I suffered from the illness in 2018 and in 2022. It stole my life, time and happiness from me but I still fight everyday with fatigue and occasional body pains. It started in my face and eyes with blurred vision and dizziness, doctors misdiagnosed me in the er and discharged me, I left the er room and fell in the er hallway, 24 hours later I was in ICU fully paralyzed. I was awake but scared cause no one knew what was happening until they confirmed with a lumbar puncture that I had a protein for GBS. Godbless every doctor that day, they ran and saved my life and because of them I am able to see my babies finish growing. I am now 35 and try to limit my stress levels, eat a moderate diet and do light exercise. I’m happy to say I am a survivor.
@senthilrajamk64613 ай бұрын
Hai kindly send your no
@garymcdermott4673Ай бұрын
The very best to you. It’s a fight that unfortunately is up to you to fight alone so often. Be careful in your fight and be kind to yourself. If you do a good enough job you will watch your children grow. You sound like you have it under control. Good luck with everything.
@sharonm9203Ай бұрын
Wow, I've never heard of someone having it twice. I have also had it.
@snookmorton59483 жыл бұрын
My Beautiful Wife Beth was first diagnosed with Guillian Barre Syndrome back in early October 2018 and is currently in a nursing home.... She has improved drastically during this time but still can't walk... This has been one of the hardest things we've ever been through in our 13 years together.... There were several times in the beginning that I thought I was going to lose her but she has shown so much strength and refuses to give up... I have been with her since the beginning and I will be there with her until it's over with... It's especially hard when it happens to someone you love & it's one of the worst things I've ever seen and I went through brain surgery in 2012....💔 54 years old when I first heard of this and wish I didn't have to find out the way I did....
@lindajenkins52093 жыл бұрын
My 25 year old granddaughter has g.b.s just found out July 11 this year I wish I could talk with someone that has went through this painful ordeal.
@jenniferwashington35693 жыл бұрын
Prayers for you and your wife
@armi42763 жыл бұрын
@@lindajenkins5209 I was diagnosed with Miller Fisher Syndrome a GBS variant . The first symptom was inability to walk numbness in my mouth and had double vision. Anything that I hold just fell off my hands. The doctor suspected at first that it was a stroke, he gave me immunoglobulin for 5 nights through iv. After 3 months I fully recovered. That was 11 years ago but now I'm having residue from that because i have unexplained fatigue and tingling on my fingers. I was 58 yrs old then.
@shikshagurung63463 жыл бұрын
@@lindajenkins5209 Hello you can tell me. How is she ? I had GBS when i was 26 . Is she on Ventilator?? Or is stable?
@marialatruskin3 жыл бұрын
@@lindajenkins5209 I am 25 years old and diagnosed with this right now. I am in rehabilitation center for nearly three month. At the beginning I couldn’t do anything alone and needed help in everything that I had or need to do. Now I can walk and stand, do things and need help to get up from regular chair, can’t still got up on stairs and need help in the toilet… easy easy but on the right way I move for recovery
@kayleedawn96413 ай бұрын
I got GBS at 15 in Dec 2017. Such a terrible experience. Nobody believed me, not even the doctors when I told them I was getting weak. Then after my 5th visit they life slighted me to Kansas City because I was completely paralyzed. I had to wear an oxygen mask for a week bc I also had pneumonia. I had to learn to walk and talk again. I definitely don’t wish it upon anyone.. the worst pain to ever go through. Recovering is depressing, but yes god is with all us and he saved my life.
@sontagacliford69472 ай бұрын
All thanks to the Almighty.
@steph76142 күн бұрын
So sorry you went through this! Why didn’t they believe you? I don’t understand this! had a patient admit for sacral wound and sepsis and was unable to walk because of GB a few years ago… patient can feel their legs but not move them and told me doctors didn’t believe him at first… and now it’s in his history in the chart but he still encounters doctors who don’t believe him… we learn about this in nursing school but doctors are just ignoring it?
@ashlynn16523 жыл бұрын
Just watched a video of a mother of a newborn who completely overcame this. It was a long & hard road she spent 126 days in the hospital total. Went from being paralyzed to walking again. Great story.
@SheikhAT3 жыл бұрын
One of my teachers had GBS at young age and it inspired him to become a physical therapist after he fully recovered with the help of physical therapy
@janchampine20093 жыл бұрын
And he's your teacher? Whaaa? 🤷
@ivangranger8494 Жыл бұрын
@@janchampine2009 I think he had been a teacher, and then went back to school after recovering, to become a PT.
@dannyteachesenglish...9122 Жыл бұрын
Wow...kudos
@alexlifeson8946 Жыл бұрын
Avoid vaccines
@senthilrajamk64613 ай бұрын
Kindly share your no
@LatteLu68 Жыл бұрын
My sister who was 16 in 1977 passed away from complication's of GBS, she got it from the swine flu shot that was given in school that year. She ended up paralyzed from head to toe from it, got gangrene in her aorta arch from using a too large of a tracheotomy tube and ended up having 17 open heart surgeries in 3 months, she actually began to get better from the GBS like getting feeling back and sitting up and starting to breath on her own and even ate a few bites of food after 3 months of being paralyzed, but sadly she died of a brain aneurysm. This all happened at the Mayo Clinic in Rochester, Mn. They had such an amazing team of Dr.'s there. We believe she would have passed sooner than she did if she would have stayed at our small local hospital in Iowa. It is amazing how things have changed over the last 45 years how it is treated!! RIP my sweet sister! You are so loved!! Miss you so much!!
@lj6079 Жыл бұрын
🙏
@sueburt1757 Жыл бұрын
Since swine flu was first identified in Mexico in 2009 I’d be very surprised if it were from a swine flu shot in 1977… I’m sorry for your loss.
@envirogal22 Жыл бұрын
My deepest sympathy to you and your family LuCinda 🙏 🙏
@remamiah6969 Жыл бұрын
@@sueburt1757 actually, there were two major swine flu vaccine rollouts-one in 1976 and one in 2009. The 1976 vaccine was rolled out after a sudden emergence of swine flu at Fort Dix. This is according to a Medical News Today article. And according to the CDC, the vaccine caused a slightly increased risk of GBS.
@lindajakub624 Жыл бұрын
@Sue Burt yes swine flu in 70s. She is right
@uranuss3 жыл бұрын
This video is not only great but fantastic! It explained the complicated medical issues, for both medics and non-medics, in a viewer-friendly way.
@ZeroToFinals3 жыл бұрын
Thank you!
@winniesafi32443 жыл бұрын
My dear darling daddy had this in the 1960's. Was in hospital for three months. This was so frightening to look at. By the grace of God Almighty and most wonderful and dedicated doctors, he walked out of the hospital. God bless all those loving and dedicated doctors and nursing staff who attended to him.
@donnacacciarelli5495 Жыл бұрын
My son was diagnosed with GBS just before his 2nd birthday. He quickly recovered through plasmapheresis over the course of a 10 day stay in the hospital. He had to learn to walk and talk again, but quickly recovered. This was in the Summer of 1990 and thankfully he has no residual effects.
@sharonm9203Ай бұрын
Wow, I had it around that time, but I was about age 12. Had to learn to walk and talk again, and had the same plasma treatment.
@ce1581 Жыл бұрын
My brother had it way back in late 70's. At that time only about 11 people had been diagnosed. But , his case started in his head , a numb tongue within three days he was on ventilator and in ICU for almost three months . Luckily he was young and recovered almost completely within about six months . I remember his nerves coming back to life excruciating pain. It was impossible to keep him down and even before got over the "foot drop" he started playing baseball again. He recovered completely.
@cherylm2C6671 Жыл бұрын
Thankful for your brother's recovery!
@littleone3191717 күн бұрын
Thank God!
