John describes how distressing and debilitating is his life with chronic pain.
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@rinanorden2343 Жыл бұрын
From another chronic pain patient for more than 35 years, this man said something that was been on my mind for decades: how can people treat pain if they don’t ever had amy kind of pain that makes life unbearable every single day. 🤷
@paulfasse80324 жыл бұрын
That lady is clueless. She’s giving advice from her healthy environment. Show some real empathy. This man is clearly suffering.
@Rhaenyra19 жыл бұрын
Thanks for sharing. Until a person has lived with chronic pain they have no idea what it is like, nor can they truly understand it. It is easy to understand why many people come to suicide. The medical community needs to understand and come up with better solutions. I know some people have found relief with epidural injections. The medical community needs to utilize modern technology and start addressing this. .
@aaliyahraks6 жыл бұрын
agreed but what you are saying is happening in the US not elsewhere, yet ... they may head that way following suit; i hope not. it is cruel what the US are doing
@aaliyahraks6 жыл бұрын
wow ... i am from the UK but have lived in Australia for years so have not kept up with whats gone on there. most of my online friends in chronic pain are from the US
@jack_knife-14784 жыл бұрын
Suffering pinched nerve in thoracic area and bulging disc the top part of my neck. Also suffering kidney stones and prostatitis. You're right people will never know the feeling of wanting death through pain.
@jack_knife-14785 жыл бұрын
Chronic pain is absolutely horrible it takes your life away!!! DON'T EVER LET A DOCTOR SAY ITS ALL IN YOUR HEAD!! Because that's what they say sometimes..
@sidneygrosshar2695 жыл бұрын
This poor man is on the edge. It’s all he could do to not break down. I feel your pain mate. I’m there with you. It’s like no one cares. Especially the medical people. It’s like they stigmatize you for being in pain and needing meds all the while having one hand on the door knob. Now the government is involved. What could possibly go wrong?
@Lesley100011 жыл бұрын
it really breaks you down as a person and this is what people who have never had it dont understand. ive cried on many days. then when you go to the docs they say you have depression and its making you feel pain worse. you wouldnt have depression if it wasnt for the pain!
@jack_knife-14785 жыл бұрын
I have chronic pelvic pain and my doctor said the same thing about depression making it worse. The doctors make you feel like it's all in your head which anoys the hell out of me!! I just look at them and think if you had this pain just for one day you would say omg I'm sorry.
@joblakelisbon4 жыл бұрын
Thank you! This is exactly how I feel.
@jack_knife-14784 жыл бұрын
Exactly
@TiffanyT-LaDolceVita Жыл бұрын
Right! It’s the pain that causes depression.
@yasminister20114 ай бұрын
100 percent! I don’t feel depressed. I feel the opposite. I want to feel better. I have been fighting for years to be S the opposite of depression. It’s pain and pain alone that causes the suicidal thoughts. Like the people jumping out of the windows on 9/11….they weren’t depressed…but insane levels of pain for years will do it….
@Captdrax8 жыл бұрын
fighting chronic pain loss my trade also pray for ya mate,
@techniqueswithtodd6 жыл бұрын
I suflfer chronic pain from breaking my back TWICE. It's a bit of a living hell. Most folks just have no idea. I try to hide it from folks as it makes them uncomfortable. We all have our crosses to bear.
@Gypseygirls6 жыл бұрын
TechWith Todd Read my top comment. 💚
@Mountchoirboy4 жыл бұрын
Cross to bear-that is what I tell my wife all the time. I'm okay with it even though it sucks but I deal with it and have a good pain medication in buprenorphine. I even try not to cry out when it gets bad because I do not want to upset her.
@grasshair726611 жыл бұрын
good on ya mate I have lived and still live with chronic pain and know just how isolating and lonely it can be, just know your not alone. Thanks for the video
@petmomful226010 жыл бұрын
I live with chronic neck pain, after 2 neck fusions. Life is hard. I am 59 and can't work anymore. I just weaned off the pain meds cause they were making me crazy. I am going to PT but it makes my muscles spasm. The drug rules make it hard to get the pain meds and I am always being scrutinized like I am a criminal or addict, even tho I have never abused them. If anything, I try to take less. Then they think you are selling them. It is lose lose. I cannot take anymore needles in my back and neck, so now I am uncooperative, and "a fail." I have, "closed myself off from treatment." I am never going back there. I will have to cope somehow.
