Subtle Symptoms of Multiple Sclerosis

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Multiple Sclerosis? Even So, It Is Well

Multiple Sclerosis? Even So, It Is Well

Күн бұрын

Sometimes it is hard to describe our multiple sclerosis (MS) symptoms. There are MS symptoms that can be vague, subtle, and they can come and go. This can make it difficult to diagnose MS. In this video talk about some of the subtle symptoms that we may experience and how they may make it hard to diagnose MS or delay the diagnosis.
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Пікірлер: 365
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Do you have other subtle symptoms associated with your MS?
@Strutingeagle
@Strutingeagle Жыл бұрын
I have tingling in the hands which I think is circulation related. Had a bout of dizziness like I have never had before for a few days fairly recently. Brain fog and sometimes being tired for no reason. Weird twitches that come and go. I had a dose of hellachious cramps in my legs that were extremely severe at night. I couldn't get the cramps to go away by stretching the muscles like a normal cramp. One patch of numbness on my back that comes and goes. So far though if these are related to MS I can live with that. The eyes though do cause problems.
@frenchtoast7742
@frenchtoast7742 Жыл бұрын
You need to have lesions on the brain or spine to have MS per Mayo Clinic and many hospitals around the country. This needs to be mentioned. These symptoms are of many diseases of Myesthenia Gravis, Parkinson’s, ALS, etc . Don’t mislead viewers.
@frenchtoast7742
@frenchtoast7742 Жыл бұрын
@@Strutingeagle your symptoms are one of many symptoms of other diseases and Nuerological diseases/ disorders. Don’t let this video scare you into thinking it’s MS . See your Nuerologist/ Specialist for a evaluation.
@Strutingeagle
@Strutingeagle Жыл бұрын
@@frenchtoast7742 This video or others like it do not have me scared I have it. I have only recently started looking into it again because my brother has been diagnosed with ALS. Some of these MS videos pop up during research into that. Even if I did have MS, that would be nothing compared to those with ALS. No matter what your situation is, it can always be much worse.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
@Struttingeagle Thanks for watching. So sorry your brother has ALS. That is a tough diagnosis. I hope you find some relief from your symptoms.
@elixirix
@elixirix 5 ай бұрын
noise and bright lights totally do me in.
@EvenSoItIsWell
@EvenSoItIsWell 5 ай бұрын
Thanks for watching and commenting. I am currently in NYC and I think the hum of the city in general is affecting me. Fatigue and a bit more unsteady.
@KAT-dg6el
@KAT-dg6el 3 ай бұрын
This could also be a sign of being on the autism spectrum.
@SherisBagofHolding
@SherisBagofHolding Ай бұрын
I've had all of these symptoms sadly. I left the workforce at 18 when I was diagnosed. It was aggressive and world shattering for my family who cares for me.
@l.a.w.79
@l.a.w.79 7 ай бұрын
How many times did I blame my dizziness on dehydration? How many times did I blame tripping or stumbling on my shoes? How long did I struggle with depression? Prickly pain? Well, that had to be dehydration right? Fatigue? Oh I must have to take vitamins. I write down my schedule? How can I forget what I have to do each day? Why can’t I recognize where I am even though I’ve been here so many times? The list goes on!!!
@EvenSoItIsWell
@EvenSoItIsWell 7 ай бұрын
Thanks for watching. So familiar to so many of us! We have all blamed symptoms on something else. I think it is human nature.
@positivemser2009
@positivemser2009 2 ай бұрын
Me too! I have PPMS and told by doctors I ‘don’t drink enough water’ ‘getting too stressed’ ‘working too hard’ ‘have a damaged back due to childbirth’ ‘need to eat more fiber’ and get dizzy due to ‘low blood pressure’. I was also told I ‘suffer with migraines’. Maddening
@coleworldcole9438
@coleworldcole9438 10 ай бұрын
When you described the tightness is when I said ok I’m not crazy I haven’t even told anyone about that yet.
@EvenSoItIsWell
@EvenSoItIsWell 10 ай бұрын
No you are not crazy! Thanks for watching!
@Revolutionary711
@Revolutionary711 10 ай бұрын
I have all the symptoms. The dr at the ER said he thought that was what it was but my family Dr says it's ptsd.😔 I love your videos. They are very informative.
@EvenSoItIsWell
@EvenSoItIsWell 10 ай бұрын
Thanks for watching! Definitely ask your family doctor for a referral or seek one on your own. Being our own advocates is very important. Perhaps your family doctor is right, but perhaps they are wrong too. Keep me posted!
@eddiedavis2273
@eddiedavis2273 2 ай бұрын
When we are 100% sure of our bodies and what we are going through and that we have self diagnosed ourselves with MS with all of the symptoms and with all of the telltale signs, before during and after: why are our doctors so dense about it!
@Momma_Gee
@Momma_Gee Жыл бұрын
I'm 50 and am mid-diagnosis. My neurologist knows it's MS, just waiting on my cervical and lumbar MRI to know my progression. After reviewing my medical history - ulcerative colitis, endometriosis, adenomyosis, hypertension, a wreck that damaged right knee, a self-diagnosis of ADD, blah blah blah, he suspects that my elevated pain tolerance, my writing off cognitive issues as ADD,and how I have just accepted fatigue as a permanent fixture of my life--- that I've probably had MS for years. I have to wonder how many others do the same, and how much of myself I would still have if MS wasn't such a sneaky B***! THANKS. This felt like an appropriate vent area for this 🥹
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching, “a sneaky B***!” Lol! You made me laugh! It can be sneaky… and subtle…and can come and go…. You might enjoy watching this where I talk a little about how I kind of ignored/accepted my symptoms kzfaq.info/get/bejne/sN2XqcaY3Kq4aH0.html
@christineyleary1
@christineyleary1 Жыл бұрын
I've come to utilize "speech to text" all the time. Or just printing things out on my printer rather than writing. Like grocery lists. Very convenient! But I am always conscious of keeping muscles exercised, knowing that "if I don't use it, I'll lose it!"
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
100% agree with the use it or lose it mentally!
@christineyleary1
@christineyleary1 Жыл бұрын
I just want to make the point that, although some muscles are "off grid," we can strengthen surrounding muscles to help achieve those difficult tasks. 🙂
@ambermariemalone
@ambermariemalone Жыл бұрын
I'm so glad I found your channel. Sending you so much love and gratitude 🦋
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thank you, sending love and gratitude back to you!
@DoctorGretchenHawley
@DoctorGretchenHawley Жыл бұрын
This is a great video!🧡 These really are pretty sneaky symptoms, and I'm so glad you brought them up so people keep them in mind!
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks Dr. Gretchen! I appreciate you watching and giving feedback.
@DannaK247
@DannaK247 9 ай бұрын
​@theamberheardplaylist6768 not trying to be rude, but what the heck does this have to do with the subject at hand pray tell?
@carlosbarrea-martinez-dyer311
@carlosbarrea-martinez-dyer311 Жыл бұрын
Thanks sooo much for putting this together. I just subscribed !
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching and subscribing!
@rellyven4059
@rellyven4059 Жыл бұрын
Thank you. I had some of these symptoms but thought I was wrong.. this really helped me 💞
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thank you for watching. I am so glad you found it helpful!
@sherryleggett1612
@sherryleggett1612 Жыл бұрын
I have all but one of the early symptoms you listed. have never thought to tie them together before. Thank you for this information.😊
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
You are welcome. Please know that these symptoms can be associated with other conditions as well.
@jackiemoser782
@jackiemoser782 11 ай бұрын
Thank you for making this video. It really helped me.
@EvenSoItIsWell
@EvenSoItIsWell 11 ай бұрын
Thanks for watching! I am glad you found it helpful.
@kaylanugent5629
@kaylanugent5629 7 ай бұрын
I’m commenting again for the 2nd time today! Again, thank you for the video. You’re putting to words the feelings I’ve had for SO LONG. The compression in the bottoms of the legs, prickling pain, etc. it’s wild that you can put this to words because I explain my feelings to my husband and he’s like ….thats not a word…… so thank you. This is affirmative.
@EvenSoItIsWell
@EvenSoItIsWell 7 ай бұрын
Thanks again for watching! I am not sure if the doctors have suggested bloodwork yet to check for deficiencies, but two you may want to ask about are vitamin D and B12.
