Trying To Cure My Chronic Fatigue (ME/CFS) & Postural Orthostatic Tachycardia Syndrome (POTS)

Рет қаралды 28,195

4 жыл бұрын

Today I'm talking about my chronic illnesses, Chronic Fatigue Syndrome (ME/CFS) and what seems to be Postural Orthostatic Tachycardia Syndrome (POTS) and what I'm doing to try and cure them. I'm sharing my research on these illnesses as well as my recent learnings about another illness called Beriberi which has very similar symptoms and is caused by a Vitamin B1 (Thiamine) deficiency. My intent in talking about chronic illness is not to complain but to hopefully bring hope to anyone out there also suffering from an "invisible" illness. Hope, that there IS an answer out there!!
I am determined to get to the bottom of it and I'm willing to be the "guinea pig" and try out some things to see if I can improve or clear up my symptoms. Even though I've been sick for over 10 years, most of those years I was not actively looking for solutions. At the start of my illness, at the age of 17, I was desperate to get better! But after my tests kept coming back normal and there seemed to be no answers from doctors I just sort of learned to adapt to my new "life" and stopped trying to get better. Things had sort of mellowed out after a while so it wasn't until I got some flareups in recent years that I began on down a road of my own, researching, testing, and attempting to solve the mystery again.
▶▶▶ WATCH MY CFS UPDATE VIDEO HERE:
• Still Trying to Cure M...
▶▶▶ WATCH MY ENTIRE CFS PLAYLIST HERE:
• My Chronic Fatigue Syn...
INFORMATION FROM THE VIDEO:
The Vitamin B1 I'll be trying (Benfotiamine / Thiamine):
Buy it on Amazon: amzn.to/2wlpaTI
Chronic Fatigue Syndrome (ME/CFS):
www.ncbi.nlm.nih.gov/pmc/arti...
POTS (Postural Orthostatic Tachycardia Syndrome):
Dr. Berg's video: • Hidden Deficiency in P...
www.dysautonomiainternational....
B1 (Thiamine) for Chronic Fatigue and Fibromyalgia:
www.healthrising.org/blog/201...
www.prohealth.com/library/how...
MTHFR Gene Mutation (I have two copies of the C677T variation)
www.psychologytoday.com/us/bl...
mthfr.net/mthfr-c677t-mutation...
A great place to buy supplements for MTHFR:
www.seekinghealth.com/collect...
Beriberi:
www.hormonesmatter.com/case-c...
Dr. Berg's B1 (Thiamine) deficiency Playlist:
• Vitamin B1: Synthetic ...
Thanks for watching this video! If you want to see more updates let me know in the comments. Also, let me know if you have a chronic illness and what you've tried for it, what has worked and what hasn't. I'd love to hear!
#chronicfatiguesyndrome #posturalorthostatictachycardiasyndrome #chronicillness
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Пікірлер: 436

@SimpleMomming 3 жыл бұрын

⭐ Watch my latest CFS video update here: kzfaq.info/get/bejne/frGGdsKGvs2wn3U.html

@mollymcvey569 3 жыл бұрын

I have chronic fatigue for 10 years after I have my kids and I started taking vitamin D3 20,000 IU daily, vitamin K2 as MK-7, vitamin B-1 Benfotiamine, and Nutritional Yeast non- fortified I am healed from my chronic fatigue it took only two weeks. Thank you Dr. Berg.

@kangriviewhpsecond1308 Жыл бұрын

how much b1 u take?

@valueadded567 Жыл бұрын

How much benfotiamine

@moniryousefian8782 Жыл бұрын

Could you please share which brand of vitamin k2 and benfotiamine did you take?! Most grateful 🙏❤

@yassina-r6806 9 ай бұрын

I believe it was the benfotiamine that healed you. People take megadose benfothiamine. I use to take small amounts (300-500mg) of benfothiamine. As soon as I followed the instructions of a woman inn the comments of Dr.Berg Video..... felt great! Brand new. I took 1500mg benfothiamine at 1 time. The lady who was cured who left the comment said she took 1800 MG pm a empty belly at 1 time. She continued this dose for I believe 9 days or more. I'm sorry it was not a dr.berg video comment, it was EON nutrition. He's B1 expert

@andreuxg 4 ай бұрын

Vitamin D deficiency due to fatty vitamin malabsorption/dysmetabolisn

@lorijohn7780 4 жыл бұрын

Yes, definitely update when you can. Would love to follow along and see how everything works out ❤️

@lightwavz 2 жыл бұрын

Ehlers-Danlos, Dysautonomia, POTS. I have had the blotchy legs my whole life, even when I was young and able to bicycle up to 100 miles a week. Now I can walk around the block a few times with effort. Hoping the B1 is key. It really does flummox me that doctors find us "bothersome" instead of trying to help. These are illnesses that don't make docs money, eh?

@suzannahjames526 3 жыл бұрын

Thank you so much for this amazing and timely message. I have been ill with fatigue for over 3 years, and your video gave me hope. I will watch the recommended videos on the list. By the way, you look fabulous! So when you are fully fit and well, goodness, you will look more stunning! Get well very soon!

@SimpleMomming 3 жыл бұрын

I’m so glad it was helpful! I recently filmed an update video on my progress. Be sure to watch that too so you’ll know what has been working for me! Here is a link: kzfaq.info/get/bejne/baiTnpVyz7OXd30.html

@terryrusselleverydayguy1613 4 жыл бұрын

I'm sorry to hear this kiddo. I've been dealing with this for about 30 years. Be aware of all the symptoms to help you to avoid more problems. This is a very common problem among people. Make sure you do take vitamins. I did not pay attention to my legs and feet which caused me to suffer a major heart attack and getting type 2 diabetes. your on the right track always remember take care of you.

@alisonbamford6723 3 жыл бұрын

There are many out there who believe that Diabetes is just Beri-Beri in disguise - & considering all the ‘diabetic complications’ & the poor carbohydrate metabolism at the root, it doesn’t surprise me one jot.

@sweetgirly8489 4 жыл бұрын

Yes, please update us through your journey. I feel like I have something like chronic fatigue too and would like to know what works for you! Wishing you the best and hoping you find some relief! ❤️

@SimpleMomming 4 жыл бұрын

I’m so sorry to hear you’re going through something too. I will plan on continuing to update! I truly believe there’s an answer out there for every chronic illness 💕 Thanks for your comment :)

@sweetgirly8489 4 жыл бұрын

@@SimpleMomming I hope you're right! I look forward to seeing your updates 😊

@moniryousefian8782 Жыл бұрын

@@SimpleMomming I just discovered your channel and really appreciate sharing your story it's my story too brain fog ,heavy legs,heart palpitations,.... How are you doing now ?! Could you please share which brand of benfotiamine did you take? Did you take anything else ?! Most grateful 🙏✨❤

@rdance3 3 жыл бұрын

I retired at the age of 53 due to extreme fatigue., both mentally and physically. I have 5 doctors and was taking 20 prescriptions. I started on a MTHFR protocol and now, at age 56, I'm the fittest person in the gym....literally. I had a guy, about 40, very fit and stronger than me, ask me my age. When I told him, he said that I was his idol!. I'm sitting at 13.0% body fat right now, sporting a nice set of abs for the first time in my life and I was a wrestler, surfer and Navy Diver. Learn everything you can about MTHFR.