@Gypseygirls6 жыл бұрын
petmom ful PADI slapping You tube it.
@kurtsherrick20666 жыл бұрын
petmom ful I hope your doing better. It could have been me saying exactly what you said four years ago. Am sure you know it's much worse today. Am like you and suffer through every day and it bad but I did what you did. I have heard more times than I can count that if I need the medicine you just have to put up with being treated like I did something wrong and its turned into like seeing a probation or parole officer. I have been with my doctor 11 years and the first five years he was great for the most part but now he has more power over my life than anyone should be allowed. So three months ago I got so upset I felt like I had a small stroke and or a small heart attack. I felt it for days. So I just told myself I couldn't do it anymore. So everyday its the same thing doing as little as I have to do. I have severe cervical problems, spine, and shoulder problems. I beat myself up working. I have shown everyone am not addicted to medicine I took for ten years. But I do realize how dependent I was on it because of the pain. Still need it but had to stop becuase I wasn't going to be treated like that anymore. Screw all those bastards. I had to remember I was a man.
@reg82976 жыл бұрын
My heart goes out to u I have severe chronic neuropathic debilitating pain loosing my mind from it
@reg82977 жыл бұрын
god bless you I have chronic pain last four years may god heal you
@TiffanyT-LaDolceVita Жыл бұрын
I am so so sorry. I understand completely as someone whom has had pain for over 20 years. Pray for God to take me home everyday.
@dannee37314 жыл бұрын
No Government, has any right to interfere with a Dr Patient relationship.
@hrhrae19594 жыл бұрын
Guess u know ppl r still watching your video. I've had chronic pain for 30years and know exactly what ur going thru. I know this is 6yrs old but I hope u have found something that works for you. You r welcome to reply and maybe we can connect to talk about pain. That always helps.
@Lesley100011 жыл бұрын
John, I really feel for you. I have had chronic pain, on and off for 30 years. am trying my level best not to have surgery. i totally agree with you that docs dnt knw wat 2 do. one said to me, im not giving you pain relief but you need to live as full a life as possible! you take tablets then you cant really do anything anyway as you are so drowsy. you cant concentrate or function. people who say they dont take painkillers have never felt real pain. take care and you are in my thoughts
@reg82976 жыл бұрын
Lesley1000 Are u able to work and do your food shop
@Bordelll10 жыл бұрын
I feel the pain too, I understand. I feel like my life is on a hold since I was operated. It's been a year and an half of pain. I do know what to do, I feel like those vids gave me way better advice in a non-judging way. My doctor just doesn't seem to beleive me, I don't feel like he listen to me, to what I feel. He is so judging. I feel a lot of distress, But in all, I'm still a lucky person, I have tremendous friends, I discovered that I was more important then I thought for some people around me, it keeps me going through the countless hours of pain. I don't how some people can live years after years with this problem.
@dboles-ok3so10 жыл бұрын
I am sorry you feel this way, I started this three years ago. I just don't think help is out there, everyone has opinions, but they don't know. and I don't know anymore ether. I pray, just for everyone, and the pain meds just make us sleepy, at first at least I was happy taking them now just existing watching everyone live. God be with you, I suppose we should keep hoping for something just not sure what.
@Mountchoirboy4 жыл бұрын
I felt that way until I found buprenorphine. It takes the edge off while making me feel quite normal.
@user-tp7oy9fi3o4 ай бұрын
God only knows the hell this man is facing. My chronic back pain is nothing in comparison and it's really bad. My God I pray this man is supernaturally healed.
@ninalee86254 жыл бұрын
I was extremely active, mostly to deal with anxiety and undiagnosed PTSD. I didn't like putting chemicals in my body. I was forced to cut back on running and hiking due to chronic pain. I've discovered that chemicals are not my enemy; only narrow-minded people that don't understand my pain.