@rosabelacalderon6827
@rosabelacalderon6827 Жыл бұрын
You have a new follower 🙏❤️. I love the way you described all symptoms related to MS in your videos. I have watched two of your videos and I have all the symptoms you’ve described and others too. This confirms that I am not that crazy 😔. I also have other conditions such as herniated/bulging discs, bone spurs, and pinched nerves in my cervical, Thoracic, and lumbar/sciatic areas, cervical disc disease with myelopathy, lumbar disc disease with radiculopathy, spinal enthesopathy and stenosis in cervical area, Fibromyalgia, and recently diagnosed with TOS, Cervical Dystonia. Have bursitis, tendonitis, tear, bone spur, etc. in different areas in both of my shoulders 😔, multiple join pains, and bilateral numbness, tingling, burning, etc. of arms, hands, legs, and feet. I have some doctors against any surgery to be performed on me because they say I will be in even more pain of what I have right now. I always said I have MS, but my neurologist said I don’t 🤷🏽‍♀️, but I keep researching and looking for solutions. I am afraid I am not taking the right medication I should take to stop or delay the condition. The medications I am taking for Fibromyalgia just put me to sleep, make me drowsy, cause more vision problems, and make my body and mind even more tired. Depression and anxiety is horrible. I have faith in God and still in the Doctors that I will get the proper treatment I deserve to feel better. It will not surprised me if I am diagnosed with MS because I’ve been dialing with all of these symptoms for more than 10 years, problem is that every day it is getting worse and even more after having COVID last year. My problem is that when people look at me (55 years) I may not show my age and/or my conditions. But I will continue to advocate for myself as you said 🙏. Again thank you so much and God bless.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks so much! Welcome to the community! No, you are not crazy! Our symptoms are very real. It is just getting to the cause that can make us feel crazy. 😉 Keep asking for referrals or who to see next to get to the source of the trouble. As I am sure you are aware, it can take a long time to diagnose autoimmune conditions.
@Traythom3
@Traythom3 Жыл бұрын
This is an excellent video. I too have a hard time explaining or understanding MS symtoms. I so appreciate you sharing this information. Thank you & God Bless.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching Tracey! Glad you found it helpful. Please feel free to share it.
@kendregab7328
@kendregab7328 Жыл бұрын
Great video! I also feel warm in my face when I experience these symptoms: Muscle aches, joint pain, weakness in arms I can't lift them longer than 15 to 20 seconds before they start hurting and getting tired, muscle spasms, balance issues when walking, cog fog, speech difficulties where I stumble over my words and have trouble recalling words, nap straight after work, tremors when I'm feeling cold and not cold, tingling crawly feeling like a bug is crawling on me, cold feet and sometimes hands . I also have ADHD just diagnosed. I had an evaluation done in 2015. I was 21ish and saw a neurologist. He did the needle test on me where he stuck me with needles and tested different parts of my body to check my nerves (I forgot what that test is called). The only thing he found was my left side of my body is weaker than my right but nothing significant. Nothing happend after that. Now this whole week I'm experiencing all same symptoms I mentioned earlier again to the point where I was crying last night from the pain and overwhelming sensations. My mom suggested I'm probably dehydrated and that helped a little drinking water/ electrolytes. Can dehydration really cause all the symptoms I'm experiencing? Is this enough to seek another evaluation from a different neurologist? Should I see a different specialty doctor? I'm lost on what or if I should so something about this. Sorry this is long and thank you for anyone who can guide me 😊
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
I am sorry you are experiencing such difficulties. Yes, please seek another option. Keep advocating for yourself.
@catherinegregory3118
@catherinegregory3118 11 ай бұрын
Thank you so much for your videos. I’ve had MS for 23 years and I’m still learning.
@EvenSoItIsWell
@EvenSoItIsWell 11 ай бұрын
Thanks for watching!
@victoriarose4506
@victoriarose4506 Жыл бұрын
I have trouble with exercise since about 6 months before my MS was diagnosed back in November. Does anyone else suffer from extreme fatigue after exercise? I've been trying to take it easy with some slow walking because last time i pushed myself i ended up in bed the next day. 😕
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
It can be a challenge when we hear that exercise is needed but it zaps our energy. I find if I am eating well, getting good sleep, and practicing mindfulness it helps too. Thanks for watching!
@michellehaynie2241
@michellehaynie2241 Жыл бұрын
Everything you said I’ve been going thru. Since 2014 when I had my knee replacement surgery I’ve complained about a TIGHTNESS in my calf area. I was blown off. Cog fog- 100%, I can’t focus on anything work related. Omg thanks for this video
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching. I hope you feel better and you find answers!
@SwamiKripananda
@SwamiKripananda Жыл бұрын
Very informative. Loved it! ❤
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching.
@germanteacher80
@germanteacher80 4 ай бұрын
Very helpful. Thank you so much. I am a patient of Ms since almost 15 years. Finally my symptoms make sense.
@EvenSoItIsWell
@EvenSoItIsWell 4 ай бұрын
Thanks so much for watching. I am glad you found it helpful.
@avaanderson756
@avaanderson756 21 күн бұрын
I thank you so much for making your videos. They are very informative. I have been putting off seeing my doctor but due to your videos I have scheduled to see my doctor due to these symptoms.
@EvenSoItIsWell
@EvenSoItIsWell 21 күн бұрын
Thanks for watching. I am so glad you are going to get your symptoms checked. Please keep me posted on how it goes.
@kelitiner5389
@kelitiner5389 3 ай бұрын
Nausea, eye pain, R. Leg pain. Thanks for your informative videos. Very helpful to describe how and what I'm experiencing. Great job!
@EvenSoItIsWell
@EvenSoItIsWell 3 ай бұрын
Thanks for watching Keli. Sorry you are experiencing those icky symptoms.
@jazminetwittytherapper5624
@jazminetwittytherapper5624 Ай бұрын
Thank you 👋 😊
@dansmith9724
@dansmith9724 11 ай бұрын
Sounds alot like myalgic encephalomylitis/ME that was poorly named chronic fatigue syndrome in the mid 1980s. Research found low natural killer cell function, inflammatory cytokines, increased infections, white matter lesions on mri's. Even autopsies found inflammation in the brain and spinal cord of ME pts, yet it is still mostly ignored. Some treatments can help some people such as antivirals and antibiotics but its mostly symptomatic treatments if one can tolerate them.
@EvenSoItIsWell
@EvenSoItIsWell 11 ай бұрын
Yes! Very similar symptoms. Thanks for watching.
@angelaharris1112
@angelaharris1112 9 ай бұрын
I'm finally seeing a neurologist after canceling with two in the last few years as both times I moved out of area. Thank you for this video! I realize now I've been having symptoms even longer than I realized! I'm on my 3rd GP that suspects I have MS. There are worse things it could be, so I am prepared for diagnosis ...
@EvenSoItIsWell
@EvenSoItIsWell 8 ай бұрын
Thanks for watching. Good luck with the neurologist. Keep me posted.
@awhitediamond
@awhitediamond 5 ай бұрын
I have them all! My double vision hasn't went away for 30 years now. Have it 24/7. Fatigue and depression a big part of my life. I went to the doctors for years and they always took bloods and they were always fine. Finally one doc said it could be ms as the numbness I alway had in my feet moved up to my waist. Finally diagnosed in 2006 after mri. When people ask me what symptons I have, my mind goes blank as there is many of them. Great video. Could have been written for me.
@EvenSoItIsWell
@EvenSoItIsWell 5 ай бұрын
Thanks so much for watching. I think it very common for us to have multiple symptoms and for diagnosis to be a challenge.
@nicoleprue1295
@nicoleprue1295 11 күн бұрын
Ironic, I came across this video. I found old date book planners from 2017 until 2022. Not much written, making me wonder? Why the heck did I have this? Since 2022, I have been to every doctor imaginable. My datebook is full. I've had tests, numerous. But insurance dictates medical professionals, and even though I've requested MRI many times...2024, and still no success. I know something is wrong, but gaslighting has caused me to give up. Thank you for giving validation to those of us who have given up.
@EvenSoItIsWell
@EvenSoItIsWell 10 күн бұрын
Thanks for watching. I am sorry you haven’t been able to get answers.
@callieblake4896
@callieblake4896 Жыл бұрын
Thank you!!!
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
You’re welcome! Thanks for watching!
