Thank you!!

Very good advice, Carrikartes ! Maybe taking some iodine might help too, as the thyroid need it for your hormones to balance. Dr Eric Berg and Dr Mindy Pelz both have some good ressources on their channels to help with eating right and balancing the hormones. Maybe you should also try to avoid pollution in your home, all the products that wreck the hormones are everywhere. (mostly plastics, ban them from your kitchen at least)

This is really interesting. Where did you get this information? Google isn't helping me! I have Gilbert's Syndrome which means my liver doesn't break down estrogen properly and I'd love to find out more

@@Melstarry my husband had interstitial edema and I was researching about that. It took 3-4 days to find out about that. I have found and along the way I found out about lipedema. I usually start with the problem listed first and deficiency listed next (edema is related to what vitamin deficiency?) Gilbert syndrome is related to what vitamin or mineral deficiency? "Vitamin levels Studies conducted so far suggest that subjects with GS may have lower levels of vitamin D and folic acid than control subjects, having these levels inversely correlated with bilirubin levels." In that case I would start by getting methylfolate (you probably have the MTHFR genetic variation also that slows down methylation and taking the unmethylated form might actually make things worse). Recently I have been researching a little on using pure lanolin topically instead of oral supplements but I need to research that more, for now it is a theory. Calciferol is the activated form of Vitamin D and I am wanting to get that for my husband or maybe some transdermal patches. I believe I heard a doctor on KZfaq mention that the liver uses selenium to break down estrogen in the liver

@@Melstarry I heard a doctor mention it in a talk/lecture. I was researching my husband's interstitial edema (took me about 4 days to find a solution) and along the way researched lipedema. The doctor mentioned a deficiency in selenium in relation to lipedema and I knew about the storage of excess estrogen in fat for a long time already so I researched more on it. I usually start with the problem and look for deficiencies related to the problem. This has greatly reduced my research time. For you I found this "Vitamin levels Studies conducted so far suggest that subjects with GS may have lower levels of vitamin D and folic acid than control subjects, having these levels inversely correlated with bilirubin levels." So supplementing with methylfolate would probably be best. You probably have the MTHFR genetic variation which impairs methylation (@60% of the population has it). All non organic grains are fortified with folic acid by law which can further slow down methylation in people with MTHFR. So only organic grains or better yet cut out all grains. I would also buy calcifediol the active form of vitamin D. It can readily be used by the body. You probably also have trouble converting vitamin D to it's active form. Always good advice to go as low carb as possible when dealing with any health issues and avoiding all seed oils. God bless

We know exactly how you feel @Robin94123! Lipedema so common you see it everywhere once you know the signs, yet doctors just don't know and, if they do know, they don't think there's any hope. Have you found my conservative treatments playlist? kzfaq.info/sun/PLGrmXtIzhSGJ8yMVrvzsS0IlDdZisLuKS There are a lot of things we can do at home to start feeling better. Let yourself have as many good cries as you need to first, though. I certainly had grief over "what could have been my life" at the beginning of my journey. The good news is you found your Sturdy sisters ❤❤

I agree. Totally me too. Everything resonated. Even the flexibility which had caused knee issues.

I know how you feel 😭 I’ve never worn shorts due to the insecurity..hate it!

At 67 years old and just now finding out about this...I know how you feel. All the years of beating myself up for being "thicker" than everybody else, all of the sparky remarks about my weight and my big arms etc., all of the sadness at what could have been especially now since I'm older and feel like I'm climbing an uphill battle to try to fight for myself while feeling awful every day.

Me too! I just discovered it, for me. I’ve heard of it from others. Never considered myself. I’m in tears.

Even if you wear compression stockings, this may relieve your pain and manage it - particularly made to measure stockings (but they are expensive)

@@JanetMacCallum Thank you for your thoughtful reply. God bless.

​@@raedarden9830oi 3:11

There are people in their 80s that start a keto or carnivore diet who lose large amounts of weight and who reverse diabetes and autoimmune disorders. It may be worth a try even if you simply lose some weight and are less sensitive to pain.

@raedarden9830 it makes a huge difference doesn't it? Just knowing that you aren't crazy and there IS something wrong with you. Sending you big hugs. As others have said, there are still things you can do that will improve the quality of your life quite quickly. Have you found the videos in my Conservative Treatments playlist? kzfaq.info/sun/PLGrmXtIzhSGJ8yMVrvzsS0IlDdZisLuKS 💕

why carnivore?

Carnivore with lots of bonebroth ( I make a lots of in my biggest size of Instant Pot)❤️

Bio identical hormones? Which hormones and what for?

@@joanneclark8256 Mostly because clean meat (grass-fed, grass-finished, organically-raised chicken, etc) has no hormone disruptors in it and is the healthiest way to eat.