@moep95725 жыл бұрын
This women has no clue!
@CatalinaFOIAАй бұрын
A person without severe pain will NEVER understand the hell that is chronic pain. If you ever experience it - its too late
@pennybarrie3136 Жыл бұрын
This is I pray to God that I have a break down. But still nothing would happen. My doctor said it will never go away so get used to it.
@Mountchoirboy4 жыл бұрын
I found buprenorphine in a clinical trial for pain patients and it saved my butt. I'll agree it is not as effective as morphine, hydromorphine or oxycontin but it does take a big edge off of my low back (failed back syndrome, spondylolthesis, hip and knee issues) Most important is I do not require more and more of it like with regular opioid medications. I agree I'm on a high dose as most start with a patch of micrograms but I was dependant on massive dose's of regular opiates and had to transition to a higher dose. I went off for a year but returned as the pain was awful to 2mg twice a day but that did increase over 10 years but much slower then the other med's would have. Stay in the game and God bless. You may find what works well for you.
@rockymontana17 жыл бұрын
Hi John,I feel for you brother.I was a heavy eqip. mech. and driver and loved my job.I fell out the back of a service truck and landed on my tailbone from about 8 ft.up and at the time I fell I weighed 250lbs. .That was on fri. 13 29 yrs.ago.I have been in CP ever since.Besides the pain,the losses that you suffer from effect every part of my life.I never had surgery and fight every day,with injections,chiropractic,P/T,and every kind of treatment you can imagine.I was 32 when this happened to me and now I'm 61.I live on morphine,and flexeril and still do all I listed above.It's no life for the weak.I even tried suicide 3 or 4 times,but now have a better head on my shoulders but still suffer.I think it ends when life does.I'm not sure.I hope you have some people in your life and don't end up like me,with no-one....Such is life...I guess. Even the gal I was living with who professed a great love for me left me anyway.I guess it's hard living with a C/P person.I don't have a choice.good luck to you.
@Spiderific7 жыл бұрын
So sorry about what you're going through and that you don't have anyone for support. I hope things get better for you soon.
@rockymontana17 жыл бұрын
Spiderific! Thank You for your kind words,It's people like you that make my day.Thanx again...
@Spiderific7 жыл бұрын
rockymontana1 No problem. Keep your head high, though I know it's very hard. Every day is a new day and a new opportunity for things to change and start to get better. Just take it day by day.
@goddess72407 жыл бұрын
rockymontana1 Hi RockyMontana1.....I had a broken neck, not paralyzed, thank GOD....but I have had 9 Fusions on my Spine. 6 are in my Neck with Titanium Implants. I had been on Hydrocodone 10 mg every 6 hours around the clock. Rejected Methadone because it was effecting my teeth. Rejected Fentinyl cause it made me too lethargic. The DEA has now made it so I can NOT get any pain medication at all! After 20 years of having 70% relief with the meds, I have been told NO-You ARE A DRUG SEEKER.....go to YOGA! I too am alone, by choice. I don't want to be a burden. I stay in bed 14 hours a day. I am on the verge of treating myself humanely, as they do with Horses. I am TIRED....I don't have the balls to go out on the street to get pain meds from the drug dealers.... I will be homeless on December 1st. I have a decent car and a cargo trailer I have been trying to insulate so I won't freeze to death but ....can't do it. I can work maybe 1 hour a day trying to spray glue the insulation...but I have a long way to go. I have been humiliated. I don't have a life. I don't have relationships. I do NOTHING.....I get angrier by the day! I can NOT beleive that I am being told TOUGH SHIT by the people who went to school to learn how to help me! The System doens't care about me. The dr.s do NOT care. The political machine who has caused this mess? They obviously don't give a shit but let me ask this.....When DEA AGENTS MOTHER has a broken back, slipped discs....and is in CHRONIC PAIN....WHERE DOES SHE GO FOR HELP?? Does Mr. DEA AGENT sit back and say to his mother "Tough shit Mom.....go to YOGA and DEAL WITH IT'?? Sorry, I am VENTING .....am very angry that I am so UNCARED about BY SO MANY! And before I go, I am SO sorry you lost your special lady...THAT HAS TO BE AN ADDED emotional PAIN for YOU! Loneliness causes it's own pain also. I will put you in my prayers......
