Blood in the urine is an important symptom to discuss with your doctor who will probably want to run more tests to determine what is causing the blood in your urine. There are different lab tests which can give your doctor a good idea of how well your kidneys are working so if you are worried that you might have kidney damage you should make an appointment as soon as possible. Flare is a term used to describe when the inflammation from vasculitis returns after being under control. During a flare, the inflammation can cause new damage to blood vessels and possibly major organs so it is important to find out if you are having a flare so you can begin treatment to control the inflammation. Your doctor may use imaging tests, lab work, and your own description of your symptoms to help determine if you are having a vasculitis flare. You may find these resources helpful: Preventing Progressive Kidney Disease in Vasculitis: kzfaq.info/get/bejne/e7iRf8qBzqibdp8.html Vasculitis and the Kidneys: kzfaq.info/get/bejne/aN57aauDyrqddHk.html You can also contact our Patient Support Coordinator if you have additional questions and she can steer you to resources to help answer your questions. www.vasculitisfoundation.org/connect/

We are so sorry to hear that you are still experiencing such overwhelming fatigue, but happy to hear you have been able to stay in remission with low dose prednisolone. The VF has some wonderful virtual support groups where you can connect with other people who understand the struggle of living with vasculitis. You can find out more about them here www.vasculitisfoundation.org/living-well/find-support/

I feel your pain. I was diagnosed with GPA in 2019 and im tired of being used as an experiment..

Here is a webinar we did on remission that covers this question, and other issues related to flares and remission. Thank you. kzfaq.info/get/bejne/pOB8Y6aims3OlY0.html

We are so sorry to hear that you feel like your treatment isn't working. Here is a link to our webpage with treatment guidelines for GPA in both plain language versions and in the original format that was written for healthcare providers. www.vasculitisfoundation.org/anca-associated-vasculitis-gpa-mpa-egpa-guidelines/ You can find out more information about GPA (including treatments) here www.vasculitisfoundation.org/education/vasculitis-types/granulomatosis-with-polyangiitis/ We also have online (Zoom) support groups www.vasculitisfoundation.org/living-well/find-support/ and an online chat community where you can connect with others who have GPA www.inspire.com/groups/vasculitis-voices/ Don't hesitate to reach out to us with other questions www.vasculitisfoundation.org/connect/

We are so sorry to hear about the horrible symptoms you experienced but glad you received an accurate diagnosis so that you got the proper treatment. If you have not already connected with some of the other resources the Vasculitis Foundation offers such as in-person conferences, virtual support groups, and live webinars you may find them helpful. Many people mention that meeting other people with vasculitis on the support groups or at in-person conferences has been especially helpful and validating. You can find out more on our website www.vasculitisfoundation.org/