@Rocenante
@Rocenante Ай бұрын
Diagnosed exactly a year ago today, Previously in 2014 diagnosed with CIS.I had an episode of facial numbness and walking like I was drunk especially when walking over black and white floor tiles. Had settled down then my neurologist retired plus COVID changed the world and I was forgotten about. Fast forward to 2022 assaulted at work knocked out ,then over the next 16 months it was one thing after another subtle yes... Then one day climbing the stairs the pain I experienced was like getting shot in the hamstring area. I couldn't walk further than a couple of meters. Eventually I had a new neurologist and after he examined me he said in my opinion you've MS wow. Full head and spine MRI the next day. Results a fortnight later. Haven't worked since going through the process of I'll health retirement. Honestly everything you said in the video every single subtle symptom I had but put it down to work stress getting old or just tired. Male 55
@EvenSoItIsWell
@EvenSoItIsWell Ай бұрын
Thanks for watching. How are you doing a year in? The first year or two can be times of adjustment where we feel ALL the emotions and that is completely normal.
@MrZimmmy
@MrZimmmy 9 ай бұрын
I live with many of the symptoms you described in your video to varying degrees but the one symptom that is difficult for me to control is the unusual sensation of feeling wet, cold and damp legs, when they are DRY! The other sensation is waking up in the morning with an iced cold right hand. When I run cold water 💦 on the hand, the water feels warm. The truth is I don’t know what to expect from day to day but fortunately there’s one medication which helps me more than others.
@EvenSoItIsWell
@EvenSoItIsWell 9 ай бұрын
Thanks for watching. I have heard of others having the sensation of being wet and being cold. It is so interesting that nerve damage can cause such strange sensations.
@nartarlyiatremaynne1239
@nartarlyiatremaynne1239 9 ай бұрын
I concur with your sentiment 100%♡ Australia
@EvenSoItIsWell
@EvenSoItIsWell 9 ай бұрын
Thanks for watching.
@aklimaakter3059
@aklimaakter3059 Жыл бұрын
Thanks a lot
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching!
@themysticmuse
@themysticmuse Жыл бұрын
You're AMAZING!! 🥰😘
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thank you!!
@themysticmuse
@themysticmuse Жыл бұрын
@@EvenSoItIsWell 🤭😘
@johncullers
@johncullers Жыл бұрын
100% what I'm going thru...everything you said I'm feeling one thing that is driving me crazy is the burning sensation on my body started in my feet now everywhere Shoulder blades burn like coals on my shoulder blades ...touching my skin hurts to I have noticed my right side of my body is the worst ...I have no energy...sleep helps alot
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
It s amazing how MS can effect any part of the body, isn’t it? Thanks for watching.
@chlloolou
@chlloolou 11 ай бұрын
i’m currently in a phase of noting and recording many little weird signs i’ve been having - which when i’ve researched, have pointed to ms (or some type of nervous condition). the main one recently being a persistent thumb twitch that lasted a month and tremors when bending the same wrist. i strongly feel that my cognitive abilities have been decreasing over time - my short term memory is terrible, i really struggle to relay or note down new information or just speak from memory in general - i can’t talk a straight sentence basically. i had one scary instance of intense pain going down one side of my head down to my teeth (lasted about 10 seconds) - that was very alarming as it had never happened before but also hasn’t happened since. the list goes on but for years, specifically since a severe vertigo episode that lasted a day, i have not felt the same - always feeling tired, on the weak side, just off in general. but taking note and recording twitches etc should help in the future. i just feel a little silly calling the doctors about it as i’m quite young and i don’t feel that my symptoms are persistent enough, i know it would be a case of waiting and seeing how it goes. very informative video though, thank you!
@EvenSoItIsWell
@EvenSoItIsWell 11 ай бұрын
Thanks for watching. Try not to feel silly calling your doctors or thinking you are too young. MS may strike between the ages of 20-50. Write down your symptoms and bring them with you to the doctor. They may be able to connect the dots and get to the bottom of your symptoms. Don’t be afraid to advocate for yourself and ask for second opinions or referrals too! Keep me posted! This video may be helpful too kzfaq.info/get/bejne/sN2XqcaY3Kq4aH0.html
@disneybunny45
@disneybunny45 11 ай бұрын
Undiagnosed, the top of my right foot developed numbness about a week ago after some excruciating occipital neuralgia pain. Its so subtle, I can still feel but its different when compared to my left foot.
@EvenSoItIsWell
@EvenSoItIsWell 11 ай бұрын
Thanks for watching. Definitely get it checked out. There can be many conditions that can cause neurological symptoms.
@disneybunny45
@disneybunny45 11 ай бұрын
@@EvenSoItIsWell I am! Like I said on an old comment of mine (on another video), I am getting a cervical spine MRI in a week. I really hope this provides some answers. I truly don't want it to be MS, it's a terrible disease and I know it causes so many people so much pain and sadness, but it feels very likely.
@EvenSoItIsWell
@EvenSoItIsWell 11 ай бұрын
Many, many people live well with MS and similar conditions. Wishing you the best. Keep me posted.
@APeacefulHeart
@APeacefulHeart Жыл бұрын
A have had weird symptoms for years but just recently have been taking the falling over thing more seriously. Well losing your job because you can’t stop falling over will do it. I thought it was all low blood sugar all this time but was recently told by a Doctor I don’t have hypoglycemia. When googling the causes for falling over MS came up and when I looked up the symptoms it was shocking. I have dealt with problems for years it would be a relief to finally know whats wrong.
@EvenSoItIsWell
@EvenSoItIsWell 11 ай бұрын
Thanks for watching. I am sorry you have had issues with falling. I hope you get answers soon!
@lolotims3093
@lolotims3093 Жыл бұрын
Funny you mentioned looking for blisters, I was convinced I had a blister on my heel as it was so sore but definitely no blister there. I’ve checked several times but no blister has snuck up on me. When the weather is warm I frequently feel like it is raining, phantom rain syndrome I call it 😂
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Oh interesting, phantom rain! That is a new one for me.
@hollycohoon9239
@hollycohoon9239 Жыл бұрын
I get that too feels like drops of rain hitting me but nothing really there.
@keishamurray2711
@keishamurray2711 8 ай бұрын
I can relate to the many years of doctors of many specialties. I am finally getting my first MRI to "rule out" MS. I'm not so sure it will be ruled out. I have pretty much every symptom you just listed and many more. I have been going to doctors for over 10 years with many of the same complaints and seen ortho, GI, rheumatology, hematology (had a PE and nearly died), physical therapy, gynecology, urogynecology.....and probably more.
@EvenSoItIsWell
@EvenSoItIsWell 8 ай бұрын
Thanks for watching. Wow, that is a lot. Keep advocating for yourself. Auto immune disease can be tricky to diagnose. Let me know how it goes.
@user-er3uf8ls5n
@user-er3uf8ls5n 4 ай бұрын
Evenme I been hundreds times to doctors and to A&E for years nearly 5 years and they always send me home hundreds times they keep saying you are depressed they never did mri for me . Even in my school at year 9 i start falling and always my legs broke . I been to northern general hospital in Sheffield they are stupid and rubbish and to royal hallamshire hospital same rubbish then my dad arguing with them many times and making complaints and shouting then i seen one Arab good doctor he did for me mri and lumbar spine test then they found ms . I hate this hospital all doctors are stupid rubbish. After that a take me about 6 months to start treatment
@user-er3uf8ls5n
@user-er3uf8ls5n 4 ай бұрын
Even me I been hundreds times to doctors and to A&E for years nearly 5 years and they always send me home hundreds times they keep saying you are depressed they never did mri for me . Even in my school at year 9 i start falling and always my legs broke . I been to northern general hospital in Sheffield they are stupid and rubbish and to royal hallamshire hospital same rubbish then my dad arguing with them many times and making complaints and shouting then i seen one Arab good doctor he did for me mri and lumbar spine test then they found ms . I hate this hospital all doctors are stupid rubbish. After that a take me about 6 months to start treatment
@ExploringMS
@ExploringMS 2 ай бұрын
Thanks for sharing! I am managing MS for 9 yrs now..
@EvenSoItIsWell
@EvenSoItIsWell 2 ай бұрын
Thanks for watching! How are you doing after 9 years?
@ExploringMS
@ExploringMS Ай бұрын
@@EvenSoItIsWell I am doing pretty well.. have my chemo session once in 9-12 months. That has been working for me.
