Vascular Ehlers-Danlos syndrome: Introduction and new criteria

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Күн бұрын

Vascular Ehlers-Danlos syndrome: Introduction and new criteria by Dr. Fransiska Malfait, clinical geneticist, Center of Medical Genetics, Ghent University Hospital, Ghent, Belgium.
This video gives an introduction to vascular Ehlers-Danlos syndrome (vEDS) and presents the major and minor clinical criteria for vEDS from the 2017 International Classification for all types of Ehlers-Danlos syndromes published in the American Journal of Human Genetics. The Villefranche Nosology is also mentioned. Intended for medical students, trainees or other healthcare professionals. Video in English.
This Pill of knowledge (PoK) video was filmed at the Medium-Sized Arteries Working Group (MSA WG)'s face to face meeting and vascular Ehlers-Danlos syndrome (vEDS) study day in London on July 1st, 2019 with support from the Ehlers-Danlos Society.
PoKs are the deliverable for VASCERN Work Package 4 on Pills of Knowledge, defined as short single video lessons in which an expert talks about a specific topic that has been selected and validated by the Rare Disease Working Groups (RDWGs).
To learn more about the MSA-WG: vascern.eu/expertise/rare-dis...

Пікірлер: 10

@SD-cl6xt Жыл бұрын

It should be made common knowledge that an informal diagnosis is still good enough for comprehensive prolotherapy so that you don’t have to pay and suffer through years of further testing to know which type you have while you die waiting to afford a formal diagnosis

@SD-cl6xt Жыл бұрын

Loose neck ligament are the cause of neurological symptoms in EDS. It causes pinching, compression and irritation of the vital nerves and compression of vital arteries and fluid drainage pathways to and from the brain. Comprehensive prolotherapy of all vertebrae joints and casings is an effective treatment when done in addition to realignment therapy Pinching of vital nerves such as the vagus nerve due to laxity in ligaments of the cervical spine is the cause of gastroperesis in EDS Patients along with many other neurological conditions including sudden stopping of the heart. Ruptures in most all organs and vascular tissues can be prevented with infarred light therapy 60 watts LED 1-2 feet away for 5mins to half hour sessions repeated every week to six weeks depending on the area and severity of laxity or weakening. With proper eye protection ofcourse.

@chaverim5189 3 жыл бұрын

Thank you for the interesting lecture. May I ask a question about it. I do suffer from several diseases: a chronic pancreatitis, a pancreas malformation, a pancreatic insufficiency, a gastroparesis, a chronic pain syndrome, the arteria mesenterica superior syndrome, a prinzmetal angina pectoris, a heart insufficiency, a heart valve insufficiency, the ehlers danlos syndrome type vascular and a recurrent subvolvulus. We don't know if these diseases correlate with each other or not. If you have any links or information about it, I would be very grateful. Sorry for my question I hope it was not too long. Thank you for the great podcast and the explanation.

@SD-cl6xt Жыл бұрын

Go to the daring medical clinic in Tampa Florida he can resolve your neurological symptoms

@bonniemoerdyk9809 Жыл бұрын

@@SD-cl6xt .... I googled ... "daring medical clinic Tampa, Florida" ~ NOTHING comes up. Could you please give an address or something to help me find where you are referring...please & Thank You!!

@SD-cl6xt Жыл бұрын

I hypothesize that comprehensive prolotherapy as described by dr Hauser at the caring medical clinic in Tampa florida for treatments of mobility issues and neurological symptoms in addition to infared light therapy for the vascular system when done properly and together can extend the life of these patients significantly along with quality of life.

@SD-cl6xt Жыл бұрын

Immediate studies need to be done on type 3 collagen and the successful treatment of the vascular system with infrared light therapy specifically 60watts LED on the healing invisible red spectrum

@savagesfortruth Жыл бұрын

Unm hospital was aware of my medical problems at birth never informed my doctor 👨‍⚕️ r my mother I have suffered years of medical problems and experiments

@oh2887 Жыл бұрын

I'm sorry that the doctors were so irresponsible in your case and you had to go through that. I was dismissed by general practioner, when i said I saw signs in my daughter. Turns out I was right and the doctor was an ignorant fool. Best wishes to you, its not easy.

@E.t_Eden Ай бұрын

UNM as in New Mexico? I'm in that area and haven't found any help and have had to advocate for my health as doctors have not.