Getting a Gtube is not the end of the world. You can use the feedings to supplement him eating by mouth. Of course it's reversible too. I suggest a Mic-Key button because it is much more compact and he won't have a tube hanging out of him. I feel for you, so much going on! I have 2 special daughters around 30 now so I've been doing this a while. Sometimes I wish the one that doesn't have a feeding tube did when she won't eat or drink. It would make giving meds much easier too! Hang in there! Make sure you make dates with your hubby.

You are such a gift from God!!! Literally all of your videos come at a time when I need them! We have been battling with literally the same thing with my 2.5 year old son! It's so hard!!! Because of your video I was able to message my son's pediatrician and ask him if AFRID may be what he has!!! I am praying for everything that you are dealing with!! It's so much! Just know you are not alone! Most of us are going through these things right along with you! It's so nice to have people that just get it! No one in my family really understands any of this!

I was nervous for my son to get the g tube but so glad I did. I’d say one of the easiest surgeries you can recover from. My son woke up and they started with ensure immediately. He didn’t seem like he was in any pain. He’s nonverbal. We do 3 ensures a day. Unless he eats a good meal then I’ll skip that ensure. He still eats by mouth. I do all his meds thru the tube now so he doesn’t have to taste it. It has worked out so good for us. He has gained 40 plus pounds. If you decide to go thru with it, the process was so easy for us. Good luck

I think your absolutely making the right decision by waiting to make sure it’s absolutely necessary.

My 4 yr old has had a G-tube for over a year, it was scary at first, but it’s really not a big deal after about a week and get it all figured out! You can do this! It’s nice if the kid gets sick because then you can still keep them hydrated… it’s a blessing. Whatever you decide, do what’s best for your child. ❤️

You are always in my prayers. Please take care.💙❤️ to all.

Quick tip Steph: for flavored water, chop up strawberries & mix them with a little water & Splenda- then let that sit for a day in the fridge. After that, add them to either water or pink lemonade. Both are delicious

You are a great Momma. Keep doing what you know best❤️

Thank you for making this video

You look adorable with your hair like that. I think it’s getting healthy

Just here to say that you are an awesome person and I really like your energy.👍👍❤️

I LOVE BEING A MEMBER OF YOUR LANDING CREW! 🥰😍🥰😍

Liam reminds me so much of my son-My son 4.5 is on an all liquid diet through a bottle, he was below 3rd percentile in weight at one point, but pediasures have bulked him out. We had a g tube surgery scheduled in January when he stopped drinking completely. I was force syringe feeding him Pedialyte and had 1 more week for him to start drinking again on his own or he was getting the surgery done, and it was 3 days shy of him getting the g tube when he finally began drinking on his own again. I am really hoping we can get him eating food one day, or at least drinking from something beyond a bottle

I just wanted to say good on you Mama. I know sometimes it would seem strange to be happy your child is drinking a bunch of sugary juice, but IMO you are so doing the right think. I have ARFID and there are times I eat the junk food or id just starve. Its incredible that you are just letting him do what he needs. I got forced to try to eat a lot when I was younger and it was traumatizing.

Beautiful family 💕 love you

Keeping you all in my thoughts

I had a gj tube for a bit and the maintenance is not horrible.

I am half an hour late, so have missed the live. Even if he has to get the feeding tube, he probably will grow and learn to feed himself without the tube later. I know a person on the spectrum who was too little to be a normal age school beginner because he was so underweight and the doctor was worried, he could not carry his school bag. He had feeding problems into his teens, and refused to chew food until late. He preferred pureed, and not even chunks were tolerated.

Your hair looks healthier and very cute!

I feel for you- my 10 year old has ARFID- Avoidant Restrictive Food Intake Disorder and restricts food and fluids. He just passed his first kidney stone at 10. The anxiety never stops. He has Autism, ADHD, Anxiety and the ARFID

I was late but just let me say my son would not eat. We did ABA, however, it sounds more medical than Autism although kids on the spectrum do regress. Your son is in my prayers. My son never needed a g-tube, but it was a scary time for us and I am sure you may be dealing with these feelings. It will be okay Mom.

Autism in my family and my career. I've ran across ASD folks that don't like to eat at a table with people because there is too much sensory input. So we/they put out healthy snacks in a couple places where they can see them and that they can grab whenever they want.

Oh hi Noah. I am here for you buddy, where are you. I pray for your knee surgery.

My 3 year old started eating better after doctors found out she had low ferritin and b12. She got started on iron and injections for the b12 and the first evening after an injection she was eating 5 meatballs and spagetti like she had never seen food before. She is still not eating well and we have diagnosis for ARFID, but she is not loosin weight anymore.

Sending love and prayers your way 🙏 ❤

Hi Steph! Miss you!

Maybe it will be temporary? You have to do what you have to do to keep him nourished. Scary but it will be fine.

My son's walking ended sooner after his heel cord surgery when he was 14 years old. The surgery was just too much pain for him and ultimately he just didn't have enough strength to do the physical therapy after healing from the surgery. Side note, my son does have Autism, ADHD and Duchenne Muscular Dystrophy which is possibly the reason why the heel chord surgery ultimately did not work for my son in prolonging his walking. Praying that everything goes well for Noah and you guys. 💚💚

I was very against a g tube first but it was really not a big deal when my kid got it. My child had it for 5 and a half years from birth and now they are completely eating and drinking as any child. We took of the g tube when they where 6.