@dawndaniels12562 жыл бұрын
I have GBS, after a flu vaccine. My pain didn’t go away until I fasted for 4 days. Now, anytime it flares up, I fast. Fasting is the only thing that has ever worked for me.
@silviafahmy13872 жыл бұрын
Thanks for sharing, how do you fast? Do you just drink water and nothing else for 4 days?
@josie7153 жыл бұрын
I got this just before my 9th birthday. It started when I was at recess in school playing tag and I noticed I couldn’t run as fast as I normally could but didn’t think anything of it. My mom and I were scheduled to go on a mini vacation that weekend a few hours away, and the first day into our trip we went on a walk down a long trail to see petroglyphs. At the end of the trail I collapsed and could no longer stand up or walk, so she had to carry me all the way back to the car and rushed me to the hospital. I’ll never forget the look on her face, or the doctors when he said he believed he knew what was going on. Sticks with me. I recovered a couple of weeks later but had to undergo physical therapy for months and still have some longterm side effects but they are manageable and I can walk just fine. My longterm symptoms are mostly related to fatigue but with a healthy diet and exercise it seems to stay in check
@shashikantpalve173 жыл бұрын
Are you ok now ?
@khiyaduo2 жыл бұрын
CDC study shows risk of Guillain-Barré syndrome elevated after Ad.26.COV2.S COVID vaccination………. Did you take the vaccine (covid shot)????? This is what lead me here a news article.
@angelaalvarez34912 жыл бұрын
@@khiyaduo This happened to my daughter @ 10yrs old after the HPV shot. She was paralyzed from the neck down. Was in ICU for several months and Rehab 7 months. She had to relearn everything again. There are many shots and vaccines that we were advised not to take. Covid-19 one of them!
@ragnar91242 жыл бұрын
I hope your okay!
@user-bn4de4gi5p2 жыл бұрын
Were u ever told it was caused by your vaccines ????
@adrigranadosss8 ай бұрын
You are literally helping me get through my finals. I love your content and I visit your website daily. Thank you so much for everything you do!!!! - RN student
@teanreece2 жыл бұрын
I was diagnosed around Christmas just gone after three days in hospital. It was scary. I had Covid, which led to sciatica. The sciatic pain abated, but i woke to find I could barely walk. It's five weeks later and I've made very little progress this far. I'm getting around on crutches and try to stay positive. The prognosis for most of us is quite good but requires patience. I'm trying to stay active. I shop using a trolley as a walker and the stairs to my second floor flat are a challenge and a workout. Although debilitating and extremely frustrating, my heart goes out to those who have it much worse than I do. I've cancelled any life plans I had for now. I'm a carpenter by trade, but now have elderly people scrambling to hold doors open for me. It's humbling,to say the least.
@bharatkakkar65562 жыл бұрын
Is there any community group on social media or some messanger applications of people who had this disease in the past or still have it?? I think it would be good to share experiences there
@jamiebury18072 жыл бұрын
did u suddenly stop walking after covid? i have covid and my hands and feet feel very numb in the extremeities namely my left hand has some strange numbness. hope you make a full recovery, feels like not many people talk about these symptoms with covid
@samuelmurzea57212 жыл бұрын
Sciatica is a pinched nerve…Covid didn’t cause that lol.
@tyhtun2 жыл бұрын
Thats crazy, i had almost the same thing happen to me too around the same time after getting covid. Its been 5 months and I'm still recovering. Im glad you are doing better. The chronic pain out of nowhere is quite a mental challenge too. I hope youre alright
@SagebrushRambles2 жыл бұрын
@@jamiebury1807 I hope you went to a doctor. Your symptoms were the same as mine and I have GBS.
@ritaberry62653 жыл бұрын
I got this after getting the flu vaccine in 2018. It was awful! Thank GOD I am better, but I have still have painful peripheral neuropathy. According to my neurologist, it is most likely permanent. 😞 And while I hate it happened and it certainly changed my life, I am very thankful I recovered!!! 🙏
@thenightgallery2 жыл бұрын
It's strange because now I'm hearing that people who have been vaccinated with you know what have gotten this condition, I'll have to look more into this..
@kyleroyer92272 жыл бұрын
My doctor suspects I have guillain barre from my j and j vaccine. I deal with very painful neuropathy. I’m waiting to get ivig.
@PJGrams Жыл бұрын
So very happy to know you are better!!! Because of my brother's GBS tragedy, I'm now not going to get any vaccine!! Watching him suffer those 8 months in the hospital was enough to scare me!!
@jankelsey9738 Жыл бұрын
The exact same thing happened to me after a flu vaccine 5 years ago. I still have chronic sensory neuropathy CIDP and still take IVIG monthly. I’m glad you recovered. Did you open a case with the federal vaccine compensation program? Mine is still in process.
@PJGrams Жыл бұрын
@@jankelsey9738 Hi Jan! My brother did file a claim with the Government, had to provide all his documentsfrom the 3 different hospitals/rehab facility he was in. His lawyer representing him said he's not seen a case as bad as my brothers. It's been in review for 3 yrs now, seriously 😐! They finally came back with a settlement amount, which was ridiculously lower than what he should receive. We are giving another final push back to try and get at least a bit more . It's very maddening!! He still has GBS in the bottom part of his legs & they say he'll always have that.
@jonhyland5136 Жыл бұрын
My ex wife’s younger sister was struck down with this…back around 1982ish…she almost died several times but thanks to superb medical care she survived 🤷♂️…love to all 😘
@BIGRED475 ай бұрын
Got this when I was 19, 24 now and thankfully standing stronger then ever hope all else that go through this make quick and full recoveies
@german_lifestyle_tajbakhsh72823 ай бұрын
How did you recover?
@BIGRED473 ай бұрын
@@german_lifestyle_tajbakhsh7282 plasma infustion
@sarahkloster22092 жыл бұрын
My daughter got GBS last year at 7 years old.. it was a long hard road to learn to walk again, she still deals with pain on and off.. great video
@mariposa7169 Жыл бұрын
My brother had this when he was only 6. It was so bad in the beginning. He was diagnosed in august 2020 and was paralyzed and needed a tracheostomy. Thankfully he got home just before christmas. He still struggles physically, he can’t run like other kids and isn’t as flexible. I’m so grateful he got through GBS as such a young boy❤
@charlesdavis7461 Жыл бұрын
Did your brother have a flu shot before this happened?
@NanaLia_187 ай бұрын
❤❤
@Rosemary2919643 жыл бұрын
My son got this when he was 4 years old, in 1990, heartbreaking to see such a young person get a lumbar punch. He took about 3 years to recover.
@dianabehets44942 жыл бұрын
in Belgium it is advised not to donate blood after you had GBS. Also be careful with the new shots of C 19
@xxvvkx9312 Жыл бұрын
What do you mean "lumbar punch "?
@MsArtistwannabe Жыл бұрын
My daughter had this when she was thirteen. She only had a little cold a few weeks before this devastating condition. But had recently received some vaccinations. She’s considered fully recovered. But she is not the same. It was extremely painful. Completely debilitating. In hospital almost two months. Being treated and then learning to do everything again like a baby. Walking, feeding herself, speaking, brushing her hair etc.
@NanaLia_187 ай бұрын
❤❤
@nathy_f0210 Жыл бұрын
My mother got GBS exactly 10 weeks ago... she used to not move at all but now she is only moving her head, even though she's not talking, it makes me happy that she's making progress.
@kavyamotapothula7393 Жыл бұрын
Is she recovered now ?? because my brother as encountered GBS since 22 days he is in ICU only no recovery even after ivig injections
@nathy_f0210 Жыл бұрын
@@kavyamotapothula7393 She’s on her way. Unfortunately this takes a while. But she’s been able to talk for about 3 or 4 months and she just started eating soft food a few days ago. I hope your brother gets better, truly sorry.
