Also, I have been married 2 times. The 1st one was physically, sexually and mentally abusive and didn't give a crap! My 2nd husband was very supportive except he cheated on me for 15 outta 19 years! The man I'm with now was very supportive for the first 5 years and we've been together 13 years! He has no sympathy, empathy, or any emotions at all toward me! I'm always sick 1 way or another! There is no intimacy left. I think it's time to take my life back and move out ASAP! I think I DESERVE TO BE HAPPY at least 1 time in my life! While raising my kids I was happy, but I was in the hospital so often, they should have had a wing after me! When I was sick and couldn't get out of bed, my kids came into my bedroom to hang out with me. When they got a lil older, I struggled to get to the sofa so I would be available to them. I gave each 1 of the 3 kids I have chore lists. I did a lot of them b4 they got home from school! Not easy but I did it at least 60% of the time! My son, no matter how many friends were there, he gave me a kiss and hug b4 he would leave to go away with his friends! I used to have him stay home from school when I wasn't doing good. If I didn't have him stay home, I would have 1 of his sisters stay home. It wasn't all the time, but the school knew how bad I was & they excused them every time! I had my son 8/4/82 and my twin girls 8/31\83. My son was 1 year and 27 days old when I had my girls!!! All I can say about my 2nd husband who I met in 86 I started getting really sick again in 1990. If I was in the hospital or stuck in bed, he made sure the kids had a hot meal at supper, put a roof over our heads & clothes and extra stuff for the kids! Even tho he cheated for so long, I give him major KUDOS for sticking it out & helping with the kids!! My son, Paul is now 36 with 3 kids Brett 15 Collin 10 & Cailyn 12. My daughter Kari 35 ( who has been my savior during times when I get really sick, or take and stay with me during surgery and the 3 times I was 80% close to death!!!) has 2 boys Jace 15 & Gianni 12 & my other daughter Lindsey 35 has a 3 year old daughter and a son Jayden who WI be 6 months March 6th! I'm overly blessed with my kids & Gkids!! I love them all with every fiber of my being!!! I'm so sorry this is so long, but you seem so easy to talk to plus your the only 1 who can relate to LUPUS and everything it's capable to cause! Please forgive the 2 long posts I really needed to get that out! Thanx for listening, Dana Conley

I remember my hubby was locked up at the time when I told him about my illness . So I wrote a very long letter and printed out some information on lupus and shot it his way . He was very supportive from the gate . He still is, and pays attention to my symptoms. Receives opinion on my health from others when he worries . He’s just been great over all !

I applaud your man. 👏🏽👏🏽👏🏽👏🏽 Good good guy to you ,so don't let him go because there is only a few in this world.

Since my flare up back in mid 2017 I have gained about 40 lbs still on a bunch on meds because it affected my kidney and that’s my main issue right now . I had lost my hair so I get real depressed at times because I am truly unrecognizable to 2017. And it’s just real great to see love stick together through thick and thin , illness and good health . Not having to go through such things alone is truly a blessing .

I seriously love your channel so much. Always talking about things that are in effect in my life as well. It’s important to have people with lupus or other autoimmune diseases around you who are basically the same age. It’s crazy how much a difference it makes for the moral of it all. I seriously get so excited for your videos and the comments from other viewers. Like I’ll always say, thank you so much for existing!

He is such a nice guy! You both are lucky with each other:)

Goodness I have so much to say after watching this video. Dave you have such a happy comforting smile. I’m sure you make Samantha’s day brighter everytime you smile at her. God giveth and God taketh. You were given the disease card in life but you also got the awesome boyfriend card. I’d say you’re ahead of the game on that one. I heard you say “my future mother in law” in there somewhere so I’m assuming there’s a wedding coming up. I didn’t know so congratulations to you both. I do believe you are each others happily ever after with or without being married.

