Stomach (Gastric) Cancer blog 4: Life after Stomach removal (Total Gastrectomy)

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Jimmi Clarke

Jimmi Clarke

6 жыл бұрын

9 months ago I was diagnosed with stomach cancer. I had a total gastrectomy and I'm now through it all, and cancer free. Here's my story and the important things that helped me to get through my journey.

Пікірлер: 141
@snail415
@snail415 6 жыл бұрын
You're a hero to me. Keep playing and posting. I wish more people (who have absolutely no challenges in their lives) had your attitude. All the best to you, and yours.
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 3 жыл бұрын
Thanks Justin! for some reason I've only just seen your comment! really appreciate your kind words! thanks for the support!
@anumarytom6458
@anumarytom6458 3 жыл бұрын
Your story is very inspiring. Much love❤️
@mikeward8232
@mikeward8232 4 жыл бұрын
Great blog and your spot on about finding people who have gone through it. I have found most posting are often searching for help with issues and it becomes hard to find the successes such as yourself. I have my op in two weeks and my cancer is in the same place as yours was so you are absolutely a role model.
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 4 жыл бұрын
Mike Ward Thanks Mike! Things are getting better and better. Life is great, really glad this has helped, I must do some more videos soon to keep you all updated.
@mikeward8232
@mikeward8232 4 жыл бұрын
Jimmi Clarke yes would love to see an updated video. I’m curious as to whether things settle down because you slowly remove things you like to eat and now have to eat more protein to boost energy ? or has it settled and you can now eat more or less what you want and perhaps after two years drink a little when your eating 😀
@eleonoradipietro5040
@eleonoradipietro5040 6 жыл бұрын
Thank you so much for your postings. They are really life changing. My husband received the same diagnosis this year (2018) on Jan 4. Please, please keep up your postings.
@owoowo9761
@owoowo9761 3 жыл бұрын
Hello how is your husband now?
@jennaaa4251
@jennaaa4251 2 жыл бұрын
You’re a true inspiration. I was diagnosed with stomach cancer and have to get my stomach removed. Your video really helps put things into perspective. Thank you
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 2 жыл бұрын
No worries!! Really pleased it’s helped!
@CardinS2U
@CardinS2U Жыл бұрын
Jenna I was diagnostic last month and total remove is the option? What about u. Can we talk to get support
@sahanas3377
@sahanas3377 Жыл бұрын
Jenna A A in which stage???
@paulhazlewood5977
@paulhazlewood5977 4 жыл бұрын
Hi Jim. I'm Paul and I like your videos. I too had full gastrectomy but I wish I had better situation to tell you 4 months on from my surgery I have had an initial 2. 1 for lung fluid build up and perforation of small bowel caused by a stent and its just been in and out of hospital with one complication after another. I'm in hospital now recovering but my mood has gone down hill. I hope I can over come this like you have
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 9 ай бұрын
Hey Paul, how are things now?
@lorrainewilson5813
@lorrainewilson5813 5 жыл бұрын
Thank you with love and gratitude .xx
@modarsaleh91
@modarsaleh91 6 жыл бұрын
You really don't know how much you have made it easier for me .. I really hope that you keep up in perfect health and just be around your beloved ones for good .. May our Lord bless you .. 🙏😘💚💛
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 6 жыл бұрын
Modar Saleh thank you!!
@modarsaleh91
@modarsaleh91 6 жыл бұрын
Jimmi Clarke 💜💛💚❤
@willyisis
@willyisis 2 жыл бұрын
It's 2022 and I was just diagnosed. I've been searching for firsthand accounts of younger people who have dealt with this disease (I'm 41) and your videos are the first really detailed account I've come across. Thank you so much for making them and giving me a better idea of what to expect and just giving me hope overall.
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 2 жыл бұрын
Hi Aisha, I'm glad i've helped, I made these video's as, like you, I was searching for stories of hope from people who had gone through the same thing but I couldn't find it. it was 5 years ago this week for me! so be encouraged!
@willyisis
@willyisis 2 жыл бұрын
Can I ask where you were able to find the support groups. I've looked and haven't been able to find groups that are specific to gastric cancer. I would love to be able to connect with others and hear about their ways of coping, not only mentally, but practically in the early days after surgery and then chemo. Things to eat and excercises to help with the depleted breath and energy issues...etc. But also, mentally too!