@mcgragor1 3 жыл бұрын

Can you elaborate a bit? Basically what you are doing in a nutshell? Thanks

@rdance3 3 жыл бұрын

@@mcgragor1 This will be VERY abbreviated. I avoid Folic Acid like the plague. Instead, I take Methylfolate and/or Folinic Acid. I avoid Cyanocobalamin, instead inject Hydroxocobalamin and orally take Methylcobalmin. I also have an extensive supplement list which includes: NAC, MSM, TMG, Choline, B2, B3, B5, B1, Zinc, Magnesium, Iodine and much more. Yesterday and the day before, I ate 1 lbs. of liver. That's all 4 pieces of a 1 lbs frozen pack. Normally, I eat only 2. That about 100 grams per slice. On days that I don't cook liver, I eat about 75 grams of liverwurst. I also eat sardines, oysters or herring every day. I workout 5 times per week, some times 6.

@cagefreebrain5843 3 жыл бұрын

@@rdance3 Wow, thanks for the info! A pound of liver -- I love it, lol!! I'm learning about MTHFR myself. Let me know if you're open to chat -- would love to help myself and others, especially those with epilepsy!

@rdance3 3 жыл бұрын

@@cagefreebrain5843 I'm in a Facebook group called Complete Mind Body and Spirit Optimization. If you join this group, we can chat on messenger.

@cagefreebrain5843 3 жыл бұрын

@@rdance3 Dang, that facebook group still has not approved my request to join. Wasn't able to find another way to contact you. I'm super interested to see how long after MTHFR optimizations you saw your results. Wondering if it can take just a few days or if it takes most people a few months. My initial introduction of B vitamins was rough, but I know time / dosage / forms are important. I'm really impressed with your supplement stack though, lol! Also interested in the benefit of B12 injections (vs oral B12 supplements). I don't think I can put links or contact info in KZfaq comments, but I'm on facebook /CageFreeBrain and my gmail is dan.martin11

@lylahast5732 4 жыл бұрын

Please keep these up!

@donquihote6023 3 жыл бұрын

I just discovered this myself. Very glad you found this when you are young. I have been fighting chronic problems for over 30 years. This has made a huge difference for me. I am only 3 weeks in and the difference is noticeable. People are crap. They don't get it and don't give a damn. Doctors are pretty damn worthless when it comes to this problem. It is too much work and not obvious to them. They take the easy way out 99 % of the time and will claim it is in your head or you are mental. It gives them a pass on their ineptness and screws you in the process because every doc you see thereafter won't challenge what is written! Keep seeking, you can make it to health.

@SimpleMomming 3 жыл бұрын

I’m glad to hear you’re doing better! :)

@tootienottoofruitie1726 3 жыл бұрын

Don't q.... Doctors being worthless many times is a complement ❗ just saying

@donquihote6023 3 жыл бұрын

@@tootienottoofruitie1726 Really not following you on this. Watched a woman lose her marriage, kids, job, autonomy and have a huge arrest record. Police thought she was a junkie, Doctors that she was crazy, friends and family that she was faking it. After 10 years, she found someone who discovered she could not absorb copper. The enzyme was missing or dysfunctional. Correcting this gave her a life back. The damage from prolonged depletion was extreme. This is a WTF AND WakeTFU moment. No one before had even thought to look. No, not a complement.

@tootienottoofruitie1726 3 жыл бұрын

@@donquihote6023 oh, what I mean is that the best a Dr has to offer being a waste of time is a complement bc many times they can harm, hurt and even kill you with their tests, drugs..etc.

@garyr1934 3 жыл бұрын

Best of luck and health Looking forward to your positive results You are about to turn your health around

@suzannahjames5264 Жыл бұрын

Hi Christy, I’ve just seen this video and I hope you have completely recovered. I’ll try and find the results of you taking Thiamine in other videos. Keep well!

@melaniedawn4256 3 жыл бұрын

Removing any amalgam fillings is a must when dealing with chronic illness as well. Had mine removed about six weeks ago and the improvement in health has been miraculous. Not cured, though, so definitely looking into thiamine. Thank you

@kemillegreene9743 2 жыл бұрын

Did you have sensitivity afterwards, what did you replace them with?

@TheBushRanger. 2 жыл бұрын

Are you cured now?

@theantiqueactionfigure 10 ай бұрын

I had all my amalgams removed over a year ago, it hasn't made any difference in my CFS.

@katejackson6502 3 жыл бұрын

I have both of these and seizures (Functional Neurological Disorder). It has been 10 years for me as well. I take CoQ10 and that is one thing that does help. But I recently learned of salt tablets, compression socks. I'm going to try those next. Ugh Doctors just are the worst with these illnesses! I wish you well in your journey!

@mattleonard5268 3 жыл бұрын

I love you and I love your personality and I think you’re a great human being with a bright future

@BioStuff415 3 жыл бұрын

Many of these conditions involve low vitamin D, insufficient omega 3 intake, and insufficient B vitamins, and low iron... And people are eating nutrition poor foods, and go to see MDs that know little or nothing about nutrition and disease.

@tracitacoface1531 3 жыл бұрын

Yep I realize I need to see a Functional Medicine Doc. Then test for vitamin/mineral deficiencies. I’ve changed my diet (drastically) and I’m dabbling in intermittent fasting. Regular doctors have ONLY thrown drugs at my symptoms. I was UNAWARE that ALL grain was causing numerous problems in my body AND I am allergic to ALL dairy. My insurance does not cover Functional Medicine so I’m scraping by, purchasing my own lab tests, for now. I don’t eat junk food or fast food anymore but still struggle with fatigue.

@kaykayyyyymwaa 3 жыл бұрын

I think my CFS was caused by having my full bladder removed. No bike makes it hard to absorb fat soluble vitamins. It has been 21 years but CFS just started 7 years ago. Wanting to find out if bike salts will help.

@dmxdex 2 жыл бұрын

Most are actually Vitamin B1

@jennifertimmons1253 4 жыл бұрын

Hi Christy, I just found your channel and I also have POTS. I think maybe a lot of your symptoms the brain fog, extreme fatigue , ECT.. are probably coming from the POTS . I deal with all of those symptoms daily and every day is different. I would recommend seeing a neurologist to have a tilt table test done for a definite diagnosis. After maybe they can help you figure out the best way to get it under control, or find out the cause. Then hopefully if they get your heart rate down some you won't have such bad cfs symptoms. I've been struggling for over a year now and I am still seeing different specialist to try and find the cause and a treatment plan. Some days are better than others but it's a hard life to live when you have POTS. Don't give up (that's what I have to tell myself daily) you will find a doctor that will listen. I go through the same thing, them telling me I'm to young for all of these problems. Keep us updated! ☺

@SimpleMomming 4 жыл бұрын

Thank you for sharing this! I would definitely like to find a doctor that can do the tilt table test for me so I can have that answer :) I’m sorry to hear you’re going through this. Hopefully we can keep each other encouraged by sharing what works for us in this community.

@prathamrballal1229 3 жыл бұрын

How is ur pots?