@kavyamotapothula7393 Жыл бұрын
Yeah and plasmapheresis is also started and it will be 4-5 days will it helpfull?
@nathy_f0210 Жыл бұрын
@@kavyamotapothula7393 Yes, that should help at least a little
@lynnecrocker5844 Жыл бұрын
I had it when I was 31 had a child with cancer and 2 other children to care for.I prayed 24 hours a day to get well so I could take care of my girls
@dessimartinovski Жыл бұрын
I speak and release healing over you and your kids. May the healing touch of Jesus cover your family !
@dystopian21533 жыл бұрын
My father had guillian barre after the flu shot in the 90s. He was in the hospital for a while and eventually recover ed. I also spent time in the hospital with a woman who had Gilliam barre. It was horrible. We shared a room and she was paralyzed, she could only whisper so i had to call nurses for her, she lost control of everything, she was very young. I was paralyzed on my left side but I felt worse for her! I hope she is ok now. I pray🙏
@PiolsFlorentino2 жыл бұрын
Hello. How is your father now?
@valuechain47102 жыл бұрын
@dystopian21 I'm very curious to know time period took for your father to recover such as walking etc.. One of My loved one encountered Guillaun Barre right after few hours when she took shot of vaccine. She can talk perfectly fine, move head but legs, Arms are not moving.. I'd love to hear bit more from you so we can also takes those precautions for her .
@lisarice4402 Жыл бұрын
@@valuechain4710 - a friend of my daughter's stepfather took the HPV vaccine, and contracted Guillain-Barre and died almost 3 months later. I really wish they would make vaccines hypoallergenic so they are safe for everyone!!
@valuechain4710 Жыл бұрын
@@lisarice4402 I'm so sorry to hear that. My loved one cured in 2 weeks perfect condition.. Actually under menstrual cycle taken injection 💉 caused her head below body motionless.. she recovered miraclelssy. Her early symptoms shows GPS syndrome but after 4days she slowly begin to move hands, legs
@lisarice4402 Жыл бұрын
@value chain - your loved one got extremely lucky
@bblastos3 жыл бұрын
excellent synopsis...I'm a medical assistant...we ask patients before vaccinations like influenza if they've ever had "Guillain-Barre" syndrome...some patients have asked me..."well what exactly is that?"...so I thank you for the concise synopsis...I'm thinking of checking out the med books to use as a reference...thank you!
@ZeroToFinals3 жыл бұрын
So glad you liked it!
@arianrahman48402 жыл бұрын
a friend of mine has been hospitalized and I've just got the news it has spread to his eyes even. praying for a complete recovery
@yakupugur1267 Жыл бұрын
Nasıl oldu
@SagebrushRambles2 жыл бұрын
I was diagnosed with Guillain-Barre` Syndrome on May 24th 2022. I just got out of the hospital after having IVIG treatments. I was lucky that it was caught early but I am going to have a long recovery as I also have Ehlers-Danlos Syndrome. O'Joyous times.
@ReggieDriver2 ай бұрын
You got this
@tlau9503 жыл бұрын
I once nursed a 3- 4 year old child with GBS in 1982. He was diagnosed at age of 2. He was on positive pressure ventilator and hospitalized on an acute paediatric ward since then. All his development was affected.He was paralysed from neck downwards, his body didn't grow in size except his head. His speech not affected, could talk v.well, needed 24/7 nursing care. When he turned 4, we tried to wean him off the ventilator with support of an ambu bag, we trained his carer and parents how to care for him when he was finally allowed to have home leave. The time when I left my post, he managed to have short home leave for the weekend. Always wondering whether he is still alive today, that's the only and first GBS I nursed. This certainly was a sad experience to share. Medicine has moved on since then, prognosis probably much better these days.
@charlesdavis7461 Жыл бұрын
Sad to say they can diagnose GBS and give the transfusions mentioned, the Neurologist was great and her Therapists terrific, 2 years later my wife is still hoping to walk again without her walker and for more that a few minutes. Thank you for your service as a nurse, good nurses are hard to find in 2022.
@tlau950 Жыл бұрын
@@charlesdavis7461 Thank you for your appreciation of our nursing service. I can reassure you there are still plenty of good nurses around in 2022 and in future. Keep up the good work with your wife. There is always hope!
@cryp0g00n4 Жыл бұрын
This hits home. Remember a close family member aflicted with this syndrome. It is quite bizarre. One day you are walking and next day you are paralyzed. No explanation, no obvious signs. just bed ridden. I am glad that it resolves on its own but during those times you are confused and highly stressed out. You honestly don't know which way is up and that is for the family member. Its much worse for the patient.
@nahmastay33003 жыл бұрын
My dad had this as a teen. Missed a whole year of school. He made a full recovery eventually. Likely due to the fact he was young.
@ravee19912 жыл бұрын
how he recovered
@TauntEh2 жыл бұрын
i’m recovering from it at the moment
@valuechain47102 жыл бұрын
@@TauntEh I'm very curious to know time period took for you to recover such as walking etc.. One of My loved one encountered Guillaun Barre right after few hours when she took shot of vaccine. She can talk perfectly fine, move head but legs, Arms are not moving.. I'd love to hear bit more from you so we can also takes those precautions for her .
@TauntEh2 жыл бұрын
@@valuechain4710 another thing to keep in mind is age, i got out of hospital in 6 weeks i’m not sure if that’s quicker than average or not but I was 20 when I had it the worst, older people can take longer to recover but honestly if the person is dedicated to getting better every day they will be fine :)
@valuechain47102 жыл бұрын
@@TauntEh thank you very much for your feedback.. I am positive person so o shall stay positive.
@tm46093 жыл бұрын
I'm not a doctor or even a medical professional, but I'm determined to learn as much as I can before I start my medical degree. Thank you so much Thomas, these are great videos.
@ZeroToFinals3 жыл бұрын
Glad to help. Good luck with the medical degree
@forgetfulstranger3 жыл бұрын
That's amazing, this degree doesn't need smart people, it needs people with heart and determination like you. Keep it up
@FedUpCanuck Жыл бұрын
If you want to learn about GBS talk to me I can inform you since I had it
@KarenGerstman3 жыл бұрын
This is a great explanation of GBS. I can tell you from personal experience that a lot has been done re treatment since 1983, when I had GBS. I was hospitalized for 2-1/2 months in NYU and Rusk Institute and treated with steroid therapy back then. The steroids caused issues with my bones and I have avascular necrosis of both hips and shoulders, though I underwent a complete replacement of my left hip in 2010
@charlesdavis7461 Жыл бұрын
The two types of transfusions mentioned in the video are life savers in my opinion.
@andreaandrea6716 Жыл бұрын
Thank you so much for your explanation of GBS. I appreciate having it explained so simply and clearly!
@nancymae50913 жыл бұрын
2001 got guillain-barre and it hit my respiratory, where I couldn't walk talk or see for 3 years. Had two neurologist that was clueless. The pain I had lasted all through the years and continue, but not as bad. I aspirated all my drink and food. My mylon sheath was affected so bad, the pain! I saw 4 yellow lines a two white lines when I drove down the road. We really have medical idiots out there. I should be dead.
@melanieknowles70023 жыл бұрын
Praise God you can inform others. Hope you feeling better. Sure scares me, the drs today. Blessings.
@Rmveber2 жыл бұрын
How did u recovery what type of treatment
@mamawkay94932 жыл бұрын
Same here. I still can't walk. God bless you. Hope you have a full recovery.