@@evab2274 I've just started using bio-identical estriol and progesterone from Platt Wellness.

@meslaura you found your people! Welcome to the sisterhood

me too i nearly hit the roof and i got lyphadema in both legs

Hi Kait! I am happy to report that about a year ago I bought my first pair of knee boots. Torrid has nice extended calf ones with some elastic that makes them forgiving. I honestly cried. When I lost weight previously through the cut-calories-and-exercise routine it hadn't changed the size of my legs... but keto did. Now I want to go put on my boots and prance around my living room *right now* :D

I found a pair of ankle boots size 9 the previous winter, this winter I couldn't zip them up, with no weigh gain. Greetings from South Africa

Eat less

@@2okaycola Lipedema is resistant to dieting. Although some have success with Keto, which as I said in my comment, doesn’t work for me. If you’re going to troll, please know about the subject.

@@2okaycolaeducate yourself more! Keep BS statements to yourself! Remember the golden rule about saying “nice things or nothing at all”!

​@@2okaycola...crawl back under your rock & shut up.

Sigh. Here we go again with the misandry crap. It's getting really tiresome. Maybe you should do a bit of research into how many medical advances have been invented and developed by men in the last 300 years as compared to women. Get that chip off your shoulder and stop blaming men for your problems.

@@wingnut71 I think you missed her point. No doubt that men have made beyond count advances in science and technology and every other area in human existence. That was not in question. Pretty much every science, medical or institutional study has been done on MEN!! Yes! There heart, liver, brain, energy, hormones etc etc etc. There have been more studies done on women but this is in the infancy compared with men studies. Some women studies were conducted off of the men’s studies. Look them up. We need to catch up.

​@@wingnut71women were bullied in STEM fields into the 1980's.

@@wingnut71 I agree the initial comment is dramatic, domestic violence isn't really comparable to gender bias within medical practice although they are both very real issues. However your argument is a double edged one, men also suffer from gender bias when they have a typically female associated disease, furthermore OP's comment that diseases effecting women are typically under-researched is correct, while making no comments that suggest they are upset that men have developed medical advances, rather the opposite that more medical advances are greatly desired! No doubt the gender of these pioneers is less important than the research they contribute to society.

I have Lipedema, I have been through physical violence 50 years ago from a (many years ago divirced) x-husband . They are not the same thing! I am so sick of brain washed women whining that it's all men's fault, NO IT ISN'T! We as women make BAD choices...wanting the bad guy because they are exciting! We as women & men as well need to RESPECT OURSELVES! Realize, God loves you He made you to love Him and find respect for yourself, because you are LOVED by GOD!!

You have understood what it takes to be liberated

Hi @faafo1976! Welcome and you are so welcome 😊 It doesn't seem like it at the beginning, but it gets easier ❤

That’s very interesting. I wonder if that’s why every dehydrated person whom I know (like my Mom, who is extremely dehydrated!) more often than not gets a beep. I wonder, is it a visual map or is it a percentage of fluid by weight?

I am wondering if there is also an outline component....? Since there are such abrupt changes at the ankles, wrists, and knees? Looks like you packed something tight and wrapped it up, even though it's just your own fat.

Amazing.

What can you do about it?

Did you find out from your Dr. If you do have Lipedema? I’m 66 and going to ask my Dr next Monday about it. ☃️

Yes Airport security gets touchy Because of my inner thighs😮

How did your consult with plastic surgeon go?

Big hugs. You'll get through with getting better. I realised that this is what up with me when I stared tracking my calories a few years ago for fun.... I naturally undereat apparently. I was closing out the day at about 500 calories short of the deficit they set for me. I hit me that this fat must be something else because I'm actually pretty active and I don't overeat... So what gives. Now I'm looking for what mineral I'm probably short on, or what toxic mom drama I need to release because those are like suspects.

Hi Melissa! Thank you so much for your kind words and welcome to the sisterhood 😆 It's so wonderful to finally know what's going on and even better when you start to find other people who can relate. Good luck with your doc. If he or she isn't helpful... next! Keep looking until you find someone kind and supportive. You deserve that. Welcome to the channel and keep us posted as your journey progresses

Right?! I know that September/October fall feeling when everyone suddenly comes out in cute knee-high riding boots and all you can do is dig around for some wide booties 😆👢❤❤

I know, right?! They should be using those machine as diagnostic tools 😂🙄 Starting to get the fluid out of my arms and legs seems to have helped a lot. Knowledge is power! 💕

@@sturdywoman Absolutely!

How does it set the machines off? 😮

Yes. Agree.

After being told that diets don't work with lipodema, I have succeeded in losing close to 30 pounds through 16:9 fasting, riding my bike, and eating a plant-based diet. I am 5 ft 6 inches and weigh 115. I know other people have been successful with Keto. Don't give up hope!