Would he do like pedialite popsicles for extra hydration. As far as food I have no clue other than the feeding therapy that you’re going to be doing

My son stopped eating and drinking altogether one summer. Fortunately a neighbour suggested to put him in a bathtub and while he was playing with water, he was drinking it as well. I was lucky, it was just a few days.

Get the kids body armor drinks to see if he will do the same.

I still think that for Liam his BEST option is to get the G-TUBE, as its not the end of the world and will help him now and could be used in the future. Its best for his food and drink, as he refuses. Especially when it comes to hydration and weight its best to keep it in mind as a good idea

I hope the GI doctor checks him for EoE since it can have a genetic link

I have heard there is also a shortage on formula for feeding tubes. Will this effect him getting a tube.

Woops commented too soon lol. Good that he’s drinking now! Yay!

I’d actually argue the opposite of what the surgeon said. Our 12 year old has a gtube and has actually eaten more since he got it because he doesn’t feel the pressure anymore. Don’t get me wrong, he’s still not eating much but it’s more than before. I know over a dozen families who have experienced the same thing. While there are potential issues with the gtube, maintenance and what not is super easy. We’ve learned so many tricks over the years that has made it take very little time to prep and clean up each feed.

What apps do your kids use

I have a gj tube. Started with a g. I have had some come out from catching on things. Honestly has been the biggest game changer for me (I have one for EDS digestive swallowing complications). What is caprisome or whatever the drink is? Does he like icy poles? Or jelly? You sound like you juggle a lot. Be kind to yourself

I wonder if it had anything to do with Lex having them. Maybe it was a combo of Lex having the special drink, nobody trying to get Liam to drink the juice but it just being around, and him being able to grab it on the go. I wonder if Liam will try to take any other drinks or snacks left around especially for Lex?

Basically you should be able to read through your pee that's what I heard in the military LOL

Hiii!!!!

If you don’t want Liam drinking Capri Suns all the time you can try Little Hug Fruit Barrels the original ones they taste a little bit like a Capri Sun and they come in fun Colors

I am so sorry you’re going through this. This has to be making you very anxious. I know you will make the best motherly decision that you possibly can for yourself and for your children especially little Liam💕💞 He’s so freaking cute and adorable he reminds me so much of my johnathyn just with red hair! Lol 😂 Do you think maybe he just likes the straw, I mean I don’t know have you tried other juices with the little straws like the apple juice boxes and the yahoos etc.? Also they make refillable pouches with straws in the shape of Capri Suns on Amazon or maybe he would possibly enjoy that. Just a thought also just curious does he have a favorite food would he eat the same things over and over again I know Johnathyn will eat macaroni for breakfast lunch and dinner if I allow him to and sometimes we got to do what we Gotta do to make sure our kids eat even if it’s the same thing. 😂 wasn’t trying to pry just trying to be helpful I love your channel and your journey 💕💕💕

I just want to let you know you are a good mom to make sure that your children get everything they need was having so many children with multi problems you have to multipack all the time I know exactly what's going on with each one I give you a lot of credit because you are a good mom and you make sure that the past is done for each child I wish you luck with Liam I hope that everything works out you shouldn't have to tell us everything because we really don't need to know everything we need to know is that you are doing the best that you can and that is all that should be asked for in this life that we do the best we can with what we have I know you will do the best you can for all of your children just please know that I don't let people think that they can say things and be disrespectful because you don't need disrespect what you need is people to understand what's going on in your life but as I've said you don't need to tell us everything tell us what's important to you I'm just glad that Liam is going to get the help he needs and all your other children are not suffering either you are doing everything you can and you could be assured of that but knowing people like me who care and don't want to say anything to hurt anybody

Wow you have so much going on. Do you follow Stalens Way? Just wondered if talking to his Mom would help you? He has a g-tube cos he wasn't putting on weight. Now he can get enough fluid and his meds and has put on 11 lbs since Feb/March. Maybe talk to his mom about managing a g-tube? Sending ❤️

If you want something less invasive you could ask GI about an NG tube. My daughter stopped eating/drinking two years in a row at the exact same time of year. It’s super odd and we still don’t understand why. But the first time it happened she got an NG tube (because it’s not as invasive as a g-tube) and she started eating in one month and also trying new foods she had never eaten before. So she got the NG tube out in about 4 months. The second time it happened she got an NG tube and now she’s had it in for 8 months. We are still trying to figure it out, get her the help she needs, and get some answers.

I know this sounds like a strange question but could you give me some recommendations of some of the music you use for your videos please because I like all sorts of unique artists

💙🙏💙🙏💙🙏💙🙏💙🙏💙

If you water down his drinks, he is getting limited calories and could be why he is also losing weight. In addition, too much liquids can cause the opposite effect and dehydrate. Obviously your doctor will know best but I was surprised they said to water down instead of add liquids.

My son won’t even do a bandaid he would rip a gtube out in a heartbeat

My child with autism is one of those that would eat themselves to death like a dog if we let her. But, my neighbor has a child on the spectrum too and he’s had a Gtube for many years. He does well! ✌️💜