@poisonpalette4663 3 жыл бұрын

I’m so glad I’ve found you I have lots and autonomic dysfunction and chronic fatigue I’ve been poorly for 3.5 years and like you been researching and seeing so many consultants and they just ignore that’s it’s destroying my life and not interested in finding the cause. I’m going to follow your journey, I also saw a functional doctor and started to address some of the numbers that are not great. My ferritin is low but no one is interested in that. I’ve tried so many things to raise that so no avail. What was the gene that you had tested that stopped you being able to take folic. ?

@robnation2475 Жыл бұрын

Great info thanks! I haven't been diagnosed with POTS but I definitely have/had most of the symptoms. Here are some things your video reminded me of: Like yourself, I finally/recently figured out that B12 was messing with me and now you have convinced me just to focus on B1. (I follow Dr Berg too oddly enough :) I was having problems like reflux and swallowing issues(EOE?) while taking B-Complex as well (makes sense). There are some interesting studies about SIBO and POTS. I started taking Alpha Lipoic Acid a year ago after losing my sense of taste and smell (likely Covid related). Alpha Lipoic Acid seems to have radically helped my gut issues (SIBO?). I also have a hiatal hernia that has calmed down considerably ...more so after ditching B12 and/or B-complex vitamins. My vision can vary a lot when I get up in the morning. Anybody else? I recently got a script for VUITY eye drops. They help somewhat but there must be something else triggering all of these silly issues.

@daisy7066 4 жыл бұрын

I'm firmly convinced M.E. results from physical trauma of various kinds including dramatic changes in lifestyle for the worst, bike accidents, etc

@martinbishop5228 2 жыл бұрын

I had a bike accident 6 weeks ago I'm really struggling to stay awake just to long enough to write this comment. I wish I could do something about it..zzz

@marinedesplat7675 3 жыл бұрын

Find out more about Sulbutiamine, it is a modified version of B1 that can be assimilated more easily by the brain, created for Japanese people with a high B1 deficiency (it is also used to improve cognitive ability)

@etherspin 3 жыл бұрын

I'm going back to investigate this all again cause I tried Sulbutiamine when i was developing CFS and read that it was stimulatory and have mental clarity... It actually would make me rapidly drowsy and then actually fall asleep when I'm an insomniac normally. Now since I've read more I want to try again cause I'm wondering if that was an energy chemical cycle resuming specifically in my brain where Sulbutiamine is targeted and overwhelming me. Gonna try just high dose normal B1 first. Great comment from you BTW

@MISSIONCAT11 3 жыл бұрын

you might use this with an ounce of olive oil. this will allow the sulbutiamine to enter the brain, as fat soluble nutrients need fat to get in. note: Ivermectin is a Japanese development from the 1960's. I have received some of the horse Ivermectin and I am keeping it in the freezer to keep me off of a ventilator. some one should write a short book about the nutrients and medicines of the Japanese. they don't copy, they improve. china will be in big trouble if they mess with Japan.

@chronicallies8428 3 жыл бұрын

@@etherspin What happened is called "refeeding syndrome"

@Brave2standalone 3 жыл бұрын

I had many of your symptoms and I'm now taking 'Hawthorn' and 'Valerian' herbs in capsules for heart palpitations. I started B1, B12 with Magnesium for stamina. I'm also taking Metformin, Glipizide and aspirin for my diabetes. For now I'm feeling better and my glucose is better, too; it was out of control previously and I was constantly exhausted. I definitely see the improvement.

@BobsClique 2 жыл бұрын

Metformin (diabetic drug - insulin sensitivity) can cause neuropathy, B1 (Thiamine), B12, CoQ10, folate deficiency - Aspirin is taken long will cause intestinal bleeding.

@binathere2574 Жыл бұрын

Metformin is known to cause B1 Deficiency

@Brave2standalone Жыл бұрын

@@binathere2574 @ you meant B12?

@binathere2574 Жыл бұрын

@@Brave2standalone no I meant B1

@icecreamladydriver1606 3 жыл бұрын

My daughter got hit with fibromyalgia and chronic fatigue when she was about 12 or 13. It is tough to watch your active little girl who spent all day with her horse go to a little girl curled up in a chair watching or Andy Griffith reruns. You don't look sick so people label you. As a parent you really want to just shake people until they teeth fall out.

@SimpleMomming 3 жыл бұрын

😞 I totally know what you mean 💛

@taylorpelletier89 2 жыл бұрын

I’m glad you support her. My family thinks I’m a fraud because I’ve had bipolar since I was 16. Mono at 27 gave me severe physical problems for ten months and now a light case of Covid in January has brought all these physical maladies once again and I’m nearing my two month mark for when my body collapsed again. It’s absolutely terrifying to be back in this nightmare and also have to deal with doubt from friends and family, or even worse not even caring to hear anything about it or deflect and say let’s go play hockey or some crap when I can barely walk up the stairs and am in constant pain. I’m sorry to hear about your little girl and give her support forever and always. It’s so important when suffering with invisible illnesses.

@luisberrido 3 жыл бұрын

Remain like a ¨¨ CANDLE¨¨, always spreding ligth with your beautiful smile. Thanks for your advice.

@freeman3320 3 жыл бұрын

Really good video. I have been taking benfotiamine (and B1 too) for over a month but haven't been able to pin down any improvement. Viewing videos about different vitamins has really helped me to associate outcomes with a particular vitamin. I will examine my B Complex to see about the Folic Acid. Also, I will search to identify foods that have folic acid. Thanks again.

@leighwalton8190 3 жыл бұрын

John, you may be not taking enough benfotamine. I've been following elliot Overton and he talks about high dose- meaning 1000mg and more per day. Currently I am taking 2.5g a day in 500 mg doses. Superb amazing results. Also necessary is a good absorbable magnesium, b complex and potassium as I noticed the high dose b1 causes fatigue crashes which stop altogether with extra potassium. The b1 is life changing.

@KIke190JRF Жыл бұрын

@@leighwalton8190 are you still in high doses? What were yours symptoms? And how are you feeling now?

@leighwalton8190 Жыл бұрын

@@KIke190JRF hi. I was recovering my immune system and muscle strength after a long period of taking immune suppressants and steroids prescribed for polymyositis. Its been over a year now off the meds and I introduced high dose vit D3 (30,000 iu daily) and started to reduce the b1 down to 500 mg daily as I recovered muscle strength. I've been taking that now for about 5 months and doing fine.

@H4me7215 3 жыл бұрын

You are an angel, thank you for your info.

@alnev6664 4 жыл бұрын

If you drink coffee or take caffeine you might want to stop because you may have Adrenaline fatigue , if you keep ramping up your energy levels every day you’re going to burn out your adrenaline and then have no energy

@SimpleMomming 4 жыл бұрын

A couple years ago I was taking caffeine pills (because I’m not a coffee or soda drinker) to try and stay awake. You are right, it backfired and I had major Adrenal Fatigue (confirmed by testing). I quit the caffeine and it got worse for about 10 days and then I started to recover from the Adrenal failure thankfully! My cortisol levels were shot at the time! Now a year later I’m completely caffeine free and plan to stay that way!! It is NOT worth adrenal failure! Thanks for the comment :)

@alisonbamford6723 3 жыл бұрын

Coffee (caffeine) is one of the anti-thiamine factors. It apparently blocks Thiamine uptake. If your body can get & retain Thiamine it may not be too much of an issue, but it can make a deficient state far worse. Elliot Overton describes in his video that what is known as Adrenal Fatigue is not due to weak adrenals but to Thiamine deficiency causing Cortisol issues. He also points out that it can take up to a year for Thiamine supplementation to restore health in some people, so not to give up too early. Supplementation can also exacerbate certain symptoms temporarily at the start over the course of a few weeks as the body starts to use the Thiamine to purge toxins, etc.

