Hi Chris, Thankyou for sharing your family's experience with Huntington's Disease, that sounds like a very challenging position for you, your family and children. Families unfortunately find out about the presence of Huntington's disease at many different stages of their lives, and it affects them in many different ways. At Huntington's Victoria we try and provide the community with options to make informed choices about their own future and the future of their family's. Please do not hesitate to reach out to our services if you and your family need any support. -HV Information Team

I agree. There is no cure and it will be complicated to find a cure. Families need to be honest, stop hiding this. You should not be ashamed of carrying the gene as it was not your fault. But it is your fault if you hide this from your partner. It is also your fault if you selfishly bring children into the world thinking you have years and by the time your children may get Huntingtons there will be a cure. Most likely there will not be a cure in the next thirty or forty years. And it now seems that young adults and even children are getting Huntingtons because when the gene is passed on, it changes and now people are getting it earlier in life. Stop reproducing without either testing the embryos or not carrying to term a fetus with the gene for those who believe abortion is an option. Or adopt. End this now. If this is done, this stops now. Fifty-fifty is way too high a chance. It is a horrible disease and people do not die right away. They can suffer in a nursing home for ten or more years in the later stages.

Thank you.I've been saying that for years...This disease could be eradicated if people at risk would get tested before having children...And now we have PGD!! We can stop this horrid disease❤

​@@huntingtonsvictoria3391 It's so important to provide people with options to make an informed choice about their Own Future and that of their families. It's never a easy decision to make. Thankyou HD Vitoria, Australia. There is also Chorionic Villus sampling (CVS )

I'd rather c s freeinstead of narrative these ppl didn't ask for HD addict chose it

We are pleased to let you know that PGD through IVF is now subsidised by the federal government for those members of the community that are impacted by rare diseases.

Absolutely. But if you are positive do you really want to put your children through the torture and responsibility of watching the disease slowly progress and having to become caretakers for years on end? That's another issue.

Mam it I'll cure my father have dis disease I HV fear Abt dis disease to me

Thank you for sharing your experience, please do not hesitate to reach out to us if you need any support huntingtonsvic.org.au/contact/. We also have an online peer forum that is a gathering for community members directly impacted by Huntington’s disease. Regardless of your status whether you are diagnosed, at risk, gene positive, gene negative, a carer or friend HCC is the space for you. Whatever your location, you can connect with others who have similar experiences and share stories with each other. Please find included the link to the forum huntingtonsaustralia.com.au/

Prayers. In my family also.

Thank You all so ery Sweetly n my prayers to all of you as well, Sadly M husband lost his battle with HD almost 4 yrs ago now

Sophie, thank you so much for your support of this family it means a great deal to them.

but not for Huntington's. Great logic 🙄

Until there is a cure and/or affective treatments, this is the only option that HD families have to stop the defective HD gene passing down to the next generation. Thank you for your support of the HD community.

Thank you for your support and I hope you and your brother are receiving the support that you need

Hi Theresa, thank you for your contributions. We are now fortunate due to the efforts of the Payne family in this KZfaq video, that members of the Huntington's community in Australia can apply for funding that enables them to access PGD. Ultimately, we are all focused on supporting researchers to find effective treatments and eventually a cure.

Yes but who wants to bring a child into the world knowing they have a 50 per cent chance of inheriting this life limiting terrible disease.It is the only way to get this disease eradicated from the human population.Surely it is the right to do.

@@ireneyoung8696 No, we are not to make that decision. Besides, only the people with HD themselves are able to evaluate whether their life is worth living or would they rather have not been born at all.

@@Johanna040713 who would really want to take that chance.With that view Huntingtons will aways be in families.They know that and so do we.

Thank you for your support and understanding. It is always difficult for families impacted by HD to share their personal experiences with a public that is unknown to them.

Well living 30 years is better than not living at all. But an embryo is such an early stage, it is preimplantation. You would screen it then. You would chose the healthy embryos. And the resultant baby would live a healthy care-free life, not suffer for ten to twenty years dying a horrible death. If you have seen end stage Huntingtons where these people suffer for years, you might be inclined to take measures to prevent this. The other option is not to have children at all in which case Natasha would also not exist. The only responsible thing to do is not to selfishly have children who carry the gene. They can also adopt if they feel it is immoral to screen the embryos. P.S. Tay Sachs has been largely eradicated in the Jewish community because of genetic screening and testing. This is a similar disease, only it happens later in life and takes longer to die.