@nancymae50912 жыл бұрын
@@Rmveber my treatment was heat. I took many hot baths and had a rice pack wrapped around my right arm seemed like forever. The pain was so bad I was in tears constantly. I did stretches everyday and was on vitamins that my chiropractor put me on. I went to the chiropractor every 2 to 3 weeks. I was on steroids and aspirating pills for 3 years. If I don't go to the chiropractor every 4 weeks it gets harder to breathe. I took myself off of the steroid and the aspirating pills once I was able to eat and drink normally. I still have nerve pain in my right arm and sometimes I still use the rice pack that I made. You put the rice pack in the microwave.
@sohambiswas79942 жыл бұрын
You all r probably living alive for those medical idiots. You got a life back. You could have been dead instead.
@Katz1964 Жыл бұрын
Thank you for the information on this syndrome. My uncle died from GBS. It’s has been around 10 yrs. now when we knew nothing about this.
@amparotorres8588 Жыл бұрын
My Grandmother has been diagnosed with this. It’s been 4 days of treatment and intubation in Mexico. She had just left the US and a day later she fell I’ll.It’s been a horrible process. But today day four she has wiggled her toes and lifted her feet off the bed. I’m currently at her side feeling helpless as I watch her sleep. This video has shed some light and reading these stories have brought some relief. I hope that my abuelita will be home again soon! 💗
@rongablue Жыл бұрын
God bless you both. Have faith 🙏.
@amparotorres8588 Жыл бұрын
@@rongablue God called her home one week after I posted this comment. It took too long to receive the medication necessary to treat Guillen-Barre. Her heart couldn’t take the stress of the whole situation. I’ve never seen anything like it before her body just began to “give up”. I believe if she would have been in the United States she would have had access to the proper medication right away she would still be here today. But the What ifs don’t matter. I pray everyday for people fighting this condition. It’s truly traumatic.
@rongablue Жыл бұрын
@@amparotorres8588 I’m so sorry for your loss and pray your grandmother is now resting in the arms of the angels 🙏. It is indeed a cruel disease.
@shashikantpalve173 жыл бұрын
My father WAS totally recovered from GBS AT the AGE OF 80 YEAR OLD IN INDIA
@sidraiftikhar95333 жыл бұрын
How?
@tofujelly3 жыл бұрын
What did he do
@shashikantpalve173 жыл бұрын
@@tofujelly Ivig & physiotherapy Most important is WILL POWER
@deepakpatidar49002 жыл бұрын
Hi shashikant, My mother also got an acute GBS four days back. She is receiving her IVIG dose and 4 days are completed as of today. Can you tell me how much time it will take to recover? Also of you can suggest some good practices otr medicines which were used in treatment.
@GD-cr5um2 жыл бұрын
My partner at 68 has just been diagnosed today. How long does it take for a person to recover from it
@ArunSAG Жыл бұрын
Just lost my friend to Guillain-Barre. He leaves behind a 2 year old son and a wife. Devastating and shocking. All happened with in a week. Rest in peace my friend.
@judy_wj Жыл бұрын
Thanks for the info about gbs i was a victim of it 3 yrs ago but i have recovered by 95%
@RandomYoutuber23410 ай бұрын
Hey, glad you've recovered. If you found the time, I'd appreciate if you could elaborate on the 5% you think you're missing from your recovery after a few years.
@youngtc77542 жыл бұрын
I've had GBS several times in my life.... unfortunately. Oddly enough, I'm in a hospital like facility with GBS right now!! I've been sick for almost 3 years...I have breathing tube called a trache tube that's inserted into my trachea through a hole in my neck..I also have asthma!! So that's how I take my asthma breathing treatments as well....the scariest part of all, in my eyes, is that I've been out of my mind for that WHOLE time!! I just got my mind back ALL the way, TODAY!! I did have what I thought were just bad dreams about being in a hospital... but then I realized that I couldn't wake up from these "dreams". That's when it hit me... something wasn't right!! Come to find out, I WAS RIGHT about this situation NOT being just a bad, terrible dream!! THIS is real... I could've died!! My family told me that I stopped BREATHING at one point...clearly they were able to bring me back, but I just can't believe this craziness actually happened to me, to my family, AGAIN.... This is my ACTUAL FIRST DAY of full consciousness...or as I seem to be calling it, (based off of reading my text messages that I have between me and my family) I'm back in "My Right Mind"!! This is so freakin' crazy to me!! This is definitely NOT the position that I wanna be in right now, but at least I'm ALIVE and back in my MIND, to be able to say that!! I just want this mess to be over and done with and I want to FINALLY be able to go home and get MY LIFE back!!! Normally I don't put myself out there for anybody to "see"... but I figured, "Why not?!? I might as well".. so here I am... this is ME!! Hopefully I've been able to help SOMEBODY, SOMEHOW!!! Hopefully I've been able to help MYSELF somehow.... thanks for letting share my story with y'all. Hopefully I've been able to help someone else out there that's going through some tough or crazy times!! Whatever you do, don't get discouraged or depressed!! TRY to keep your head up and stay as positive as you possibly can!! Even if you have to fake it!! It may not seem like it and it may not be clear right NOW, but it WILL get better!! I'm telling myself this as well... this is for ANYONE that needs to hear this!! God bless you and stay safe out there!!! Amen AMEN 🙏🏽😇🙏🏽!!!
@Luminous.Dynamics2 жыл бұрын
Thanks for your comment. Ive been having an insane time dealing with Pneumonia from Covid 19. With the Pneumonia, I feel so damn weak, like ive never felt in my whole life, and also makes it really hard to get any sleep at all especially with having asthma. I was looking at this video because ive been having weakness in my hands and muscles.....
@brillo862 жыл бұрын
Just read your message. Hope you are feeling alot better now. 💪💪
@raydiokilla3 жыл бұрын
I got this due to Covid 19 as I spent two months in a coma and I had all the symptoms. My arm on my left side was paralyzed and had to learn to walk again. I'm still recovering and trying to get stronger.
@beachinhonolulu51363 жыл бұрын
My friend did as well
@raydiokilla3 жыл бұрын
@@beachinhonolulu5136 have they recovered completely? I am going on a year and my left arm is still paralyzed and I have foot drop and still get tired after walking for a while.
@beachinhonolulu51363 жыл бұрын
@@raydiokilla honestly her recovery is remarkable. She was in a coma for almost a year and had to relearn how to walk etc. she still gets tired easy and can’t stand too long but she can walk and talk and eat. It’s amazing she is so young too only 27. I wish you luck on your healing journey
@raydiokilla3 жыл бұрын
@@beachinhonolulu5136 yeah that's amazing thank u and good luck with ur friend I pray she makes a complete recovery
@crest4302 жыл бұрын
How are you? Are you better???
@princetandukar35432 жыл бұрын
This was sooo helpful!! Thank you I hope you never stop putting these videos or get demotivated, and best wishes!!!!!
@deehp11873 жыл бұрын
My son-in-law developed GBS on a walking holiday in Nepal - he had a 'flu vaccination which may possibly be how he received the virus but not possible to tell that definitively. His legs and arms were paralysed and he was brought back to England straight into hospital. It took a long time, hard work and lots of determination to exercise his way back to normality. Now in his fifties he still plays golf and football - also coaching young people. Shaking hands when very tired is the only indication left of this dreadful syndrome.
@PurpleHermitcrab3 жыл бұрын
amazing story! i had gbs when i was 5 right after i had my first flu shot. We still aren’t for certain that the shot is what caused it. I still get really bad pains in my hips and sometimes knees.
@valuechain47102 жыл бұрын
@@PurpleHermitcrab it is certain after reading yours and above comment.. My loved encountered GBS exactly couples of hours later after vaccine shot.. Drug in shot, vaccines effect differently into each humans body .. Therefore I draw my conclusion never take vaccines when your 100% perfectly healthy.. But if you have to take vaccines neccesrly just make sure it is minimum quantity to try the effwcts
@princessforprince61263 жыл бұрын
Just discovered your channel and loved it. Wow, so good with what you deliver and how you do it.