@sahanas3377
@sahanas3377 Жыл бұрын
@@JimmiClarkeDeeperIntoBass my mother she was just diagnosed this and the stage is 3....doctor suggest that chemo can taken befr surgery.... Is stage 3 is danger??
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass Жыл бұрын
@@willyisis if you go onto Instagram and use the search the hashtag #stomachless or #nostomachnoproblem you’ll find several people doing well that you can reach out to.
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass Жыл бұрын
@@sahanas3377 I have met people who have recovered from all stages of stomach cancer. Each case is different but there’s always hope.
@roddyricher8679
@roddyricher8679 2 жыл бұрын
God bless you and your family blessings
@lorrainewilson5813
@lorrainewilson5813 5 жыл бұрын
Thank you you are amazening. Our son just been diagnose with stomach cancer is op is in may .thank you for give us hope love to you and your family xx
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 5 жыл бұрын
Lorraine Wilson I’ve been touring all over Europe and I’m still doing really well!! I met a guy this week who had a gastrectomy a year ago and is now doing an iron man contest!! There’s lots of hope!! I pray that peace will fill your house and everything will be fine.
@satnamrandhawa7039
@satnamrandhawa7039 4 жыл бұрын
@@JimmiClarkeDeeperIntoBass sir you now eat well and gain weight
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 4 жыл бұрын
Satnam Randhawa Hi Satnam, Yes I’m eating well and have put on weight. I’m working full time and life is good. It took me a while to manage it all but now life is pretty much back to normal. I still eat small portions and more regular than I used to but it’s all going well. It tough at first but it is manageable if your careful.
@satnamrandhawa7039
@satnamrandhawa7039 4 жыл бұрын
@@JimmiClarkeDeeperIntoBass thanks my big bro God bless 5
@satnamrandhawa7039
@satnamrandhawa7039 4 жыл бұрын
@@JimmiClarkeDeeperIntoBass upload your now days video we
@lorrainewilson5813
@lorrainewilson5813 5 жыл бұрын
Hi Jim I l wrote to March our son dan was diagnosed with stomach cancer stage 3 he fought all the way till 15May when he passed away our hearts are breaking but he would like us to be strong .he touch so many life’s there doing scholarship by trying to rise 35.000au$ to fine answers the Hudson institute Australia so so proud of him he was so strong to the end .l thank for sharing your life with us many thanks xx
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 5 жыл бұрын
Lorraine Wilson So sorry to hear this Lorraine! Sending lots of love to you all! X
@sahanas3377
@sahanas3377 Жыл бұрын
So sorry to hear this..... Is stage3 is danger??
@lorrainewilson5813
@lorrainewilson5813 Жыл бұрын
@@sahanas3377 my son passed away love and gratitude 💕
@svenkites
@svenkites 5 жыл бұрын
Hey Jimmi. Immense gratitude for sharing your story because I'm going through the exact same thing and seeing your positive attitude has helped me cope. I just got done with my last post surgery chemo. How have you been doing now that it's been nearly 2 years?
@satnamrandhawa7039
@satnamrandhawa7039 4 жыл бұрын
You had stomach removed
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 3 жыл бұрын
so sorry, I don't know how i missed this comment! Yes I had my stomach completely removed 3 and a half years ago with part of my oesophagus.
@wildcosmiacollective
@wildcosmiacollective 3 жыл бұрын
I have a subtotal gastrectomy this morning 🌄 I hope you're still cancer free and doing well.
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 3 жыл бұрын
Ahh wow!! Welcome to the family!! I’m doing great thanks!! Cancer free and enjoying life!
@wildcosmiacollective
@wildcosmiacollective 3 жыл бұрын
@@JimmiClarkeDeeperIntoBass That's amazing to hear 😊😊😊
@4196kent
@4196kent 2 жыл бұрын
i got a total gastrectomy
@drstrange2619
@drstrange2619 2 жыл бұрын
How are you after subtotal gastrectomy how's life are you able to eat normally?
@wildcosmiacollective
@wildcosmiacollective 2 жыл бұрын
@@drstrange2619 I'm doing great! Honestly no real noticeable changes long term. They ended up taking about a 1/4, so really not that much. My gasto issues have actually decreased after the tumor was removed.
@Iamtherealflip
@Iamtherealflip 8 ай бұрын
Hi jimmi so happy i came across your videos. I have surgery scheduled for nov 10th of this year. Im pretty scared. I am only getting a proximal gastrectomy. I'll still retain half of my stomach. By chance did you lose the lower half of your esophagus? Im going to lose mine. And im curious if you have any regurgitation or reflux?