@mateuszmazurek7991 3 жыл бұрын

@@SimpleMomming Oh God, I was caffeine free in 2011-13 it was great!! Then I got weekend job (6am on saturday and I'm not a mornign person) and coffee was a must. First 2 coffees a week. Now 14 coffees a week and planning to quit, can't get enough willpower to do that, I wonder if that would help my dizziness issues.

@freeman3320 3 жыл бұрын

This is probably true. Thanks for reminding me.

@TheReminderChannnel 2 жыл бұрын

@@alisonbamford6723 thank you Alison, do you know which video Elliot speaks about this specifically? (He’s got so many) thank you again 🙏

@sunnyd1928 4 жыл бұрын

Cfs recovery videos by toby are really helpful ❤

@SimpleMomming 4 жыл бұрын

Thanks!! I’ll try to check those out :)

@martinlorentsen4704 4 жыл бұрын

@@SimpleMomming Dear Christy! You have sub-clinical BeriBeri. This is chronic B1 deficiency and hits the brain and heart. Your POTS and high heart rate is due to the inability of your brain to produce acetylcholine, which is a major neurotransmitter used by the parasympathetic branch of your autonomic nervous system (ANS). You have dysautonomia. Your brain fog is not due to the ANS, but dry beriberi hits the entire brain, starting with the limbic system and wernicke's area and cerebellum. Please read this book: a.co/0QK3FBj You will have material for many more videos. Best regards Martin Lorentsen

@crystalkeara8868 3 жыл бұрын

“I don’t know...go away” 😆 sorry...funny, not funny 😆 That’s exactly how I feel about seeing doctors

@tracitacoface1531 3 жыл бұрын

Exactly my sentiments😏 regular doctors are trained to treat a symptom with a pharmaceutical drug. Not treat the actual illness where your symptoms are coming from. We need to be seeing functional Medicine Doctors but I am not aware of any of these doctors being covered by any insurance. 😳What a racket. I’m trying to save money For a FMD. Wow....

@wikingsweden7464 4 жыл бұрын

It's realy a pity that you don't have more viewers that you do. You seems to be a wounderfull woman, i like to watch the videos about your life when I go to bed, the only problem is that your voice is so soothing that I fall asleep in the middle of the videos 🤗🤫😴 Keep up the good work! Would realy like to meet you for a cup of coffe since you seems to be a very special person, and I'm interested in interesting people, but sadly that is not so likely since I live in sweden with Santa and polar bears 😉🎅🐻❄️🏔️🌨️ how ever we have a little worse sno mobil weather for a few months aka "the summer" 😁 I also had problem with fatigue after working around the clock for 3 years, I took a long vacation and sleept like 12-14 h per night for 6 months before I "restarted" life, I was lucky to have the means to do so, but I realy needed it, and now I realy take first signs of being tired seriously, and just go watch tv or take a nap, or take a few days of, I now work to live, not live to work, and that has helped, it does not matter if somethings have to be done tomorrow instead of today... I don't know if this advice help you or not... Have a Great day !

@usmcmustang2972 3 жыл бұрын

I take Dr. Eric Berg's advice on so many health choices ... I just started Benfotimine today ... ran across this video, and hope you are well.

@chickerbeball 4 жыл бұрын

I have CFS/ me. I’ve noticed big changes in my symptoms for the better. I’ve been reading a book by Dr Sarno called the divided mind and doing an app called curable. As well as listening to others who are basically recovered from a mind/body approach to the illness. For me it started when I was going threw a lot of stress from different things. All the sudden it felt like I couldn’t hold anymore stress so I snapped. This all happend within a couple days and have had CFS every since.

@SimpleMomming 4 жыл бұрын

That sounds very similar to how mine came on. Thanks for sharing your experience :)

@nocompulsioninlove2148 4 жыл бұрын

Wow my illness started after i abused my body for 2 to 3 years just because i can... Sports, bodybuilding,college,long stressful motorcycle rides in a no traffic rule country, consuming foods that irritated and finally destroyed my gut,sprinting sessions, hiit etc etc... Ive been sick from 2015 and i have barely any little physical activity, i have put on 60 kilograms or 130 pounds of fat, I used to love life.....love new things, love technology, love movies,tv, songs etc. I usually was excited about every little thing now i dont even feel excited about big things. I cant even walk for a 100 meters without passing out or puking , all my muscles cramp up while doing any kind of activity. I fucked up big time. I am unmotivated like a sack of potatoes. All my old clothes dont fit me even my shoes have stopped fitting. I dont know what to do......

@nadimares7153 3 жыл бұрын

I can relate to that perfectly, 10 years of chronic fatigue syndrom as well, taking vitamin B supplements for the last 3-years and feeling significantly better. Now I'm also planning to try high dosage of thiamine (:

@vl2663 3 жыл бұрын

Hi do you take specific B vitamins or a b complex in general?

@nadimares7153 3 жыл бұрын

@@vl2663 I take nutritional yeast, but a lot. The most important is vitamin B1, B6, B12.

@taylorpelletier89 2 жыл бұрын

@@nadimares7153 how’s the thiamine going? I believe I’m having a paradoxical effect and it’s quite terrible at the moment.

@marisaestrada123 2 жыл бұрын

@@taylorpelletier89 How much B1 are you taking? Thank you

@taylorpelletier89 2 жыл бұрын

@@marisaestrada123 I believe I was taking 300mg a dose. I’d have to check my bottle. I think each capsule was 50mg and it was a highly recommended brand. I stopped all my supplementation due to a severe bipolar depressive episode and need to get back on a healthier regimen if I’m ever going to see any improvement in my post viral syndrome issue I have.

@lancetaylor7 3 жыл бұрын

I took a flu shot and 3 days later my head was under pressure, body stiff, very tired, and after 15 years it still is there..the mercury, aluminum and other adjuvants in these shots can react against your immune system....beware of such shots. "Chronic fatigue" is a name for difficult to diagnose illnesses, from different causes. I think my head is under inflammation which causes a feeling of pressure, and I have fatigue after sleeping and tired head, don't do work unless I have to. No leg issues or POTS issues, tho my wife massages my legs which makes them feel better.

@lotta4812 4 жыл бұрын

How are things going with the supplements? I'd love to see an update video. I have a similar experience to you with chronic fatigue and POTS. Thanks Christy:)

@carmella88 Жыл бұрын

Hows your pots been? I think I have this im going crazy

@oarchia 3 жыл бұрын

Hi. I have all the symptoms that you have described and also the mutation. I am also ordering b1 today to see if that improves my symptoms. I also started taking methyl folate and methyl b12 but that has. It helped a lot yet.