@MemestiffGaming3 жыл бұрын
I wanted to learn more after recently hearing that some doctors believe Franklin Delano Roosevelt had Guillain Barre Syndrome instead of Polio as originally believed.
@dystopian21533 жыл бұрын
Didnt know that!! Wow will research. Well my dad had GB after the flu shot and it was a very difficult time for my family. And a client who had disappeared for almost a year had guilliam barre. His wife came into the salon to book an appt and said it's been a horrible year. She Explained that he also got GB from flu shot per his dr. I know it's rare that it could occur "that way" but it's worth knowing about.
@fwdekunder7 ай бұрын
Bedankt Tom was heel duidelijk. 86 jaar en 5 jaar met rest verschijnselen.
@bello2bles3 жыл бұрын
This is more than spooky how KZfaq recommend this to me when I just had a patient few days ago with suspected GBS. Though didn’t know much about this condition, guess someone wants me to learn more about it 👩🏾💻📝
@eckobite3 жыл бұрын
Same here!
@susan_e3 жыл бұрын
@@eckobite same
@dystopian21533 жыл бұрын
Yes I was just talking about gB the other day and it just came thru my feed as well. Spooky. Nothing private but worse that you were with a patient. But then HIPPA no longer matters you know...unfortunatley. theres no privacy anymore
@jesusheals37993 жыл бұрын
Have they taken the vaccine prior to the appointment?
@sherrybielma19343 жыл бұрын
That happens constantly to a lot of people, I think our phone listens to us, and programs the things we listen to.
@NayanTopic Жыл бұрын
Here after anuj pachel video
@livegood28703 жыл бұрын
Who’s here after hearing about FDA’s possible announcement about J&J relation to GBS?
@BlessitsJeff3 жыл бұрын
😂 yepppp
@cantonio2703 жыл бұрын
Me!! Luckily I haven't been vaccinated.
@landriahm61613 жыл бұрын
Me lol
@johnconway43893 жыл бұрын
Yes! Are they are saying the J&J vaccine increases susceptibility to the bacteria that causes GBS? Or does the J&J vaccine induce GBS all by itself? I got the Pfizer vaccine that will probably have issues too. J&J only has 21.4M shots with 12.7 used. The vaccination rate has gone down so low it's depressing.
@shachat73 жыл бұрын
@@johnconway4389 LOL nah whats depressing is the unvaccinated are going to have to stay away from the vaccinated to avoid getting sick from yall LOL yall are going to carry every disease known to man soon.
@FedUpCanuck Жыл бұрын
I have had GBS and had 2 neurologists and both did none of the treatments you describe. In fact I was not given any medication. Nor did it start in the lower legs. It started with severe back pain that eventually made my whole body go numb. I was on a walker for 3 months again the specialists said I would need it for over a year. My immune system was strong and I got full recovery with not any form of medication at all
@hilariocasionan4501 Жыл бұрын
Hi. What u did? Just do healthy diet? Some comments fasting also it can help to recover
@rehabali69685 ай бұрын
Thank u soo much.. a short video with all of the important informations present ❤❤
@kishorekumars39635 ай бұрын
Yeah for me too tomorrow i have my exams it's really helpful for me
@rehabali69685 ай бұрын
@@kishorekumars3963 good luck ,i hope u get the best highest marks ❤️
@kishorekumars39635 ай бұрын
@@rehabali6968 thank you so much 😊
@kaelen73313 жыл бұрын
My mom had this. She was in hospital for a long time. They had her on a blood machine. Then she went into rehab. Made a full recovery. But then had heart attacks and cancer and died. 😢 I miss her so much.
@mohamedhassen1389 Жыл бұрын
Keelen I am so touched with your story. Pray that the Lord ease your loss.
@kaelen7331 Жыл бұрын
@@mohamedhassen1389 thank you. I miss her.
@margaretr5701 Жыл бұрын
@@kaelen7331 I'm so sorry.
@garymcdermott46733 жыл бұрын
I got GBS in 1997. Still can’t walk without elbow crutches and have no balance. It really has destroyed my life as I knew it. If you get it bad it has unbelievable effects on your body.
@mohitsrivastava3381Ай бұрын
Where u taken treatment
@garymcdermott4673Ай бұрын
@@mohitsrivastava3381 not taking treatment now. Still do my own physio. Just a really difficult situation. Should have said I use elbow crutches to get around. I live in Melbourne, Australia so had my initial treatment in the local hospital.
@safaaamehdar57910 ай бұрын
I really love the way and the organization of the presentation of the topic very well done and THANK YOU! ❤❤
@snmcrazy75692 жыл бұрын
I was diagnosed with Guillian Barre in 2004. I was first told that maybe my pants were too tight when I went to the ER because I couldn't walk... 3 days later I was almost completely paralyzed and progressed to my throat.. and inability to swallow. I was given 2 vials a day of IVIG for 5 days and had months of physical therapy. At the time doctors knew little about the syndrome so they predicted that I would not be able to live my life without assistance for the rest of my life, I was able to recover 90% of my mobility back. I have been very fortunate to have regained what I had lost.. I am curious though as to how many people were diagnosed with GBS and then diagnosed with another auto immune diseases later. for me 2004 GBS then 2009 Diagnosed with Lupus SLE, Sjogrens, And RA.
@yvettetorres78292 жыл бұрын
I got GB in 1996 back when very little was known. I went to ER and was sent home only to get worse and present with facial dropping, paralysis. Since I've had a 3 part iskemic stroke, lupus anticoagulant disorder, fibromyalgia chronic, campylobacter gastro infection, and this year severe vascular disease (PAD). I live with chronic pain and state of constant flu like state. I have 2 good days per week. Meditation and Tai chi helps, massages/soft tissue, low stress, and no meat at all diet, no fried foods, low sugar and salt. Mentally, I'm stronger than ever as I take one day at a time. I have adopted an open mind to being patient with myself. I do fun things like walk short distance on beach 🏖️, listen to soothing music, physical therapy periodically, ASMR helps, and rest when tired. Sending you my very best, positive energy. Living in the moment each day 🙏😇
@ryanhalley1982 Жыл бұрын
I can relate to this, been on the merry-go-round
@kimhuff2 жыл бұрын
Our 29 year old son has been dealing with this since 8/2021. It's been 8 months now and he still can't walk and can barely use his hands. He's been in continuous therapy since 9/2021 and although he is getting better, he's a long way from walking again. His GBS came on very quickly. He was literally walking at the store at 9pm, by 12:30am he noticed he was stumbling a great deal and by 3:30am, he was paralyzed from the chest down. He was very lucky we got him in to the ER so quickly. The doctor said his damage was extensive with damage to the protective layer around the nerves and to the nerves too. They started him on an IVIg and when that didn't help they did the plasma dialysis, but with no real change. Has anyone else had a quick onset like that? I've not talked to anyone with an onset that took place over hours; has anyone on here experienced this? If so, what was your prognosis? I'm just praying he will get back some resemblance of his life before.
@marcopalencia88112 жыл бұрын
Mine took like 2 days for my hole body to paralyze I had it when I was 15 I’m 34 now and still have some aftermath your son will need a lot of support mentally and physically don’t let him down cheer him up on his therapy!!!!!
@Imzadi76 Жыл бұрын
My father got it 10 years ago. A week prior he had a stomach flu. He woke up in the morning and suddenly could move his entire body. He could only move his head. There were no other symptoms before.