@rockymontana17 жыл бұрын
Deplorable American Lazy too! Your story breaks my heart and I feel the love for life in your voice.I feel the pain you are feeling and I wish I could reach out to you and help in some way.I know hon how you feel and exactly what your going through.The only think I really wanted in this life was to love someone and not be heart broken with any and every attempt.Can I ask what state you live in? I almost cried when I heard you saying your gonna lose where you live and no place to go.I am in almost the same position.The bills I have would choke a horse and the money I get isn't enough to pay what I owe,and since I was hurt on the job they now want to cut what they pay me every month since I've been hurt and take my medical benefits away from.I have a mortgage .This means I will either have to sell my house or lose it to the bank.I wonder if my lawyer even cares.They don't have to worry with all the money they make from people like me.They collected once before and took 1/3,of my settlement,now they say the law changed and they want to cut me off.I say BULLSHIT,what the hell did you take my money for? This was settled,they say it don't matter.I don't understand,that after 29 yrs. they want to throw me under the bus...I guess you and I have a lot in common,and I do get it hon.If you want to vent you can always jiggle my cage,
@donkeyballs33075 жыл бұрын
this is what creates heroin addicts, chasing pain relief, self medicating
@dannee37314 жыл бұрын
Not true at all.
@MyWittsend38 жыл бұрын
True ThxSoMuch for sharing I agree guinea pigs
@joelhill41078 жыл бұрын
I'm with you. Although I come from Canada, the doctors are no better. 10 doctors 10 different opinions!!! I have degenerative discs in my lower back. (have chronic back pain) will radiate down my legs, arms, hands, feet. I am only 52 have worked carpentry construction all my life. Haven't worked the last 4 years. Has devastated my life!!! Have been through all the injections, physio etc. Take ocycodone,Gabapenin, lorazipam to name some. Have also resorted back to some drinking to help a bit. Was also diagnosed with Celiac's disease about a year ago, makes it even more difficult to survive. I don't know what the prices are like in Australia for gluten free certified products, but here it is a total scam. About 6-8 dollars canadian for a pitifully small loaf of bread just to name one item. Is rediculous!!! I know well the feeling of helplessness!!! I am going to see another rheumatologist next week to see if surgery is even an option.With the poor percentage of people actually benefiting from it, I don't know if I should even consider it. I too feel like a lab rat!!!! The doctors seem to be more interested in picking up a pay cheque more than actually helping the patient!!! This has been going on with me for 10+ years I just noticed that your video was published 2012. Hope you have faired better than I !!!!! Wish you the best of luck!!! Joel. H. .
@Spiderific7 жыл бұрын
You definitely should not mix alcohol with those meds. It can kill you very easily. So sorry about your pain though, and hope things get better for you.
@reg82976 жыл бұрын
Joel Hill How r u now joe I've been there done that and yes it can drive u to drink I have chronic nerve pain never goes I'm so sick daily from it
@donkeyballs33074 жыл бұрын
Go buy some strong marijuana from the store ,strongest u can find ,& smoke it every 4 hours ,everyday, its legal federally in Canada, take advantage and use it
@shellycali42643 жыл бұрын
I have had fibromyalgia for 29 years in constant pain from the neck down everything hurts was recently advised I have Cervical Spinal Stenosis c3 c4 c5 c6 c7 I had a fusion I have 8 screws in neck I have Lumbar Spinal Stenosis L4 L5 S1 S2 and a bulgeb Hip Ostheoarthritis bone on bone I use CBD Living Freeze Rub I am going through a bottle every 3 days PRAYING💛🙏💛🙏💛🙏💛🙏.
@kathleenwharton21394 жыл бұрын
Somebody is Not teaching him Correctly. It is TMS but it has to be Understood and things done Right to Heal. Bless his heart! He needs the Right people.
@clareuk716 жыл бұрын
I here ya I’m living a nightmare hope you r doing better .