I found out I have LUPUS in my 20's, after 4 years of hearing I had fibromyalgia (which by the way the pain points are the same as LUPUS!) I took a book from my Rheumatologist office on the sly and read it cover to cover. The next time I went to see my Rheumy I asked him "what exactly is fibromyalgia" he stared at me like a deer in headlights! Then I said "how about I tell you what it is!" I went on, telling him what I read. I told him that it's when people have a mishmosh of different pain and fatigue and other things that people with LUPUS have, but nothing shows in bloodwork so they take all these cases and put them all under the name Fibromyalgia! He told me I'm right! So after that convo he finally took the correct bloodwork for LUPUS after 4 years of him telling me constantly I had fibromyalgia! (side note, my mother had LUPUS too) So the next time I went to see him he said "WELL" I said, " you don't have to tell me, I already know!" and he replied "well your right, you have LUPUS!" I wanted to drop kick him right then and there!! After 4 years of begging him to take the correct bloodwork! I believe I was born with it! The day I was born I had an ear and kidney infection! I was such a sickly kid, I missed more school then I went! The ear infe turned out to be infection and disease was boring into my brain. When I was 5, he put a hole my eardrum! So I had 14 surgeries on that ear, all from infection and disease boring into my brain. The last and 1 of the last surgeries they took out my complete mastoid which was so bad with infection & disease they had no other choice! When I was 26 I had to have my right kidney removed because of LUPUS nephritis! I have 30some other diagnosis due directly or indirectly from LUPUS! The same year I lost my kidney, I had to have a complete hyster & oopherectomy due to cancer! if I texted all the physical diagnosis, it would take 3 hrs & I'm sure you don't want to read it all! It has attacked my brain, lungs, heart, appendicitis, osteoporosis and osteoarthritis my organs are slowly dieing! I'm doing this rollercoaster ride where my physical feeds my mental feeds my physical and I want off this damn ride!!! Anyway, this is supposed to be about people supporting people with LUPUS! I had to beg for him to believe me and my own Dr. didn't support me for years, even tho all the telltale signs started the day I was born!!!

Sam, You’re videos are such a support for me for which I’m forever thankful. I began following you at a time when it was thought I had Lupus. After a year of extensive tests I was diagnosed with PoTS and JHS. I was happy and then I got sicker and sicker. Now there is a possibility I have a hole in my heart and a rare brain condition. Seeing you’re very scary journey to being diagnosed with Autoimmune Hemalytic(?) Anaemia really helped me. Not that I enjoyed watching your difficulties but it made me feel less worried about the scary, unpredictable aspects of chronic illness. It comforts me to know it is not only me who is scared sometimes for my health. Much love from your 18y/o subscriber from the UK! Cait x

Its so nice to hear you are both supportive with each other😊

Wish everyone in my life could/would watch this. You Saying, "Even a good day has some degree of pain!" So sweet, your honey under stands this disease well--so rare. I have not found that even from family. Lets clone your guy. Ah, he even understands the stress issue. Dave, please stay on, it will teach mates compassion. Best video I've watched. It gives hope, where I've been tucked away in bed over 3yrs, except for doc appts. To get out, is just too hard to get all ready then you lose steam... Some pain kicks in... Gotta leave early... Cancel commitments... Long time friends just give up on you. Mahalo for sharing this. Aloha from Kauai. God bless u both. Hope you televise the wedding for us all.

Sending this to the close knit people in my life, so they understand how my body works w/lupus. Mahalo Dave, your compassion really helped me to explain it to others.

Awesome to have support. My babe has been my rock since 16, it will be 47 years this March. What helps, Dave, is full body massages, sometimes daily. Lol

I love him! A definite keeper! I’m so happy for y’all!!

What a wonderful boyfriend and wonderful respectful loving relationship you share. You’re both so lucky to have found each other!

As a mom of 4 sons I loved hearing his perspective about his Mom! ❤️

I've been married for 11 years now, but I've only been sick for 2 years, so my husband got to know me way before that happened (I got sick somewhere around my 31st birthday). I'm still undiagnosed, which is very scary at times, but things are moving forward slowly. I recognize a lot about our relationship in yours. We struggle with the same things. I also find it hard to express to him how I really feel or what I think about sometimes. It's partly because I don't want to worry him, but I also feel that it's better for me to not talk about it sometimes, because I simply don't want to focus on it. There are so many unknowns, and thinking about what my future could be like stresses me out (which makes me worse), so I like to live in the moment and enjoy what I can. Thank you Dave for sharing your perspective, it was very helpful and interesting to hear your take on these things. I wish the two of you the very best. You are so sweet together :)

I'm happy you both found each other. I hope you guys continue to have a long and loving relationship.

Y'all are cute together! Bless you!💕

This was so Beautiful to watch. Dave has so much empathy. You also must be a beautiful person in & outside to have attracted him to share your life. Am Single & the struggle is Real. Blessings from UK.

Aww how sweet!! 🥰 The stars were aligned that day on tinder lol 😁

It is good to see you smiling today😀

Aww y’all are super cute. You’re really lucky to have someone supportive but I’m sure he’s just as lucky

That was great and informative, I feel bad I can’t take my kids places, or go to certain events, I cancel last minute if I feel bad, and that hurts them. And makes me feel worse. As for my husband I have not had lupus our entire relationship so I feel his frustration when I can’t do what I use to be able to.

He looked at YOU first and not the illness. I am as pale as you.