@ExploringMS
@ExploringMS Ай бұрын
@@EvenSoItIsWell I think am not too bad.. initially had multiple episodes but since I started taking Rituximab it has been stable.
@deborahegley477
@deborahegley477 Жыл бұрын
I was diagnosed with Fibromyalgia some years ago, but things have gradually got worse. With some of the symptoms you have described. My fatigue is the worst. I'm drained all of the time. No matter what I do. How can I ask my dr to look at my diagnosis again? Don't get me wrong, fibromyalgia is awful, but a lot of symptoms can overlook others. I live like a hermit with the fatigue. I hate it
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Hi Deborah. Thanks for watching. It is absolutely ok to ask your doctor questions about your diagnosis. You could write down your symptoms, how they have changed, and any questions your have about them. I agree fatigue is one of the most troubling symptoms. Check out my video with tips to manage fatigue kzfaq.info/get/bejne/hLuenJSHubiXj6c.html
@coleworldcole9438
@coleworldcole9438 10 ай бұрын
Or asking over and over it does all this
@heatherc2059
@heatherc2059 2 ай бұрын
I have had the honor of dealing with trigeminal neuralgia, and there is nothing subtle about that. I have a neurologist that I do like but after I had gone through two rounds of gamma, knife surgery, they only had relief for four months each and then the pain came back, and my neurologist said he was not a pain doctor and could not help me At that point, I went to a acupuncturist rather than The brain surgery that Could provide Relief bye placing a Teflon sheet over the trigeminal nerve. However, I did not follow through with that surgery and resorted to acupuncture which I wholeheartedly recommend After five visits the pain what about 90% gone and I could stop caring Orajel in my pocket all day !!!
@EvenSoItIsWell
@EvenSoItIsWell 2 ай бұрын
Thanks for watching. I am so sorry you had that happen. Others have told me how difficult it is. I am glad you found relief!
@denisewitmer8095
@denisewitmer8095 10 ай бұрын
I have cell phone viberations in my legs and stomach did anyone ever have this symptom?
@EvenSoItIsWell
@EvenSoItIsWell 10 ай бұрын
I have heard others report they have tremors. Perhaps your vibrations muscle tremors?
@denisewitmer8095
@denisewitmer8095 10 ай бұрын
thank you@@EvenSoItIsWell
@chrisnutter6933
@chrisnutter6933 16 күн бұрын
Yes…I have had diagnosed MS 20 years . A lot of times I think my cellphone is ringing “vibrating” and I realised it was elsewhere! Feels exactly like a cell phone vibration
@EvenSoItIsWell
@EvenSoItIsWell 16 күн бұрын
@chrisnutter6933 so fascinating that we can get that buzzing vibration.
@deedeescheuermann8027
@deedeescheuermann8027 Жыл бұрын
Thank you hon for this. My maternal grandmother had MS and my sister has it. I am pretty sure I do too; I have all the symptoms. I am an Exercise/Yoga Therapist, and I really think that is what keeps me in control with this disease. Thank you and Blessings. Deedee
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching. Exercise and yoga are so great to help with symptoms.
@derekrunsagain
@derekrunsagain Жыл бұрын
Yes, exercise beats drugs hands down. Those that go the drug route rarely seem to do as well, but then again it's difficult to convince most healthy people to exercise and so it's even harder to convince someone who's suffering physically!
@deedeescheuermann8027
@deedeescheuermann8027 Жыл бұрын
@@derekrunsagain exactly, my friend suffers so much, but she always tells me the pain is too bad to exercise!
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
@@derekrunsagain You are so right!
@MsTubbytube
@MsTubbytube Жыл бұрын
getting tired/zoning out during conversations
@winniecash1654
@winniecash1654 Жыл бұрын
That's me. I lose track of a conversation. 😮
@heatherc2059
@heatherc2059 2 ай бұрын
My trigeminal neuralgia was always on the left side of my mouth The pain was so bad that I always refer to it as the best diet you never want to have My pain was triggered by cold air, hitting my mouth, and luckily Fate worked in my favor that face mask had to be worn, so Nobody thought I was crazy for wearing the mask
@EvenSoItIsWell
@EvenSoItIsWell 2 ай бұрын
Oh interesting that a mask helps!
@Gspook19
@Gspook19 Жыл бұрын
great video :D feared i had MS but my doctor thinks its stress :D but thankfully this video gave me peace, i don't think i have MS no more, but will keep looking out for symptoms , you are amazing and a strong woman! :D
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching! Stress can do a lot of things, but keep advocating for yourself and seeking answers through second opinions or different kinds of doctors. It took about a year and 5 different doctors to reach my diagnosis.
@Gspook19
@Gspook19 Жыл бұрын
@@EvenSoItIsWell i will, my doctor said same thing, if it keeps happening he will send me to MRI
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
@@Gspook19 excellent! Try to keep a log, it may help in hindsight. For instance the past few days I have seen an increase in spasticity in my left leg. We have also has increased humidity and some smoke from the Canadian wildfires in my area. I am sure both have contributed.
@Gspook19
@Gspook19 Жыл бұрын
@@EvenSoItIsWell amazing idea! WELL IND Denmark humidity is insane allways , and we have a freaking hot summer
@vikkiprevette2934
@vikkiprevette2934 Жыл бұрын
Hopefully patients are on high orders of b12…. B12 I think is a huge part of correcting these symptoms..
@juliearcand2358
@juliearcand2358 9 ай бұрын
I've been so interested in your videos. I am going to get an app....I just have so many symptoms and besides having the rare Klippel-Feil Syndrome I have on my medical chart a hoard of "I think you have...diagnosis: lupus, myasthenia gravis, liver and kidney enzymes suddenly going way way up or kidney disease (liver enzymes went away and back to normal after 8 months???). I do have a brain tumor (meningioma only) in the right cavernous sinus that is quite large. I've been dealing with terrible migraines labeled cluster headaches and trigeminal neuralgia. I can't possibly have allll of these things!!!! I really believe that I have MS and that the severity of the cervical spine condition was constantly hindering the diagnosis.
@EvenSoItIsWell
@EvenSoItIsWell 9 ай бұрын
Wow! Keep advocating for yourself! I hope you find answers.
@releasingendorphins232
@releasingendorphins232 Жыл бұрын
Dee Dee was my favorite doll I had as a child. Anyway, my Dad had progressive MS. Within 10 years he was totally paralyzed. It was got wrenching to watch his pain. Has feet crossed and he begged me too pull them apart. I wasn't strong enough. Anyway, I am now dealing with some of what he did. I have been diagnosed with Dementia, but wonder if it's MS. Thanks for your valuable video and God Bless You.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching. I am so sorry you watched you dad go through that. I can’t give medical advice, but cognitive difficulties can definitely be a part of MS and is worth mentioning to your doctor. I have another video on foods for nerve and brain health you may find helpful kzfaq.info/get/bejne/q5x0i8uluau5YY0.html
@JD-di7gu
@JD-di7gu Жыл бұрын
This has been very helpful. I’ve had many of these and some like dizziness and balance issues with increasing regularity. I am awaiting my first MRI. I don’t know if anyone else has felt this but when my symptoms were bad, I was 100 percent convinced that I have MS and to be honest, I was relieved because it explained so much BUT…as my various issues improve I start to feel like a fraud. Like maybe I am just being a hypochondriac. My wife assures me that every symptom I have is valid and it’s becoming more problematic and more apparent but now I am actually worried that my MRI is going to be normal and I will be left with all of those questions again. I am not worried about the disease. I conquered Leukemia (CML) and have been receiving the all clear since 2000 and I have always been one of those “make the best of it” kind of guys and I am 57 so it’s not like I am planning my future. Did any of you feel this sort of “imposter syndrome” leading up to your diagnosis? Once you had convinced yourself that it all made sense?
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Feeling impostor syndrome is common. As well as self doubt. When our symptoms come and go it can cause us to question our symptoms. Your wife is right, your symptoms are very valid!
@JD-di7gu
@JD-di7gu Жыл бұрын
@@EvenSoItIsWell thank you! I am at the point in life where I listen to whatever my wife tells me because she is almost always right but it makes me feel better to know that you agree. Neither of us knew anything about MS up until about a month ago and since then we’ve been learning as much as possible. It really helps to have people living it and teaching it so I really appreciate it!