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 8 ай бұрын
Hi, yes I lost the lower half of my oesophagus, including the oesophageal sphincter. I’ve not had any regurgitation but reflux can happen at night if you lay flat. I sleep slightly upright using 3 pillows. Regurgitation has only happened a few times, that was because I ate late and didn’t prop myself up.
@Dinimess2k7
@Dinimess2k7 5 жыл бұрын
Hey Jimmi, it's been a couple of years since we had an update. How are you getting on? I'm coming up to my one year anniversary of my total gastrectomy - I'm a few months back into work and seeing I can slowly eat more as time passes. I still can't drink anything with my food but hopefully that'll return eventually. Hope you're keeping well, would be great to get an update with your weight, your drinking with food habit, etc!
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 5 жыл бұрын
Ali M Hey! Thanks for commenting! Yes, I must make a new update video!! I’m doing well, Video coming soon! I can eat a small meal and have a glass of wine now!
@satnamrandhawa7039
@satnamrandhawa7039 4 жыл бұрын
Hi ali
@jaygoodwin9918
@jaygoodwin9918 5 жыл бұрын
Hey Jimmi, your videos have helped me a lot. I had my stomach removed in November and I am currently on the preventative chemo, but after 1 week I am really struggling to eat and drink, how did you get through 2 cycles? What made you know it was time to stop?
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 5 жыл бұрын
Hey Jay!! Thanks for your kind words regarding my videos. I stopped after 2 rounds for a few reasons. I was very fatigued, just really tired all the time and struggled with the chemo tablets and struggled a bit to eat. l was told the cancer was gone so I just believed it. I knew the chemo was making me ill and I just longed to feel well again. It’s wise to stick it out as long as you can but I know how horrible that part is. Good news is, once this season is over you’ll start to feel a lot better!
@jaygoodwin9918
@jaygoodwin9918 5 жыл бұрын
Jimmi Clarke I have been told that mine has gone as well, but at the end of the first week I have struggled to eat and drink. I know that every day or session of Radio is a bonus! Good to hear your doing well
@sahanas3377
@sahanas3377 Жыл бұрын
How are you now??? In which stage
@tammybrownbarajas8165
@tammybrownbarajas8165 6 жыл бұрын
I just found out that a friend has stomach cancer. I heard they live in Simpsonville South Carolina. I can't find them. Can you tell me where they might be.
@TRKLYFBBY
@TRKLYFBBY 5 жыл бұрын
Thanks for the sharing your story. I wish you well. My aunt has stage 4 stomach cancer. The doctor's ruled out surgery I was told because they said it might spread even more. Can you or someone give me any suggestions? Thank You. Blessings
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 5 жыл бұрын
Thanks for your message. I’m really not educated or informed enough to know what’s best for your aunt. I’ve heard successful stories of stage 4 stomach cancer being fixed by a gastrectomy but everyone is different. Where does she live?
@mikeward8232
@mikeward8232 4 жыл бұрын
Hi jimmi, question for you about weight loss. Did you start out with a feeding tube? And did you loos weight while on it or did your weight loss really happen once you removed it? I’m 7 weeks post TG and am holding my weight with eating during the day and using the feeding tube overnight? I’m assuming that once the tube goes the weight loss might unstoppable?
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 4 жыл бұрын
Mike Ward Hi Mike, I didn’t have a feeding tube, I just eat little and often.
@mikeward8232
@mikeward8232 4 жыл бұрын
Jimmi Clarke wow that’s awesome. Are you eating whatever you like or have you had to work at getting that high protein diet going and adding to meals to boost them up.
@pedrosousa8512
@pedrosousa8512 9 ай бұрын
Hey Jimmi, how are you today? Can you tell me if you can workout and keep the weight? Hugs from Portugal
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 9 ай бұрын
I’m very well thanks! It’s hard to keep the weight on at first. I’m now having to watch what I eat as I could easily gain weight if I’m not careful.
@chichikoko11
@chichikoko11 9 ай бұрын
Are u able to go on vacations or travel normally like before or any restrictions?
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 9 ай бұрын
Yeah it’s all fine, I’ve traveled all over the world since my gastrectomy.
@chichikoko11
@chichikoko11 8 ай бұрын
@@JimmiClarkeDeeperIntoBass oh that's great Also like do u feel tired often or need to eat frequently.
