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Tarlov/perineural cysts are dilations of the nerve root sheaths filled with cerebrospinal fluid. Most Tarlov cysts are located in the sacral regions of the spine (95% of cases) where they can be responsible for a multitude of symptoms, including excruciating back pain. Due to their location (and its limited recognition) most surgeons are reluctant to perform surgery.
In this exclusive interview with Rare Disease Report, Reta Honey Hiers, executive director and president of the Tarlov Cyst Disease Foundation talks about the treatment and the few neurosurgeons in the world who are experienced in treatment the condition.
For more information, visit www.tarlovcystfoundation.org