life.

@@marthayamm1145 omg you are a warrior life is not fair. bad people don't deserve to live in this planet but unfortunate they live until they get old. And the good people like you deserve to live a nice life but you always struggle to survive life is not fair I'm with you.❤❤

It's not only a lung disease, Cystic Fibrosis affects the reproductive system, lungs and pancreas. You should probably get that checked out, but Cystic Fibrosis is a genetic disease so I doubt you'd have it.

Ya you wouldn’t have it I have cystic fibrosis and it’s not just the lungs it’s everything but I can’t afford most of the treatment so it really sucks

@@ryleenovak3290 Have you tried doing a GoFundMe ?

They are working on a cure and CF is caused by defective DNA and they have un-mutated DNA before in a different disease so the cure is kinda close actually and i hope it will be made before i get a lung transplant because i have CF and lung transplants are extremely expensive

It could be that your CF isn't extreme at all so you barly have CF but you still do but that is extremely rare

@@gumballking87844 yup im diagonsed with atypical CF or mild cf ;d

So do i.

I have CF and water helps alot actually but only for some people but that is the only thing i know can thin mucus

Por favor nao fique triste ou assustada , tenha calma . Meu filho tem 11 anos ele esta bem faz atividade como todos outros garotos , cada cistic Fibrosis tem sua historia a mutacao de meu filho e F508 mas ele esta otimo , mas desde diagnostico eu fiz e faço de tudo pra que ele esteja bem . Quando bebe meu irmao ajudou reformando o quarto dele pra garantir que nao houvesse mofo, ele espirrava se alguem tivesse perfume eu pedia por favor nao usem, eu pedi ao medico uma carta explicando a saude de meu filho , e mostrei aos vizinhos de pequena distancia ou grande pra que nao fizessem queimada nos lotes pois isso poderia levar meu filho ao oxigenio no hospital, faça tudo pelo seu bebe vc tera otimos resultados ,Deus abençoe voces sou a mamae do Davi .

@@daviminicheffpimenta1737 English please sorry

@@c.v6735 Please do not be sad or scared, calm down. My son is 11 years old he is good is activity like all other kids, each Cystic Fibrosis has its history the mutation of my son and F508 but he's fine, but since diagnosis I did and do everything so that he is well. When you drink my brother helped renovating his room to make sure not had mold, he sneezed if someone had scent I asked please use no, I asked the doctor a letter explaining my son's health, and showed the short distance from neighbors or big for that did not burn in the lots as this could take my son to the oxygen in the hospital, do everything for your baby u will have good results, God bless you guys'm the Mommy of David.

Bless you thanks for your kind words 🙏 ❤

:/

Sophia Sager what insurance do you have right now ?

There are so many different mutations of cf, some have it worse than others. Some people live with cf and don't even know it because the symptoms are so mild. There are also slow progressive cf, you could be born with it but only get sick later in life. It's very different for everyone

I had a misdiagnosis in my mid 20's, then told 2 years ago at 50.☹️

@@kevinnash7821 I'm guessing it was late progressive if your in your 50s though!

@@timotheechalametismyhusban200 wasn't bad as a youngster, but knew in my 20's there was something not quite right.

My daughter was born in 2001 with a bowel blockage another blockage at 5 months old not diagnosed until she was 8.5 years old she’s nearly 21 now

I have CF and it really does suck, alot

Ha. Diagnosed last year when I was 18. It was a shock to the doctors though.

I was diagnosed at. 9

I was diagnosed at 3 months, and I know a girl who was diagnosed at 3 days. 🇫🇷

Mhm! It also depends on the type of cf you have.

I have most of the types I think, and I was diagnosed at a few days old.

I also

I've also been diagnosed, 9 and a half years old.

I think she means most kids. Yes some kids like you might know what it is. But many people like me for example don't even hear of what CF is until they're well into their 20's or older.

That's cool. You are a smart young lady!

Me too I’m nine btw no hate