Tools for Lipedema - Dr. Karen Herbst

Рет қаралды 14,351

4 жыл бұрын

Dr. Herbst discusses what we are learning about Lipedema from current research as well as her personal experience as a specialist in the condition often misunderstood as FAT.
She also discusses the benefits of using Lympha Press products and other techniques for self management and home maintenance.
More from and about Karen Herbst : www.Lipomadoc.org
More about Lympha Press's Optimal Plus for treating Lipedema
bit.ly/OptimalTreatment
Here are some additional resources to help you along your journey:
FDRS: www.fatdisorders.org/lipedema
Lipedema registry at lipedema.org
Book Chapter in Endotext.org with information on lipedema and other loose connective tissue disorders:
Herbst KL. Subcutaneous Adipose Tissue Diseases: Dercum Disease, Lipedema, Familial Multiple Lipomatosis and Madelung Disease. In: Purnell J, Perreault L, eds. Endotext. Massachusetts: MDText.com; 2019

Пікірлер: 17

@Sammiejam 28 күн бұрын

Absolutely brilliant presentation. I now understand why the my legs are constantly painful. Its like living with concrete blocks for legs. The things that have helped me is changing to a carnivore/ketovore diet, massage, and compression. I am thinking about starting ozempic soon for its antiinflammatory properties and pain relief. Even very low doses can help with all kinds of pain and inflammation so its worth a try.

@sndygskylr Жыл бұрын

Oh my goodness! Best information I’ve ever heard before! Thank you so very much! I’m 74, small frame, wt 149. I’ve not worn shorts for 30 some years😔 because of my legs. I thought I had cellulite but I do believe I have lymphedema. I can feel bumps or knots all up and down my calves and thighs. (I have felt those for many, many years.) My location is near Charlotte NC and I have No clue who to go to. I am praying you will tell me what kind of doctor/clinic that might just be able to help me. I think I’m cursed😢. Seriously, I’m going to tank you again for your informative video. Blessings to you and all the research you are doing.

@Onnoleigh 2 жыл бұрын

I got Lipedema and secondary lymphedema from having severe covid July 2020. Arms and legs blew up gained 20 lbs in three weeks. Kept going to emergency room and dr after I tested negative and kept getting told I’m just fat. The before and after covid pics are crazy. Currently reaching out to scientists cause I just got officially diagnosed.

@anitacarmon-crawford6245 Жыл бұрын

I found out about lipedema from a woman on instagram who reported exactly what you are reporting. Me_and_my_lipodema. I caught a severe virus in 2013 that developed into viral encephalitis. It was accompanied by severe and fast weight gain. I was a size 10. Afterwards, I was a size 20. My colleagues did not recognise me. I have struggled ever since to understand what on earth has happened and manage it.

@Onnoleigh Жыл бұрын

@@anitacarmon-crawford6245 thank you for sharing

@kassrripples3659 3 жыл бұрын

Thank you ... checking in from Montgomery Texas in April 2021.

@myholisticnurse7914 2 жыл бұрын

Thankyou ever so much for this fantastic presentation. Since I was a teen I have felt embarrassed and ashamed of my 'tree trunk' legs. My family are affected by connective tissue disorder, Ehlers Danlos Syndrome. For years I have tried EVERYTHING to improve the quality of my legs of what everyone has assumed was cellulite. In recent months I've suspected it is a result of the modified collagen matrix related to the EDS, and now it seems this is indeed seems to be the case, and it is now very clear to me that I am experiencing Lipodema. I am on an anti-inflammatory diet, regular movement and take high dose Vit C, and am about to try vacuum cupping amongst other interventions as you've mentioned. I've been very frustrated and ashamed of my legs, in particular, over the course of my life. As I've now hit menopause the issue is now also affecting my upper arms. Its very saddening. However I feel somewhat more hopeful having now understood the mechanics of the disorder, and a treatment plan I can work towards - Ideally I'd love to get liposuction but first, a formal diagnosis. Can you advise where to start with a formal DX please? It occurs to me that there is much misunderstanding, and misdiagnosis. I'm in Queensland Where could I start in the search for a specialist to have me diagnosed and work towards liposuction please?

@tarama5174 Жыл бұрын

Dr Chris Lekich will probably be your best bet, he has clinic on the Gold Coast & Brisbane. From memory he is able to do a special type of ultrasound (or something like that) to confirm Lipidema. You will have to pay for the consult though. Best of luck with it 😊❤

@myholisticnurse7914 Жыл бұрын

@@tarama5174 thank you so much for this.