@payaltambe41803 жыл бұрын
When I was only 8 year old I suffered from gbs... I was in icu for 5 days took medication and after 2 months I was ok 👍
@anbalageemuniandy40003 жыл бұрын
I m a gullian barre sydrone patient in 22nd 2016 i collasped now 5 years i still no balance bad foot drop claw fingers Pls pray for me i want to normal
@star18563 жыл бұрын
God bless u.....
@d.csharma91213 жыл бұрын
You will be fine
@wesavelawns24063 жыл бұрын
Dear Lord I pray that you heal this person and that you strengthen them and support them physically mentally and spiritually. Glory be to the highest the king of all Kings hallelujah. Amen
@kirankumardhule3 жыл бұрын
my mom had gbs but now she recovered fully
@kirankumardhule3 жыл бұрын
Plasma therapy
@jaredproductions35592 жыл бұрын
Guillain-Barré Syndrome happened to me when I couldn't stand up for all of a sudden, i tried to get up but no matter what I couldn't get up, I can't remember anything after but my mom helping me get up, after a while we've gotten to the hospital and after a while I was moved to a new hospital, My dad was always with me and my sibling and mom were at home, I didn't know what was going on when I was going to the hospital. It was so scary. Luckly I was treated and I have been good ever since I've left the hospital.
@GD-cr5um2 жыл бұрын
My partner is 68 and got diagnosed with it today. He's been put on dome autoimmuno therapy . We're u able to walk even when u had it. Just curious
@cherrieblossom53933 жыл бұрын
Thanks for this video. I like the way you spoke gently and clearly, easy to understand what you said. I've never heard of GBS until today, I read an article that said some people in the UK, Australia and India got GBS after taking the vaxx, so I searched for what kind of disease it is, and the symptoms. Well done.
@skulltaylor16162 жыл бұрын
I’m in Australia and got it from the vaccine It’s ruined my life.
@ryanhalley1982 Жыл бұрын
Any vaccination has risks because there is a very small minority who could have a reaction but so does not taking it, where the risk is far greater so don’t let that put you off vaccines, without them, polio etc would be rampant. Watch a video on the effects of polio.
@Kelly-lo6cz2 жыл бұрын
I had an acute (within hours), purely sensory (non-motor), diffuse neuropathy that was extremely painful and on every inch of my body after a car accident. It felt like I was being electrocuted, burned, or stung. I never had motor issues. But everything else presented itself as GBS. It started in my feet and spread to the rest of my body hours later. My EMG was normal. My symptoms did not get better. 15 neurologists didn't know what it was. 1.5 years after the wreck and onset of symptoms, my EMG started showing demyelination. I was diagnosed with CIDP. I also had a nerve biopsy that showed Small FIber Neuropathy. I started on IVIG a year ago and it was helped the pain a lot. I get frustrated because there's nothing in the medical community about a sudden onset of purely sensory, diffuse, neuropathy. Well I had it and it never went away. IVIG helps me manage, but I suspect I will be on it for years now. I wish they had given me this right after the wreck ... insurance would have never paid for it right away before an abnormal EMG though... weird that it took that long to show abnormality in my EMG, but my symptoms were acute. Does a purely sensory GBS exist?
@tylersparks8188 Жыл бұрын
My son was diagnosed with this a month ago, has severe nerve damage was in full paralysis but can now move his head and face, slight shoulder movement and can get a foot to wiggle every now and then, it happened so quick we took him to the ER they sent him home with antibiotics saying he had strep and stomach virus, 2 hours later we drove him to childrens hospital and by the time we made it there he could not stand and had to be put on a vent immediately!!!! It’s scary because of how fast this happened, went from walking that morning to not being able to stand or breathe that night and then after being in the ICU his body went into full paralysis…I pray more info comes out for this and more awareness because I had never heard of GBS until he had gotten it, it still seams surreal because it happened so quick and you never think it will be your kid, we’ve been in the ICU for a month now still on the vent with some small improvements, they’re wanting to put a trach in so they can get him out of the ICU to the physical therapy floor to work with him, I hope no one has to ever go through this with a child or loved one and if you are goin through this I pray for you and just know you’re not alone ❤
@dessimartinovski Жыл бұрын
Oh Lord! I pray that God shows mercy to your son and your family. I pray for miraculous recovery right now. I speak complete healing in the mighty name of Jesus. No weapon will prosper against your son because God has great plans for him! I rebuke every sickness right now and release healing and joy and peace over you in Jesus name !
@tylersparks8188 Жыл бұрын
@@dessimartinovski thank you very much 🙏🏻
@stevekuxhausen79813 жыл бұрын
I had GBS in 1997 and fully recovered but had weakness and pain for several years, particularly after stress or tired. I found that i needed extra rest to cope and recover. I avoid most inoculations but recently had the Moderna jab for COVID. Although GBS is not common, I have known 4 people who had it, one of whom is still paralyzed after 25 years.
@geetahussain85453 жыл бұрын
i had GBS in 2017. I am fully recovered. I took both does of my astrazeneca vaccine and so far i am good.
@raindrops10473 жыл бұрын
May me you were burnout simply
@teacherkat70052 жыл бұрын
@@geetahussain8545 how are you now after being vaccinated by astra several months ago?
@iliepetcan17362 жыл бұрын
@@teacherkat7005 hi dear
@molly5262 Жыл бұрын
Would not have chanced taking the Covid vaccines. I had GBS 5 years ago & the pain/recovery was terrible & long. Right now I personally know 2 people who’ve gotten GBS from the Covid vaccine. The number is much higher than what is being reported.
@jeffsanderson55963 жыл бұрын
I had it when I was 21. One of the lucky ones, it didn't shut down my heart a s lungs.. I was told not to have flu vaccines as I could have a relapse.. I've never had a flu vaccine in my life and for that matter, I couldn't tell you when I've had the flu.. Meanwhile I've been told by many they get the flu shot but end up getting the flu... lol 🤔🤔
@goopypegasus-77403 жыл бұрын
Are you an antivaxxer or is this just poorly worded lol
@mh-ml5no3 жыл бұрын
i caught mine 7 years ago from a sinus infection
@danielzielke99973 жыл бұрын
Jeff, I've never had a flu shot in my life either, and as far I know, have never had "the flu". It appears the jury is still out on the safety and efficacy of some vaccinations. My thinking is, don't be messing with your immune system if you can avoid doing so. My own brother will not let me visit him because I haven't had the COVID vaccine shot. This, the same man I visited in the hospital with Epstein-Barr and he never once made an issue about passing on HIS infection, while I was in his hospital room. Go figure. All most of these videos prove is that the "scientists" are mostly guessing and jumping to their own conclusions. And that Fauci is just an over-paid fraud in my opinion. Makes more money than the president of the US and never leaves his administrative desk to step foot in the actual laboratories ... just another political bureaucrat with ties to the pharmaceutical industry.
@tabitham10573 жыл бұрын
@@goopypegasus-7740 well they literally can’t get the flu shot. my mom has GBS.
@goopypegasus-77403 жыл бұрын
@@tabitham1057 I was talking about the last part where they said they’d never gotten the flu despite not having a flu shot but they know people who’ve had the shot and still got the flu. It kinda sounds like they’re saying vaccines don’t work
@classicfanfr50962 жыл бұрын
I had gbs when I was just 2 years old and thankfully recovered but came back just this Jan 2022 and I'm now 14 and I'm still at the hospital as I'm writing this comment currently recovering in rehab
@janeteddddd Жыл бұрын
Do not get any v accines..no matter what drs tell you..they are toxic!