@karamlevi 3 жыл бұрын

Hypnosis. 2ndary gain issues. Also, parts integration. Those two things could transform you. Also, I rocked a no wheat diet, and lots of fruit n raw food... transformed quickly. I had cfs for years apon years on and off. Childhood trama and or fear/avoidance of happiness and success is a real deal to be aware of. Your energy is very nice, you have a unique pretty look also. That could be a problem too. Why / how? Avoidance of attention n things related to that. Lastly, only getting attention for problems or problems as a sanctuary. What I’m sharing is what helped me get over my own cfs issues. Nice energy can also mean open energy. Aka effected by others very easily, especially non kind people. When you map it all, you can see how one thing can affect the other, also... it’s all about trouble shooting. For me: Wheat Fast foods Sugar Happiness Success Relationships Attention Stress eating Where the basics of my issues. I am a healer now, and have helped people get over issues held for decades in just one session. How/why? Secondary gains discovered n rerouted / healed at subconscious levels. Plus upgraded mental wellness strategy I intuit. That’s how I work now, over all. Holistic lifestyle approach with special care / emphasis for your emotional life. How does this strike you ?

@melissabp1095 3 жыл бұрын

I’m facing the crushing reality that I have POTS. I’ve had up and down feelings of illness with being fine in between since March 2020 but in the last 5 weeks I haven’t pulled out of this horror story. I’ve been in and out of emergency and yesterday the ER doctor diagnosed me with POTS. This has to be verified by a specialist using the tilt table. I can move very slowly and carefully across the house but as I stand my heart increasingly becomes erratic and it feels as though I’ll pass out. I have an Apple Watch that tells me that I’ve gone from 45 bpm to well over 120 bpm. Even after lying down it takes a while for my limbs to recover. I had a theory that this was caused from a spinal issue and had a cervical MRI done. I have one bulging disc on the C4/C5 area but I gather it’s not posing a considerable issue to surrounding nerves. I am going to attend a spinal care clinic to rule out Craniocervical Instability which causes symptoms like what you and I have. I also learned about bilateral adrenal medullary hyperplasia, which a man called Doug Lindsay faced - incredibly rare. For me, I’m trying to figure out what organ or part of our body causes this, rather then treating POTS itself. I am too depressed to think that this is the rest of my life, with two young children that I enjoyed partaking in activities with. If we can determine the root cause then maybe we can treat that and consequently treat the POTS. And no doctor will help. We have to learn enough to ask the right experts and then tell our doctor to fill in the requisition form to see said experts. A sad but very real situation.

@vee9133 Жыл бұрын

How are you now?

@theantiqueactionfigure 10 ай бұрын

Diagnosed with CFS 20 years ago at age 50. I have always felt fortunate that it did not hit me early in life.

@bettyreed8625 3 жыл бұрын

You, darling girl , are a beautiful Zombie! Remarkable eyes. I had Tachycardia with shortness of breath and an inner body tremble accompanied by swollen legs/feet. Happened 1-2 times a yr in beginning…. Increasiing in frequency, I now know, as my body became more toxic. Only when I ate out! Some yrs ago cut all prepackaged foods from diet. All the white foods…. Sugar, flour, POTATOS, I’ll breads etc.

@bettyreed8625 3 жыл бұрын

Haha! Didn’t mean to SEND! Should be potato’s…in last post😉 Completely changed diet… whole plant based. Try to eat organic when possible. Also 2 times wk eat grass fed & finished beef. Just a handful…. maybe size of 2 med size meat balls. This is right for me. I basically eat same thing every day. Like you….I did my yrs of doctors. Dr. Berg is my go to for easy to grasp info. Always spot-on. Same memory problems as you. I like Berg because he presents the “big picture!” I can grasp it! Get away from GMO’s, preservative and additives in your foods. After these changes in which my body eagerly accepted……now eat in moderation. Found Benifortime to be most helpful with leg weakness. Same symptoms as you. Hoping to find a Functional Medicine Dr near me. Hoping all this makes sense as I messed up first post! Am so good at that…..

@homeopathywellness1719 3 жыл бұрын

Hi girlfriend! I hope you are improving. I've been thru it all too w my homozygous 1677 mutation. For incredible healing, I can't speak highly enough about ART, a highly refined form of muscle testing to determine the perfect assortment of vitamins, etc, to bring you to next stage of healing. It is worth finding a practitioner. Other vitamins will just block your biophoton emissions and cause chaos in the body. Aka Klinghardt technique. Must remove heavy metals to heal. ✌

@bevs9995 2 жыл бұрын

I found that going GF lowered my thyroid antibodies, which dramatically reduced the severe POTS symptoms. But Its still debilitating in a cant sleep/constant peeing/ always fatigued kind of way, even though im no longer having the severe almost passing out days... Hope to see the Allthiame work for you.

@sugarwalker89 3 жыл бұрын

Love doctor berg!!!

@elokubano 3 жыл бұрын

Hello from Poland. Add mini trampoline (bungee not springs) to your morning routine. Thats my intuitive suggestion. I strongly feel it will nake a huge difference. 10 minutes a day.

@cosmichealth3907 2 жыл бұрын

I hope you get well. This is what I recommend to my patients Vit d 20000 iu B1 500 mg 4 times Nicotinic acid 50 mg thrice and gradually up Vit c 5000 mg twice Lipo Glutathione 500 mg twice DMG 100 MG

@RF-js9yj 4 жыл бұрын

How did the B1 supplementation go Christy? Elliott Overton's channel talks about a case study of 300g of fat soluble thiamine, along with B2 and B complex which resolved 90% of CFS symptoms in just a few weeks. Just started on those myself, high doses seem critical to recovery

@SimpleMomming 4 жыл бұрын

Thanks! I will have to check out his channel! I will try to make an update video soon :) I’ve added some additional B vitamins to my experiment.

@djVania08 3 жыл бұрын

@@SimpleMomming Have you made one yet? :)

@mariekeegan8690 3 жыл бұрын

As a Fibromyalgia/ME CFS sufferer for over 30 years. I can honestly say that thiamine has helped me a great deal. Also B12 and vitamin D, I think I can say I'm recovered. Fingers crossed

@prathamrballal1229 3 жыл бұрын

How is ur csf?

@pogogogo9002 2 жыл бұрын

I might suggest Tudka to clean the liver and help digestion. Thiamin, B complex, magnesium, 5gm of Vit C. Berberine for mitochondria.

@grb9330 3 жыл бұрын

Hey, same issue here plus severe Fibromyalgia. Thiamine and pyridoxal 5 phosphate helped a lot. Also Betaine HCL as well as H2 antihistamines. If you take thiamine make sure to also get a B complex + Magnesium + potassium and start with good GSH levels. Avoiding certain foods did also improve a lot. Have you been tested for EBNA/EBV? Also do you know EONutrition? He’s great!

@bevs9995 2 жыл бұрын

what foods did you avoid?

@cdogg82 Жыл бұрын

Hi Christy, you can tell by the red in the whites of your eyes, that you're probably dehydrated too. I had this same problem and I noticed when I didn't get enough water my eyes would go red. Hope this helps

@TheFaizan151 3 жыл бұрын

When I was a kid. Are used to carry heavy bags to my school. since that I start feeling pain in my neck and severe pain in my shoulders. because of that whenever I wake up in the morning time I feel that I did not rest properly and feel tired. Till almost made of the day I am better. Then gradually I start losing my energy till the end of the day. Specially when I have little more work than usual. On my day off I try to spend my day in my room. And don't go out for any kind of recreational activity. I have also short term memory loss means I am forget full. But long term memory is better. I have seen so many videos of Dr berg also most of the time he discuss two things one is ketogenic diet and the other one is intermittent fasting lol anyways I wish I could get rid of this problem. Please keep sharing your experience about this illnes. Thanks & god bless.