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
@@JD-di7gu I will share that I am 56 and my husband is almost always right! Sounds like we have similar households! 😉 I am glad that you are finding my content helpful. Keep,reminding yourself - even so… it is well…
@JD-di7gu
@JD-di7gu Жыл бұрын
@@EvenSoItIsWell Haha similar home situations! Well yay us for having smart spouses! Thank you again! Just got my initial MRI scheduled so moving in the right direction.
@vanessaallen8758
@vanessaallen8758 Жыл бұрын
I've felt imposter symptoms for the last 13 yrs. The worst is when doctors won't listen, once they know you deal with depression everything else is history
@ClementineShmementine
@ClementineShmementine 6 ай бұрын
Same 8:13 I have gotten diagnosed with adhd and migraines and lower back issues, now I have excessive neck pain
@EvenSoItIsWell
@EvenSoItIsWell 6 ай бұрын
It can be so frustrating can’t it?
@themysticmuse
@themysticmuse Жыл бұрын
They need you to do a Ted talk!!🙏
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
I actually have considered it! 😉
@radicalmama135
@radicalmama135 Жыл бұрын
Agreed!
@anyascelticcreations
@anyascelticcreations 11 ай бұрын
I'm not yet diagnosed with MS but some of my doctors are starting to suspect it. There is just too much that hasn't been explained by any of the other specialists yet. One of the most obvious to me, and to my PCP, is that I've been having periods of difficulty walking. Sometimes I can walk almost fine. But sometimes I feel as if I've forgotten how to walk. Like I have to concentrate so hard on every little movement to get my legs to keep stepping ahead. Like I'm both a puppeteer and a marionette. Like my brain and my body just don't quite connect. They're definitely not working in unison as one. And I've noticed that standing from a sitting position has become almost impossible. I've passed muscle testing from 4 different specialist. And yet my legs seem convinced that they can't get me up. Or more accurately, that my legs are not hearing the signal from my brain saying, "Get up!". Once I use my hands to push up on whatever is nearby my legs seem to hear the signal to engage. But until then they just stare back at my brain saying, "What?" As if they're wondering why my brain is so annoyed. And those are just some of the more recent things that none of the specialists have said could be from anyhing in their department. I do have a lot of other neurological stuff, too. Like my feet feeling wet so often that I've almost quit checking my socks. My spine specialist said it's not from my lumbar spine. But my rheumatologist said that weird neurological stuff like that could be from Fibromyalgia, which he diagnosed me with. Even he said that some of my weird symptoms are not from his department, though. Anyway, I could go on and on. And my PCP and I are going to send me to a neurologist soon. But I wanted to say that yes, I do relate to a lot of what you said. Most of it, actually. Especially the part about these weirenesses having the ability to come and go. I didn't realize they could do that. Mine definitely do. So I'm glad to hear I'm not just going insane. Thank you for making this video. I appreciate you.
@EvenSoItIsWell
@EvenSoItIsWell 11 ай бұрын
Thanks for watching. You are definitely not insane. I am glad you are going to see a new neurologist. Keep advocating for yourself and looking for answers. Autoimmune diseases can be very tricky to diagnose.
@CreoleCut4life
@CreoleCut4life 19 күн бұрын
I am so glad I ran across this video. As you were explaining your experiences with possible MS symptoms, it was as if you were reading paged from MY pain journal!!😮 Thank you for sharing !! I'm so grateful I found this video, she is truly awesome 👌 ❤ I hope and pray 🙏 that we ALL find the much needed diagnostic answers and support from our clinicians, during this frustrating and painful process. 😒 😢 God bless you in journey..
@EvenSoItIsWell
@EvenSoItIsWell 18 күн бұрын
@CreoleCut4life thanks for watching. I am so glad you found it helpful!
@mysticalsouls
@mysticalsouls 9 ай бұрын
I have all of these symptoms you speak of for years and my GP always put it down to fibromyalgia which I was diagnosed with 10 years ago, I finally got referred for an MRI and was found to have a lesion on the right hemisphere of my brain but nothing else evident on the scan so now I'm having a scan every 6 months and a review of results with a neurologist every 6 months, he says he cannot diagnose me with MS right now but looks like I may progress enough in the future to be heading toward a diagnosis........can only manage myself symptomatically
@EvenSoItIsWell
@EvenSoItIsWell 9 ай бұрын
Thanks for watching. Fibromyalgia can have many symptoms that are the same or similar to MS. It is pretty common to wait for a second relapse or appearance of lesions to confirm a diagnosis. Keep doing what you can manage your symptoms. There is so much we can do with diet, exercise, sleep, mindfulness, & supplements.
@ishouldbesleeping1354
@ishouldbesleeping1354 Жыл бұрын
Beautiful hair!
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks so much!
@catromero7950
@catromero7950 10 ай бұрын
I am not diagnosed (and having a horrible time getting in to see a neuro) but I'm starting to suspect MS, and thinking back it may have started in 1990 when I was 18. Since then I've had every blood test for autoimmune disease (mostly negative, a mildly positive ANA), been diagnosed with fibromyalgia, and seen countless specialists for various symptoms that might last for a few months and then vanish, occasionally resurfacing months or years later. My cog fog was dx as ADHD; whether that's right or not, the meds have been helpful. It's been frustrating and I am sure my medical chart has notes about my hypochondria, but now that I recognize what it might be, I have hope that eventually I'll be able to be tested.
@EvenSoItIsWell
@EvenSoItIsWell 10 ай бұрын
Thanks for watching. So sorry your are experiencing all that. Keep advocating for yourself!
@DannaK247
@DannaK247 9 ай бұрын
It's so very frustrating. I have blood work at every quarterly follow up with my RA specialist. It always comes back everything is fine but I have RA. However I know I have something underlying that's not been diagnosed. My siblings have labeled me as bipolar as my moods and anxiety due to my fluctuating pain levels. I have low tolerance noise and crowd stimulus. I also am sensitive to tempeture changes, and can't tolerate AC vents blowing on me sitting in a car. I could go on and on. One knows their body and if something doesn't feel right. You have to note all of these things regardless of how trivial you think they might be. I'm logging them under notes on my phone. I'm determined to fight to find out and prove I'm not a mental case and not spend the last ten years of my life in a lounge chair and wheel chair like my Mother did prior to her death.
@EvenSoItIsWell
@EvenSoItIsWell 9 ай бұрын
@@DannaK247 absolutely! You are so right. We know our bodies and need to advocate for ourselves.
@blakesmith9039
@blakesmith9039 3 ай бұрын
You need a spinal tap..and you get an appmnt with neurologist quickly tell them it's an emergency.
@meganl.5650
@meganl.5650 9 ай бұрын
Omg. I have everyone you mention except the prickling. My feet, ankles. shins, thighs and now fingers and toes "freeze up" in pain. It's awful and will wake me up from a deep sleep. I used to have beautiful handwriting and now it's barely legible. My fingers are always one off the correct keys when I type. I have a different chronic health condition I have always attributed the symptoms to be from, but never with confidence. I know something else is going on.
@EvenSoItIsWell
@EvenSoItIsWell 9 ай бұрын
Thanks for watching. Many conditions can have similar symptoms, but it is definitely worth getting them checked out. Keep advocating for yourself. 😊
@Snowiesphotography
@Snowiesphotography 13 күн бұрын
I get this weird sensation where it feels like cold water is being poured down one side of my head. I feel every bit of it. It doesn’t hurt but always makes me wonder why I get them
@EvenSoItIsWell
@EvenSoItIsWell 13 күн бұрын
Oh how interesting. I have heard of others getting a wet or cold feeling. I hope it isn't too disruptive. Thanks for watching.
@Amy-yb4ne
@Amy-yb4ne 2 ай бұрын
Thank you for this. I have so many of these symtoms. I recently was diagnosed with intracranial hypertension but i just feel like something aint right. I tick so many of these boxes. Im due to see my neurologist soon so hopefully he can clear it up for me. Currently my left foot keep getting pins snf needles and same leg feels so weird and like numb inside. I cant explan it.
@EvenSoItIsWell
@EvenSoItIsWell 2 ай бұрын
Thanks for watching Amy. Some of the symptoms of IH can be similar but it is definitely worth checking in with your doctors. Listening to our intuition is important.
@dononebullen
@dononebullen Жыл бұрын
I have a diagnosis of fibromyalgia but I'm unsure I can relate to this so badly
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Many of the symptoms overlap.