So happy for you to have a supportive BF! 💌💌

Very Good for you 2 love birds.lol and pray we all can recover from lupus and fight against steroid indused illness and bring it all to the TOP OF THE LIST

I have lupus. I wish I had this type of understanding and grace in my relationship. I wish you both the best 💜

I am happy you have a dog. I have two dogs, and they help keep me going especially on my down days.

Bless you both! It really does help having someone love you unconditionally. ❤ I have Lupus as well. Also, psoriasis Arthritis, and underactive thyroid. I met my boyfriend through facebook 5+ years ago. I'm a singer songwriter from UK. And he is musician from USA. He fell inlove with my voice after I uploaded song I wrote but needed music for it. I was asking if anyone wanted to collaborate. I was in hospital fighting pneumonia when I got notification on my phone. He had created beautiful track around my vocals and asked if it was what I was looking for? I was so, blown away. 5+ years later he has worked on albums worth of songs with me. Become my best friend, support system and I feel like I've found my soulmate. We are still oceans apart unfortunately but, we plan on changing that. He just left London few weeks ago. That's hardest part each time we gotta say goodbye. 😢 But, in 5+ years we haven't gone a day without talking. Everynight thanks to video calling we can still see each other and fall asleep together. And when I'm sick with Lupus, which lately is daily. Even though we are over 4000 miles apart, he does all he can to comfort me. I love and appreciate him so, much! ❤ I shared your video with him because even though our storys are little different. We do share similarities. 😊❤

Hello Dave you're such a lucky man to be able to live with your love, Samantha you make sure to spoil him 💓❤

Thank you very much for sharing ❤️❤️❤️❤️❤️❤️❤️

I hope one day I can find a man who will love me and care for me the way yours does with you. Also, being biracial myself, I LOVE seeing interracial couples. ❤️

thank for sharing. how long you had lupus and what kind you have.enjoy the video.

He is a blessing for You and your mother in low. .lol ..princess remember your are a fighter and God have you in his hands our God love you so much he gave you someone who understand and care how you feel..so keep fighting with your faith high and higher..smile baby you are a Warrior .may God continue to bless you remember a good son will be a good husband..just saying.🌹💖

Refreshing video, you're adorable

WOW what a sweet guy you have there! I will probably die alone at this point and it kinda sucks as i get lonely sometimes and wish i had someone to take care of me not like a nurse but just the lovey dovey stuff lol

Beautiful couple

This is nice I live in that city that people see my walk I have osteoarthritis in hip and knee and I walk like old lady 😕 I am so alone

I’ve had lupus since I was 13(I’ll be 22 in a month) and I hope one day I meet someone as great and as accepting of your lupus as your boyfriend is. I’ve always been insecure that someone will reject me because of it

I met my husband on tinder .. you attract what you put out.

Awwwwwh!!! You guys are so freakin cute. Lol We shall have to double date or something soon. :)

Should I marry a girl who is diagnosed with Lupus? What are Positive and Negative marrying her? Or should I let her go and let her live her life?

I am glad you find each other. Say Hi for me

Hey, I’ve been watching your videos for quite some now. I’m also living with Lupus. I just have a few questions. What type of Lupus do you have ? I have Lupus Nephritis and I’m taking prednisone for almost 4 years now and never had a problem controlling my weight but now I am & having problems with my stomach. Do you have any solutions or tips on how maybe I can start to manage my weight again?

You are lucky you got out diagnosed at 15 had my whole world crushed hopes dreams goals on life and fell into a 5 year depression well more like 7 attempted suicide at 16. Glad you found someone though

Love ❤️

I recently met a beautiful woman who told me after a couple of weeks that she has lupus.. even tho we talked about dating..she was in and out of the hospital and one week in particular went by where I would text and she didn't answer.. I called and as usual she didn't respond..so I dm her on her Instagram and she got upset and simply blocked me out saying I'm too impatient... I truly love her and hope for a miracle that she will somehow call me one day...where did I go wrong?. I have experienced lupus with two other girls I was involved with years ago so I'm fully aware of the stakes...but I don't care about the disease I care about her😢😢

Hi dave

What a great couple! I was wondering, if you are planning on having kids together, do you wonder about the increased risk of having a child with an autoimmune disorder?

Your boyfriend is very lucky to have you....

Have you faced any issues being an interracial couple

Hi! I ordered a Live Hope Lupus Wolf shirt on February 4 (order # 1971879313) and I haven't heard anything else about it. Do you know when it should arrive? Thank you! Lindsay

shit-zu😂

🙋❤️

Sucks to know yo fine self has a man. Exciting to know he's melanated 😋😉

Gross.. what's with all these beautiful white women with blue eyes burning coal? Sickening.. unsubbed.