Wow! Never knew this was epilepsy until now! No wonder my nurse practitioner put me on meds that help prevent epilepsy. I didn't understand why but I've explained so much to her about myself. Thankfully she pays attention!

I had this too and then nearly always it caused me to faint/blackou when I was a teen.. I'm 44 now and have started to feel them happen again without fully blacking out.

I have the same experience but I also get nauseated and distressed when "come back".

Mr. Awesome Cat Fuzzypants I kept it to myself for years. I started noticing a pattern in all of it but I still had a difficult time trying to describe it out loud. I would tell my family about it but it never sounded serious to warrant their concern, just ‘hmmm that’s weird’. I felt like I was seeing a dream in my head of something I felt like I dreamed before. Everything felt like it had happened before. Sometimes there would be words or phrases I was hearing in this dream state but I couldn’t even tell you what I was hearing. As it would come on, I would suddenly get very hot and slowly I’d feel sick in the pit of my stomach. And this overwhelming sense of doom would rise and it was terrifying while it was happening. Some are worse than others but when it’s happening, it feels like the world is ending. I would also smell a weird smell that I couldn’t describe either. Then as suddenly as it came on, it would go away. For years, I just figured it was something I would just live with and manage them by fanning myself until it was over. I didn’t really tell the doctors because it honestly just sounds crazy. Some people thought I was just having a panic attack but I knew that wasn’t it. One day I decided to google search exactly what I described to you, and I found temporal lobe epilepsy. My self diagnosis was eventually confirmed and an MRI showed that I have scar tissue on my temporal lobe which is what is causing the seizures. I can’t tell you exactly what triggers the seizures but I know stress, stimulants like caffeine and sometimes certain lighting trigger them. I notice I have them more often around my menstrual cycle as well.

I started having similar symptoms when I was 12 years old. Then it would happen every once in every few year. It felt like the worst tummy pain and somebody put poison in my mouth. I didn’t know to describe it or never been to doctor for this.

I started having these sort of auras years ago. At first they happened only once in a great while. Over the years they became more frequent with additional symptoms. I never took medicine since I wasnt losing consciousness. 10 years later the auras led into grand mal seizures and now I have no choice but to take medicine everyday 😩 but at least no more auras or full blown seizures

@@ilovedyou88 can you stop these when they first start so they don't get worse?

I am also a victim of it...Surely...I have synesthesia and I see people's aura and object's halos ... I am seeing multi familiar things also...But it is a common thing...1/3 of the world have it...But we are the safest ones...We are lucky to have it because we have the warning from our inner intuition and that allows us to be protected and in a very safe place...That's how auras attack.

Thank you both, I have this exact thing. The flashes of a dream you can't remember having is exactly how I feel. I always tell my wife that it's like i remember all the dreams I ever had and that its so scary that if these really are my dreams, that I dream this much. Also, whats really odd with me is sometimes at night when I dream, I literally feel like I'm in the dream for like months or even years. I wake up and its like I was in a coma for years or something and it really freaks me out bad.

This is exactly how it happened to me too. It was so strong I felt nauseous

This! So I’m not crazy.

@@alyssalynn2040 I throw up every single time!

I'm getting an EEG because of videos like this that so intelligently described something so similar to my experience. Infected into a dream does describe these episodes I have of sudden dream recall and it's a lot like those deja Vu feelings and sometimes they're followed by a sudden sense of impending doom. I feel like something is messing with my head sometimes. But it has to be like this And I wonder if they'll have me do a sleep deprived EEG or how it all works. I'm nervous but I want answers.

Same

Can u explain how urs was? I feel like everything I see I remember it. I feel like I have seen it and then I sit down and start to think where have I seen this. ITS LIKE THIS With everything in my life. It’s so exhausting I’m thinking all the time

Same here, had it since I was a child and referred to it as “deja vu seizures”. My parents didn’t see it as something serious either, but I got checked for epilepsy two years ago In order to figure it out but they found nothing. I think this type of epilepsy isn’t very researched on and there’s little knowledge about it sadly.

You are absolutely correct because I used to have vivid deja Vu dreams since I was a child at 45 I had my First seizure

This 👏🏼 to me the worst part is that, the lack of awareness that causes to take so long to be diagnosed. It took them 7 years to diagnose me ( since I started going more and more at 14). However , counting the fact that I had always felt the same way, it took them 21 years.

Mind sharing what you tried and failed and what worked?

How did you get them under control?

Yep. When a therapist told me to get checked when I had one in front of her, I thought “she doesn’t know what she is talking about. I don’t collapse and stuff.” Long story short I blacked out while driving from having one. Thankfully the wires on the side of the interstate saved my life with my seatbelt as well. Got tested, yep. Temporal epilepsy

Sorry you’re dealing with this. Do you take any meds? I hope you’re feeling better

@@diannadolly I don't take anything currently. Thank you for that

@@jeterman29ny well i hope you're doing better :)

Meds do help, but unfortunately this is one of the more challenging versions to manage.

Omg I also woke up from dream once and had this feeling so Weird

Yeah that’s where I am right now. Such a horrible place to be in.

I have that too m suffering

I keep getting these deja vu episodes....a few days ago I had my first tonic clonic seizure.....waiting to see a neurologist now

Lamictal kind of helps

I’m glad I’m not the only one

The best I've heard too. Thanks April.

Holy crap. You hit the nail on the head

Yes

Been there, feeling is almost like claustrophobia.... but , I somehow tell myself right away to ignore it and it's " not happening " and seconds later it goes away... try it!

Has it ever gone to tonic clonic? Have u been diagnosed?

Quinn Foster 💜💪💜 Taking one for the team! 😅 It’s difficult discussing things that make me feel so, well, disabled! But I KNOW our community needs more visibility; there just isn’t enough awareness and support 💜💜💜💜💜

Kakolukia thank you for the comment! And thank you for subscribing 💜☺️

I put in an application and waiting on a decision because I feel just like you... my neurologist have had to up my dosage twice since I had my 1st seizure almost 2yr ago

Those are all symptoms of severe anxiety

I did EEG the problem is that it’s just watching for brain activity for a certain timeframe, which usually doesn’t reveal much since the abnormal brain spikes are rare for some ppl like me.

@@isabels2973 if this is anything like what I have, it’s definitely not anxiety! I can actually feel the misfiring in my head. It tingles and tightens up in my temples and goes across the forehead. Is it triggered by anxiety, ptsd, abuse, head injuries? Possibly! Although it’s not anxiety alone! Definitely neuro and misfiring! I’ve had two separate , 2yrs apart, 7 day 24 hr EEGs that shows it.

I’m glad to see a recent response. I think I got mine because of Covid.

Also having same kind of symptoms

I understand this euphoric sense you describe. For years I always called them “strange episodes” but I felt familiar with the images I was seeing. Wasn’t until I had a tonic clonic that it all made sense. I tell people I’m being visited from another dimension 😁