Hi doctor, Thank you for this info. I was a first time mom and gave birth 2 weeks ago as preemie of 32 weeks and lost my baby within 11 days since birth. I never thought I would lose my first child that I have been waiting for the past 5 years. I was unaware of what neonatal sepsis was as I was too busy trying to save my baby round o clock spending all the time in NICU. He was a very healthy 32 weeks so as soon as he was born he only had iv and cpap . I visited him twice a day for long hours for the first 4days and half , didnt notice anything unusual other than occasional bradys and cardiac drop (all nurses said its normal for his weeks). I left him around lunch time, came back the same day after 7 hrs and found him in corpse like state , unresponsive gray colour and veins popping all over. honestly I thought he passed away. I couldnt understand how a baby who was doing skin to skin earlier the same day napping on my chest for 2 hrs could suddenly be in this condition after only 7 hrs. No one had notified us, I was in a state of shock and when I arrived, the nurses said he was on antibiotics with probably an infection that they still dont know. Unfortunately he passed away unresponsive due to potential meningitis that took over. He only lived 11 days. I just want to know from experts, if its normal that he never got a lumbar punture and when I asked , they kept delaying delaying saying that he was too unstable . At the end of his death, we all knew from many xrays, scans, and ultransounds his organs were doing surprisingly well despite condition other than being unresponsive since the first day he got dramatically ill. I just cannot understand why the blood culture was sent that late and why they change nurses every 12 hrs shifts, and no one can really truly understand my baby's sudden change in conditions because they are always busy doing handovers and other things. I asked for the timeline of that day, and it clearly shows objective signs since Ive left my baby around lunch time. Increased A/Bs extra oxygen needed etc,. yet only the nurse on site was performing without any doctors involved until the handover time then my baby with a new nurse , who doesnt know him well , dealt with his condition for few minutes until shit -hit-the fan and they called the fellows and residents to look over, yet even at that point, they only interfered with breathing issues and waited 4 hrs before sending the blood cultures , so around midnight ... antibiotics were kicked in couple hrs before to cover large spectrum , with no LP performed. The test came back positive for ecoli gram negative bacteria just after 4 hrs , around 4am . I saw him in corpse like state already the day before at 8pm , and even without being a professional doctor, I knew the golden time was lost. I realized onlly after his passing that the blood culture was sent close to midnight. I really dont understand. Like your video says, neonatal sepsis signs and symtoms are very sudbtle and delicate so why and why they waited to take action upon this until my baby shows dramatic symtoms ? He eventually woke up for few hours with clear signs of pain (moving endlessly like seizures, opening his eyes very very sad and hurt ) then he was gone...into unresponsiveness no pupil dilation...Just a physical side remaining with his organs . Now i realised that his brain was affected within that 7 hours and overnight, he became unresponsive until the 11th day he passed. I really dont understand protocols since im just a mom but could you explain if this is proper process? shouldn't lumbar puncture had to be performed right from the beginning like u said? Shouldn't the blood culture be sent immediately? shouldnt nurses notice that even though preemies have bradys and cardiac issues, that he was getting 3 in a row? Why no one took action immediately and screen sepsis ? Why no one performed LP? Why and why no one did anything on this critical golden time other than helping him with breathing? Why did they only react once I saw him in grey corpse like state around 8pm? Is this how they usually do for sepsis? Even a dumb mom like me after he passes away , who watches youtube, can clearly see that they lost the golden time for my baby.... so why these hundreds of professional who studied for so long and is supposed to take care of my baby , neglect him? why they only intervened with breathing part ? They always had the excuse of saying, that he always had bradys since birth and that he was so healthy and that ecoli negative gram bacteria is so fast and so powerful that this process was normal . I find nothing normal in this, but just a bunch of professionals who did not truly care for my baby.
@TalaTalksNICU2 ай бұрын
I am so incredibly sorry for your loss. What a tragedy. I can’t speak to what was happening in your unit but I will say that the major cause of death in the NICU is sepsis. And nearly all those babies if we started antibiotics early- like really early/ we could have prevented the death. The issue is antibiotics are not good and babies have off symptoms for many reasons. I’m not speaking to your baby- just the sad tragic reality of our jobs. I’m wishing you some peace with all my heart xxx
@lelexo172612 күн бұрын
My bay boy passed away last week, born at 24 weeks , kicking away and healthy and pink. They had him on antibiotics from week one im sure, im sure the hospital killed him.
