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In this video, you will hear from Dr. Dave Viskochil, Director of the University of Utah NF Clinic, and Dr. Kaleb Yohay, the NYU Langone NF Clinic director, presenting the recent changes to the diagnostic criteria for neurofibromatosis type 1 (NF1). Alwyn Dias, a young father, husband, and professional living with NF1, joins the discussion with insightful questions that will help us better understand how these changes may impact those living with NF1. Our sincerest thanks to each of our participants; please send any comments or questions to CTF Patient Support Coordinator Kate Kelts at kkelts@ctf.org
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For more information, please visit www.ctf.org/nfcriteria
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Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
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