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The NCI Li Fraumeni Syndrome Study: Ongoing Work to Guide Tailored Care

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Inherited Cancer Registry (ICARE)

Inherited Cancer Registry (ICARE)

Күн бұрын

Excerpt from the July 2024 ICARE case conference featuring Megan Frone, MS, CGC from the National Cancer Institute (NCI) discussing Li-Fraumeni Syndrome (LFS) and the NCI's LFS study
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Пікірлер: 3
@juliebeauchamp7704
@juliebeauchamp7704 Ай бұрын
Hi i have li- fraumeni syndrome and i live in canada i had my diagnostic in 2016 because my twin sister die after having breast cancer at 24 and multiples metastases in her brain in 2018 ... i have really poor investigation i would like to know what exacthly my doctor need to screen cause she said to me i have nothing but i m scare i m 37 ... and not a lot of test also i m a novo variation because nobody in my familly have it just me and my dead sister
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