@naitramsingh6942 Жыл бұрын
Sorry for the late view, but am loving this series about infections its one of our great stress in the nicu here, so thanks for all the great advice 😊. Thanks to you and your team always making amazing videos
@TalaTalksNICU Жыл бұрын
hello Dr. Singh! We look forward to your comments so much that we worry about you when you don't write! Thanks so much, as always, for being ehre with us :)
@user-wj8ec7mf1c Жыл бұрын
Thank you you are awsome iam amuslim and i ask god not to prevent us from you and your illustrations اسال الله ان لا يحرمنا من علمك ورؤيتك دكتورة تالا
@TalaTalksNICU Жыл бұрын
Thank you- we appreciate your support
@jaz8989rn Жыл бұрын
Thank you so much! I am starting my admit RN role and these videos have been so helpful! The why behind all that we do is so interesting when it makes sense! Thank you!
@TalaTalksNICU Жыл бұрын
Thanks so much for taking the time to write! So glad we’re helping you make sense of it all- that was our goal! So it does make it more interesting (and also if it makes sense/ we don’t have to remember it- it’s just logical!). Congrats on your new role! I bet you’ll love it :)
@felipeguinancio7456 Жыл бұрын
Another great video! Thanks a lot Dr Tala!
@TalaTalksNICU Жыл бұрын
Thank you so much for watching and taking the time to always write to us. We really appreciate it :)
@joyc.68938 ай бұрын
amazing
@TalaTalksNICU8 ай бұрын
Thanks so much :)
@user-ed7fg8jw5z Жыл бұрын
love your videos! I recently started precepting in my NICU and I use your videos as a resource for training new nurses. Was wondering if you could cover pulmonary hemorrhage. Thank you!
@TalaTalksNICU Жыл бұрын
Hi Ioanna! Congrats on your new role- thanks so much for including our videos for your nurses :) YES! We do need to cover pulmonary hemorrhage- I know it's been requested before, but somehow I didn't have it on our list! Sorry! Thanks so much for being here :)
@abdirahmanabdi6586 Жыл бұрын
Thank you so much as always!
@TalaTalksNICU Жыл бұрын
We love that you’re here and so encouraging :)
@RY-zs6jx Жыл бұрын
Thanks so much Dr.Tala. Love your videos and how you explained the topics Will you go over NAS in the near future? ❤
@TalaTalksNICU Жыл бұрын
Hello! Thank you so much for the lovely compliment and for being here! We have tapped someone to do the NAS lecture who has done a bunch of research in the field- so we promise it's coming!!!
@PROFKASPER Жыл бұрын
Many thanks 😊
@TalaTalksNICU Жыл бұрын
THANK you!! So happy you’re watching all of these!!
@menatallasaleh4502 Жыл бұрын
Hello Dr.! Thank you for the video... what do you think about presepsin marker which recent literature points out that it is a high sensitive, high specific marker for early diagnosis of sepsis. would appreciate your input.
@TalaTalksNICU Жыл бұрын
Hello! Thanks so much for bringing this up- I'd read briefly about this marker a couple of years ago and nothing since. You're right- it does look like it's more specific and sensitive than CRP (although the sensitivity and specificity change depending on value we use for CRP). The meta-analysis I saw did include premature infants- but I'd still want to see data in the tiny babies. But one more tool to push us in one direction or another would be super helpful! We'll see where it goes!
@technicasvlogger4691 Жыл бұрын
I am worried about My premature baby CRP level is 83 and platelets 63000
@TalaTalksNICU Жыл бұрын
The fact that your team found these numbers means they are following and taking care of your baby. We wish you luck and health and peace.
@neoneo-cz7zh Жыл бұрын
Thank you so much. Regarding CRP if it is high more than 5 or 10 is that an enough reason to start septic workup and antibiotics in a healthy newborn?
@TalaTalksNICU Жыл бұрын
It depends!!!! Like we said CRP is not specific- so it can go up for lots of reasons - stressful delivery, just had surgery etc. But if you were worried about baby being septic (maybe more lethargic or low temps) and you get a high CRP, then for me, that would be enough to send cultures and start antibiotics. So really it depends on the situation. Sending CRP routinely is useless though!!
@jacquihoffman3358 Жыл бұрын
You mentioned 3 parts but I do not see the Part 2 - is this being developed?
@TalaTalksNICU Жыл бұрын
Yes! Will be out in a week- just finishing editing it! Sorry!!! Thanks for asking :)