@rawsomehappy
@rawsomehappy Жыл бұрын
There is ALWAYS a reason Mitochodrial, micotoxins, parasites, circadian rhythm disruption, dehydration, emotional trauma etc Blaming MS, age, menopause etc are just excuses and don’t give strategies towards correcting the problem We are our best advocates with bodies that can heal Due diligence, commitment, and consistency to self care is a daily job to positive well being🧘‍♀️☀️❤️
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Good morning Myrna! Thanks for watching!
@MsTubbytube
@MsTubbytube Жыл бұрын
It is not about blaming MS, this is more about what if you don't realize you have MS or don't realize that MS might be causing the symptom and are blaming menopause, tiredness,, dehydration etc. Knowing it is MS can lead to more effective self care and communication with doctors. there are many good strategies to improve health but if you are blaming the wrong problem you won't be using the best interventions/strategies. It is important to realize that with MS there is actually brain damage involved, and your brain may or may not be able to reroute the nerve pathways. So some symptoms will go away and some won't no matter what you do. but not taking good care of yourself will make everything worse!
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Absolutely!
@sherrybutts5947
@sherrybutts5947 Жыл бұрын
Soooo true but most folks won’t do that !! We have and will continue to pay a high price for not doing it
@heartspacerelaxations6924
@heartspacerelaxations6924 Жыл бұрын
Agreed. It’s what multiple causes are behind the MS, statins reducing cholesterol, toxins, damaged fats, harmful bacterial gut, leaky gut, inflammation, stress etc etc
@ccblack3983
@ccblack3983 5 ай бұрын
The weirdest symptoms I had was change of smell. Everything smelled and tasted the same for 4 months. EVERYTHING. Peanut butter smelled like a bowel movement. Sweat smelled like yogurt. I struggled to eat anything except strongly flavored foods for months before diagnosis. This corrected itself after my first round of steroids.
@EvenSoItIsWell
@EvenSoItIsWell 5 ай бұрын
Wow! That is a new one on me. I have experienced strange smells but not tastes. Glad it resolved after the steroids!
@brielleanyez7113
@brielleanyez7113 Жыл бұрын
18 years for me before I was properly diagnosed
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Wow, that is along time. I’m glad you finally got answers. I hope you are doing well now.
@carolynhamilton3316
@carolynhamilton3316 Жыл бұрын
I don't know if I have ms or not. I saw you on utube discussing MS Hug. I started reading your comments. For almost two years I wake up with 5my ribs feeling they are in a crushing squeeze. Sometimes hard to breathe. I said i need a new mattress. They are expensive so i havent done it. . After about 10 minutes of walking around , 80% goes away but lately, my bra feels too tight all the time. I have a reason for that possibly. . I have carpal tunnel syndrome that's now in my arm. Numbness. I can't hardly hold a pen to write. So many other symptoms but I can explain each one away, , but put them all together, it worries me. With that info on the ms hug, that did it. I'm going to see a neurologist. I'm 79, so it's probably not likely, but reading you can have mild symptoms for years, then it raises its ugly head; I'm so glad I saw your video.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching. Definitely write down all the symptoms and bring them to your doctor. It is definitely worth getting checked out. Let me know how it goes!
@Alexe829
@Alexe829 Жыл бұрын
All. Every single one.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching Chris!
@KJN529
@KJN529 3 ай бұрын
Yes, sometimes when I work out or do anything cardiovascular activity hiking , treadmill,spinning bike My feet feel numb and prickly Also experience wet sensation on my skin or burning prickly pain on my skin mostly thighs
@EvenSoItIsWell
@EvenSoItIsWell 3 ай бұрын
I have heard of the wet sensation. That must be maddening.
@lindamcmanus3057
@lindamcmanus3057 10 ай бұрын
6:00 literally still always taking off my shoe to look for pebbles that aren’t there, even after diagnosis.
@EvenSoItIsWell
@EvenSoItIsWell 10 ай бұрын
Yep! Is an MS thing. 😉
@positivemser2009
@positivemser2009 2 ай бұрын
I enjoyed this informative clip but please don’t forget about us with PPMS. Our symptoms don’t ’come And go’, unfortunately
@EvenSoItIsWell
@EvenSoItIsWell 2 ай бұрын
Thanks for watching Positive MSer. You are absolutely right, PPMS symptoms can be relentless and accumulating. They can also come on subtly but then they pile up!
@deannahughes5263
@deannahughes5263 Жыл бұрын
I have recently had the term MS used by my neurologist. She also mentioned "White Matter" that was evident in a recent MRI. She has recommended a lumbar punch as a confirmation of MS. I do have some symptoms but would like your opinion on my next steps.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching Deanna! I can’t offer medical advice but I will encourage you to keep advocating for yourself and seeking answers. It may take some time as autoimmune diseases can be tricky to diagnose. I also encourage you to take exquisite care of yourself. There are so many things we can do support our bodies to be as healthy as possible. I follow a four pillar approach in addition to my medication. I eat a whole food plant based diet, exercise regularly, get good sleep, and practice mindfulness/kindness. Keep me posted on how it goes.
@kristiknapp4478
@kristiknapp4478 Жыл бұрын
My symptoms started last year. I had tingling and numbness in one of my hands., And then I had it in the other hand. I started to get stroke-like symptoms, and they took an EEG scan and didn't find anything at the time they took an MRI of my brain and there was a white spot on my brain ( or at least that's how they described it). Dr. pegg said that white spots come up all the time, it could be nothing. Then he retired. 🙄 I have muscle jerks, brain fog, one side of my face goes numb, I smell things that are not there, and I'm in constant pain at the same time. And yes it comes and goes with stress. I was diagnosed with fibromyalgia.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching Kristi! Fibromyalgia is another one with really similar symptoms.
@kristiknapp4478
@kristiknapp4478 Жыл бұрын
I have a friend that was diagnosed with fibromyalgia, then diagnosed with Ms a few years later
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
@@kristiknapp4478 oh interesting. Are you thinking you have MS as well?
@Lifewithlisalove
@Lifewithlisalove 2 ай бұрын
I had an mri on brain but not my spine which I feel should have been done as well and it showed nothing on it however I have all of the symptoms you described when I have what I guess is a flare up!? The only time I had relief was when I was on a cortisone pack for a tooth infection that was treated with a root canal. Once I was off the meds for a week the symptoms came back again. My doctors keep dismissing me so I give up. It all started when I couldn’t see out of my eye one day for a few seconds. Then I started getting spasm through out my body which all went away except for one eye that still does it but no as bad. I still get tingling on left side of my face and nose and lips. I have a prickly sensation on foot that comes and goes. The cold wet sensation occasionally. Forgetfulness. Fatigue. My throat spasms sometimes too on occasion. Dizziness at times or vertigo. Arm will feel strange at times like it’s heavy. It’s all definitely neurological. I’ve been to two dentist. Two eye docs. Two doctors and they all think that as well. There are times when I see blurry or double in one eye. I’m like can y’all just help me here. Sigh. 😔 so frustrating. My primary doc said he’s going to set me up with a neurologist. So just going to have to wait and see. Thank you for the informative video.
@EvenSoItIsWell
@EvenSoItIsWell 2 ай бұрын
Thanks for watching. Autoimmune and neurological disorders can be so challenging to diagnose. Keep advocating for yourself! Ask for second opinions and referrals. Say “who should I see next?” - “What are the next steps?” - “Who would you go,to next to address these symptoms?” Try not to get discouraged. It can take time and multiple doctors to find answers. Keep me posted on how it goes.
@1Living4christ
@1Living4christ Жыл бұрын
I have high anxiety and depression, my balance has effected me sometimes swallowing problems and high muscle twitching and had days of being off I looked oops and mispronounced words.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
I am sorry all of that is happening. Do you have a diagnosis yet?
@sissy9393
@sissy9393 9 ай бұрын
I need my doctor to run more tests. I have so many symptoms and I'm frightened.
@sissy9393
@sissy9393 9 ай бұрын
I'm already disabled but something else is going on.
@EvenSoItIsWell
@EvenSoItIsWell 9 ай бұрын
I am sorry you are experiencing additional symptoms. Keep advocating for yourself and asking your doctors for answers. I know it can be frustrating and frightening.
@claremckenzie5119
@claremckenzie5119 Жыл бұрын
Thanks for asking. It's a mixed bag, isn't it??? It's my cheeky jelly legs for me. I keep on walking and building up my strength, stability, and endurance. I try to practice functional exercises as promoted by Dr. Gretchen here: kzfaq.info/get/bejne/nNeghs5eyb2co6M.html
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
I love Dr. Gretchen! Good on you for continuing to build up your strength!