@shilomcwolf84162 жыл бұрын
i contracted GBS in 1999 and became quadruplegic,i have partially recovered but now diagnosed as an incomplete quadruplegic but still hete after 23 years aged 71, i was given a process called plasmapharesis several times a week to seperate the white blood cells from the red then replace white cells with plasma, its not fun, wishing all with this disease the very best
@comestayawhilewithl56962 жыл бұрын
I'm waiting to be diagnosed. My family doctor thinks I have the beginning stages of MS. One neurologist said he thought it was sensory neuropathy and wanted to give me medications that I turned down. I'm not diabetic. I don't smoke or use alcohol. I'm seeing a different neurologist now. Next week I'll do a nerve conductive test. Depending on what the results are he said I may need a spinal tap. I have lost some of my reflexes in my knees. My MRI results showed some flares that were called white matter disease. This Guillain-Barrr'e was also brought up. So I'm still going through symptoms that started awhile back. The fatigue started in 2017 and the doctor thought it was shift work disorder. The fatigue is getting worse. Pins/needles and numbness in my hands and feet. My lips have a buzzing feeling and have moved on their on for like a second. I get twitches off and on in my face. But no one can see the twitches. My right thumb has moved in the past by itself. My right side has been effected the most. But I have symptoms on both sides. I can park my car and sometimes it feels like the car is still moving. My balance is off sometimes but I haven't fallen. It's one thing to have to deal with a health issue. But adding the fear of not being able to keep your job is awful. I can't see myself not being able to support myself. I use to be a six mile runner and now just being out in the heat wears me out. My legs feel like my shoes are weighted down. It's like everything you are going through is invisible to others while you are hurting in front of everyone. My voice changed a year ago. First I thought it was allergies.I take medication for my thyroid. I've been to see different specialist and now it's in a neurologist hands to tell me what is going on.
@proudmummy2 жыл бұрын
Have you recently have the Covid vaccine? This has caused very similarly symptoms in me aswell as lots of other people. I am 33 years old and 3 days after my third vaccine I developed symptoms like yours.
@comestayawhilewithl56962 жыл бұрын
@@proudmummy No
@GD-cr5um2 жыл бұрын
@@proudmummy my 68 Ur old partner took the pfeizer vaccine and has got diagnosed with gbs today. Stay away from that vaccine
@janeteddddd Жыл бұрын
Do not inject the MRI gadolinium dye..its toxic and causes pain and serious health problems. MRI Gadolinium Toxicity Support Group online. No contrast dye!
@gbthegreat Жыл бұрын
@@proudmummy how long did your symptoms last?
@markwallace12463 жыл бұрын
Love your videos and teaching style. Please keep up your wonderful work. Thank you
@TexasFire_Cross3 жыл бұрын
My wife is a pediatric PT who treated a few patients with Guillain-Barré years ago. She is currently admitted to a hospital and suspected of having Guillain-Barré. Hopefully she will be getting treatments like IVIG soon.
@SagebrushRambles2 жыл бұрын
Soon? I was started on IVIG within a few hours of being diagnosed. That is not something they hold off on.
@alexlifeson8946 Жыл бұрын
Stop vaccinating and live longer
@trewilliams3453 Жыл бұрын
I am a 22 year old survivor of this it was many dark days fr !
@shaji13058 ай бұрын
Any side effects? How u feel now?
@trewilliams34538 ай бұрын
@@shaji1305 I’m feeling well I workout everyday !
@PriyaKumari-ul8oq2 жыл бұрын
The way they explain is appreciate
@hereweareyrdr66933 жыл бұрын
Really beautiful. Thank you 🙏🏼 Take care everyone ☮️
@Mermaid22613 жыл бұрын
so this is an autoimmune condition of a sorts where the antibodies produced against and invader start attacking health nervous tissue, too.
@moira_more2 жыл бұрын
I had this, this year, after campylobacter and dysentery which also caused critically low phosphate. My speech is still affected when I’m tired. I get tired a lot. I still braved a trip to India (thanks to the pandemic my marriage was cancelled repeatedly for 1.5 years so I had to go there to marry my fiancé or we’d have prolonged our separation) … it would have cost more for him to come to the U.K. for us to marry … and then I caught another stomach infection in India - but I’ve been ok. No more nervous system problems … Just extreme fatigue. Now I’m working 6-7 days a week to get my husband over here - fast. We lost a lot of money in the past 1.5 years due to repeatedly trying to get together and failed plans so I now need to work overtime to help cover costs (which we are paying together but it’s a lot of money) otherwise I’m potentially waiting another 12 months to be reunited with my husband. So I’m killing myself with work when I don’t feel well enough to, just so I can have my husband with me. Only then can I reduce my hours down to acceptable levels to help me recover. It’s extremely unfair what we have to keep going through. Such a battle.
@prateekkhincha55542 жыл бұрын
Wish you the best. Stay strong!
@santelder3 жыл бұрын
I was diagnosed with small bowel cancer last year .I am on chemotherapy after having half my bowel removed .The chemo can cause similar symptoms to GB .I have numbness in my toes and fingers they are so weak i cannot open any packaging or do up buttons or press studs on clothing etc .Even cant get the cream out of the tube the McMillan nurses gave me to use on my feet and toes .I was told to take Vit B6 perodoxine hydrochloride .
@Rrrrcc46663 жыл бұрын
How are you doing now? I hope you are feeling better Kathryn. If possible plz search Metaphysical Anatomy channel on youtube and Listen to Evette Rose plz. I wish you healing and good luck 🙏🙏.
@GD-cr5um2 жыл бұрын
@@Rrrrcc4666 does she help
@hairywitch40633 жыл бұрын
There are actually 5 versions and one starts from the head down.
@maheedhararavi81453 жыл бұрын
Very informative for lay person like me. Thanks
@ayeshabrown90695 ай бұрын
Thank you, was so easy to understand and compare to the treatment we give our patients on wards.
@Alma-tz8km3 жыл бұрын
This picture should be enough to make diagnosis, but my husband doctor refused to give plasma pheresis life saving treatment. Another doctor did testing and notice elevation of protein in spine. It almost cost my husband life because the delay in treatment one week after recuperating from covid
@garyv24983 жыл бұрын
I had GBS in early 2018 and boy was it fun! All as you described, including the facial weakness which I have not fully recovered from. The best part was the tingling toes and fingers and me wishing it was nothing serious. Oh, and the "spinal tap" which freaked me out. All caused by... not what listed here.. but RSV.... a virus that mostly effects children and 42 year old men name Gary.
@garyv24983 жыл бұрын
OH, I forgot. The best part was the $200,000 + medical bill.
@PurpleHermitcrab3 жыл бұрын
😂 i had gbs when i was 5. my favorite part was when they stuck a needle in my hand, but my relentless 5 yr old self took 6 nurses to pin me down so they could actually put the needle in my hand. and ah yes the spinal tap. i was asleep for that part but remember waking up to a nurse trying to force me to drink apple juice. all caused by... a flu shot. and i still get unbearable pains in my hips
@DrDY-us4rg3 жыл бұрын
This was an amazing concised explanation 😇
@ZeroToFinals3 жыл бұрын
Thanks 😊
@shashikantpalve173 жыл бұрын
Types missed
@german_lifestyle_tajbakhsh72823 ай бұрын
Doctors in Germany could not diagnose me till now and im researching desperately to find such a correct video. I don’t know if Covid vaccines could have caused this issue or not
@AllenBarclayAllen2 ай бұрын
1919 this was known .
@german_lifestyle_tajbakhsh72822 ай бұрын
@@AllenBarclayAllen I'm not still sure. It seems I suffer from fungal systemic infection
@brendafore4309 Жыл бұрын
I had Guillain Barre Syndrome in 1985. Return home from 1st semester of college, recognizing extreme weakness in my legs. Not much was known then about GBS. Spent one night in the hospital and sent home. By the grace of God and an my family taking care of me, I recovered. It's an ordeal I would not like to go back through. I pray for all who are experiencing GBS.