@SimpleMomming 3 жыл бұрын

I’m so sorry to hear you’ve been going through this 😞 I have found that zinc and vitamin B6 helped me a lot. But you have to be careful not to take too much. You can get a liquid zinc that, based on the taste, will tell you if you need it or not. I will continue to share if I find anything else that helps.

@albussd 3 жыл бұрын

@@SimpleMomming HI Christy. How much zinc and Vit B6 would you consider as "too much"? It seems to me that the threshold is high, cos these nutrients get depleted fast especially in today's stress-filled world and for someone with CFS even more.

@saharazen 3 жыл бұрын

thank you. i have all the same symptoms you describe. like you i have tried all kinds of cures. please let us know your progress. black seed oil helps me but i still have days of being exhausted for no apparent reason.

@dryousry1960 4 жыл бұрын

Angel ... Great Thanks for your informative video ... May I ask you about my condition ... A vague Autoimmune immune Disorder starts like Sjogrens syndrome and complicated now with autoimmune biliary inflammation and liver Cirrhosis. Although all blood tests for autoimmune Disorders are Negative ... Also, I have brain fog, chronic fatigue and muscle mass loss ... What is your recommendation Great Thanks in advance

@gulfportgyrl8798 3 жыл бұрын

My sister in law had cirrhosis and her dr told her to take B1...the best is Benfotaimine. I think it could help you! Research!

@scotishcovenanters 3 жыл бұрын

You look BEAUTIFUL and not like a zombie. I also have CF/ME. Please let us know how it goes? I subscribed.

@DavidDavisLookwithin 3 жыл бұрын

Good Day @Christy Lyn Did the B1 cure this? I don't see a follow up video

@SimpleMomming 3 жыл бұрын

I have the follow up video linked in the description :)

@kathypitula3430 Жыл бұрын

Vitamin B1 is great. Good Bless you . Get better soon

@muddimert 3 жыл бұрын

I became ill early this year with a virus, which totally wiped me out for weeks with constant bed rest. Since then I have been suffering from POTS (self diagnosed) & sometimes orthostatic hypotension too. Thankfully most days I am able to go about my normal activities, but then they'll be days I feel awful with fatigue, nausea, chest pain, frequent trips to the boys room and brain fog etc. I used to be a descent long distance runner with good fitness, but now struggle to walk up a hill without feeling terrible 😔. I've been following Dr Berg for some years now and he inspired me to intermittent fast and I to had also seen him mention B1. I have been taking a food based multi vitmain tablet with 100% recommended dosage, which I can say it does help with anxiety massively but my heart rate still seems elevated on changing position. Did you have any luck with curing your pots, maybe I need a higher dosage? 🤔

@SimpleMomming 3 жыл бұрын

I’m so sorry you’re going through this! It’s terrible feeling like you can’t do what you used to. I’m glad to hear you have made some improvements though. B1 didn’t seem to help me too much and I ended up taking too much and made myself sick throwing up all day, so be careful with dosage 😬 I made an update video recently talking more about what HAS actually been helping me. I haven’t found a fix for my POTS (also self diagnosed at this point) but I have had major improvement with my general fatigue (I still have the POTS associated fatigue upon standing too long but the general zombie-all-day-feeling that I used to have no matter what I did, has improved, at least for the time being). I found out about something called Pyrrole disorder, which is basically a B6 and Zinc deficiency and it matched a ton of my symptoms. You can watch my update video about that here, if you’d like: kzfaq.info/get/bejne/baiTnpVyz7OXd30.html Let me know if you find anything that helps your POTS! Besides compression socks I haven’t had much success with solving that.

@muddimert 3 жыл бұрын

@@SimpleMomming thank you for your reply and I'm so glad to hear you have managed to improve your fatigue symptoms! Noted on the Vitmain B1 thanks and I'll continue with my current dosage 😊. The one thing that I have found which helps me with my symptoms is vitassium.com/. I know increasing your blood volume by taking sodium is quite a common fix so you have probably tried it, but these do seem help my symptoms and pulse rate reduces on standing too. I guess just make sure you keep hydrated and get a descent amount of potassium too to keep your sodium/potassium ratios in check. I'll be sure to keep a lookout on your channel and thank you so much for sharing your experience & research. Finally, big congratulations on your pregnancy. Thanks Tom 🙂

@muddimert 3 жыл бұрын

@@SimpleMomming you have probably already seen this, but just in case... kzfaq.info/get/bejne/fLlha7t-rMm4ZGQ.html. as your symptoms have improved though I'm guessing you're already on the right type, but still thought you may find it useful

@anitacarrier9386 Жыл бұрын

Can I ask about the Benfotiamine form of vitamin b1. I found out that thiamine hydrochloride contains aluminum which builds up in the brain and kidneys, luckily I am chemical sensitive so when I was taking this for just 2 days I noticed something wasn't right and came off it. When I researched it I was horrified to find out this was more of a pharmaceutical drug, created in labs by the pharmaceutical industry.

@rachelarc8837 3 жыл бұрын

I cured my POTS with vitamin B1. However, I had to take Allthiamine for it to work. You have to go low and slow but build up to 600 mg. It’s strong stuff but amazing stuff.

@SimpleMomming 3 жыл бұрын

That sounds promising! Thanks for sharing! How long would you say until you started to see some improvements? And what was your POTS like before you started Thiamine?

@rachelarc8837 3 жыл бұрын

@@SimpleMomming hey! Yea I used benfothiamine to help stop heart palpitations however they would come back. I still had electrolytes imbalances and potassium would always drop. I could get up without my heart going crazy. The B1 helps but the Allthiamine was the B1 that actually kept them away and the electrolytes got better over time. It is strong stuff and you have to take it with magnesium. I like magnesium glycinate. It will seem like your symptoms get worse the first time you take it so go slow and build. But that shouldn’t last long. I had to start with a quarter to half capsule. Notice a difference in the week with the POTS.

@SimpleMomming 3 жыл бұрын

@@rachelarc8837 great info, thanks!! Do you have a particular brand of the Allthiamine you’d recommend?

@rachelarc8837 3 жыл бұрын

@@SimpleMomming I think Allthiamine is the only type on the market with that name. You can buy it on Amazon. It will have a pink label in a white bottle. I just take one a day now so I don’t go back. POTS was awful.

@nkadimashiane 3 жыл бұрын

@@rachelarc8837 Allithiamine is the best form of thiamine hands down, with the highest bioavailability. I think it also work better because it crosses the blood brain barrier, energizing the brain which can now focus on repair. Damage that causes pots is usually happens in the brain. Rarely does it start with the nerves. See the brain has the autonomic nervous system which switches from fear, fight, flight, and rest recover and digest. If one of these branch breaks due to a thiamine deficiency eg. surgery, alcoholism, you could be stuck in the fear, fight or flight state. This will cause irregular heart beats, abnormal sweating and digestion and yes cfs. With alithiamine it is also important to take alpha lipoic acid, a b complex and magnesium in the hope you can repair the nerves and make it permanent. I'm also going to give them a try but we don't have Allithiamine (closest subtitute is sulbutiamine) in South Africa. I'm going to include benfotiamine for good measure. It deals more with the nerves outside the brain and I'm going to use sulbutiamine for the brain.