@1badpete999
@1badpete999 6 жыл бұрын
Your story inspired me alot, I got the same cancer the chirurgian is talking of removing my full stomach that scare me more than the cancer itself , how do you deal with not being able to drink in the same times you're eating , how did you deal with the dumping syndrome and the lost of vitamins and proteins not having a stomach anymore when you have to throw up is it worst than before when you add your stomach ? Can you still eat bread ? If you know internet address for menu and what we can or can't eat after a full gastrectomy that would help me make my decision !
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 6 жыл бұрын
1badpete999 Hi! I know the thought of losing your stomach seems crazy but your body soon adjusts. I eat everything I used to eat, including bread, there’s nothing I now can’t eat, I just have smaller portions. I’ve not been sick yet so I can’t comment on that, but it’s your stomach muscles that cause you to be sick so without a stomach i doubt you’ll be sick. Dumping syndrome is ok, you just need to have some sugar and it soon passes. That only happens in the first couple of months after surgery. I’m now 6 months since my op and I feel great!! The best I’ve felt in years! You’ll be fine!
@1badpete999
@1badpete999 6 жыл бұрын
Tanks for your answer giving your example to others helps them a lot mentally , your an example of a gastrectomy who went positively well !
@jperaltamusicacristianaagu5664
@jperaltamusicacristianaagu5664 5 жыл бұрын
I can help you with that's
@mikesimification
@mikesimification 3 жыл бұрын
How are you feeling 3 years later? Are you able to eat everything? Do you have to sleep inclined or do you sleep normally?
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 3 жыл бұрын
Hey, I feel good. I'm a pro at it now 🤣 I can eat everything, I still use a side plate and half portions and snack a bit during the day etc. I don't drink and eat at the same time that flushes food down a bit quick and I don't get the nutrients, and that makes me tired. But i'm in a good rhythm of life, working full time and enjoying life. I can now sleep without being propped up too!
@cbebop5
@cbebop5 3 жыл бұрын
Wow, incredible, thank God. What an encouraging update! All the best to you for continued good health.
@khamoshrahein8142
@khamoshrahein8142 5 жыл бұрын
Does it affect your bowel movements? Do u need to go to open bowels often? And does anything from the intestines come up your throat? Does your body feel different now without a stomach?
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 5 жыл бұрын
Hi Khamosh, it did affect my bowel movements at first but that settled down and is now normal. I’ve had acid reflux once in the 15 months since my operation and that was down to me eating too much just before bed. My health is good I’m working full time and life is good.
@juanmanuelchavez5039
@juanmanuelchavez5039 8 ай бұрын
hello i had a partial gastrectomy this year in march but now i have dysfagia i cant even drink water the doctor said the joint where they conect stomach with esophagus is very inflamated and they found cancer cells now they say they need to remove all the stomach i am very scare to have that big surgery again
@babegurl1231
@babegurl1231 2 жыл бұрын
🙏🏾🙏🏾🙏🏾
@prasanthmp500
@prasanthmp500 2 жыл бұрын
do you feel apetite for food after the surgery ?
@janjankowski3270
@janjankowski3270 5 жыл бұрын
Thank you for sharing your journey through pretty tough time. I have scheduled my op in two weeks. I've got to get it through too, although I am afraid of it. How are you doing after some time after your treatment? Nice to hear that you have been able to come back to your passion and career. What's your quality of life nowadays?Pease, do not mind if I ask, but did doctors gave you a chance to live till your eldery time? Thank you for your positive energy. Keep going this way!
@rashor100
@rashor100 5 жыл бұрын
Give me a message ive also just had a Radical total gastroectomy with d2 dissection.
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 3 жыл бұрын
Hi Jan, So sorry i've only just seen your comment! I'm doing really well thanks. I'm back to work and life is good. How are you getting on?
@janjankowski3270
@janjankowski3270 3 жыл бұрын
@@JimmiClarkeDeeperIntoBass Hi. It Has Been quite time since I had my opp. I had also chemo and radiation after the operation. During this time my daughter has been born and she makes my life brighter. I live with hope that's everything goes in the right direction. Jimmi, how often do you do follow up tests?
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 3 жыл бұрын
@@janjankowski3270 I was discharged a couple of years ago. They were happy all the cancer was gone and just said if you feel ill give us a call. So I have no more test appointments etc.