@cristobalroig3 жыл бұрын
yeah is exactly like that , and nonbody undertands
@lindabrincken16773 жыл бұрын
I have chronic pain and hopeless and dont want to life anymore. Tired with life, painkiller...depresss everyday.
@csdrt209 жыл бұрын
I'm 27 with degenerative disk disease (i was diagnosed 2 years ago) and every day is a struggle to stay motivated to keep pushing through it. I used to play tons of basketball, and while I am able to play I have to play at a less competitive level and I cannot play for long. The back pain (which is coupled with sciatica and more recently pain in my penis) has interfered with my sex life and I feel like I am starting to battle depression because of it. Not an easy conversation to have with a girl. It's not physically impossible for me to do things but everything is harder and it feels like it's difficult to create that "magic" feeling that used to be so easy for me. Maybe I just need to accept this as part of growing older but it's hard to know if and when things are going to stabilize and it's affecting my confidence. Nothing is black and white, maybe it's all in my head, but maybe it's not. The physical pain is starting to merge with my psychological perceptions and it's getting harder to tell the two apart. I'm not sure why I'm watching this video but I feel like it's very hard for people to understand what I'm going through and I don't know anyone my age with similar problems who I can talk to about this.
@mynarcissistjourney3 жыл бұрын
Hi mate I am 24 years old and am going through exactly what you have described. How are you going now 6 years on?
@phitk20006 жыл бұрын
Man, I feel for you! You remind me of myself, not able to sit down and doing your entire interview while standing. What a life, eh? I've been drinking wine to relax my back (4 lumbar spine surgeries, the 3rd being a 2 level fusion at L4-S1, front and back opened to get to spine, rods and 6 screws). What are we gonna do, mate???
@juliejeatran2633 Жыл бұрын
So sorry you are suffering so.
@Naturegirl19765 жыл бұрын
I suffered from horribly chronic hernia pain for 2 yrs before any Dr would do surgery. Then after 5 in a half yrs if dealing with it I became suicidal and was forced to go to a pych ward. Nobody seems to give a shit if I live or die. I don't know what to do. Cause I have great family and a few close friends that care about me. My Dr doesn't want to give me anything that works.
@TheEDNC3 жыл бұрын
We chronic pain sufferers hear you mate! We know and agree with everything you’ve said. Have you ever been evaluated for Arachnoiditis?
@arturcuryllo58326 жыл бұрын
I know this man's pain FIRST HAND. It looks like I will be getting over my 4mm L5/S1 disc herniation after 4 months of agony (I wouldn't call it just plain pain - I have had pain before from broken bones, torn muscles, joint impingements, pitch blqck bruises... that was pain). By compqrison, nerve root compression in the back is AGONY. Many times my entire body was shaking at night because I spent to many MINUTES on my feet (not hours... too many minutes - that's what you are fighting for with serious nerve compression pain - minutes... not hours). You don't plan tomorrow because you hwve no idea how you are going to feel the next day. The depression and anxiety become the norm. I also absolutely understand the comment about people getting suicidal from nerve root compression pain. All other pains I have had were 3 out of 10 at most. Once I injured my disc and it compressed the S1 nerve root I got 10 out of 10 ALL THE TIME FOR GOOD 8 WEEKS. This pain made me quit beer, all sugar, put me on the green collagen diet and I work my core 2 tjmes every day. I lost 20 lbs and back to my high school weight. I am NOT putting back a single lb back on. I am actually showing core muscles at 37...all this after I had told myself many times that there was no way I could lose even 10 lbs because I was too old. Guess what: The perspective of chronic back pain made do things I never thought were possible. If you told me to eat my own dirty left sock at the end of each day because that would take the pain away, I swear I would cut it up and eat it in front of you. THAT'S how bad chronic back pain is. People have absolutely ZERO idea... until it happens to them. I was the same way...now I understand.
@danaedwards58496 жыл бұрын
U absolutely must accept a new life style n rest...build ur inner life n create a support system❤
@dancinditedforyears67365 жыл бұрын
I'm so sorry, I have similar experiences. I actually lost use of my legs as the herniated disc pushed out cutting into the nerves to my legs. It's a nightmare.