@valeriepurves5787 4 жыл бұрын

I have m.d. I get othoststic intolerance. Very unpleasant. I do have gut problems too. Be interested to know how B1 goes

@alterculture 3 жыл бұрын

I have ME/CFS, dysautonomia, just below the threshold for hyperPOTS, but still blood pooling in my feet, so feet hot, hands cold, I've been researching since 1993, only figured out dysauto 2.5 years ago, diagnosed and now treated by Dr DePace, I recently finally am taking Allithiamine and finding it more helpful than benfotiamine, sulbutamine, thiamine hcl. But I find it key to replace all water soluble nutrients as I'm losing via 6-7 liter/water/day, meds also helping.

@bj0rnen 3 жыл бұрын

I’ve had CFS and a lot of other strange symptoms since last June. The doctors say there’s nothing wrong with me but I myself recently came across Elliot Overton’s videos that go into depth on thiamine deficiency and I’m experimenting with B1 and other B vitamins to try to get better now.

@vl2663 3 жыл бұрын

Hi Update?

@bj0rnen 3 жыл бұрын

@@vl2663 I’ve been doing better and while B1 seem to be part of the puzzle, I think there’s more to it. I had a consultation with Elliot and he said it sounds like my methylation is off and had me take some other supplements. Some of them helped but some of them made me feel worse at times. I then found Dr. Nancy Mullen who specializes in MTHFR mutations and the methylation pathway. Turns out for me, overdoing methyl donors can also be a problem. She adjusted my supplements and my symptoms are more stable now. I also spent a week in Tahoe and felt much better than when I’m in LA. So basically I have a ton of new information to sort through and it’s quite complex but I think I’m slowly getting somewhere.

@bj0rnen 3 жыл бұрын

Another update: it seems like I have iron overload so I’m trying to sort that out though the Root Cause Protocol by Morley Robbins. I’ve been doing the protocol for less than two months so it’s still rather early to tell what the results are, but that’s where most of my focus is right now.

@KIke190JRF Жыл бұрын

@@bj0rnen what about now ?

@bj0rnen Жыл бұрын

@@KIke190JRF I think the RCP probably set me back in the long run. I tried Ray Peat principles this year and now I’m trying to improve my liver function with vitamin A detox. With the Ray Peat principles I saw some things improve a bit and other things get worse, namely brain fog and anxiety. Those two things seemed to have improved on the low vitamin A diet, but for now my arthritis and other bone issues have gotten a bit worse. I’m about 3 months into my latest experiment so we’ll see how it goes.

@shizumi5243 4 жыл бұрын

Have you done a brain scan? I have CFS since 5 years old that got worst over 15 years and I am going to do a brain scan in a couple months; hope we can find an answer.

@naNO818ETF7 2 жыл бұрын

Since 7 years am suffering yesterday I visit hospital 🏥 and final I met smart doctor 👨‍⚕️ he told me I have pots and he give me inderal and other med and I thinking to take b 1 and thank you for video hope you feel well now 🌺🙌

@perfectmessorg 3 жыл бұрын

I am diagnosed with POTS after stroke and pulmonary embolism. Thank you for this video.

@marisademore468 Жыл бұрын

I got out of bed after 6 weeks on methyl B vitamins, still very weak and exhausted but able to shuffle round slowly. Added high dose B1 a year or so later and I improved by about 60% but it only lasted around 4 months. The nutritionist said your body can adapt to B1 and you may need more or less of it, or it may have whacked other nutrients out of balance. The guy at CFS Remission says your bowl bacteria just adapt to the high dose so you no longer get the benefits.

@mikkime9543 3 жыл бұрын

So how did vitamin b work were u useing 1500 mlg dose? Did it help? I suffer can u let meh knoe thanks.

@DoorDashers791 3 жыл бұрын

I have multiple sclerosis since 2003 just got diagnosed with pots syndrome 3 weeks ago. Unbelievable

@chihuahuapixieprincess2482 9 ай бұрын

Is it possible your Chronic Fatigue was actually POTS which give the symptoms you describe . Ive had ME 28 yrs after catching MONO and I have way more serious symptoms than extreme exhaustion. I've since developed Orthostatic Hypotension and POTS from catching Covid and although the symptoms are similar ME is fatigue whereas the Dysautonomia is weakness therefore standing etc is exhausting and could easily be confused with ME I totally agree about taking any supplements they can have s drastic impact.

@crystalkeara8868 3 жыл бұрын

Lol I saw Dr. bergs pots B1 video too. Just started B1 today. Has is helped?

@SimpleMomming 3 жыл бұрын

I found something that helps a bit more. I made an update video here: kzfaq.info/get/bejne/baiTnpVyz7OXd30.html

@BobJoy_my_collection_of_stuff 3 жыл бұрын

CFS symptoms are directly inversely proportional to cardiac volume pump per min. atrial septal defect (ASD) should be ruled in/out

@guiilost9827 3 жыл бұрын

Hey girl i habe fivrmoyalgia cronic pain all day soo hard to live i have cronic fadogue taquicardia heart palputations especially when im soo cronic faded i think will die knock out then start tge heart pain taquicardia how i diagnostic pots?? Can i have some heart disseases? Wish have to go to a cardiologist? Have you tried some suplements for cure pain fadigue cfs with sucess??

@patriciahamby6687 2 жыл бұрын

Have you been tested for Lyme disease? I went undiagnosed for 2 years. Doctors just did not get it. I finally got another opinion, was treated, and I feel like I went from death to life.

@shaniekadorsey6725 Жыл бұрын

How did they treat you?

@GD-ps8vw 3 жыл бұрын

I just find you. I tried so much supplementary food. I think every time I tried a strong B vitamin I notice I solve some issues. it is my second week taking B2 400mg 2 tablet with meal 3 times a day with others B things like yeast . Pineapple enzyme would be my next step.

@dmxdex 2 жыл бұрын

What unoffical test did you do to diagnose POTS?

@landmarcmusicdotcom Жыл бұрын

take b-1 (thiamine) in the form of ttfd, along with magnesium (malate) as well as a good b-complex. You need to start out slow with 100mg of ttfd, and increase. You may need to go as high as 1000-2000 mg a day to see significant improvements. Also, you may experience a paradoxical increase in symptoms early on, but they should subside the longer you take to b-1. All these supplements are available on Amazon.

@travisinLA 3 жыл бұрын

It’s rough. I’ve dealt with it for years. I don’t tell people they don’t get it. I gave up on western doctors. It’s like a mish mash of symptoms. Funny I just got that form of b1 yesterday will see Thank you for your video.

@chatham888 3 жыл бұрын

Try adding Alpha Lipoic Acid with the B1 and Magnesium and CoQ10 and 1 teaspoon of baking soda mixed with water two times a day, that combination helped my mitochondrial disease tremendously. A month ago I was almost wheelchair bound because I was so weak I couldn't hardly walk more than 15-20 feet without passing out. I am now full of energy running around everywhere, give it a try it really works.