@janjankowski3270
@janjankowski3270 3 жыл бұрын
@@JimmiClarkeDeeperIntoBass I am happy for you these are realy great news. I wish you things keep going this way. Actually, how long arę you after the diagnosis?
@SPOPADOM
@SPOPADOM 4 жыл бұрын
Where did you go for your operation? My father is same situation plus he's 73
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 4 жыл бұрын
emran uddin Hi, my operation was at the Norfolk and Norwich Hospital. UK.
@owoowo9761
@owoowo9761 3 жыл бұрын
Hello how is your father please?
@ThePrasanna90
@ThePrasanna90 3 жыл бұрын
Hello Jimmi how is your health now there's no update from you
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 3 жыл бұрын
Hi, I’m doing great thanks, here’s an update kzfaq.info/get/bejne/frV4pLCdmJjDZqc.html My videos are all about music now and not cancer as that was 4 years ago so cancer isn’t on my radar (thank God) anymore. Hopefully that helps to show that there’s life after cancer.
@mjoh6971
@mjoh6971 4 жыл бұрын
Is gaining weight impossible? My Dad removed is stomach 5years ago , and I'm concerned about his health.
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 4 жыл бұрын
Mj Oh I’ve gradually put on 14lbs in the last 18 months. So it’s not impossible. I do love food though!!
@mjoh6971
@mjoh6971 4 жыл бұрын
@@JimmiClarkeDeeperIntoBass wow that's really great:) Can you tell me your routine for gaining weight?
@owoowo9761
@owoowo9761 3 жыл бұрын
Please how is your dad now?
@k4kgaming418
@k4kgaming418 Жыл бұрын
How long vomiting and burning sensation was there after gastrectomy?
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass Жыл бұрын
I didn’t really suffer with that. How much food are you eating? I’ve heard that people are now encouraged to eat lots after a gastrectomy to stretch out the small intestine. I was told to eat little and often so that I wouldn’t be sick. Maybe worth speaking to your surgeon or the team treating you.
@k4kgaming418
@k4kgaming418 Жыл бұрын
@@JimmiClarkeDeeperIntoBass ok thanks for suggestion.....will do so
@drstrange2619
@drstrange2619 2 жыл бұрын
Are you ok hows life ?
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 2 жыл бұрын
All good thanks!! Still going strong!
@crism.t3344
@crism.t3344 4 жыл бұрын
What is your update now how are you doing
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 3 жыл бұрын
Hey Cris, I doing good, i'm in a good rhythm of life, working full time and enjoying life and very positive about the future.
@jahangeerkhan8861
@jahangeerkhan8861 4 жыл бұрын
Hellow jimmi my mother have same problem her stomach also removed I need some advice from u regarding food to eat and daily basis activities
@satnamrandhawa7039
@satnamrandhawa7039 4 жыл бұрын
When had surgery your mother
@jahangeerkhan8861
@jahangeerkhan8861 4 жыл бұрын
@@satnamrandhawa7039 already done now she is in home but going too much week and problem in eating and bowl problems eating still with feeding tube and small fluid with mouth
@satnamrandhawa7039
@satnamrandhawa7039 4 жыл бұрын
@@jahangeerkhan8861 where r u from
@jahangeerkhan8861
@jahangeerkhan8861 4 жыл бұрын
@@satnamrandhawa7039 I from kashmir
@satnamrandhawa7039
@satnamrandhawa7039 4 жыл бұрын
@@jahangeerkhan8861 sir mai punjab se hun mera bhi 80% stomach removed hai last six months se
@owoowo9761
@owoowo9761 3 жыл бұрын
Hi how are you doing now please?
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 3 жыл бұрын
Hi, I'm doing really well thanks. Life is great and things are good. It was a strange season, with a few challenges, but life is very enjoyable now.
@sandeepkrishan3223
@sandeepkrishan3223 3 жыл бұрын
Which hospital you remove stomach
@JimmiClarkeDeeperIntoBass
@JimmiClarkeDeeperIntoBass 3 жыл бұрын
Norfolk and Norwich University hospital.
@sandeepkrishan3223
@sandeepkrishan3223 3 жыл бұрын
@@JimmiClarkeDeeperIntoBass I am from India my father suffering from stomach cancer final stage. Please tell me about coast
@archanav1098
@archanav1098 2 жыл бұрын
Hi sir what stage did u came to know can u send ur doctor no
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