I want to add that in spite of all that, I have had cellulitis lately, so although my weight and size is "normal", I still have lipodema!

​​@@patriciagreathouse9840This could make one feel hopeless, if after all this, you still have lipodema. Maybe there's still too many carbs in your plant-based diet?

​@@patriciagreathouse9840 Perhaps your plant-based diet contains too many carbs and maybe try keto instead for the lipedema?

Hi @kathleenthomas1971! They do make it so scary, don't they? I really had some good cries at the beginning of my journey, but I hope Sturdy Woman can give you some light at the end of the tunnel. Sending big hugs and hoping you continue getting answers and feeling better day by day ❤❤

@kellyanng2215 you found your people! Thank you for being here. Knowledge is power

I always approach those conversations like “I found this on the internet, my symptoms line up. I’m not diagnosing myself but these symptoms are a concern for me and I’d like to discuss this possibility”

I figured out a rare disorder by watching a TV show....my surgeon said it was the 3rd time he heard that in a month😢

Ditto!!

Me too

Me too

Me too

As long as you’re doing your lymph drainage monthly, you won’t have actual lipodema problems or issues later on.

@@dudemorris7769 uhhhh, I am already in BIG trouble. Hoping to turn the tide.

@@dudemorris7769how do you do it?

Bravo to you for being persistent @leelahickman3820! Doctors know so little about the lymphatic system that we often have to help educate them. I have a book linked in the comments and also a brochure (free!) that I like to take with me to new doctors. Good luck! It certain sounds like you could have some of the symptoms. Have you seen this video from FDRS? I found it very helpful kzfaq.info/get/bejne/ip1-qdWYsbLQiI0.html 💕

I'm in the same boat. Maybe finding a Specialist in this area for eval.

Ck out Dercum’s Disease

Hi Kam! Your kind words make me blush every week - thank you. I am so glad you continue to find the channel helpful and that you sound like you're falling into a great self-care routine. I hope each day keeps getting just a little better. Giant hugs!!

I am sure I have it. Until my 20's no sign of it but when I got a sit down job in a bank, my legs started to get heavy. A low fat diet in my 20's got my legs down. However, never since have I got them down. I believe swimming can help

@MarlenevT thanks for watching!

Keto helps you burn fat, since your metabolism becomes tuned to using it for fuel, instead of carbs. Maybe reduce your nut &/or dairy intake percentages?

Thank you! 🥰 I have my "days" too 😉

Omg! Sounds like you're talking about me.

I had a doctor years ago (1963) tell me to quit dieting when I weighed 140 lbs. He said if I kept losing I would be emaciated on the top, but still be heavy on the bottom. I didn't really realize that I had Lipedema until last year (and I'm 86) what it was. The boots are another factor. I never could find any that fit over my calves. I have blamed myself all my life for not having "what it took" to lose enough weight to get rid of the heavier legs. At last I have learned that it has never been my fault.

Yep, had one Dr recommend gut banding, I eat once a day if that, sometimes I can go without food for a week and only drinking water or coffee, never losing weight. So I told the Dr no deal, why would I gut band myself when I virtually starving myself and still don’t lose weight.😳 I am just learning about my hyper-mobility and the connecting issues that comes with it, wish I had known about this 30-40 years ago but it was not a thing then. All us grandchildren had hyper-mobility they knew something was not right when I broke my right leg in ‘76 once I got back to school after a year off I was band from all land based sports which only left swimming. I’m for ever tearing my the tendons in both ankles just reaching up to get something of the top shelf, Dad got a foot step to stop this now😹😹 this has to do EDS something to do with collagen lacking in my joints and tendons without the collagen they can not stretch. I have started ozempic injections and funny enough I have already lost 2kg this is a last ditch try to get the weight of me so I can have a full knee replacement and hernia surgery. I have been bouncing between 130-135 kg for the past 4 years can not walk far without pain or getting so tired I have to sleep to recover some energy. When I went into menopause I went from 153kg right down to 130kg in the space of 18 months, no diet, no exercise nothing just working out in the garden like I have been doing, but I am not even able to do that anymore. Now I have the top half of my body size 18 waist and size 20 bust(normal for me) but from my waist down it’s 22 butt area up to 24 hips I have never worn boots off the shelf I had to have motorbike boots hand made to fit me.(cost a fortune) I started puberty at age 9 I was already 5’10 and well endowed wearing adult bras, was nicked named the Jolly Green giant after the ad that came out around ‘72-3 in the UK. Now that I’m 60 I’m learning so many things that have impacted my life that they are only just figuring out in the past 10 years

The big fat butt bustle - please explain what that is