@donnalambeau25416 жыл бұрын
I know exactly what You're going through. I have disc disease and Fibtomyalgia. Can barely stand or walk. I'm afraid I'll end up in a nursing home. I have overdosed to see if the pain will go away. I feel so depressed.
@tousifk31383 жыл бұрын
He can go out and walk, I wish I could get so much of time, I am 98% or more disabled, fibro and peripheral neuropathy from 10 years I can't walk
@TheBiancap3 жыл бұрын
God bless you
@user-jl7wn5nn7p4 ай бұрын
I had a. Neighbor who. Drove for. Texico. Firy. Decades. And when he retired he had a couple if surgeries and the poor man. Lost his only child. Due to. Him. Being a cop. And the old man. Couldn't. Straighten up. He stayed. Bent over. Back oain us. Misreable
@ninalee86255 жыл бұрын
I just came from, yet another health provider refusing to prescribe opioids. I am 62 and my chronic pain began when I was 22. I spent 18yrs suffering. Opioids were nearly as impossible to be prescribed then as now. My health provider used the same tired misinformation that PT will help and opioids will make my pain worse. Why then, did I have to go on dis ability as my pain became worse and when I finally went to pain management & was prescribed opioids I was able to return to work part-time? If you don't want to prescribe opioids just say so. I'm too old and experienced to fall for your bullshit.
@CraigChannell19826 жыл бұрын
I know how you feel iam going thew it to iam in pain 24 7 all over and i have chronic fibromyalgia and depression and anxiety
@abanaabana57574 жыл бұрын
I too have it and I feel disgusting. Each day is tremendous physical and mental pain. Btw how are you doing?
@allanbiggs66675 жыл бұрын
thats the thing someone that has never ben in that kind of pain have know idea what we go throw every day iv had back surgery n it takes me about 2 hour every morning 2 even move around but thats how our lives r
@karenchalut966 жыл бұрын
Dude you hit right on the head how can you help someone in pain if you have never experienced the pain themselves. I was where you were i had a gp who wouldnt do anything after two years of bitching at him he did an mri of my knees and found out that i had torn the miniscus in my knees then he told me there was nothing that could be done not even surgery. So he just flat out said what pain killers do you want i chose morphine then to dilated ...im at a point now where there is no hope left...i do want to end it everyday...
@angelpita69059 жыл бұрын
Hey mate did your back pain come back or is it the goin pain the poas mussel pinch in the main nerved any way mate I saw how you walked and told myself gee I look like that when I walk, pain killers only make more pain increase that's why I try cutting down on meds but nothing help to stop my back pain sorry mate
@asparagusbear33235 жыл бұрын
I had the same thing happen. After an L4-L5 fusion, I got groin pain. I think they irritated a nerve at L2 or L3. I wish i never had the back surgery.
@reg82976 жыл бұрын
What's this mans name would anyone know
@rhiannaloft31584 ай бұрын
Who is this bloke is he still alive
@rluc36345 жыл бұрын
We pain patients need your support please join Robert D Rose jr. a war vet suing the government called operation Starburst please look at his Facebook page .and share it 17 states are involved in it already Also you can write Paul Ramsey the dean of the head of school of medicine in UW please write letters to him to have Jane Ballantyne who started this mess removed from Prop and dismissed she needs firing right away
@Gypseygirls6 жыл бұрын
My 13 years of cronic pain is gone. And iam grateful You tube PADI slapping It works! 🌸
@nikkid10382 ай бұрын
PS you have intractable pain. Not just chronic. I am all but bed bound from mine and only 47 years old. Please look into Adhesive Arachoiditis
@user-jl7wn5nn7p4 ай бұрын
Alot if. Dr,s are in on it for. Money. Not yhe. Patient i sm. Lucky i got a good. Doctor's.
@allgunsblazed91062 ай бұрын
chronic pain is still not taken seriously enough in 2024 , back pain specifically is the fucken devil himself if such a thing exists.
@amandeepghuman41153 жыл бұрын
environment cant help in chronic pain
@edwarddunlap73443 жыл бұрын
and the only test they can give you for pain ,is the stupid cartoons !