@nelliejohnson609
@nelliejohnson609 Жыл бұрын
Yes to 98% of these
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
It is amazing how many symptoms there can be and how subtle, right? Thanks for watching!
@TheEDNC
@TheEDNC Жыл бұрын
Now add Adhesive Arachnoiditis symptoms on top of MS… then you’ll have a very interesting presentation
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Oh yes! Nice combo! Not….
@TheEDNC
@TheEDNC Жыл бұрын
@@EvenSoItIsWell It’s not “NICE” … not in any way, trust me.
@laurengg09
@laurengg09 Жыл бұрын
I have AS but I'm getting so much nerve pain in my face and ulcers roof of mouth. I'm so exhausted
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Yikes! That sounds so uncomfortable. Anything they can give you for that kind of nerve pain? Does meditation and relaxation help?
@reneerodden6446
@reneerodden6446 Жыл бұрын
Wow, I have the same sensation in my left calf as you! I especially feel it while walking for exercise. I have all these symptoms. MS was ruled out because I do not have brain lesions. I have not had an MRI of my cervical spine. Did you?
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Hi Renee! Thanks for watching! Yes, I have had brain, cervical, and thoracic scans. I have lesions in my brain and spine. Typically people with MS do have brain lesions. MS is not the only cause of odd sensations. I encourage you to keep seeking answers! Keep asking for second opinions and referrals.
@reneerodden6446
@reneerodden6446 Жыл бұрын
@@EvenSoItIsWell Thank you for the quick response! Ok I will try to push for answers. I kinda gave up years ago on a diagnosis and just live with symptoms. But recently had vertigo and neck pain and shooting pain down spine. And feel like my legs are not mine, if that makes any sense. I hope you are felling well and have a good day!
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
@@reneerodden6446 Oh interesting. All these are symptoms that could possibly be related to MS or other neurological problems. I encourage you to take this to the doctor and any other things that seem a bit ... off. All of them can be clues for your doctor to help figure out what is happening.
@teresashomeschoolchannel227
@teresashomeschoolchannel227 Жыл бұрын
i feel like i walking on sponges, pain in between sho ulder blades, feelings like cold water running down my face, chest bothers me. i still waiting on mri. i been having symtoms since April, neorologist is slow
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Hi Teresa. Sorry you have had to wait so long to get answers. I hope you find answers soon.
@Strutingeagle
@Strutingeagle Жыл бұрын
This is a good video. I have never been diagnosed with MS but I have dealt with symptoms for about 15 years. I did go and get a blood test and went to the eye doctor early on and they didn't find anything there. I wasn't even thinking MS at that time though. The last time I went to a doctor was about a year ago and he wanted to refer me to another doctor to get an MRI. He said he saw white blood cells in my eyes and thought I might have a more serious situation and he did not name it. I have had a gait problem years ago and it never came back. One arm felt tired and was shaky as hell for a time but it never came back. My eyes though have been coming and going the whole 15 years. One pupil is bigger than another at times. I get double vision frequently and sometimes double vision with just one eye and the other closed. Should I remain happily ignorant or at least hold onto the possibility I don't really have it or is it better to know?
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching. It is definitely better to know! There are over 20 disease modifying therapies for MS now to slow down profession and treat symptoms. And if it is something else there is probably treatment you can get on. You can also start to make diet and lifestyle changes to support your health. I encourage you to keep seeking answers and asking for second opinions. Being an advocate for yourself and your health can be tiring and it can take time to reach a diagnosis, but it is much better to know so you can take steps to prevent progression.
@Strutingeagle
@Strutingeagle Жыл бұрын
@@EvenSoItIsWell Thank you for the reply. I didn't think there was anything that could be done.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
@@Strutingeagle there is so much that can be done!! I am 15+ years into my MS journey and still doing well! In addition to my medication, I follow a whole food plant based diet, exercise regularly, get good sleep, and practice mindfulness/kindness. All of these are key to my health and wellbeing. 😊
@Strutingeagle
@Strutingeagle Жыл бұрын
@@EvenSoItIsWell I am glad you are doing well with it. I know of two people that eventually succumbed to it. I learned that it is not a fatal disease but oddly they did not make it. It must depend on how hard it hits different folks or if they get fluid in their lungs. This just reminded me, I choke on my spit all the time at night too. They had an active and healthy lifestyle. One was able to walk but the other was wheelchair bound eventually. This is a big downer but it happens. You are a very kind person indeed and thank you for your advice. Keep on keeping on.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
@@Strutingeagle people with MS are more prone to co-morbid conditions so that may have contributed to their passing. Please accept my condolences.
@abundantjoysecret
@abundantjoysecret Жыл бұрын
I have most of these symptoms, but did not get a diagnosis. The doctors did not say anything why I am suffering.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
I am sorry you are experiencing symptoms. Please ask for second opinions and referrals.
@crystlebrown7637
@crystlebrown7637 Жыл бұрын
I’m in Jacksonville Florida I am declining and I CAN’T GET ANY DR TO HELP ME
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Hi Crystal, I am sorry you are not getting help. Please try to keep advocating for yourself by asking for second opinions and/or referrals until you find answers and help.
@BieberBelieberSayWha
@BieberBelieberSayWha 3 ай бұрын
I have been referred to neurology query ms. I have endometriosis, painful bladder syndrome, raynauds. I have been experiencing restless legs syndrome, hands tremors, pins and needles in my feet and now spreading up my legs and numbness in the legs. Chronic bowel issues, back pain, blurred vision and balance problems. my symptoms are getting worse rapidly. Could you give me advice on what I should bring/ write down for my first appointment, thanks. I and only 28 and I am worried what is going on.
@EvenSoItIsWell
@EvenSoItIsWell 3 ай бұрын
Hi Lydia. Thanks for watching and for reaching out. First, I am sorry you are experiencing all this. You are so smart to think of writing things down to bring with you. I would definitely bring a list of doctor’s appointments for the past few years and any events that you thought you were odd. For instance I had a day once where I felt overwhelming fatigue when touring a college. I actually had to sit down. Also think of mental health issues too. There is something called Prodromal symptoms that may help your doctor. I will put a link to my video on this below. I would also bring a list of questions you have. Bring two copies of both, one for you and one for your doctor so you can review them together. Keep in mind they may not be able to go over every single symptom but it may be a helpful tool. The last thing to bring is another person. It is always helpful to have a second set of ears in the room. Then go out for lunch or dinner together to discuss what each of you heard. Best of luck and keep me posted on how it goes. kzfaq.info/get/bejne/iNF3eb1kvJzQooU.html
@blakesmith9039
@blakesmith9039 3 ай бұрын
How about numbness in the palm s of hands..and front of legs...feet etc.
@EvenSoItIsWell
@EvenSoItIsWell 3 ай бұрын
Thanks for watching. Yes! Those are some of the common symptoms too.
@rebecaenglish6422
@rebecaenglish6422 Жыл бұрын
I get pain in my legs like it’s swelling but no swelling especially in the summer. It’s fustrating
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Yes! I can so relate! My left leg often feels tight, like there is swelling. My neurologist said it could be spasticity making the skin feel tight.
@rebecaenglish6422
@rebecaenglish6422 Жыл бұрын
I have not been diagnosed yet. But I’ve been dealing with a plethora of symptoms you mentioned for years. I’ve seen so many different specialist but in June I finally got an appointment with a Rheumatologist. I’ve been thinking I may have MS. Thank you for your video, I feel like I’m going crazy and because no one can see what I’m experiencing, aside from the cog fog and trouble speaking at times, and the specialist saying I’m fine…it’s just hard to be taken seriously and believed.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Isn’t odd when we look back at all the odd little and not so little symptoms? Good luck with the rheumatologist!