@cynthiawilliams2013 Жыл бұрын
What kind of treatment did you go through
@brendafore4309 Жыл бұрын
In 1985, I recieved no treatments. The doctor asked my mother to monitor my breathing. I never saw that doctor again. There after, I eventually recovered on my own at home.
@jewinmacalalag15444 ай бұрын
how months till you recovered?
@brendafore43094 ай бұрын
@@jewinmacalalag1544 It took about 9 months to fully recover.
@jewinmacalalag15444 ай бұрын
@@brendafore4309 can i ask again? i have this kind of syndrome right now. what were you doing at home when you had gbs?
@richardcrossland8456 Жыл бұрын
I contracted this 4 years ago. I went from being able to walk normally to unable to walk at all in 5 days. Very scary. Fortunately, my local doctor worked it out after 2 other docs couldn't. He got me to hospital rapido the next day. I was able to walk again after 3 weeks and have made a full recovery, as it was mild atypical, but scary enough at that!
@josephinenamugenyi2526 Жыл бұрын
Briefly tell me about the medication you used and the therapy coz my mum has just got it
@auntijen37813 жыл бұрын
Molecular mimicry, B cells Create Antibodies against the existing pathogen Same antibioies match proteins on the Nerve cells Target protein cells on the Myelin sheath (motor nerve or on the nerve axon itself) this targeting of the nerve cells creates the neuropathy
@anastasia3677 Жыл бұрын
I am right now at the hospital and I have all the symptoms for 5days now. The doctors still have not confirmed the diagnosis since my bone marrow test was fine, also I can walk and my weakness is not that bad. But I still feel numbness in my limbs and I’m so scared reading these comments 😢😢😢
@nj2825 Жыл бұрын
How are you now? What happened? I had a flu last week and I have weird numbness in my calves that increases up to my thighs after prolonged sitting, but I can walk
@rewindandrestartАй бұрын
Same for me- what was it??
@anastasia367729 күн бұрын
@@rewindandrestart they said I don’t have the disease it seems that it was post Covid . I was prescribed antidepressants and my numbness went away. The psychiatrist said lots of her patients had this after Covid
@ittaiklein85413 жыл бұрын
Very good video. Clear, Concise, Instructive. Thank You.
@urseldoran97823 жыл бұрын
It killed my sister. Total paralysis, took five years to die with a breathing tube in the throat flat on her back.
@ahemersohel59513 жыл бұрын
Which type of gbs she had?
@Christine-wu9tx3 жыл бұрын
My God, I'm so sorry for your loss 😢 *Hugs*
@BallyBoy953 жыл бұрын
That's actually horrific. I genuinely am sorry to hear that, stay strong pal.
@aqleemamir96173 жыл бұрын
My sister died with in a month
@rachelreed25163 жыл бұрын
I was diagnosed in 2017, ventilator, plasmapheresis, weeks in hospital, home in a wheelchair. I walk with bilateral afos and a cane. My new neurologist just told me in my 15min visit, that I never had gbs because at 41yrs old I would have been fully recovered at 3 MONTHS!!!! Gee, thanks doc. (I think he bought his PhD)
@asie573 жыл бұрын
I got GBS from the flu shot in 2008. I still suffer from neuropathy, loss of balance, low energy, and my vision is worse. I belong to a support group, and almost everyone still has lingering issues from GBS, so I’m not sure if the 80% recovery rate is accurate. My primary doctor said that the medical community has a different way to define “recovered”. Basically if you can do some basic things for yourself you’re considered recovered. You can feel like crap, but if you can wipe yourself, you’re recovered
@georgiaantohi98273 жыл бұрын
So sorry to hear that, sending much love
@teacherkat70052 жыл бұрын
How are you now?
@asie572 жыл бұрын
@@teacherkat7005 my energy is still low. I still have lingering issues (neuropathy, low energy, loss of balance). I can’t stand for much longer than 10 minutes at a time. I look pretty healthy, that makes things more difficult because people don’t believe I’m in as bad as shape as I am. This is something I’m gonna have to live with unfortunately
@teacherkat70052 жыл бұрын
@@asie57 do you take any vitamins good for the nerves? Praying for your full recovery 🙏🙏
@asie572 жыл бұрын
@@teacherkat7005 I don’t know of any that are particularly good for the nerves. I do know that cannabis oil relieves the neuropathy some
@eddieramirez51612 ай бұрын
Thank you for this. It was very easy to understand.
@NayaRuth Жыл бұрын
My husband had this due to dengue. Luckily I noticed the signs right away (because I had a client who had this and learned from her). Signs were slowly losing strength/ grip on hands then arms then legs. He started limping. I told him to check himself to the hospital and the Doctor knew it right away. 24H after he was in ICU, the dengue rash showed up. The whole ordeal happened in just two weeks.
@matthewhunt7972 жыл бұрын
I had it about 2 weeks ago, also tested positive for covid but showed no significant symptoms for it... pretty much 70/80% paralysed on my left side!! I was given a transfusion of human normal immunoglobulin for 5 days (sick every time) but they caught it early and about a week later was back to my old self 👍
@tameshwarchaitram63182 жыл бұрын
Considered your self as a lucky person to recover so quickly I hope you are ok now
@Bella_03032 жыл бұрын
How are you doing now? Still showing no symptoms
@tameshwarchaitram63182 жыл бұрын
@@Bella_0303 just a little Trimble in the hands that's all
@matthewhunt7972 жыл бұрын
@@Bella_0303 alot better thanks, I'd say I felt back to normal a few weeks before Xmas.. hopefully there's nothing long term 🤞
@Bella_03032 жыл бұрын
@@matthewhunt797 what tests did you have to do and how soon did they catch it? Might be experiencing this myself :/
@francinewintzmbbs49773 жыл бұрын
Thank you!
@saschaesken55243 жыл бұрын
This is what wie expect from vaccines
@donnanugent7054 ай бұрын
I had it in 1979 at the age of 27. Never received any sort of IV. Put my mom through hell one night when I came close to needing respiratory aid...but thankfully it wasn't necessary and started my slow recovery process. I did have a full facial paralysis that recovered. All in all it was an experience I don't wish on anyone.
@elisabetejardim9446 Жыл бұрын
Excellent video, thank you so much! Well done! 👏🏻👏🏻👏🏻
@junli8473 жыл бұрын
thank you so much for this video! Very helpful for helping my refreshing.
@marcodepellegrin2814 Жыл бұрын
Yes, it is a vaccine adverse reaction.
@marcodepellegrin2814 Жыл бұрын
Just like Bell's palsy, min. 02:40
@Ook1731 Жыл бұрын
I developed Guillain-Barre after a mmr vaccine. I was told if I didn't get it,I wouldn't be put on the schedule. I Received the Vax March 23 March 24th I was swollen with aches and pain. I'm ferious!
@christinabrueggemann28292 жыл бұрын
So the prognosis of full recovery is 80%? In school we were told it is 90%. Maybe our material isn't updated. Great video, thanks!
@staggerlee20113 жыл бұрын
It can move much faster than he gives the impression here. I saw 53 cases in1994. Water transmission. Everything depends on correct diagnosis, very quickly, you present light cold symptoms on waking, go to work, feel like heavy flu at midday, in bed you become remote and distant and complain of lack of sensation in feet, legs, hips, laboured breathing. If not in ICU by about five pm same day, they can't bring you back, palliative care till you die before midnight, same day. ICU care is higher standard than Covid19. Famous rugby player survived for a couple of years before dying. Everyone was in the outpatients of the same hospital on the same day 6 weeks earlier, all came down on same day, new airconditioning blasted damp air toward outpatients. No inpatients or nurses affected. This can move very quickly; most Western countries couldn't cope with a large outbreak. Covid is a "weak" virus.