@DoorDashers791 3 жыл бұрын

Have multiple sclerosis and now pots syndrome what a mess. Unbelievable. I seen a cardiologist 3 weeks ago. On a beta blocker

@rachaelenglish348 3 жыл бұрын

Have you ever tried the Gupta or dnrs program?

@claudiacanales2662 3 жыл бұрын

Did the B1 vitamin work for you?

@brasshound4442 Жыл бұрын

I had many of these same issues along with nerve pain and spasms for 10+ years. I solved the issue by taking 300mg of benfotamine and 50mg of Thiamine twice a day along with B12. It still isn't perfect as I'm only a few weeks in but I only really notice it still when I miss a dose. I spent many thousands of dollars with doctors and they did nothing but make me worse, I found this on my own.

@katmac8365 Жыл бұрын

Hello there! I’ve gone through similar things that you have I also have mthfr one copy of each A1 and C6 Re the blood pooling in your legs Are you hyper mobile ? I am and have stretchy fascia too I’m wondering if it’s borderline elers danlos or hyper mobility spectrum disorder 🤔 After a weird virus in 2016 I got peripheral small fibre neuropathy whick absolutely floored me for three years ending up with gastroparesis I did start to heal when I went low carb and dairy free and took high dose methylated b supplements whick would have contained thiamine (b1) My b12 was low when I had all the nerve issues too so although my thiamine was never tested it’s likely that it would have been low before I started taking my b sups People with the mthfr gene mutation need a lot more b vits than the average to methylate properly How are you going now ?

@sandi6818 Жыл бұрын

I’m doing ok. Mine acts up to when I get super stressed. Yes very mobile, flexible. Never Thought of it being related

@imtiyazahmad1318 3 жыл бұрын

I m recently facing covind but I m feeling fatigue even with little work

@frodobaggins169 3 жыл бұрын

You're a brave young woman. If you don't fix it your self it's not getting fixed! I would bet the underlying cause of your health problems is insulin resistance. I also subscribe to Dr. Berg. Bottom line, stay away from toxic food, look into keto diet and intermittent fasting. Having taken the same Journey as you l have more to say but don't give up on your self. Don't trust Doctors! Keep track of what don't work, it will eventually lead you to what does. Your not alone!

@tlsmith1138 Жыл бұрын

Beautiful AND cute. A rare find. Brains too.

@kklassie100 2 жыл бұрын

mine is so bad.. can not cook, so i do not eat.. which makes it worse. I walked a block away,, and was unable to walk back,,,,

@zalla27 2 жыл бұрын

I feel like I have something in me sucking me dry or my energy. Im so sad all the time. My husband doesnt understand. I dont even understand!

@hwalker1829 3 жыл бұрын

Im on the search for answers of Chronic fatigue at 29.... Hope you find answers! Stay Beautiful :) I will be undergoing Orthodontics to expand my maxilla which is so small/narrow and can cause airway issues making you exhausted as well and has similar symptoms of POTS. Also has been linked to cause POTS as well. Check it out!

@SimpleMomming 3 жыл бұрын

Thanks for sharing your experience! I will research that

@theindianbeauty5262 3 жыл бұрын

Covid 19 causes POTS. Did your recover from pots or not yet??? What are your advices to me please?! I have pots because of covid 19, in fact I'm a Covid long hauler.

@nathandavis5730 Жыл бұрын

Your on the right track but you need to try thiamine Tetrahydrofurfuryl Disulfide also known as fursultiamine. Look up Elliot Overton on KZfaq. He’s made some fantastic videos all about POTS, Beriberi, CFS and fibromyalgia. It works!

@emmab3548 3 жыл бұрын

I also have the MTHFR homozygous mutation. My doctor claimed it meant nothing. I have CFS AND POTS. I Live exhausted. Nothing helps.

@SimpleMomming 3 жыл бұрын

I’m so sorry you’re going through this 😞 Don’t give up, keep searching for answers! I will update with anything I have found to help me

@emmab3548 3 жыл бұрын

Christy Lyn thanks, lady. I am trying. I’m taking my active B 12. It helped a little with energy initially, but my days begin with fatigue and brain fog. By evening, it’s a lot better, but returns every morning. Hope you find something that helps you soon. Looking forward to an update!

@seeminkhan9347 3 жыл бұрын

Always take B complex. Thiamine 600 mg daily

@aydnofastro-action1788 3 жыл бұрын

Have you checked out Elliot Overton? He’s all over thiamine deficiency.

@Star5dg 3 жыл бұрын

So good you can work with cfs

@SimpleMomming 3 жыл бұрын

I wasn't able to at the beginning but after years managed to survive working. It was not fun though and I am grateful to be a stay at home mom now (which is no easy work either haha!)

@Star5dg 3 жыл бұрын

@@SimpleMomming well its good you have made progress. I'm still in the hell of it 5 years unable to work it's challenging as you know. Just got to keep going 🙂

@jeanettekniebusch9812 3 жыл бұрын

What do you use under your eyes you have 0 circles?

@SimpleMomming 3 жыл бұрын

I use Maybelline concealer (here is a link to it: amzn.to/3fCJuEH) but really I think it’s just good lighting covering my dark circles 😘

@HotforHealth 3 жыл бұрын

Hey! I see this was a yr ago. Did the supplementation help?

@prathamrballal1229 3 жыл бұрын

No she is still suffering

@HotforHealth 3 жыл бұрын

@@prathamrballal1229 thanks for responding. 🙁 That's too bad.

@SimpleMomming 3 жыл бұрын

I did an update video here: kzfaq.info/get/bejne/baiTnpVyz7OXd30.html

@davidclark3603 Жыл бұрын

I think you and I need to go bowling together!

@teresaoftheandes6279 3 жыл бұрын

Love Dr. Berg.Thank you for sharing your experience with this. Right there with you.👍 I have gall stones and also liver stones so I'm starting preparation to do the liver/ gall bladder flush according to Andreas Moritz. I bought his book, The Amazing liver/ Gall Bladder Flush. He was vegetarian, but I do much better with Keto/ Carnivore. I had stones long before I went to this way of eating and several gb attacks which is what led me to Dr. Berg. I did the flush 4 years ago and many stones were expelled but i did not do the recommended monthly flushes until they were gone. I tried higher dose B1 but it caused palpitations so I will have to revisit that after I do the liver flush so I can focus on balancing my electrolytes as well. B1 can increase the need for potassium & so does Keto.

@popeyeseamaster87 2 жыл бұрын

Have you tested for Lyme disease?

@susanhorton9492 3 жыл бұрын

what is the self test?

@ellesam3348 4 жыл бұрын

Did you get tested for EDS (Elhers Danlos)?

@SimpleMomming 4 жыл бұрын

I have not. It’s very difficult to get any testing done because doctors don’t take it seriously so far.

@ellesam3348 4 жыл бұрын

Christy Lyn I know...I will try this year Ozone therapy Ten Pass and will get tested for pots as I’m already positive at tachycardia bouveret syndrome and hyperventilation syndrome. I just ordered the B1 to test it out. I want to avoid beta blockers! They prescribed them to me a while back but I never took them!