@BJM1134
@BJM1134 25 күн бұрын
I have many ms symptoms but here's two I wonder about... Excruciating cramp like pain in limbs (varies, could be both legs, one arm, etc)... its so bad I'll lay in bed stretching writhing tossing and crying until it passes. I believe this is one of the first symptoms I experienced many years ago. Strange tightening in my abdominal /pelvic area. Both tingly and tight. Swelling of legs and feet. Especially in heat. To the point none of my shoes fit. Besides these.. I was diagnosed with carpal tunnel in both wrists at 25... then went to dr for electric shock type pain down my neck into my shoulder. I had a newborn at the time and the pain was so sudden and intense I was afraid I'd drop him. Dr sent me for xray to check for arthritis which was negative so he gave pain meds. Maybe a year later went to ER with drop foot. On call neuro wanted to operate on my spine then and there but I said no and got a referral for second opinion three months out. It went away on its own so I canceled. I've been diagnosed also with interstitial cystitis due to constant urge to urinate but can't. But also sometimes will pee myself while coughing or laughing. Currently my right outer thigh is numb but also at times prickly hot and painful to touch. I get horrible migraines that start and eminate from the back of my neck /base of skull.. I know I'm leaving stuff out but after having many drs dismiss me or throw pain meds at me I've given up. Feel sure it's ms but now I'm just waiting til it's bad enough to diagnose
@EvenSoItIsWell
@EvenSoItIsWell 25 күн бұрын
I am sorry you are experiencing so many symptoms. I can’t say if they are MS or not but as It can affect any part of the central nervous system, there can be many symptoms. The swelling of your feet doesn’t sound like a typical symptom. I encourage you to not wait but to bring this list to your doctor and continue to seek answers. Auto immune diseases can be very difficult to diagnose and can take time. Keep advocating for yourself. Ask for second opinions and referrals. Keep me posted.
@BJM1134
@BJM1134 25 күн бұрын
@EvenSoItIsWell thanks for your response. Having done research, ive read that swelling can be a result of MS (erythromyalgia I think, forgive my spelling... or hot feet)... but then I don't see many people with ms naming this symptom. I also totally understand that no one but a doctor can give a diagnosis, it's just hard to find one who listens and will just do whatever is needed to diagnose or rule out. I was once even told by a doctor that I'm "too young to be in pain"... I know its important to advocate for yourself but as exhausted as I am still trying to work a full time job it seems insurmountable. Anyway, I'm 40 now so hopefully I'll get there. Your channel is great and I hope you're feeling well :)
@EvenSoItIsWell
@EvenSoItIsWell 24 күн бұрын
@@BJM1134 ugh, I am sorry you have been told you are too young and feel like that doctors aren’t listening.
@colleenfromnh5860
@colleenfromnh5860 Жыл бұрын
How about hand/eye coordination issues?
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Oh! I have not heard of that but it makes sense if there are vision issues from optic neuritis or/and sensory issues with the hands.
@jaco0712
@jaco0712 Ай бұрын
Is Sedrate and or CRP elevated with MS? My husbands sed is 116 and crp is 11.1 .. just started autoimmune disorders
@EvenSoItIsWell
@EvenSoItIsWell Ай бұрын
Thanks for watching. I am not a doctor, but took a quick look at a couple of research papers. They said that they can be elevated, but there isn’t evidence of the levels being directly tied to disease activity or severity. I try to keep my CRP low as it is a marker of inflammation and MS is an inflammatory disease.
@jeanmicheldo
@jeanmicheldo Жыл бұрын
I am experiencing almost all of these symptoms I m desperate
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Thanks for watching. Are you seeing a doctor?
@leaveittolefty
@leaveittolefty 5 ай бұрын
i am 67, woman. seeing a doctor is a waste of time here. they say " stress" " anxiety" even though i have neither. i say, ok i can see why you might draw that conclusion but let's look at my labs and imaging. also, i've not been clinically diagnosed with anxiety by a qualified professional. thanks anyway. goodbye. and then i go home frustrated and in the same condition as i was before seeing a doctor.
@EvenSoItIsWell
@EvenSoItIsWell 5 ай бұрын
Thanks for watching. I am sorry you had that experience. I encourage you to seek second opinions or ask for referrals so you can find some answers.
@christinecardimen544
@christinecardimen544 20 күн бұрын
Yup.
@leaveittolefty
@leaveittolefty 20 күн бұрын
@@EvenSoItIsWell update-sought 6th opinion. diagnosed with ALS. kinda wish i hadnt kept asking now🫢😔
@EvenSoItIsWell
@EvenSoItIsWell 20 күн бұрын
Ugh. That stinks. Please try to take exquisite care of yourself.
@leaveittolefty
@leaveittolefty 20 күн бұрын
@@EvenSoItIsWell thank yoy💐
@jennifermcqueen4594
@jennifermcqueen4594 Жыл бұрын
For the last few I can not stand to be touched lightly, I feel like I am going to crawl out of my skin. Could this be related
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
MS can affect any nerve in the central nervous system so yep, it could be! Definitely check with your doctor. They might be able to suggest something to help.
@owenoone9445
@owenoone9445 10 ай бұрын
What tests does your doctor order to confirm MS or rule it out?
@EvenSoItIsWell
@EvenSoItIsWell 10 ай бұрын
Thanks for watching.There are multiple steps to diagnosing MS including ruling out other possible causes of the symptoms (lots of bloodwork), MRIs, having multiple relapses, possibly a spinal tap (lumbar puncture), and taking a full medical history and neurological examination. It can often take some time to diagnose. Currently the McDonald criteria is being used in most hospitals mstrust.org.uk/a-z/mcdonald-criteria
@Stephanie-dn5mw
@Stephanie-dn5mw 9 күн бұрын
Does anyone have white spots under their skin on their feet? Mine come and go. When I exercise I feel ill after, sometimes flu like aching all over or fatigued.
@EvenSoItIsWell
@EvenSoItIsWell 9 күн бұрын
Thanks for watching. I haven’t had the white spots but have had post exercise fatigue. I found sipping really cold ice water when exercising and wearing a cooling vest help. This is the one I use kzfaq.info/get/bejne/aLqbZKeZ2ry6o5s.html
@monybasma7589
@monybasma7589 6 ай бұрын
I have numbness on one leg and have 2 other autoimmune disease, my doctor is now suspecting I have MS, I am scheduled for an MRI on 4 days ! I am scared ! wish me good luck 😔
@EvenSoItIsWell
@EvenSoItIsWell 6 ай бұрын
Oh best of luck! Please keep me posted on how it goes!
@woolfy02
@woolfy02 7 ай бұрын
I had started getting a weird change of colors, in my left eye. (Things are a grayish, washed-out color). My right eye seems to be ok though. I have a lot of other issues but, nothing that points to MS quite yet. I've had dizziness / balance issues for a while as well. Sometimes I get the weird numbness in random areas. Speech problems bad head fogginess. Depression / anxiety...yep. (Who doesn't have it) I can't drink alcohol because of it. (Probably a good thing). I take up to 10 motion sickness pills a day, depending on what I'm doing. The doctors I've been to have no idea what's going on. No tests really show anything besides my minor health issues. Idk what to think about it! I just have to wait and see if it gets worse, I suppose to go see a Dr again. Maybe it isn't MS but, who knows.
@EvenSoItIsWell
@EvenSoItIsWell 7 ай бұрын
Definitely keep track of symptoms and dates. If you get new symptoms it will help the doctors.
@woolfy02
@woolfy02 7 ай бұрын
@@EvenSoItIsWell I was reading more about it and, people are saying that 95% of the time, it's really painful. (I haven't noticed any pain with it). I guess the nerves are damaged so, that would make sense why it would hurt. Did you experience any pain when it started for you? Maybe I just have some type of eye strain or something.
@EvenSoItIsWell
@EvenSoItIsWell 7 ай бұрын
@@woolfy02 I have been lucky enough to not have optic neuritis with my MS. I have also heard that there is pain with it, but not all the time.
@woolfy02
@woolfy02 7 ай бұрын
@@EvenSoItIsWell That's good you didn't have to deal with that part of it. Seems like the symptoms range widely, when it comes to this. Anyways, I hope you are doing well when it comes to dealing with MS!
@EvenSoItIsWell
@EvenSoItIsWell 7 ай бұрын
@@woolfy02 they do vary widely! It is often referred to as the snowflake disease as we can all experience it differently. 😉
@thebryantfamily8168
@thebryantfamily8168 9 ай бұрын
Didn't see the symptom tracking apps. Is it possible to get the names?
@EvenSoItIsWell
@EvenSoItIsWell 9 ай бұрын
Thanks for watching! Here are two articles with information about apps. www.teamscopeapp.com/blog/5-diary-apps-for-tracking-symptoms abilitynet.org.uk/news-blogs/best-apps-managing-multiple-sclerosis
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